Asthma and CF

anonymous

New member
Hi! Its been a while since ive posted, just busy!!! My daughters ages 5 and 7 had their PFTs for the first time yesterday and the Dr said they have mild asthma. She put one of the girls on Singulair and tols me to keep they youngest on Pumocort since shes already been using it. Do any of your children also have asthma? Can it make CF symptoms worse? Thanks! Jen R PS My oldest gained 2 pounds in the past 3 months!!!!! I was sooooo happy, her weight was starting to concern the nutritionist!!!!
 

anonymous

New member
hia, i have asthma and CF, im on singulair, phyllocontin, ventolin and loads of others!!!! asthma symptoms and CF symptoms are quite similar and cross over a lot so its not so much that it makes it worse, its just there are more symptoms! im just more wheezy than i used to be and slightly less tolerant of exercise. but its always debatable as to whether thats due to the CF or the asthma! just one thing to look for, if they are prone to tightness, watch that the method of physio you are using isnt making that worse....i do AD, a breathing technique, no percussion, because otherwise i tighten up and its hard to clear stuff.glad to hear about the gaining weight thing, SO important because the more weight you have on you the better you can fight infections. <img src="i/expressions/face-icon-small-smile.gif" border="0"> take care and good luck
 

anonymous

New member
Hi - my son also has a big asthma component to his cf. Can you explain a little about the breathing technique you use. Just recently, my son has been complaining more about the vest saying it hurts. He doesn't complain with the accupella. He is only six, so I am not sure whether he is just being angry or maybe it truly does hurt. Any info. would be greatly appreciated. Thanks.Jo Ann
 

anonymous

New member
the physio technique i use is called AD, am pretty sure that stands for autogenic drainage. it consentrates soley on the breathing, and u breathe v gently so as not to aggravate the airways, that will make them narrow and renders physio useless.i breath in slowly and fairly deeply, then hold it for a good 3 seconds, then open my mouth really wide (they recommend one of those cardboard peak flow mouthpieces when learning to make sure your mouth is wide open enough) and breath out with a kind of "huuuuh" sound. force the breath out slightly, but not so much that it makes you wheeze. i do about 5 breaths per cycle, and however many cycles it takes. holding your breath gives the air time to disperse fully around the lungs, and in doing so it will move behind some of the mucus plugs clogging certain airways. then when u breathe out, the air moves the mucus upwards, and when it gets to the top it is easy to clear!! personally i usually find no matter how gently i do physio i still get wheezy, but this is the best one for me, and i tend not to clear at the time, but lots of stuff comes up later when my airways have settled down. hope that helps! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

anonymous

New member
I do autogenic drainage as well. You will need to be trained on how to do it properly, but it's not hard at all and your doc should be able to help. The vest can hurt from time to time, he might feel itchy b/c of the circulation, don't be afraid to tinker with the setting. Your son isn't fibbing, although he may do it up a little. The AD is recomended to be used in conjunction with other methods. However, it requires disclipline! So it may not be right for a six year old, I would recomend doing it togeather. Even if he learns it and does well, keep using the vest or try a flutter valve b/c sometimes nothing beats a beating.Debbie22 yr old w/ CF
 
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