I'm looking for a handy basic book on cf to keep in my daughter's diaper bag. She goes to Mother's Day Out one to two days per week, and also spends some time in the church nursery. I would like to have some kind of reference material for her caregivers to be able to have handy for when they have questions. Does anyone have any recommendations? Thanks so much!<img src="i/expressions/face-icon-small-smile.gif" border="0"> melanie <><
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Books on cf?
- Thread starter anonymous
- Start date
I would check with your cf clinic. Our dietician and social worker were able to give us a nice pamphlet on enzemes. Also if you check the cff web site, they have a nice FAQ section where I gathered approp. general info. for our son's babysitters and friend's parents. Hope this helps.
The makers of pancrease (i can't think of the company name) makes videos and other pamphlet type things, If you are looking for something geared for other kids "Mallory's 65 Roses" is good so is "Taking Cystic Fibrosis To School" For adults there is a "parent's guide to Cystic Fibrosis" but that is not really a quick reference kind of thing....... Hope some of these helpAndrea
There is a great book called "Cystic Fibrosis: A Handbook for teachers and Day Care Providers." It talks all about CF and gives teachers/care givers information about all aspects of CF (including coughing, hand washing, germs, etc.) You should be able to get it from your center, although I just got mine at our CF Foundation office (I was there picking up information for Great Strides and they gave me a copy). It is printed (or funded) by Solvay Pharmaceuticals - so you also might try contacting them. In the meantime, you can log onto www.cff.org. Click on the "Living with CF" icon. Then click on "Parent and Family Eduction." Scroll about half way down the page and you will see a section called "Teacher's guide to CF" - it is in blue ink and underlined. Click on it. It is almost the exact same thing as the little book mentioned above. You can actually print it out from your computer. This is what I do for all of my son's teachers and coaches. The printed out version is nice and handy, but the booklet is nice for what you describe you need it for. The first page even has room for all emergency contact information (doctor, cf center, etc.). Hope this helps.Katrina (robertnkatrina@attbi.com)