Are you kidding me?!?!

[jacksmom]

Has anyone had a crazy extreme increase for their pulmozyme?
Ours went from 60 dollars a month to 1,297.28 a month!
Thank goodness we have a secondary insurance for my son that pays our copays, but we might not for our daughter once she is born.
I talked the local CF clinic and was told about programs out there to help with co-pays but wanted to know if anyone else had an increase?
Something even crazier is that the drug is over $5000 dollars from the pharmacy we are forced to use (by our health insurance company), but when someone from the CF team contacted a rep from the company that makes pulmozyme they were told that the drug costs around $2500
Maybe there is a reason why the pharmacys contracted rate is so high but I can't figure it out.

 

[jacksmom]

Has anyone had a crazy extreme increase for their pulmozyme?
Ours went from 60 dollars a month to 1,297.28 a month!
Thank goodness we have a secondary insurance for my son that pays our copays, but we might not for our daughter once she is born.
I talked the local CF clinic and was told about programs out there to help with co-pays but wanted to know if anyone else had an increase?
Something even crazier is that the drug is over $5000 dollars from the pharmacy we are forced to use (by our health insurance company), but when someone from the CF team contacted a rep from the company that makes pulmozyme they were told that the drug costs around $2500
Maybe there is a reason why the pharmacys contracted rate is so high but I can't figure it out.

 

[kitomd21]

Oh my gosh. That's insane!! Ours hasn't increased...but it's due to be refilled...yikes!!

 

[kitomd21]

Oh my gosh. That's insane!! Ours hasn't increased...but it's due to be refilled...yikes!!

 

[Lex]

Are you paying your 2012 deductible?

 

[Lex]

Are you paying your 2012 deductible?

 

[Mommafirst]

wow! Ours did go up, but not that much!!

 

[Mommafirst]

wow! Ours did go up, but not that much!!

 

[threebabies]

Our insurance pays about 4,000 for a three month supply. Thank goodness for insurance.



Gina
Mom to Sophia 4 w/cf, Peter and Gavin 2 w/cf df508 & py849x

 

[threebabies]

Our insurance pays about 4,000 for a three month supply. Thank goodness for insurance.



Gina
Mom to Sophia 4 w/cf, Peter and Gavin 2 w/cf df508 & py849x

 

[jacksmom]

We don't have to pay it right now since my son has medicare as a secondary insurance, but not sure what we are going after my daughter is born and she starts on pulmozyme. Hopefully the program my CF clinic told me about that helps make copays affordable will help.
I am furious about the increase! My husband is diabetic and we are concerned about the increase of his medications as well

 

[jacksmom]

We don't have to pay it right now since my son has medicare as a secondary insurance, but not sure what we are going after my daughter is born and she starts on pulmozyme. Hopefully the program my CF clinic told me about that helps make copays affordable will help.
I am furious about the increase! My husband is diabetic and we are concerned about the increase of his medications as well

 

[CJPsMom]

We saw an increase in our enzymes, but I think it's related to the new calendar year. I hope.

 

[CJPsMom]

We saw an increase in our enzymes, but I think it's related to the new calendar year. I hope.

 

[Ratatosk]

I have noticed for the past couple years meds have increased significantly. I'll find out this afternoon about DS' pulmozyme. Our copay is usually 20% until we meet our out of pocket maximum of $1000. Then we have either a $15 or $30 copay. I suspect I'll be pay the pharmacist several hundred dollars today.

 

[Ratatosk]

I have noticed for the past couple years meds have increased significantly. I'll find out this afternoon about DS' pulmozyme. Our copay is usually 20% until we meet our out of pocket maximum of $1000. Then we have either a $15 or $30 copay. I suspect I'll be pay the pharmacist several hundred dollars today.

 

[Ratatosk]

Oh and I believe both the companies who make Pulmozyme and Tobi have drug assistance programs. We were on Tobi assistance until we were no longer financially eligible.

 

[Ratatosk]

Oh and I believe both the companies who make Pulmozyme and Tobi have drug assistance programs. We were on Tobi assistance until we were no longer financially eligible.

 

[JENNYC]

Yikes!!! How scary!! Our pulmozyme is $100 a month and I just refilled yesterday, I know I couldn't afford it going up that much! And mine does show me the actual cost of the med and it shows to be like $2900.00 we get it through Right Source Specialty Pharmacy and before that we got it through CareMark Specialty Pharm and it was $2500 actual cost with them. $5000 sounds like quite the price gouge! Bless your heart, I hope that our doesn't eventually follow suit.

 

[JENNYC]

Yikes!!! How scary!! Our pulmozyme is $100 a month and I just refilled yesterday, I know I couldn't afford it going up that much! And mine does show me the actual cost of the med and it shows to be like $2900.00 we get it through Right Source Specialty Pharmacy and before that we got it through CareMark Specialty Pharm and it was $2500 actual cost with them. $5000 sounds like quite the price gouge! Bless your heart, I hope that our doesn't eventually follow suit.