Bad Dr Appt Today

jamie6girl · Jan 22, 2008

I haven't really felt very good the last few weeks, and I knew that I would probably need to get back on IV's or something to get me back to my usual self. 
Please keep in mind that I've only done IV's twice in my life, the second time was last Oct, the first time was back when I was like 14 or 15, so the concept of Picc Lines still scares me right now. 
I called the doc today and they said they could get me in today, so I went up there and of course my lung function dropped again. 
He scheduled me for a picc line tomorrow and said that after that I would want to look into getting a port. The thought of a port scares the living crap out of me, and it turns my stomach thinking about it. I think about how sore my arm is when I got the picc, and the thought of a port makes me sick to my stomach. 
He also said that since my lung function tests have been consistently low for so long, that this is usually the time that people go on the transplant list. To actually hear him say this - I can't even put into words what this did to me. He said that this doesn't mean I need one now, but this is where people would do this for the future. 
He said that I could get a port on a Friday and go back to work on Monday. Is this true? I thought I'd have to take a week off or something. When I got a picc in Oct, my boss let me work from home. I guess I am going to have to "man up" and come to work and do my daily things with a stupid cord hanging out of my arm. I know that everyone else does this, but how does one work a full time 40 hours a week and have all this going on? I am going to have to just accept that I will be on IV's a lot now, and just learn how to live my life and this will be "normal" for me. 
Any suggestions on how to deal with all this and still function as a human being? I came back to work after my doc appt when really all I want to do is go home and curl up on the couch and cry. 
Also, I want to add, that it doesn't help that I work with a bunch of work-a-holics that will continue to work even when their kids are sick at school or will rather go without eating just to knock out a few extra emails. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
Thanks for any advice that you can give me.

jamie6girl · Jan 22, 2008

I haven't really felt very good the last few weeks, and I knew that I would probably need to get back on IV's or something to get me back to my usual self. 
Please keep in mind that I've only done IV's twice in my life, the second time was last Oct, the first time was back when I was like 14 or 15, so the concept of Picc Lines still scares me right now. 
I called the doc today and they said they could get me in today, so I went up there and of course my lung function dropped again. 
He scheduled me for a picc line tomorrow and said that after that I would want to look into getting a port. The thought of a port scares the living crap out of me, and it turns my stomach thinking about it. I think about how sore my arm is when I got the picc, and the thought of a port makes me sick to my stomach. 
He also said that since my lung function tests have been consistently low for so long, that this is usually the time that people go on the transplant list. To actually hear him say this - I can't even put into words what this did to me. He said that this doesn't mean I need one now, but this is where people would do this for the future. 
He said that I could get a port on a Friday and go back to work on Monday. Is this true? I thought I'd have to take a week off or something. When I got a picc in Oct, my boss let me work from home. I guess I am going to have to "man up" and come to work and do my daily things with a stupid cord hanging out of my arm. I know that everyone else does this, but how does one work a full time 40 hours a week and have all this going on? I am going to have to just accept that I will be on IV's a lot now, and just learn how to live my life and this will be "normal" for me. 
Any suggestions on how to deal with all this and still function as a human being? I came back to work after my doc appt when really all I want to do is go home and curl up on the couch and cry. 
Also, I want to add, that it doesn't help that I work with a bunch of work-a-holics that will continue to work even when their kids are sick at school or will rather go without eating just to knock out a few extra emails. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
Thanks for any advice that you can give me.

jamie6girl · Jan 22, 2008

I haven't really felt very good the last few weeks, and I knew that I would probably need to get back on IV's or something to get me back to my usual self. 
Please keep in mind that I've only done IV's twice in my life, the second time was last Oct, the first time was back when I was like 14 or 15, so the concept of Picc Lines still scares me right now. 
I called the doc today and they said they could get me in today, so I went up there and of course my lung function dropped again. 
He scheduled me for a picc line tomorrow and said that after that I would want to look into getting a port. The thought of a port scares the living crap out of me, and it turns my stomach thinking about it. I think about how sore my arm is when I got the picc, and the thought of a port makes me sick to my stomach. 
He also said that since my lung function tests have been consistently low for so long, that this is usually the time that people go on the transplant list. To actually hear him say this - I can't even put into words what this did to me. He said that this doesn't mean I need one now, but this is where people would do this for the future. 
He said that I could get a port on a Friday and go back to work on Monday. Is this true? I thought I'd have to take a week off or something. When I got a picc in Oct, my boss let me work from home. I guess I am going to have to "man up" and come to work and do my daily things with a stupid cord hanging out of my arm. I know that everyone else does this, but how does one work a full time 40 hours a week and have all this going on? I am going to have to just accept that I will be on IV's a lot now, and just learn how to live my life and this will be "normal" for me. 
Any suggestions on how to deal with all this and still function as a human being? I came back to work after my doc appt when really all I want to do is go home and curl up on the couch and cry. 
Also, I want to add, that it doesn't help that I work with a bunch of work-a-holics that will continue to work even when their kids are sick at school or will rather go without eating just to knock out a few extra emails. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
Thanks for any advice that you can give me.

jamie6girl · Jan 22, 2008

I haven't really felt very good the last few weeks, and I knew that I would probably need to get back on IV's or something to get me back to my usual self. 
Please keep in mind that I've only done IV's twice in my life, the second time was last Oct, the first time was back when I was like 14 or 15, so the concept of Picc Lines still scares me right now. 
I called the doc today and they said they could get me in today, so I went up there and of course my lung function dropped again. 
He scheduled me for a picc line tomorrow and said that after that I would want to look into getting a port. The thought of a port scares the living crap out of me, and it turns my stomach thinking about it. I think about how sore my arm is when I got the picc, and the thought of a port makes me sick to my stomach. 
He also said that since my lung function tests have been consistently low for so long, that this is usually the time that people go on the transplant list. To actually hear him say this - I can't even put into words what this did to me. He said that this doesn't mean I need one now, but this is where people would do this for the future. 
He said that I could get a port on a Friday and go back to work on Monday. Is this true? I thought I'd have to take a week off or something. When I got a picc in Oct, my boss let me work from home. I guess I am going to have to "man up" and come to work and do my daily things with a stupid cord hanging out of my arm. I know that everyone else does this, but how does one work a full time 40 hours a week and have all this going on? I am going to have to just accept that I will be on IV's a lot now, and just learn how to live my life and this will be "normal" for me. 
Any suggestions on how to deal with all this and still function as a human being? I came back to work after my doc appt when really all I want to do is go home and curl up on the couch and cry. 
Also, I want to add, that it doesn't help that I work with a bunch of work-a-holics that will continue to work even when their kids are sick at school or will rather go without eating just to knock out a few extra emails. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
Thanks for any advice that you can give me.

jamie6girl · Jan 22, 2008

I haven't really felt very good the last few weeks, and I knew that I would probably need to get back on IV's or something to get me back to my usual self. 
Please keep in mind that I've only done IV's twice in my life, the second time was last Oct, the first time was back when I was like 14 or 15, so the concept of Picc Lines still scares me right now. 
I called the doc today and they said they could get me in today, so I went up there and of course my lung function dropped again. 
He scheduled me for a picc line tomorrow and said that after that I would want to look into getting a port. The thought of a port scares the living crap out of me, and it turns my stomach thinking about it. I think about how sore my arm is when I got the picc, and the thought of a port makes me sick to my stomach. 
He also said that since my lung function tests have been consistently low for so long, that this is usually the time that people go on the transplant list. To actually hear him say this - I can't even put into words what this did to me. He said that this doesn't mean I need one now, but this is where people would do this for the future. 
He said that I could get a port on a Friday and go back to work on Monday. Is this true? I thought I'd have to take a week off or something. When I got a picc in Oct, my boss let me work from home. I guess I am going to have to "man up" and come to work and do my daily things with a stupid cord hanging out of my arm. I know that everyone else does this, but how does one work a full time 40 hours a week and have all this going on? I am going to have to just accept that I will be on IV's a lot now, and just learn how to live my life and this will be "normal" for me. 
Any suggestions on how to deal with all this and still function as a human being? I came back to work after my doc appt when really all I want to do is go home and curl up on the couch and cry. 
Also, I want to add, that it doesn't help that I work with a bunch of work-a-holics that will continue to work even when their kids are sick at school or will rather go without eating just to knock out a few extra emails. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
Thanks for any advice that you can give me.

purplemartin · Jan 22, 2008

You will LOVE the port! I know children bounce back a little quicker than adults do, but the port placement didn't seem to have any effect on Briceton afterwards! Not to mention the port being soooo much eaier when IV infusions are in need!

Hope the IV's get you to felling a bit more like yourself, and I'm sending good vibes your way for a great increase in lung funtion soon!!!!!!!

Sherry

purplemartin · Jan 22, 2008

You will LOVE the port! I know children bounce back a little quicker than adults do, but the port placement didn't seem to have any effect on Briceton afterwards! Not to mention the port being soooo much eaier when IV infusions are in need!

Hope the IV's get you to felling a bit more like yourself, and I'm sending good vibes your way for a great increase in lung funtion soon!!!!!!!

Sherry

purplemartin · Jan 22, 2008

You will LOVE the port! I know children bounce back a little quicker than adults do, but the port placement didn't seem to have any effect on Briceton afterwards! Not to mention the port being soooo much eaier when IV infusions are in need!

Hope the IV's get you to felling a bit more like yourself, and I'm sending good vibes your way for a great increase in lung funtion soon!!!!!!!

Sherry

purplemartin · Jan 22, 2008

You will LOVE the port! I know children bounce back a little quicker than adults do, but the port placement didn't seem to have any effect on Briceton afterwards! Not to mention the port being soooo much eaier when IV infusions are in need!

Hope the IV's get you to felling a bit more like yourself, and I'm sending good vibes your way for a great increase in lung funtion soon!!!!!!!

Sherry

purplemartin · Jan 22, 2008

You will LOVE the port! I know children bounce back a little quicker than adults do, but the port placement didn't seem to have any effect on Briceton afterwards! Not to mention the port being soooo much eaier when IV infusions are in need!

Hope the IV's get you to felling a bit more like yourself, and I'm sending good vibes your way for a great increase in lung funtion soon!!!!!!!

Sherry

NoExcuses · Jan 22, 2008