Bad Dr Appt Today

Keepercjr · Jan 23, 2008

Here is a photo of me where you can see the port/scar. Sorry it is so large but you can see it better. In this photo I weighed about 120 lbs just for reference.

<img src="http://img.photobucket.com/albums/v281/keepercjr/DSCN0587.jpg">

Keepercjr · Jan 23, 2008

Here is a photo of me where you can see the port/scar. Sorry it is so large but you can see it better. In this photo I weighed about 120 lbs just for reference.

<img src="http://img.photobucket.com/albums/v281/keepercjr/DSCN0587.jpg">

Keepercjr · Jan 23, 2008

Here is a photo of me where you can see the port/scar. Sorry it is so large but you can see it better. In this photo I weighed about 120 lbs just for reference.

<img src="http://img.photobucket.com/albums/v281/keepercjr/DSCN0587.jpg">

Keepercjr · Jan 23, 2008

Here is a photo of me where you can see the port/scar. Sorry it is so large but you can see it better. In this photo I weighed about 120 lbs just for reference.

<img src="http://img.photobucket.com/albums/v281/keepercjr/DSCN0587.jpg">

Keepercjr · Jan 23, 2008

Here is a photo of me where you can see the port/scar. Sorry it is so large but you can see it better. In this photo I weighed about 120 lbs just for reference.

<img src="http://img.photobucket.com/albums/v281/keepercjr/DSCN0587.jpg">

bittyhorse23 · Jan 23, 2008

Jenn

I am sorry to hear you are not doing well and need to go on IVs again. I hope they help and get you back to your normal self.

As for the port I can not offer too much advice. I am also scared to death to get one but have started thinking about it more and more. It seems like a good idea (not needing to get stuck everytime I need IVs sounds like a winner to me) and the permanence it offers is also a plus. I know you said you don't go on IVs very often but maybe with the port you will be more willing and then you can get your FEV1 numbers up a little. 23-30% is low to be working full time! I'm having a semi-hard time and I am at 42%. I admire you!!! I hope you are able to take care of yourself though too.

That really stinks that you don't have your family's full support. But it is good that you are here because we can give you any support you need. If you really do consider tx then this is the place to be. Ask as many questions as you need. I have not been told to think about it yet by my DR but I have done research on my own so that when I am told to think about it I will not be shocked and will be able to make a decision. I have asked a ton of questions in the tx thread and everyone is very helpful.

I also felt ashamed of CF growing up. In no part due to my family, it was me that made myself think this. I have slowly learned to grow out of it, though I still do feel ashamed of it at times. Mostly when I am sick and need to get tuned up. I feel like I have let people down and that I didn't do enough to stay out of the hospital. Truth is, sometimes it just beats you down. Don't feel ashamed. I hope you have also grown out of it too now.

Don't worry about the workaholic co-workers. That is their problem (and I do mean problem because they are missing out on so much more by being that way). If you need to take some time off that is your choice. Your health is top priority and I feel bad that they don't think their children's health is top as well. I used to work myself into the ground, doing 50-60 hr weeks...then I wised up. Trying to keep up with the rest of the office looks good on your review but doesn't look good at DR visits - and that is where they count the most.

I could keep going on and on but I won't. Feel free to PM if you want to chat!!!

<img src="i/expressions/heart.gif" border="0">

bittyhorse23 · Jan 23, 2008

Jenn

I am sorry to hear you are not doing well and need to go on IVs again. I hope they help and get you back to your normal self.

As for the port I can not offer too much advice. I am also scared to death to get one but have started thinking about it more and more. It seems like a good idea (not needing to get stuck everytime I need IVs sounds like a winner to me) and the permanence it offers is also a plus. I know you said you don't go on IVs very often but maybe with the port you will be more willing and then you can get your FEV1 numbers up a little. 23-30% is low to be working full time! I'm having a semi-hard time and I am at 42%. I admire you!!! I hope you are able to take care of yourself though too.

That really stinks that you don't have your family's full support. But it is good that you are here because we can give you any support you need. If you really do consider tx then this is the place to be. Ask as many questions as you need. I have not been told to think about it yet by my DR but I have done research on my own so that when I am told to think about it I will not be shocked and will be able to make a decision. I have asked a ton of questions in the tx thread and everyone is very helpful.

I also felt ashamed of CF growing up. In no part due to my family, it was me that made myself think this. I have slowly learned to grow out of it, though I still do feel ashamed of it at times. Mostly when I am sick and need to get tuned up. I feel like I have let people down and that I didn't do enough to stay out of the hospital. Truth is, sometimes it just beats you down. Don't feel ashamed. I hope you have also grown out of it too now.

Don't worry about the workaholic co-workers. That is their problem (and I do mean problem because they are missing out on so much more by being that way). If you need to take some time off that is your choice. Your health is top priority and I feel bad that they don't think their children's health is top as well. I used to work myself into the ground, doing 50-60 hr weeks...then I wised up. Trying to keep up with the rest of the office looks good on your review but doesn't look good at DR visits - and that is where they count the most.

I could keep going on and on but I won't. Feel free to PM if you want to chat!!!

<img src="i/expressions/heart.gif" border="0">

bittyhorse23 · Jan 23, 2008

Jenn

I am sorry to hear you are not doing well and need to go on IVs again. I hope they help and get you back to your normal self.

As for the port I can not offer too much advice. I am also scared to death to get one but have started thinking about it more and more. It seems like a good idea (not needing to get stuck everytime I need IVs sounds like a winner to me) and the permanence it offers is also a plus. I know you said you don't go on IVs very often but maybe with the port you will be more willing and then you can get your FEV1 numbers up a little. 23-30% is low to be working full time! I'm having a semi-hard time and I am at 42%. I admire you!!! I hope you are able to take care of yourself though too.

That really stinks that you don't have your family's full support. But it is good that you are here because we can give you any support you need. If you really do consider tx then this is the place to be. Ask as many questions as you need. I have not been told to think about it yet by my DR but I have done research on my own so that when I am told to think about it I will not be shocked and will be able to make a decision. I have asked a ton of questions in the tx thread and everyone is very helpful.

I also felt ashamed of CF growing up. In no part due to my family, it was me that made myself think this. I have slowly learned to grow out of it, though I still do feel ashamed of it at times. Mostly when I am sick and need to get tuned up. I feel like I have let people down and that I didn't do enough to stay out of the hospital. Truth is, sometimes it just beats you down. Don't feel ashamed. I hope you have also grown out of it too now.

Don't worry about the workaholic co-workers. That is their problem (and I do mean problem because they are missing out on so much more by being that way). If you need to take some time off that is your choice. Your health is top priority and I feel bad that they don't think their children's health is top as well. I used to work myself into the ground, doing 50-60 hr weeks...then I wised up. Trying to keep up with the rest of the office looks good on your review but doesn't look good at DR visits - and that is where they count the most.

I could keep going on and on but I won't. Feel free to PM if you want to chat!!!

<img src="i/expressions/heart.gif" border="0">

bittyhorse23 · Jan 23, 2008

Jenn

I am sorry to hear you are not doing well and need to go on IVs again. I hope they help and get you back to your normal self.

As for the port I can not offer too much advice. I am also scared to death to get one but have started thinking about it more and more. It seems like a good idea (not needing to get stuck everytime I need IVs sounds like a winner to me) and the permanence it offers is also a plus. I know you said you don't go on IVs very often but maybe with the port you will be more willing and then you can get your FEV1 numbers up a little. 23-30% is low to be working full time! I'm having a semi-hard time and I am at 42%. I admire you!!! I hope you are able to take care of yourself though too.

That really stinks that you don't have your family's full support. But it is good that you are here because we can give you any support you need. If you really do consider tx then this is the place to be. Ask as many questions as you need. I have not been told to think about it yet by my DR but I have done research on my own so that when I am told to think about it I will not be shocked and will be able to make a decision. I have asked a ton of questions in the tx thread and everyone is very helpful.

I also felt ashamed of CF growing up. In no part due to my family, it was me that made myself think this. I have slowly learned to grow out of it, though I still do feel ashamed of it at times. Mostly when I am sick and need to get tuned up. I feel like I have let people down and that I didn't do enough to stay out of the hospital. Truth is, sometimes it just beats you down. Don't feel ashamed. I hope you have also grown out of it too now.

Don't worry about the workaholic co-workers. That is their problem (and I do mean problem because they are missing out on so much more by being that way). If you need to take some time off that is your choice. Your health is top priority and I feel bad that they don't think their children's health is top as well. I used to work myself into the ground, doing 50-60 hr weeks...then I wised up. Trying to keep up with the rest of the office looks good on your review but doesn't look good at DR visits - and that is where they count the most.

I could keep going on and on but I won't. Feel free to PM if you want to chat!!!

<img src="i/expressions/heart.gif" border="0">

bittyhorse23 · Jan 23, 2008

Jenn

I am sorry to hear you are not doing well and need to go on IVs again. I hope they help and get you back to your normal self.

As for the port I can not offer too much advice. I am also scared to death to get one but have started thinking about it more and more. It seems like a good idea (not needing to get stuck everytime I need IVs sounds like a winner to me) and the permanence it offers is also a plus. I know you said you don't go on IVs very often but maybe with the port you will be more willing and then you can get your FEV1 numbers up a little. 23-30% is low to be working full time! I'm having a semi-hard time and I am at 42%. I admire you!!! I hope you are able to take care of yourself though too.

That really stinks that you don't have your family's full support. But it is good that you are here because we can give you any support you need. If you really do consider tx then this is the place to be. Ask as many questions as you need. I have not been told to think about it yet by my DR but I have done research on my own so that when I am told to think about it I will not be shocked and will be able to make a decision. I have asked a ton of questions in the tx thread and everyone is very helpful.

I also felt ashamed of CF growing up. In no part due to my family, it was me that made myself think this. I have slowly learned to grow out of it, though I still do feel ashamed of it at times. Mostly when I am sick and need to get tuned up. I feel like I have let people down and that I didn't do enough to stay out of the hospital. Truth is, sometimes it just beats you down. Don't feel ashamed. I hope you have also grown out of it too now.

Don't worry about the workaholic co-workers. That is their problem (and I do mean problem because they are missing out on so much more by being that way). If you need to take some time off that is your choice. Your health is top priority and I feel bad that they don't think their children's health is top as well. I used to work myself into the ground, doing 50-60 hr weeks...then I wised up. Trying to keep up with the rest of the office looks good on your review but doesn't look good at DR visits - and that is where they count the most.

I could keep going on and on but I won't. Feel free to PM if you want to chat!!!

<img src="i/expressions/heart.gif" border="0">

jamie6girl · Jan 23, 2008

Thank you to all of you for your kind words, esp Amy and Piper. Thank you to Caroline for showing me a picture of your port scar. That is not bad at all, I think the more I hear and the more I read, I am more willing to get one. I feel better mentally today than I did yesterday. Got my picc line in today,and I think it's not as bad as it was last time, as I know what to expect this go around. I think the port sounds like a good idea, because I would be able to do IV's anytime, and get my numbers back up and feel better. So the port is sounding more attractive as time goes on. 
It is hard to be motivated to do your medicine when you feel crappy. I think I probably needed to be on IV's all through my 20's, but I just didn't want to admit that CF got me down. I also didn't have to do my meds like I do now, so all of it combined made for some poor choices on my part. 
My family is more supportive these days than they were back then. Back then, in their defense, I was a rebellious teen who didn't want to admit that CF was a part of my life. At the same time, sometimes they didn't want to act like it was a part of mine/theirs, either. It was almost like they would only bring it up at their convenience. 
I'm taking control of my health now, instead of trying to pretend that CF doesn't exist. For the last few months, I've been keeping up with all of my meds every day on a spreadsheet and everything. I am so compliant, and now adding IV's to the mix should make me feel and breathe a lot better. 
I talked to my boss yesterday afternoon about getting a lock on my door at work, that way I can do my IV's and no one will walk in on me.She seemed understanding of that. I try not to let the work a holics get to me, but sometimes it's hard. It seems like people in that department are either lazy or work themselves crazy. I seem like the only normal one in there. The work a holics make me look like I don't work hard, but because of the lazy ones, I end up working a lot harder than I need to. 
Well, I think that is the end of my rambling. I do appreciate everyone and I am very grateful for this board and everybody who is here for support. <img src="i/expressions/heart.gif" border="0">

jamie6girl · Jan 23, 2008

Thank you to all of you for your kind words, esp Amy and Piper. Thank you to Caroline for showing me a picture of your port scar. That is not bad at all, I think the more I hear and the more I read, I am more willing to get one. I feel better mentally today than I did yesterday. Got my picc line in today,and I think it's not as bad as it was last time, as I know what to expect this go around. I think the port sounds like a good idea, because I would be able to do IV's anytime, and get my numbers back up and feel better. So the port is sounding more attractive as time goes on. 
It is hard to be motivated to do your medicine when you feel crappy. I think I probably needed to be on IV's all through my 20's, but I just didn't want to admit that CF got me down. I also didn't have to do my meds like I do now, so all of it combined made for some poor choices on my part. 
My family is more supportive these days than they were back then. Back then, in their defense, I was a rebellious teen who didn't want to admit that CF was a part of my life. At the same time, sometimes they didn't want to act like it was a part of mine/theirs, either. It was almost like they would only bring it up at their convenience. 
I'm taking control of my health now, instead of trying to pretend that CF doesn't exist. For the last few months, I've been keeping up with all of my meds every day on a spreadsheet and everything. I am so compliant, and now adding IV's to the mix should make me feel and breathe a lot better. 
I talked to my boss yesterday afternoon about getting a lock on my door at work, that way I can do my IV's and no one will walk in on me.She seemed understanding of that. I try not to let the work a holics get to me, but sometimes it's hard. It seems like people in that department are either lazy or work themselves crazy. I seem like the only normal one in there. The work a holics make me look like I don't work hard, but because of the lazy ones, I end up working a lot harder than I need to. 
Well, I think that is the end of my rambling. I do appreciate everyone and I am very grateful for this board and everybody who is here for support. <img src="i/expressions/heart.gif" border="0">

jamie6girl · Jan 23, 2008

Thank you to all of you for your kind words, esp Amy and Piper. Thank you to Caroline for showing me a picture of your port scar. That is not bad at all, I think the more I hear and the more I read, I am more willing to get one. I feel better mentally today than I did yesterday. Got my picc line in today,and I think it's not as bad as it was last time, as I know what to expect this go around. I think the port sounds like a good idea, because I would be able to do IV's anytime, and get my numbers back up and feel better. So the port is sounding more attractive as time goes on. 
It is hard to be motivated to do your medicine when you feel crappy. I think I probably needed to be on IV's all through my 20's, but I just didn't want to admit that CF got me down. I also didn't have to do my meds like I do now, so all of it combined made for some poor choices on my part. 
My family is more supportive these days than they were back then. Back then, in their defense, I was a rebellious teen who didn't want to admit that CF was a part of my life. At the same time, sometimes they didn't want to act like it was a part of mine/theirs, either. It was almost like they would only bring it up at their convenience. 
I'm taking control of my health now, instead of trying to pretend that CF doesn't exist. For the last few months, I've been keeping up with all of my meds every day on a spreadsheet and everything. I am so compliant, and now adding IV's to the mix should make me feel and breathe a lot better. 
I talked to my boss yesterday afternoon about getting a lock on my door at work, that way I can do my IV's and no one will walk in on me.She seemed understanding of that. I try not to let the work a holics get to me, but sometimes it's hard. It seems like people in that department are either lazy or work themselves crazy. I seem like the only normal one in there. The work a holics make me look like I don't work hard, but because of the lazy ones, I end up working a lot harder than I need to. 
Well, I think that is the end of my rambling. I do appreciate everyone and I am very grateful for this board and everybody who is here for support. <img src="i/expressions/heart.gif" border="0">

jamie6girl · Jan 23, 2008

Thank you to all of you for your kind words, esp Amy and Piper. Thank you to Caroline for showing me a picture of your port scar. That is not bad at all, I think the more I hear and the more I read, I am more willing to get one. I feel better mentally today than I did yesterday. Got my picc line in today,and I think it's not as bad as it was last time, as I know what to expect this go around. I think the port sounds like a good idea, because I would be able to do IV's anytime, and get my numbers back up and feel better. So the port is sounding more attractive as time goes on. 
It is hard to be motivated to do your medicine when you feel crappy. I think I probably needed to be on IV's all through my 20's, but I just didn't want to admit that CF got me down. I also didn't have to do my meds like I do now, so all of it combined made for some poor choices on my part. 
My family is more supportive these days than they were back then. Back then, in their defense, I was a rebellious teen who didn't want to admit that CF was a part of my life. At the same time, sometimes they didn't want to act like it was a part of mine/theirs, either. It was almost like they would only bring it up at their convenience. 
I'm taking control of my health now, instead of trying to pretend that CF doesn't exist. For the last few months, I've been keeping up with all of my meds every day on a spreadsheet and everything. I am so compliant, and now adding IV's to the mix should make me feel and breathe a lot better. 
I talked to my boss yesterday afternoon about getting a lock on my door at work, that way I can do my IV's and no one will walk in on me.She seemed understanding of that. I try not to let the work a holics get to me, but sometimes it's hard. It seems like people in that department are either lazy or work themselves crazy. I seem like the only normal one in there. The work a holics make me look like I don't work hard, but because of the lazy ones, I end up working a lot harder than I need to. 
Well, I think that is the end of my rambling. I do appreciate everyone and I am very grateful for this board and everybody who is here for support. <img src="i/expressions/heart.gif" border="0">

jamie6girl · Jan 23, 2008

Thank you to all of you for your kind words, esp Amy and Piper. Thank you to Caroline for showing me a picture of your port scar. That is not bad at all, I think the more I hear and the more I read, I am more willing to get one. I feel better mentally today than I did yesterday. Got my picc line in today,and I think it's not as bad as it was last time, as I know what to expect this go around. I think the port sounds like a good idea, because I would be able to do IV's anytime, and get my numbers back up and feel better. So the port is sounding more attractive as time goes on. 
It is hard to be motivated to do your medicine when you feel crappy. I think I probably needed to be on IV's all through my 20's, but I just didn't want to admit that CF got me down. I also didn't have to do my meds like I do now, so all of it combined made for some poor choices on my part. 
My family is more supportive these days than they were back then. Back then, in their defense, I was a rebellious teen who didn't want to admit that CF was a part of my life. At the same time, sometimes they didn't want to act like it was a part of mine/theirs, either. It was almost like they would only bring it up at their convenience. 
I'm taking control of my health now, instead of trying to pretend that CF doesn't exist. For the last few months, I've been keeping up with all of my meds every day on a spreadsheet and everything. I am so compliant, and now adding IV's to the mix should make me feel and breathe a lot better. 
I talked to my boss yesterday afternoon about getting a lock on my door at work, that way I can do my IV's and no one will walk in on me.She seemed understanding of that. I try not to let the work a holics get to me, but sometimes it's hard. It seems like people in that department are either lazy or work themselves crazy. I seem like the only normal one in there. The work a holics make me look like I don't work hard, but because of the lazy ones, I end up working a lot harder than I need to. 
Well, I think that is the end of my rambling. I do appreciate everyone and I am very grateful for this board and everybody who is here for support. <img src="i/expressions/heart.gif" border="0">

Bad Dr Appt Today

Keepercjr

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bittyhorse23

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bittyhorse23

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bittyhorse23

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bittyhorse23

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bittyhorse23

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jamie6girl

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jamie6girl

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jamie6girl

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jamie6girl

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jamie6girl

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