Are you pushing yourself?

D

DragonReborn

New member
Just want to see how many of you CF adults are saying F-U to CF and pushing yourselves.

my story:

I am 26 y/o male. Married, working full time, graduate student at USC, and a triathlete.

I recently completed the Los Angeles Triathlon and placed well for my first time (placing in the top 20% for the swimming leg).

I exercise 5-6 times per week, swimming in the ocean and pool, mountain and road biking, and street and trail running. I am planning on doing a half ironman next year, and increasing my ranking in the Olympic distance triathlon I did this year. And competing in Ironman Hawaii within the next three to four years (after grad school!)

I do pulmozyme, tobi, zithromax, and saline water and rarely miss a day.

I read every night at 10:30 - 11:00, sleep at 11:00 and wake at 8:15 every day (except Sunday, where I wake at 5:45 to swim in the ocean).

I eat 2 meals a day of rice, meat, veggies and soup, and one of toast, yogurt and fruit, and always take my enzymes.

My goals are to love my wife as much as possible, have a few kids, explore the world, make a few million, and live life as much as I can.

I realize that I have a disease that afects my life, but it is a blessing. It has shown me that I have to push myself, and I have to hold every minute as precious.

Who is with me? Tell me your stories!
 
D

DragonReborn

New member
Just want to see how many of you CF adults are saying F-U to CF and pushing yourselves.

my story:

I am 26 y/o male. Married, working full time, graduate student at USC, and a triathlete.

I recently completed the Los Angeles Triathlon and placed well for my first time (placing in the top 20% for the swimming leg).

I exercise 5-6 times per week, swimming in the ocean and pool, mountain and road biking, and street and trail running. I am planning on doing a half ironman next year, and increasing my ranking in the Olympic distance triathlon I did this year. And competing in Ironman Hawaii within the next three to four years (after grad school!)

I do pulmozyme, tobi, zithromax, and saline water and rarely miss a day.

I read every night at 10:30 - 11:00, sleep at 11:00 and wake at 8:15 every day (except Sunday, where I wake at 5:45 to swim in the ocean).

I eat 2 meals a day of rice, meat, veggies and soup, and one of toast, yogurt and fruit, and always take my enzymes.

My goals are to love my wife as much as possible, have a few kids, explore the world, make a few million, and live life as much as I can.

I realize that I have a disease that afects my life, but it is a blessing. It has shown me that I have to push myself, and I have to hold every minute as precious.

Who is with me? Tell me your stories!
 
D

DragonReborn

New member
Just want to see how many of you CF adults are saying F-U to CF and pushing yourselves.

my story:

I am 26 y/o male. Married, working full time, graduate student at USC, and a triathlete.

I recently completed the Los Angeles Triathlon and placed well for my first time (placing in the top 20% for the swimming leg).

I exercise 5-6 times per week, swimming in the ocean and pool, mountain and road biking, and street and trail running. I am planning on doing a half ironman next year, and increasing my ranking in the Olympic distance triathlon I did this year. And competing in Ironman Hawaii within the next three to four years (after grad school!)

I do pulmozyme, tobi, zithromax, and saline water and rarely miss a day.

I read every night at 10:30 - 11:00, sleep at 11:00 and wake at 8:15 every day (except Sunday, where I wake at 5:45 to swim in the ocean).

I eat 2 meals a day of rice, meat, veggies and soup, and one of toast, yogurt and fruit, and always take my enzymes.

My goals are to love my wife as much as possible, have a few kids, explore the world, make a few million, and live life as much as I can.

I realize that I have a disease that afects my life, but it is a blessing. It has shown me that I have to push myself, and I have to hold every minute as precious.

Who is with me? Tell me your stories!
 
A

Allie

New member
Ry hiked, acted, sang, danced. He didn't do marathons or anything (hated running), but I think he lived his life well. He enjoyed every moment he could of it. He still went out with his friends, went on trips, he never let CF tell him he wasn't supposed to.

He married, we have a daughter, own our home, saw some sights, got his college degree, and basically did whatever.

I guess I never really thought of it as saying FU to CF, because he did his treatments, and acknowledged Cf's role in his life, it jsut didn't dominate. To me, it was just Ry being Ry.
 
A

Allie

New member
Ry hiked, acted, sang, danced. He didn't do marathons or anything (hated running), but I think he lived his life well. He enjoyed every moment he could of it. He still went out with his friends, went on trips, he never let CF tell him he wasn't supposed to.

He married, we have a daughter, own our home, saw some sights, got his college degree, and basically did whatever.

I guess I never really thought of it as saying FU to CF, because he did his treatments, and acknowledged Cf's role in his life, it jsut didn't dominate. To me, it was just Ry being Ry.
 
A

Allie

New member
Ry hiked, acted, sang, danced. He didn't do marathons or anything (hated running), but I think he lived his life well. He enjoyed every moment he could of it. He still went out with his friends, went on trips, he never let CF tell him he wasn't supposed to.

He married, we have a daughter, own our home, saw some sights, got his college degree, and basically did whatever.

I guess I never really thought of it as saying FU to CF, because he did his treatments, and acknowledged Cf's role in his life, it jsut didn't dominate. To me, it was just Ry being Ry.
 
W

wanderlost

New member
I have always said F-U to CF, in both healthy and non-healthy ways. I was a swimmer through high school - team captain and state contender, so that was a big F-U, and at the same token I was quite the hippie girl partaking in plenty of extracurriculars that go with that lifestyle, and to me that was also a big F-U.
I am less atheletic now (I practice yoga) and less living a hippie-lifestyle, but I definitely want to be better on my medical treatments and cardiovascular exercise as a more mature way of saying F-U. I have 2 children, so that gives me a lot of incentive to keep saying a bif F-U to CF.
 
W

wanderlost

New member
I have always said F-U to CF, in both healthy and non-healthy ways. I was a swimmer through high school - team captain and state contender, so that was a big F-U, and at the same token I was quite the hippie girl partaking in plenty of extracurriculars that go with that lifestyle, and to me that was also a big F-U.
I am less atheletic now (I practice yoga) and less living a hippie-lifestyle, but I definitely want to be better on my medical treatments and cardiovascular exercise as a more mature way of saying F-U. I have 2 children, so that gives me a lot of incentive to keep saying a bif F-U to CF.
 
W

wanderlost

New member
I have always said F-U to CF, in both healthy and non-healthy ways. I was a swimmer through high school - team captain and state contender, so that was a big F-U, and at the same token I was quite the hippie girl partaking in plenty of extracurriculars that go with that lifestyle, and to me that was also a big F-U.
I am less atheletic now (I practice yoga) and less living a hippie-lifestyle, but I definitely want to be better on my medical treatments and cardiovascular exercise as a more mature way of saying F-U. I have 2 children, so that gives me a lot of incentive to keep saying a bif F-U to CF.
 
J

Jade

Guest
Not ready to tell my story yet, but I do understand your perspective. Whatever works just keep it up. I know everyone is different but It's good to see people living their life on top of CF and not under it.<img src="i/expressions/face-icon-small-cool.gif" border="0">
 
J

Jade

Guest
Not ready to tell my story yet, but I do understand your perspective. Whatever works just keep it up. I know everyone is different but It's good to see people living their life on top of CF and not under it.<img src="i/expressions/face-icon-small-cool.gif" border="0">
 
J

Jade

Guest
Not ready to tell my story yet, but I do understand your perspective. Whatever works just keep it up. I know everyone is different but It's good to see people living their life on top of CF and not under it.<img src="i/expressions/face-icon-small-cool.gif" border="0">
 
N

NoExcuses

New member
well FIGHT ON.

What are you studying at SC?

I have a Bachelors in Business Administraiton and a Bachelors in International Relations from there. Class of '03.

I'm currently applying for my MBA.
 
N

NoExcuses

New member
well FIGHT ON.

What are you studying at SC?

I have a Bachelors in Business Administraiton and a Bachelors in International Relations from there. Class of '03.

I'm currently applying for my MBA.
 
N

NoExcuses

New member
well FIGHT ON.

What are you studying at SC?

I have a Bachelors in Business Administraiton and a Bachelors in International Relations from there. Class of '03.

I'm currently applying for my MBA.
 
F

Fruity

New member
I love to say FU to my CF! Hah. Most days I don't even think about
it in the context of slowing me down or influencing my decisions
unless it's a decision that could compromise my health (ie, I
wanted to be a nurse, and I chose not to because as much as I would
have loved to be a nurse, it would have been too high risk for my
body)<br>
At this point, I am fighting other problems with my body that are
slowing me down. My CF hasn't ever been the sole reason why I
haven't done something.<br>
<br>
I was diagnosed at 14 years old, I used to do everything, swim,
gymnastics, roller blade, bike, and then in a course of a
year, I lost my grandmother, had a horrible boy friend whom I
am still recovering from, got diagnosed with CF, and my body just
sort of failed on me. Now, I take pulmozyme, and saline water, do
40 minutes of "the vest" everyday and take a lot of
supplements. I have a fairly restricted diet, but not because of
CF. I'm doing better, but I am still unable to exercise in any sort
of regularity because I am having many other issues with my body,
the main one being a psoas muscle that spasms and contracts in
pain with very little exertion. So yeah. CF can go F***
itself. I like to live life without it as a consideration, only
bringing it in on the decisions that it has to be apart of.<br>
<br>
Power to you. I'm glad you've found a routine that is working. I'm
looking forward to finding mine in it's entirety.<br>
<br>
Be well.<br>
<br>
Ceci
 
F

Fruity

New member
I love to say FU to my CF! Hah. Most days I don't even think about
it in the context of slowing me down or influencing my decisions
unless it's a decision that could compromise my health (ie, I
wanted to be a nurse, and I chose not to because as much as I would
have loved to be a nurse, it would have been too high risk for my
body)<br>
At this point, I am fighting other problems with my body that are
slowing me down. My CF hasn't ever been the sole reason why I
haven't done something.<br>
<br>
I was diagnosed at 14 years old, I used to do everything, swim,
gymnastics, roller blade, bike, and then in a course of a
year, I lost my grandmother, had a horrible boy friend whom I
am still recovering from, got diagnosed with CF, and my body just
sort of failed on me. Now, I take pulmozyme, and saline water, do
40 minutes of "the vest" everyday and take a lot of
supplements. I have a fairly restricted diet, but not because of
CF. I'm doing better, but I am still unable to exercise in any sort
of regularity because I am having many other issues with my body,
the main one being a psoas muscle that spasms and contracts in
pain with very little exertion. So yeah. CF can go F***
itself. I like to live life without it as a consideration, only
bringing it in on the decisions that it has to be apart of.<br>
<br>
Power to you. I'm glad you've found a routine that is working. I'm
looking forward to finding mine in it's entirety.<br>
<br>
Be well.<br>
<br>
Ceci
 
F

Fruity

New member
I love to say FU to my CF! Hah. Most days I don't even think about
it in the context of slowing me down or influencing my decisions
unless it's a decision that could compromise my health (ie, I
wanted to be a nurse, and I chose not to because as much as I would
have loved to be a nurse, it would have been too high risk for my
body)<br>
At this point, I am fighting other problems with my body that are
slowing me down. My CF hasn't ever been the sole reason why I
haven't done something.<br>
<br>
I was diagnosed at 14 years old, I used to do everything, swim,
gymnastics, roller blade, bike, and then in a course of a
year, I lost my grandmother, had a horrible boy friend whom I
am still recovering from, got diagnosed with CF, and my body just
sort of failed on me. Now, I take pulmozyme, and saline water, do
40 minutes of "the vest" everyday and take a lot of
supplements. I have a fairly restricted diet, but not because of
CF. I'm doing better, but I am still unable to exercise in any sort
of regularity because I am having many other issues with my body,
the main one being a psoas muscle that spasms and contracts in
pain with very little exertion. So yeah. CF can go F***
itself. I like to live life without it as a consideration, only
bringing it in on the decisions that it has to be apart of.<br>
<br>
Power to you. I'm glad you've found a routine that is working. I'm
looking forward to finding mine in it's entirety.<br>
<br>
Be well.<br>
<br>
Ceci
 
C

cdale613

New member
I also work out 5-6 days a week. Ran competitively in college - 4:34 mile, 55:26 15k, etc.... Currently run and bike a lot, and am getting ready for a marathon next spring.

I have a masters degree in public policy, am engaged, work full time, etc. etc. I miss the student schedule... I'm usually to bed around 11 and up at 6:30 for PT and meds. Work 9-5:30, workout from 5:30-7:00, dinner, meds, relax, bed.
 
C

cdale613

New member
I also work out 5-6 days a week. Ran competitively in college - 4:34 mile, 55:26 15k, etc.... Currently run and bike a lot, and am getting ready for a marathon next spring.

I have a masters degree in public policy, am engaged, work full time, etc. etc. I miss the student schedule... I'm usually to bed around 11 and up at 6:30 for PT and meds. Work 9-5:30, workout from 5:30-7:00, dinner, meds, relax, bed.
 
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