Here at CFTechnology.org/CysticFibrosis.com there are exciting things going on!
I met Patrick Merle, PhD, in California at the Global Genes Summit. Patrick has developed an app with the CF patient in mind.
A number of us have been piloting it, before we globally present it to you!
There are three reasons I was drawn to Patrick's project:
This application is unique in three ways:
1) The patient or caregiver can personalize the type of data being collected.
2) Data collected by the patient or caregiver through the application is stored on his device or personal cloud only, not into a company’s cloud, and he/she is the only one to authorize when and to whom his data is released/shared.
3) Patients may have the opportunity to be paid for their data!
Patrick has since introduced me to Ryan Roberts who has what I call a "world class spirometer".
This device is even made with a Three D Printer.
Lene Wandrey (with CF) in South Africa is revamping our CFTechnology.org website where you will be able to follow our progress!
Watch this space!
Salt and Light,
Jeanne
I met Patrick Merle, PhD, in California at the Global Genes Summit. Patrick has developed an app with the CF patient in mind.
A number of us have been piloting it, before we globally present it to you!
There are three reasons I was drawn to Patrick's project:
This application is unique in three ways:
1) The patient or caregiver can personalize the type of data being collected.
2) Data collected by the patient or caregiver through the application is stored on his device or personal cloud only, not into a company’s cloud, and he/she is the only one to authorize when and to whom his data is released/shared.
3) Patients may have the opportunity to be paid for their data!
Patrick has since introduced me to Ryan Roberts who has what I call a "world class spirometer".
This device is even made with a Three D Printer.
Lene Wandrey (with CF) in South Africa is revamping our CFTechnology.org website where you will be able to follow our progress!
Watch this space!
Salt and Light,
Jeanne