Anyone's child allergic to aspergiliosis?

Mommy2Alysa · Mar 13, 2009

Alysa was just tested to see if she is allergic to aspergiliosis (sp?) and turns out she is.. just wondering if anyone else has a little one with the same thing? Her blood test came back with normal levels so if she has it in her lungs then it is not really affecting her yet.

They have put her on singular to help her with her symptoms.

Thanks in advance.

Mommy2Alysa · Mar 13, 2009

Alysa was just tested to see if she is allergic to aspergiliosis (sp?) and turns out she is.. just wondering if anyone else has a little one with the same thing? Her blood test came back with normal levels so if she has it in her lungs then it is not really affecting her yet.

They have put her on singular to help her with her symptoms.

Thanks in advance.

Mommy2Alysa · Mar 13, 2009

Alysa was just tested to see if she is allergic to aspergiliosis (sp?) and turns out she is.. just wondering if anyone else has a little one with the same thing? Her blood test came back with normal levels so if she has it in her lungs then it is not really affecting her yet.

They have put her on singular to help her with her symptoms.

Thanks in advance.

Mommy2Alysa · Mar 13, 2009

Alysa was just tested to see if she is allergic to aspergiliosis (sp?) and turns out she is.. just wondering if anyone else has a little one with the same thing? Her blood test came back with normal levels so if she has it in her lungs then it is not really affecting her yet.

They have put her on singular to help her with her symptoms.

Thanks in advance.

Mommy2Alysa · Mar 13, 2009

Alysa was just tested to see if she is allergic to aspergiliosis (sp?) and turns out she is.. just wondering if anyone else has a little one with the same thing? Her blood test came back with normal levels so if she has it in her lungs then it is not really affecting her yet.
 
 They have put her on singular to help her with her symptoms.
 
 Thanks in advance.

TonyaH · Mar 13, 2009

Hi there,
Yes, Andrew has ABPA. It shows up on his cultures most of the time. I want to say his IgE level is something like 1300. I know it's over 1000. Once he was diagnosed he was given a prednisone burst, and now he is on every other day prednisone. This has helped stabilize him tremendously, as before his diagnosis he was in the hospital three times right in a row to treat his PA. Now we know the aspergillus had something to do with it, too. We are not treating with an antifungal as of now, but if syptoms worsen we know we have that option.

I knew something was up, because although we were treating his exacerbations as bacterial infections, it always seemed he had more of an allergy component. Once we found the ABPA everything made sense. Good luck with Alysa! It's great that she is not culturing it yet!

TonyaH · Mar 13, 2009

Hi there,
Yes, Andrew has ABPA. It shows up on his cultures most of the time. I want to say his IgE level is something like 1300. I know it's over 1000. Once he was diagnosed he was given a prednisone burst, and now he is on every other day prednisone. This has helped stabilize him tremendously, as before his diagnosis he was in the hospital three times right in a row to treat his PA. Now we know the aspergillus had something to do with it, too. We are not treating with an antifungal as of now, but if syptoms worsen we know we have that option.

I knew something was up, because although we were treating his exacerbations as bacterial infections, it always seemed he had more of an allergy component. Once we found the ABPA everything made sense. Good luck with Alysa! It's great that she is not culturing it yet!

TonyaH · Mar 13, 2009

Hi there,
Yes, Andrew has ABPA. It shows up on his cultures most of the time. I want to say his IgE level is something like 1300. I know it's over 1000. Once he was diagnosed he was given a prednisone burst, and now he is on every other day prednisone. This has helped stabilize him tremendously, as before his diagnosis he was in the hospital three times right in a row to treat his PA. Now we know the aspergillus had something to do with it, too. We are not treating with an antifungal as of now, but if syptoms worsen we know we have that option.

I knew something was up, because although we were treating his exacerbations as bacterial infections, it always seemed he had more of an allergy component. Once we found the ABPA everything made sense. Good luck with Alysa! It's great that she is not culturing it yet!

TonyaH · Mar 13, 2009

Hi there,
Yes, Andrew has ABPA. It shows up on his cultures most of the time. I want to say his IgE level is something like 1300. I know it's over 1000. Once he was diagnosed he was given a prednisone burst, and now he is on every other day prednisone. This has helped stabilize him tremendously, as before his diagnosis he was in the hospital three times right in a row to treat his PA. Now we know the aspergillus had something to do with it, too. We are not treating with an antifungal as of now, but if syptoms worsen we know we have that option.

I knew something was up, because although we were treating his exacerbations as bacterial infections, it always seemed he had more of an allergy component. Once we found the ABPA everything made sense. Good luck with Alysa! It's great that she is not culturing it yet!

TonyaH · Mar 13, 2009

Hi there,
 Yes, Andrew has ABPA. It shows up on his cultures most of the time. I want to say his IgE level is something like 1300. I know it's over 1000. Once he was diagnosed he was given a prednisone burst, and now he is on every other day prednisone. This has helped stabilize him tremendously, as before his diagnosis he was in the hospital three times right in a row to treat his PA. Now we know the aspergillus had something to do with it, too. We are not treating with an antifungal as of now, but if syptoms worsen we know we have that option.
 
 I knew something was up, because although we were treating his exacerbations as bacterial infections, it always seemed he had more of an allergy component. Once we found the ABPA everything made sense. Good luck with Alysa! It's great that she is not culturing it yet!

MissAlexsBP · Mar 13, 2009

Hello!

I actually have ABPA, and like TonyaH's son I every now and then have "flair ups," and get put on Predinsone. I hate being on Predinsone so instead of a really high dose for a long time, I go on a slightly high dose with Bactrum ( I'm pretty sure it's an antifungal). Last time I was on it for about a year-or-so, and then my IgE finally got down to a reasonable level. Like Andrew's my IgE was somewhere over 1000. But, I know that the prednisone does the trick. It's not a permenant treatment, but in bursts it manages it until the next flair up.

I have been hospitalized a few times, but I think the APBA just was treated during the hospitalization.

good luck with Alysa! Feel free to contact me if ya ever want to! <img src="i/expressions/face-icon-small-smile.gif" border="0">

MissAlexsBP · Mar 13, 2009

Hello!

I actually have ABPA, and like TonyaH's son I every now and then have "flair ups," and get put on Predinsone. I hate being on Predinsone so instead of a really high dose for a long time, I go on a slightly high dose with Bactrum ( I'm pretty sure it's an antifungal). Last time I was on it for about a year-or-so, and then my IgE finally got down to a reasonable level. Like Andrew's my IgE was somewhere over 1000. But, I know that the prednisone does the trick. It's not a permenant treatment, but in bursts it manages it until the next flair up.

I have been hospitalized a few times, but I think the APBA just was treated during the hospitalization.

good luck with Alysa! Feel free to contact me if ya ever want to! <img src="i/expressions/face-icon-small-smile.gif" border="0">

MissAlexsBP · Mar 13, 2009

Hello!

I actually have ABPA, and like TonyaH's son I every now and then have "flair ups," and get put on Predinsone. I hate being on Predinsone so instead of a really high dose for a long time, I go on a slightly high dose with Bactrum ( I'm pretty sure it's an antifungal). Last time I was on it for about a year-or-so, and then my IgE finally got down to a reasonable level. Like Andrew's my IgE was somewhere over 1000. But, I know that the prednisone does the trick. It's not a permenant treatment, but in bursts it manages it until the next flair up.

I have been hospitalized a few times, but I think the APBA just was treated during the hospitalization.

good luck with Alysa! Feel free to contact me if ya ever want to! <img src="i/expressions/face-icon-small-smile.gif" border="0">

MissAlexsBP · Mar 13, 2009

Hello!

I actually have ABPA, and like TonyaH's son I every now and then have "flair ups," and get put on Predinsone. I hate being on Predinsone so instead of a really high dose for a long time, I go on a slightly high dose with Bactrum ( I'm pretty sure it's an antifungal). Last time I was on it for about a year-or-so, and then my IgE finally got down to a reasonable level. Like Andrew's my IgE was somewhere over 1000. But, I know that the prednisone does the trick. It's not a permenant treatment, but in bursts it manages it until the next flair up.

I have been hospitalized a few times, but I think the APBA just was treated during the hospitalization.

good luck with Alysa! Feel free to contact me if ya ever want to! <img src="i/expressions/face-icon-small-smile.gif" border="0">

MissAlexsBP · Mar 13, 2009

Hello!
 
 I actually have ABPA, and like TonyaH's son I every now and then have "flair ups," and get put on Predinsone. I hate being on Predinsone so instead of a really high dose for a long time, I go on a slightly high dose with Bactrum ( I'm pretty sure it's an antifungal). Last time I was on it for about a year-or-so, and then my IgE finally got down to a reasonable level. Like Andrew's my IgE was somewhere over 1000. But, I know that the prednisone does the trick. It's not a permenant treatment, but in bursts it manages it until the next flair up.
 
 I have been hospitalized a few times, but I think the APBA just was treated during the hospitalization.
 
 good luck with Alysa! Feel free to contact me if ya ever want to! <img src="i/expressions/face-icon-small-smile.gif" border="0">

tammykrumrey · Mar 13, 2009

We are actually dealing with this right now. Kayla had been sick for a while, and after two weeks of oral Cipro and Bactrim, still not feeling great. Last Friday she had what I thought an asthma attack would be (neither one of my girls have asthma, that I am aware of). I called the pulmo on call at the hospital and they had me give her albuterol, which seemed to help.

I called clinic on Monday, and they had me bring her in for admittance. The first thing the admitting CF dr mentioned was ABPA. It actually had never really crossed my mind. She was tested for allergies about two years ago, and she was allergic to trees and molds, including asperillius. She cultured aspergillus two years ago, but it went away on it's own. Their CF dr said just b/c she cultured it doesn't mean she was allergic to it.

In the past four years or so her IgE levels have been over 500, each year going up a bit. Last month they were 1073 and on Monday they came back at over 1100. So, she was further tested for ABPA. Our hospital does three different tests to confirm ABPA, and all three came back positive.

Kayla did PFTs yesterday, and they were at 80%--she was at 105% one month ago. So she had a significant drop.

She is on three IV antibiotics right now. We are not treating for the ABPA yet. They want to make sure how aggresive they need to be with it, but want to make sure how much it is actually affecting her. She will re-do PFTs on Tuesday, and if they are better, then we know it's the MRSA or Cepacia that is causing her problems. If they are not up, then it very well can be the ABPA, and we will need to treat it agressively.

The drs also looked back at her CT scan that was done two years ago, and they said that the brochiastis (sp?) that she has is consistent with ABPA.

I'm sorry if this is TMI, but since I am going through all this right now, I was on a role<img src="i/expressions/face-icon-small-smile.gif" border="0">

tammykrumrey · Mar 13, 2009

We are actually dealing with this right now. Kayla had been sick for a while, and after two weeks of oral Cipro and Bactrim, still not feeling great. Last Friday she had what I thought an asthma attack would be (neither one of my girls have asthma, that I am aware of). I called the pulmo on call at the hospital and they had me give her albuterol, which seemed to help.

I called clinic on Monday, and they had me bring her in for admittance. The first thing the admitting CF dr mentioned was ABPA. It actually had never really crossed my mind. She was tested for allergies about two years ago, and she was allergic to trees and molds, including asperillius. She cultured aspergillus two years ago, but it went away on it's own. Their CF dr said just b/c she cultured it doesn't mean she was allergic to it.

In the past four years or so her IgE levels have been over 500, each year going up a bit. Last month they were 1073 and on Monday they came back at over 1100. So, she was further tested for ABPA. Our hospital does three different tests to confirm ABPA, and all three came back positive.

Kayla did PFTs yesterday, and they were at 80%--she was at 105% one month ago. So she had a significant drop.

She is on three IV antibiotics right now. We are not treating for the ABPA yet. They want to make sure how aggresive they need to be with it, but want to make sure how much it is actually affecting her. She will re-do PFTs on Tuesday, and if they are better, then we know it's the MRSA or Cepacia that is causing her problems. If they are not up, then it very well can be the ABPA, and we will need to treat it agressively.

The drs also looked back at her CT scan that was done two years ago, and they said that the brochiastis (sp?) that she has is consistent with ABPA.

I'm sorry if this is TMI, but since I am going through all this right now, I was on a role<img src="i/expressions/face-icon-small-smile.gif" border="0">

tammykrumrey · Mar 13, 2009

We are actually dealing with this right now. Kayla had been sick for a while, and after two weeks of oral Cipro and Bactrim, still not feeling great. Last Friday she had what I thought an asthma attack would be (neither one of my girls have asthma, that I am aware of). I called the pulmo on call at the hospital and they had me give her albuterol, which seemed to help.

I called clinic on Monday, and they had me bring her in for admittance. The first thing the admitting CF dr mentioned was ABPA. It actually had never really crossed my mind. She was tested for allergies about two years ago, and she was allergic to trees and molds, including asperillius. She cultured aspergillus two years ago, but it went away on it's own. Their CF dr said just b/c she cultured it doesn't mean she was allergic to it.

In the past four years or so her IgE levels have been over 500, each year going up a bit. Last month they were 1073 and on Monday they came back at over 1100. So, she was further tested for ABPA. Our hospital does three different tests to confirm ABPA, and all three came back positive.

Kayla did PFTs yesterday, and they were at 80%--she was at 105% one month ago. So she had a significant drop.

She is on three IV antibiotics right now. We are not treating for the ABPA yet. They want to make sure how aggresive they need to be with it, but want to make sure how much it is actually affecting her. She will re-do PFTs on Tuesday, and if they are better, then we know it's the MRSA or Cepacia that is causing her problems. If they are not up, then it very well can be the ABPA, and we will need to treat it agressively.

The drs also looked back at her CT scan that was done two years ago, and they said that the brochiastis (sp?) that she has is consistent with ABPA.

I'm sorry if this is TMI, but since I am going through all this right now, I was on a role<img src="i/expressions/face-icon-small-smile.gif" border="0">

tammykrumrey · Mar 13, 2009

We are actually dealing with this right now. Kayla had been sick for a while, and after two weeks of oral Cipro and Bactrim, still not feeling great. Last Friday she had what I thought an asthma attack would be (neither one of my girls have asthma, that I am aware of). I called the pulmo on call at the hospital and they had me give her albuterol, which seemed to help.

I called clinic on Monday, and they had me bring her in for admittance. The first thing the admitting CF dr mentioned was ABPA. It actually had never really crossed my mind. She was tested for allergies about two years ago, and she was allergic to trees and molds, including asperillius. She cultured aspergillus two years ago, but it went away on it's own. Their CF dr said just b/c she cultured it doesn't mean she was allergic to it.

In the past four years or so her IgE levels have been over 500, each year going up a bit. Last month they were 1073 and on Monday they came back at over 1100. So, she was further tested for ABPA. Our hospital does three different tests to confirm ABPA, and all three came back positive.

Kayla did PFTs yesterday, and they were at 80%--she was at 105% one month ago. So she had a significant drop.

She is on three IV antibiotics right now. We are not treating for the ABPA yet. They want to make sure how aggresive they need to be with it, but want to make sure how much it is actually affecting her. She will re-do PFTs on Tuesday, and if they are better, then we know it's the MRSA or Cepacia that is causing her problems. If they are not up, then it very well can be the ABPA, and we will need to treat it agressively.

The drs also looked back at her CT scan that was done two years ago, and they said that the brochiastis (sp?) that she has is consistent with ABPA.

I'm sorry if this is TMI, but since I am going through all this right now, I was on a role<img src="i/expressions/face-icon-small-smile.gif" border="0">

tammykrumrey · Mar 13, 2009

We are actually dealing with this right now. Kayla had been sick for a while, and after two weeks of oral Cipro and Bactrim, still not feeling great. Last Friday she had what I thought an asthma attack would be (neither one of my girls have asthma, that I am aware of). I called the pulmo on call at the hospital and they had me give her albuterol, which seemed to help.
 
 I called clinic on Monday, and they had me bring her in for admittance. The first thing the admitting CF dr mentioned was ABPA. It actually had never really crossed my mind. She was tested for allergies about two years ago, and she was allergic to trees and molds, including asperillius. She cultured aspergillus two years ago, but it went away on it's own. Their CF dr said just b/c she cultured it doesn't mean she was allergic to it.
 
 In the past four years or so her IgE levels have been over 500, each year going up a bit. Last month they were 1073 and on Monday they came back at over 1100. So, she was further tested for ABPA. Our hospital does three different tests to confirm ABPA, and all three came back positive.
 
 Kayla did PFTs yesterday, and they were at 80%--she was at 105% one month ago. So she had a significant drop.
 
 She is on three IV antibiotics right now. We are not treating for the ABPA yet. They want to make sure how aggresive they need to be with it, but want to make sure how much it is actually affecting her. She will re-do PFTs on Tuesday, and if they are better, then we know it's the MRSA or Cepacia that is causing her problems. If they are not up, then it very well can be the ABPA, and we will need to treat it agressively.
 
 The drs also looked back at her CT scan that was done two years ago, and they said that the brochiastis (sp?) that she has is consistent with ABPA.
 
 I'm sorry if this is TMI, but since I am going through all this right now, I was on a role<img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyone's child allergic to aspergiliosis?

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