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B. Cepacia symptoms??
- Thread starter khmommy
- Start date
Hi Khmommy!!
Just reading your post and I thought I could offer some assistance.
I was dx's Sept 29th 2006 with B.Cepacia. It was growing for a month before the micro-biologist had the test results back.I felt very well.
Within a week of getting dx I became ill.
Coughing up a lot of sputum lots of it, sweats, wheeze and PFT went down!!
My doctor said "everyone react differently" and it will be like another infection.
It does depend on the strain of B.Cepacia mine was three and have no idea. But that the Cepacia can or will become sensitive to Antibiotics.
Three ways it can go:
Once patients acquire an infection with B. cepacia complex bacteria, clinical progression of the disease follows one of three commonly observed patterns, namely (i). no change in lung function and clinical status, (2). acceleration of decline in pulmonary function and (3). fatal decline over a relatively short periods. This is sometimes accompanied by septicaemia, which is often referred to as the "cepacia syndrome".
I have attached a link for you
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismedicine.com/htmldocs/CFText/bcepacia.htm#path
">http://www.cysticfibrosismedic...ext/bcepacia.htm#path
</a>
I finished the Ivs two weeks and two days and there was a blip in my PFT and alot of green sputum some blood and back on IVS yesterday. I reckon I have number 2 listed above.
They are saying to me this time it's the B.Cepacia and probably Stenotrophomonas which I also grew in September. And left me with these words "we don't have a drug for Cepacia really.
But I am praying and being positive that I will get a break for a while FEELING GOOD after these IVS.
The doctor took a sputum sample and sent it off it will take a while to grow cultures and I am hoping Cepacia might be gone and it was Stenotrophomonas.
I am trying to keep well putting a lot of emphasises on Chest Physo.
Generally looking after myself and not trying to get upset it's hard because I do not know the outcome and will I be on more IVS so shortly again after theses!?
At the CF room the doctor and CF nurses wear aprons and gloves while they attend to me and keep everyone away (other CF sufferers).
Have you got it? I hope the information I sent to might help you. Take care!!!
---------------------------
Sunflower
36 yrs old CF/ABPA/Asthma/B.Cepacia
Just reading your post and I thought I could offer some assistance.
I was dx's Sept 29th 2006 with B.Cepacia. It was growing for a month before the micro-biologist had the test results back.I felt very well.
Within a week of getting dx I became ill.
Coughing up a lot of sputum lots of it, sweats, wheeze and PFT went down!!
My doctor said "everyone react differently" and it will be like another infection.
It does depend on the strain of B.Cepacia mine was three and have no idea. But that the Cepacia can or will become sensitive to Antibiotics.
Three ways it can go:
Once patients acquire an infection with B. cepacia complex bacteria, clinical progression of the disease follows one of three commonly observed patterns, namely (i). no change in lung function and clinical status, (2). acceleration of decline in pulmonary function and (3). fatal decline over a relatively short periods. This is sometimes accompanied by septicaemia, which is often referred to as the "cepacia syndrome".
I have attached a link for you
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismedicine.com/htmldocs/CFText/bcepacia.htm#path
">http://www.cysticfibrosismedic...ext/bcepacia.htm#path
</a>
I finished the Ivs two weeks and two days and there was a blip in my PFT and alot of green sputum some blood and back on IVS yesterday. I reckon I have number 2 listed above.
They are saying to me this time it's the B.Cepacia and probably Stenotrophomonas which I also grew in September. And left me with these words "we don't have a drug for Cepacia really.
But I am praying and being positive that I will get a break for a while FEELING GOOD after these IVS.
The doctor took a sputum sample and sent it off it will take a while to grow cultures and I am hoping Cepacia might be gone and it was Stenotrophomonas.
I am trying to keep well putting a lot of emphasises on Chest Physo.
Generally looking after myself and not trying to get upset it's hard because I do not know the outcome and will I be on more IVS so shortly again after theses!?
At the CF room the doctor and CF nurses wear aprons and gloves while they attend to me and keep everyone away (other CF sufferers).
Have you got it? I hope the information I sent to might help you. Take care!!!
---------------------------
Sunflower
36 yrs old CF/ABPA/Asthma/B.Cepacia
Hi Khmommy!!
Just reading your post and I thought I could offer some assistance.
I was dx's Sept 29th 2006 with B.Cepacia. It was growing for a month before the micro-biologist had the test results back.I felt very well.
Within a week of getting dx I became ill.
Coughing up a lot of sputum lots of it, sweats, wheeze and PFT went down!!
My doctor said "everyone react differently" and it will be like another infection.
It does depend on the strain of B.Cepacia mine was three and have no idea. But that the Cepacia can or will become sensitive to Antibiotics.
Three ways it can go:
Once patients acquire an infection with B. cepacia complex bacteria, clinical progression of the disease follows one of three commonly observed patterns, namely (i). no change in lung function and clinical status, (2). acceleration of decline in pulmonary function and (3). fatal decline over a relatively short periods. This is sometimes accompanied by septicaemia, which is often referred to as the "cepacia syndrome".
I have attached a link for you
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismedicine.com/htmldocs/CFText/bcepacia.htm#path
">http://www.cysticfibrosismedic...ext/bcepacia.htm#path
</a>
I finished the Ivs two weeks and two days and there was a blip in my PFT and alot of green sputum some blood and back on IVS yesterday. I reckon I have number 2 listed above.
They are saying to me this time it's the B.Cepacia and probably Stenotrophomonas which I also grew in September. And left me with these words "we don't have a drug for Cepacia really.
But I am praying and being positive that I will get a break for a while FEELING GOOD after these IVS.
The doctor took a sputum sample and sent it off it will take a while to grow cultures and I am hoping Cepacia might be gone and it was Stenotrophomonas.
I am trying to keep well putting a lot of emphasises on Chest Physo.
Generally looking after myself and not trying to get upset it's hard because I do not know the outcome and will I be on more IVS so shortly again after theses!?
At the CF room the doctor and CF nurses wear aprons and gloves while they attend to me and keep everyone away (other CF sufferers).
Have you got it? I hope the information I sent to might help you. Take care!!!
---------------------------
Sunflower
36 yrs old CF/ABPA/Asthma/B.Cepacia
Just reading your post and I thought I could offer some assistance.
I was dx's Sept 29th 2006 with B.Cepacia. It was growing for a month before the micro-biologist had the test results back.I felt very well.
Within a week of getting dx I became ill.
Coughing up a lot of sputum lots of it, sweats, wheeze and PFT went down!!
My doctor said "everyone react differently" and it will be like another infection.
It does depend on the strain of B.Cepacia mine was three and have no idea. But that the Cepacia can or will become sensitive to Antibiotics.
Three ways it can go:
Once patients acquire an infection with B. cepacia complex bacteria, clinical progression of the disease follows one of three commonly observed patterns, namely (i). no change in lung function and clinical status, (2). acceleration of decline in pulmonary function and (3). fatal decline over a relatively short periods. This is sometimes accompanied by septicaemia, which is often referred to as the "cepacia syndrome".
I have attached a link for you
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismedicine.com/htmldocs/CFText/bcepacia.htm#path
">http://www.cysticfibrosismedic...ext/bcepacia.htm#path
</a>
I finished the Ivs two weeks and two days and there was a blip in my PFT and alot of green sputum some blood and back on IVS yesterday. I reckon I have number 2 listed above.
They are saying to me this time it's the B.Cepacia and probably Stenotrophomonas which I also grew in September. And left me with these words "we don't have a drug for Cepacia really.
But I am praying and being positive that I will get a break for a while FEELING GOOD after these IVS.
The doctor took a sputum sample and sent it off it will take a while to grow cultures and I am hoping Cepacia might be gone and it was Stenotrophomonas.
I am trying to keep well putting a lot of emphasises on Chest Physo.
Generally looking after myself and not trying to get upset it's hard because I do not know the outcome and will I be on more IVS so shortly again after theses!?
At the CF room the doctor and CF nurses wear aprons and gloves while they attend to me and keep everyone away (other CF sufferers).
Have you got it? I hope the information I sent to might help you. Take care!!!
---------------------------
Sunflower
36 yrs old CF/ABPA/Asthma/B.Cepacia
Hi Khmommy!!
Just reading your post and I thought I could offer some assistance.
I was dx's Sept 29th 2006 with B.Cepacia. It was growing for a month before the micro-biologist had the test results back.I felt very well.
Within a week of getting dx I became ill.
Coughing up a lot of sputum lots of it, sweats, wheeze and PFT went down!!
My doctor said "everyone react differently" and it will be like another infection.
It does depend on the strain of B.Cepacia mine was three and have no idea. But that the Cepacia can or will become sensitive to Antibiotics.
Three ways it can go:
Once patients acquire an infection with B. cepacia complex bacteria, clinical progression of the disease follows one of three commonly observed patterns, namely (i). no change in lung function and clinical status, (2). acceleration of decline in pulmonary function and (3). fatal decline over a relatively short periods. This is sometimes accompanied by septicaemia, which is often referred to as the "cepacia syndrome".
I have attached a link for you
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismedicine.com/htmldocs/CFText/bcepacia.htm#path
">http://www.cysticfibrosismedic...ext/bcepacia.htm#path
</a>
I finished the Ivs two weeks and two days and there was a blip in my PFT and alot of green sputum some blood and back on IVS yesterday. I reckon I have number 2 listed above.
They are saying to me this time it's the B.Cepacia and probably Stenotrophomonas which I also grew in September. And left me with these words "we don't have a drug for Cepacia really.
But I am praying and being positive that I will get a break for a while FEELING GOOD after these IVS.
The doctor took a sputum sample and sent it off it will take a while to grow cultures and I am hoping Cepacia might be gone and it was Stenotrophomonas.
I am trying to keep well putting a lot of emphasises on Chest Physo.
Generally looking after myself and not trying to get upset it's hard because I do not know the outcome and will I be on more IVS so shortly again after theses!?
At the CF room the doctor and CF nurses wear aprons and gloves while they attend to me and keep everyone away (other CF sufferers).
Have you got it? I hope the information I sent to might help you. Take care!!!
---------------------------
Sunflower
36 yrs old CF/ABPA/Asthma/B.Cepacia
Just reading your post and I thought I could offer some assistance.
I was dx's Sept 29th 2006 with B.Cepacia. It was growing for a month before the micro-biologist had the test results back.I felt very well.
Within a week of getting dx I became ill.
Coughing up a lot of sputum lots of it, sweats, wheeze and PFT went down!!
My doctor said "everyone react differently" and it will be like another infection.
It does depend on the strain of B.Cepacia mine was three and have no idea. But that the Cepacia can or will become sensitive to Antibiotics.
Three ways it can go:
Once patients acquire an infection with B. cepacia complex bacteria, clinical progression of the disease follows one of three commonly observed patterns, namely (i). no change in lung function and clinical status, (2). acceleration of decline in pulmonary function and (3). fatal decline over a relatively short periods. This is sometimes accompanied by septicaemia, which is often referred to as the "cepacia syndrome".
I have attached a link for you
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismedicine.com/htmldocs/CFText/bcepacia.htm#path
">http://www.cysticfibrosismedic...ext/bcepacia.htm#path
</a>
I finished the Ivs two weeks and two days and there was a blip in my PFT and alot of green sputum some blood and back on IVS yesterday. I reckon I have number 2 listed above.
They are saying to me this time it's the B.Cepacia and probably Stenotrophomonas which I also grew in September. And left me with these words "we don't have a drug for Cepacia really.
But I am praying and being positive that I will get a break for a while FEELING GOOD after these IVS.
The doctor took a sputum sample and sent it off it will take a while to grow cultures and I am hoping Cepacia might be gone and it was Stenotrophomonas.
I am trying to keep well putting a lot of emphasises on Chest Physo.
Generally looking after myself and not trying to get upset it's hard because I do not know the outcome and will I be on more IVS so shortly again after theses!?
At the CF room the doctor and CF nurses wear aprons and gloves while they attend to me and keep everyone away (other CF sufferers).
Have you got it? I hope the information I sent to might help you. Take care!!!
---------------------------
Sunflower
36 yrs old CF/ABPA/Asthma/B.Cepacia
westonsmom
New member
That was really informative. Thanks.
westonsmom
New member
That was really informative. Thanks.
westonsmom
New member
That was really informative. Thanks.