Bed Wetting

anonymous

New member
I'm so glad anon posting is back. I'm a regular member but if I posted under my username, my CFer would just die of embarassment.

As you've probably guessed from the title of this post, we've got an issue with bed wetting. Yes, it runs in our family so it's not a shock. In fact both my kids have had to deal with it. It's just that for my CFer it's a significant problem. Significant as in my CFer hasn't had a dry night ever (10+ years).

We've been to the urologist and been assured that my CFer will grow out of it. We've tried the various routines, night time bathroom breaks, alarms, meds, etc. We spoke with our CF dr. about there being a possible complication from CF. Thinking that maybe somehow the CF makes an existing problem worse. Our CF dr. didn't think so and neither did our urologist.

I've noticed in the past the various antibiotics seemed to help the issue and some seemed to make it worse.

I was also told by a close friend of mine that had a child (no CF) with "sleep issues" that her bed wetting went away as soon as they put her on O2 at night. I'm wondering if maybe my CFer's sleep patterns (low O2?) are contributing to the problem.

Anybody else struggling/struggled with this?

Thanks.
 

anonymous

New member
I'm so glad anon posting is back. I'm a regular member but if I posted under my username, my CFer would just die of embarassment.

As you've probably guessed from the title of this post, we've got an issue with bed wetting. Yes, it runs in our family so it's not a shock. In fact both my kids have had to deal with it. It's just that for my CFer it's a significant problem. Significant as in my CFer hasn't had a dry night ever (10+ years).

We've been to the urologist and been assured that my CFer will grow out of it. We've tried the various routines, night time bathroom breaks, alarms, meds, etc. We spoke with our CF dr. about there being a possible complication from CF. Thinking that maybe somehow the CF makes an existing problem worse. Our CF dr. didn't think so and neither did our urologist.

I've noticed in the past the various antibiotics seemed to help the issue and some seemed to make it worse.

I was also told by a close friend of mine that had a child (no CF) with "sleep issues" that her bed wetting went away as soon as they put her on O2 at night. I'm wondering if maybe my CFer's sleep patterns (low O2?) are contributing to the problem.

Anybody else struggling/struggled with this?

Thanks.
 

anonymous

New member
I'm so glad anon posting is back. I'm a regular member but if I posted under my username, my CFer would just die of embarassment.

As you've probably guessed from the title of this post, we've got an issue with bed wetting. Yes, it runs in our family so it's not a shock. In fact both my kids have had to deal with it. It's just that for my CFer it's a significant problem. Significant as in my CFer hasn't had a dry night ever (10+ years).

We've been to the urologist and been assured that my CFer will grow out of it. We've tried the various routines, night time bathroom breaks, alarms, meds, etc. We spoke with our CF dr. about there being a possible complication from CF. Thinking that maybe somehow the CF makes an existing problem worse. Our CF dr. didn't think so and neither did our urologist.

I've noticed in the past the various antibiotics seemed to help the issue and some seemed to make it worse.

I was also told by a close friend of mine that had a child (no CF) with "sleep issues" that her bed wetting went away as soon as they put her on O2 at night. I'm wondering if maybe my CFer's sleep patterns (low O2?) are contributing to the problem.

Anybody else struggling/struggled with this?

Thanks.
 

anonymous

New member
I can so understand your frustration. I went through the exact same thing for years and thought it would never end. I tried all of what you mentioned, alarms, meds, waking him during the night and absolutlely nothing helped at all. I remember making his bed with one sheet, plastic cover, another sheet, another plastic cover, another sheet. There is nothing worse than having to wake during the night to re-make beds, so at least this way we were able to just take off one sheet and have a clean one underneath. I can't give any advice at all other than to say, the day will come when he will wake up dry, you just have to be patient and he will grow out of it.

Best of luck to you.
 

anonymous

New member
I can so understand your frustration. I went through the exact same thing for years and thought it would never end. I tried all of what you mentioned, alarms, meds, waking him during the night and absolutlely nothing helped at all. I remember making his bed with one sheet, plastic cover, another sheet, another plastic cover, another sheet. There is nothing worse than having to wake during the night to re-make beds, so at least this way we were able to just take off one sheet and have a clean one underneath. I can't give any advice at all other than to say, the day will come when he will wake up dry, you just have to be patient and he will grow out of it.

Best of luck to you.
 

anonymous

New member
I can so understand your frustration. I went through the exact same thing for years and thought it would never end. I tried all of what you mentioned, alarms, meds, waking him during the night and absolutlely nothing helped at all. I remember making his bed with one sheet, plastic cover, another sheet, another plastic cover, another sheet. There is nothing worse than having to wake during the night to re-make beds, so at least this way we were able to just take off one sheet and have a clean one underneath. I can't give any advice at all other than to say, the day will come when he will wake up dry, you just have to be patient and he will grow out of it.

Best of luck to you.
 

anonymous

New member
Hi - We go through a similar problem - although not every night. He is 8. It is much worse when on steroids - I am sure due to elevated sugar. When he started singular it got worse and then back to every so often. It is always helpful to know we are not alone. I like the sheet tip. Thanks! Sorry no real help here.
 

anonymous

New member
Hi - We go through a similar problem - although not every night. He is 8. It is much worse when on steroids - I am sure due to elevated sugar. When he started singular it got worse and then back to every so often. It is always helpful to know we are not alone. I like the sheet tip. Thanks! Sorry no real help here.
 

anonymous

New member
Hi - We go through a similar problem - although not every night. He is 8. It is much worse when on steroids - I am sure due to elevated sugar. When he started singular it got worse and then back to every so often. It is always helpful to know we are not alone. I like the sheet tip. Thanks! Sorry no real help here.
 

zoe4life

New member
I know exactly how you feel, actually, worse. Bedwetting does run in families. My dad wet until 10-11, I wet until I was 12. My son (does not have CF) finally quit wetting the bed when he was 14. I know it is so hard, the sheets & blankets everyday, it is horrible!!!<img src="i/expressions/face-icon-small-sad.gif" border="0"> We did the DDP?? can't remember the exact name, but it is a med they take everyday. It takes a while to work into their system, but it finally does start working. Then after he had quit wetting, taking the meds, we started weaning him of them. He still (rarely) has an accident (he is 15) but it did work for us. It took years. Maybe he finally just outgrew the bedwetting. But we all are members of the IBBC (itty bitty bladder club), including me.<img src="i/expressions/face-icon-small-happy.gif" border="0">
Good luck, hope this helps!!
Jada
Zoe's mom
 

zoe4life

New member
I know exactly how you feel, actually, worse. Bedwetting does run in families. My dad wet until 10-11, I wet until I was 12. My son (does not have CF) finally quit wetting the bed when he was 14. I know it is so hard, the sheets & blankets everyday, it is horrible!!!<img src="i/expressions/face-icon-small-sad.gif" border="0"> We did the DDP?? can't remember the exact name, but it is a med they take everyday. It takes a while to work into their system, but it finally does start working. Then after he had quit wetting, taking the meds, we started weaning him of them. He still (rarely) has an accident (he is 15) but it did work for us. It took years. Maybe he finally just outgrew the bedwetting. But we all are members of the IBBC (itty bitty bladder club), including me.<img src="i/expressions/face-icon-small-happy.gif" border="0">
Good luck, hope this helps!!
Jada
Zoe's mom
 

zoe4life

New member
I know exactly how you feel, actually, worse. Bedwetting does run in families. My dad wet until 10-11, I wet until I was 12. My son (does not have CF) finally quit wetting the bed when he was 14. I know it is so hard, the sheets & blankets everyday, it is horrible!!!<img src="i/expressions/face-icon-small-sad.gif" border="0"> We did the DDP?? can't remember the exact name, but it is a med they take everyday. It takes a while to work into their system, but it finally does start working. Then after he had quit wetting, taking the meds, we started weaning him of them. He still (rarely) has an accident (he is 15) but it did work for us. It took years. Maybe he finally just outgrew the bedwetting. But we all are members of the IBBC (itty bitty bladder club), including me.<img src="i/expressions/face-icon-small-happy.gif" border="0">
Good luck, hope this helps!!
Jada
Zoe's mom
 

anonymous

New member
My c/f child bed wetted every night till 12yrs. The medicine that helped us was minirin (think thats how you spell it) Its a nasal inhaler you sniff twice a day. We originally started it so that he/she could gon on sleep overs with friends and on camps, also for hospital stays without the embarrassment that comes with bed wetting at an older age. The spray worked really well no bed wetting at all now for over 2 yrs. I always thought the bed wetting was caused by heavy sleeping caused by excessive breathing that c/fer's do.

Bedwetting (Enuresis) Information

Bedwetting (enuresis) is a problem for one in three five year olds. Some wet occasionally, others every night. Almost all will eventually stop wetting the bed but it is impossible to predict when this will occur, with some still bedwetting into their teens. About 15% of children outgrow the problem each year. Recent research has found that older children and those who wet more than three nights a week are unlikely to outgrow the problem in the next twelve months. They need to commence treatment to solve the problem. Young children wetting occasionally are more likely to outgrow the problem in the next twelve months but they can be cured more quickly with treatment.

Rather than wasting time and money on various tests to diagnose what is causing the bedwetting we recommend treating all the causes of bed wetting. Most children have a combination of factors combining to cause the problem.
Common causes of bedwetting are:

a small bladder capacity;
production of large volumes of urine overnight;
constipation; and
very deep sleep.
Various methods have been used to treat the problem including bedwetting alarms, medication e.g. desmopressin (Minirin), drinking and bladder training programs. Unfortunately there is great variation in success rates with different programs. Our experience has shown that it is essential to follow a structured program in the correct order and results are very good. Our program recommends:

a drinking program, which improves the connection between the bladder and the brain and helps to increase bladder capacity;
stopping popular foods and drinks which may interfere with vasopressin, the hormone which concentrates the urine at night;
treatment of constipation;
use of a bedwetting alarm where necessary; and
rarely medication.
Young children wetting about three nights per week are likely to improve within about three weeks without using a bedwetting alarm.

Children who are wetting every night and those who have reached seven years of age are more likely to need a bed wetting alarm. It is pointless to continue on the initial steps for months on end without trying a bedwetting alarm. Some children will continue to wet every night until an alarm is commenced, however, the initial steps prime them to respond to the alarm. Others improve dramatically with the initial steps, however, they still have occasional wet nights. Even the occasional wet night is not acceptable in older children and so the alarm may be needed to completely cure the problem.

If you purchase the Kit and end up not needing the alarm it can be returned in the sealed pack within 90 days. About 10% of those who purchase the Kit return the alarm because it was not needed. Read our 2006 Bedwetting Cured Customer Survey Results.

Bedwetting problems are often attributed incorrectly to psychological problems. In our experience this is rarely the case. At times a child's sleep pattern may alter for various reasons, which can lead to bedwetting. This just means that they need treatment so that despite being stressed, sick or tired they still won't wet the bed.

It is best to start treatment at about age five. The first three steps of our program can be used with younger children eg three or four years of age, however, we do not recommend using a bedwetting alarm until children are about five years old. The fact is that most people who contact us have a child who is much older. You still have a very good chance of success with this program.

Some children improve in summer, only to have the bedwetting become problematic again the next winter. This may be because in winter the child is not drinking adequately, they are perspiring less and they are sleeping more deeply.

Left untreated bedwetting has implications, which are often underestimated by both the community and those advising on its treatment. It places a huge burden on the whole family, as any parent of a bedwetting child will testify! Parents often become very distressed and might even suspect that their child is deliberately causing mischief. They are not! Try as they might to help, they feel powerless to stop wetting the bed, and in time their self-esteem may even suffer. Sleepovers with friends and school camps can become a source of considerable stress to the child. Many parents become resigned to the fact that they are unable to help their child. Doctors are often dismissive, offering only reassurance that the child will eventually outgrow the problem, when the family requires immediate help. Whilst bed wetting is a very common problem, it is often needlessly tolerated because of a certain reluctance to discuss what is an awkward and embarrassing subject for many people.

Results in research trials with bedwetting (enuresis) alarms have varied from 40% success to 97% success.

The most commonly prescribed medication for bedwetting is desmopressin, brand name Minirin. It is a synthetic hormone and has similar actions to the hormone vasopressin, (antidiuretic hormone). Desmopressin helps to reduce the volume of urine produced at night. It is available as a nasal spray and a tablet. This medication will reduce the number of wet nights in some children and even stop the bedwetting completely in a few. The main problem with desmopressin is that it is very common for the bedwetting to return as soon as the medication is stopped. A bedwetting alarm is more likely than medication to result in a permanent cure. Desmopressin is only available with a prescription from a Medical Practitioner.

There is a tendency for bedwetting to run in families and bedwetting is more common in boys. This does not in any way alter the treatment.

Bedwetting in teenagers and adults can be cured. The causes are generally the same and the treatment is the same step-by-step approach. In addition to all the standard recommendations adults need to be aware that alcohol suppresses the hormone vasopressin (antidiuretic hormone). With treatment it should be possible to stop bedwetting even after having alcohol.

There is no need to live with bedwetting. Results are very good with a well-designed comprehensive step-by-step program. Remember if you purchase any of our products we are contactable by phone, however, experience has shown us that if you purchase the Bedwetting Cured Kit, you are unlikely to need any more help. You will have solved the problem.

Read our 2006 Bedwetting Cured Customer Survey Results.
 

anonymous

New member
My c/f child bed wetted every night till 12yrs. The medicine that helped us was minirin (think thats how you spell it) Its a nasal inhaler you sniff twice a day. We originally started it so that he/she could gon on sleep overs with friends and on camps, also for hospital stays without the embarrassment that comes with bed wetting at an older age. The spray worked really well no bed wetting at all now for over 2 yrs. I always thought the bed wetting was caused by heavy sleeping caused by excessive breathing that c/fer's do.

Bedwetting (Enuresis) Information

Bedwetting (enuresis) is a problem for one in three five year olds. Some wet occasionally, others every night. Almost all will eventually stop wetting the bed but it is impossible to predict when this will occur, with some still bedwetting into their teens. About 15% of children outgrow the problem each year. Recent research has found that older children and those who wet more than three nights a week are unlikely to outgrow the problem in the next twelve months. They need to commence treatment to solve the problem. Young children wetting occasionally are more likely to outgrow the problem in the next twelve months but they can be cured more quickly with treatment.

Rather than wasting time and money on various tests to diagnose what is causing the bedwetting we recommend treating all the causes of bed wetting. Most children have a combination of factors combining to cause the problem.
Common causes of bedwetting are:

a small bladder capacity;
production of large volumes of urine overnight;
constipation; and
very deep sleep.
Various methods have been used to treat the problem including bedwetting alarms, medication e.g. desmopressin (Minirin), drinking and bladder training programs. Unfortunately there is great variation in success rates with different programs. Our experience has shown that it is essential to follow a structured program in the correct order and results are very good. Our program recommends:

a drinking program, which improves the connection between the bladder and the brain and helps to increase bladder capacity;
stopping popular foods and drinks which may interfere with vasopressin, the hormone which concentrates the urine at night;
treatment of constipation;
use of a bedwetting alarm where necessary; and
rarely medication.
Young children wetting about three nights per week are likely to improve within about three weeks without using a bedwetting alarm.

Children who are wetting every night and those who have reached seven years of age are more likely to need a bed wetting alarm. It is pointless to continue on the initial steps for months on end without trying a bedwetting alarm. Some children will continue to wet every night until an alarm is commenced, however, the initial steps prime them to respond to the alarm. Others improve dramatically with the initial steps, however, they still have occasional wet nights. Even the occasional wet night is not acceptable in older children and so the alarm may be needed to completely cure the problem.

If you purchase the Kit and end up not needing the alarm it can be returned in the sealed pack within 90 days. About 10% of those who purchase the Kit return the alarm because it was not needed. Read our 2006 Bedwetting Cured Customer Survey Results.

Bedwetting problems are often attributed incorrectly to psychological problems. In our experience this is rarely the case. At times a child's sleep pattern may alter for various reasons, which can lead to bedwetting. This just means that they need treatment so that despite being stressed, sick or tired they still won't wet the bed.

It is best to start treatment at about age five. The first three steps of our program can be used with younger children eg three or four years of age, however, we do not recommend using a bedwetting alarm until children are about five years old. The fact is that most people who contact us have a child who is much older. You still have a very good chance of success with this program.

Some children improve in summer, only to have the bedwetting become problematic again the next winter. This may be because in winter the child is not drinking adequately, they are perspiring less and they are sleeping more deeply.

Left untreated bedwetting has implications, which are often underestimated by both the community and those advising on its treatment. It places a huge burden on the whole family, as any parent of a bedwetting child will testify! Parents often become very distressed and might even suspect that their child is deliberately causing mischief. They are not! Try as they might to help, they feel powerless to stop wetting the bed, and in time their self-esteem may even suffer. Sleepovers with friends and school camps can become a source of considerable stress to the child. Many parents become resigned to the fact that they are unable to help their child. Doctors are often dismissive, offering only reassurance that the child will eventually outgrow the problem, when the family requires immediate help. Whilst bed wetting is a very common problem, it is often needlessly tolerated because of a certain reluctance to discuss what is an awkward and embarrassing subject for many people.

Results in research trials with bedwetting (enuresis) alarms have varied from 40% success to 97% success.

The most commonly prescribed medication for bedwetting is desmopressin, brand name Minirin. It is a synthetic hormone and has similar actions to the hormone vasopressin, (antidiuretic hormone). Desmopressin helps to reduce the volume of urine produced at night. It is available as a nasal spray and a tablet. This medication will reduce the number of wet nights in some children and even stop the bedwetting completely in a few. The main problem with desmopressin is that it is very common for the bedwetting to return as soon as the medication is stopped. A bedwetting alarm is more likely than medication to result in a permanent cure. Desmopressin is only available with a prescription from a Medical Practitioner.

There is a tendency for bedwetting to run in families and bedwetting is more common in boys. This does not in any way alter the treatment.

Bedwetting in teenagers and adults can be cured. The causes are generally the same and the treatment is the same step-by-step approach. In addition to all the standard recommendations adults need to be aware that alcohol suppresses the hormone vasopressin (antidiuretic hormone). With treatment it should be possible to stop bedwetting even after having alcohol.

There is no need to live with bedwetting. Results are very good with a well-designed comprehensive step-by-step program. Remember if you purchase any of our products we are contactable by phone, however, experience has shown us that if you purchase the Bedwetting Cured Kit, you are unlikely to need any more help. You will have solved the problem.

Read our 2006 Bedwetting Cured Customer Survey Results.
 

anonymous

New member
My c/f child bed wetted every night till 12yrs. The medicine that helped us was minirin (think thats how you spell it) Its a nasal inhaler you sniff twice a day. We originally started it so that he/she could gon on sleep overs with friends and on camps, also for hospital stays without the embarrassment that comes with bed wetting at an older age. The spray worked really well no bed wetting at all now for over 2 yrs. I always thought the bed wetting was caused by heavy sleeping caused by excessive breathing that c/fer's do.

Bedwetting (Enuresis) Information

Bedwetting (enuresis) is a problem for one in three five year olds. Some wet occasionally, others every night. Almost all will eventually stop wetting the bed but it is impossible to predict when this will occur, with some still bedwetting into their teens. About 15% of children outgrow the problem each year. Recent research has found that older children and those who wet more than three nights a week are unlikely to outgrow the problem in the next twelve months. They need to commence treatment to solve the problem. Young children wetting occasionally are more likely to outgrow the problem in the next twelve months but they can be cured more quickly with treatment.

Rather than wasting time and money on various tests to diagnose what is causing the bedwetting we recommend treating all the causes of bed wetting. Most children have a combination of factors combining to cause the problem.
Common causes of bedwetting are:

a small bladder capacity;
production of large volumes of urine overnight;
constipation; and
very deep sleep.
Various methods have been used to treat the problem including bedwetting alarms, medication e.g. desmopressin (Minirin), drinking and bladder training programs. Unfortunately there is great variation in success rates with different programs. Our experience has shown that it is essential to follow a structured program in the correct order and results are very good. Our program recommends:

a drinking program, which improves the connection between the bladder and the brain and helps to increase bladder capacity;
stopping popular foods and drinks which may interfere with vasopressin, the hormone which concentrates the urine at night;
treatment of constipation;
use of a bedwetting alarm where necessary; and
rarely medication.
Young children wetting about three nights per week are likely to improve within about three weeks without using a bedwetting alarm.

Children who are wetting every night and those who have reached seven years of age are more likely to need a bed wetting alarm. It is pointless to continue on the initial steps for months on end without trying a bedwetting alarm. Some children will continue to wet every night until an alarm is commenced, however, the initial steps prime them to respond to the alarm. Others improve dramatically with the initial steps, however, they still have occasional wet nights. Even the occasional wet night is not acceptable in older children and so the alarm may be needed to completely cure the problem.

If you purchase the Kit and end up not needing the alarm it can be returned in the sealed pack within 90 days. About 10% of those who purchase the Kit return the alarm because it was not needed. Read our 2006 Bedwetting Cured Customer Survey Results.

Bedwetting problems are often attributed incorrectly to psychological problems. In our experience this is rarely the case. At times a child's sleep pattern may alter for various reasons, which can lead to bedwetting. This just means that they need treatment so that despite being stressed, sick or tired they still won't wet the bed.

It is best to start treatment at about age five. The first three steps of our program can be used with younger children eg three or four years of age, however, we do not recommend using a bedwetting alarm until children are about five years old. The fact is that most people who contact us have a child who is much older. You still have a very good chance of success with this program.

Some children improve in summer, only to have the bedwetting become problematic again the next winter. This may be because in winter the child is not drinking adequately, they are perspiring less and they are sleeping more deeply.

Left untreated bedwetting has implications, which are often underestimated by both the community and those advising on its treatment. It places a huge burden on the whole family, as any parent of a bedwetting child will testify! Parents often become very distressed and might even suspect that their child is deliberately causing mischief. They are not! Try as they might to help, they feel powerless to stop wetting the bed, and in time their self-esteem may even suffer. Sleepovers with friends and school camps can become a source of considerable stress to the child. Many parents become resigned to the fact that they are unable to help their child. Doctors are often dismissive, offering only reassurance that the child will eventually outgrow the problem, when the family requires immediate help. Whilst bed wetting is a very common problem, it is often needlessly tolerated because of a certain reluctance to discuss what is an awkward and embarrassing subject for many people.

Results in research trials with bedwetting (enuresis) alarms have varied from 40% success to 97% success.

The most commonly prescribed medication for bedwetting is desmopressin, brand name Minirin. It is a synthetic hormone and has similar actions to the hormone vasopressin, (antidiuretic hormone). Desmopressin helps to reduce the volume of urine produced at night. It is available as a nasal spray and a tablet. This medication will reduce the number of wet nights in some children and even stop the bedwetting completely in a few. The main problem with desmopressin is that it is very common for the bedwetting to return as soon as the medication is stopped. A bedwetting alarm is more likely than medication to result in a permanent cure. Desmopressin is only available with a prescription from a Medical Practitioner.

There is a tendency for bedwetting to run in families and bedwetting is more common in boys. This does not in any way alter the treatment.

Bedwetting in teenagers and adults can be cured. The causes are generally the same and the treatment is the same step-by-step approach. In addition to all the standard recommendations adults need to be aware that alcohol suppresses the hormone vasopressin (antidiuretic hormone). With treatment it should be possible to stop bedwetting even after having alcohol.

There is no need to live with bedwetting. Results are very good with a well-designed comprehensive step-by-step program. Remember if you purchase any of our products we are contactable by phone, however, experience has shown us that if you purchase the Bedwetting Cured Kit, you are unlikely to need any more help. You will have solved the problem.

Read our 2006 Bedwetting Cured Customer Survey Results.
 

Ratatosk

Administrator
Staff member
A friend of mine has a coworker going thru this with his pre-teen son -- no cf. And apparently, the coworker had a similar problem. Apparently, the kid sleeps so deeply that he doesn't wake up at night to pee. The parents set their alarm and wake/sleepwalk the kid to the bathroom in the middle of the night. Think there are also "big kid" pull ups or something (pad) that can be put in the underwear in case there are accidents.
 

Ratatosk

Administrator
Staff member
A friend of mine has a coworker going thru this with his pre-teen son -- no cf. And apparently, the coworker had a similar problem. Apparently, the kid sleeps so deeply that he doesn't wake up at night to pee. The parents set their alarm and wake/sleepwalk the kid to the bathroom in the middle of the night. Think there are also "big kid" pull ups or something (pad) that can be put in the underwear in case there are accidents.
 
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