Bowel cancer and CF

lilaonholiday

New member
<P>Hi There,</P>
<P>I'm looking for help or advice from anyone who may have had or knows someone who may have had bowel cancer with CF. I've just been diagnosed with the cancer but can find very little information on people with CF who have suffered with it. Would greatly appreciate responses. Thank-you</P>
 

lilaonholiday

New member
<P>Hi There,</P>
<P>I'm looking for help or advice from anyone who may have had or knows someone who may have had bowel cancer with CF. I've just been diagnosed with the cancer but can find very little information on people with CF who have suffered with it. Would greatly appreciate responses. Thank-you</P>
 

lilaonholiday

New member
<P>Hi There,</P>
<P>I'm looking for help or advice from anyone who may have had or knows someone who may have had bowel cancer with CF. I've just been diagnosed with the cancer but can find very little information on people with CF who have suffered with it. Would greatly appreciate responses. Thank-you</P>
 

scanboyd

Member
<P>I had a malignant polyp adeno ca removed (removed part of large bowel) asending colon removed. Doing great by that no additional treatment need. That was 9.5 yrs. ago. You can send me a private message if you want to talk more about it more.</P>
<P>Side note, if I had my colonoscopy at age 50, they would of prob. found the polyp before it turned to cancer. I had my 1st colonoscopy at age 53, only because my wife made the apt. for both of us. Hers was fine but mine was not. </P>
<P>Thank God for my Bride.  </P>
<P>Have your colonoscopy at age 50 or before with family history of colon ca!!</P>
 

scanboyd

Member
<P>I had a malignant polyp adeno ca removed (removed part of large bowel) asending colon removed. Doing great by that no additional treatment need. That was 9.5 yrs. ago. You can send me a private message if you want to talk more about it more.</P>
<P>Side note, if I had my colonoscopy at age 50, they would of prob. found the polyp before it turned to cancer. I had my 1st colonoscopy at age 53, only because my wife made the apt. for both of us. Hers was fine but mine was not. </P>
<P>Thank God for my Bride. </P>
<P>Have your colonoscopy at age 50 or before with family history of colonca!!</P>
 

scanboyd

Member
<P>I had a malignant polyp adeno ca removed (removed part of large bowel) asending colon removed. Doing great by that no additional treatment need. That was 9.5 yrs. ago. You can send me a private message if you want to talk more about it more.</P>
<P>Side note, if I had my colonoscopy at age 50, they would of prob. found the polyp before it turned to cancer. I had my 1st colonoscopy at age 53, only because my wife made the apt. for both of us. Hers was fine but mine was not. </P>
<P>Thank God for my Bride. </P>
<P>Have your colonoscopy at age 50 or before with family history of colonca!!</P>
 
I am so sorry you are dealing with this. Like cf isnt enough alone. A few years ago I was having chronic abdo pain. After lots of searching my dr sat me down and suggested we do a scope because there is a higher rosk of bowl cancer with cf. I was fortunate and it came back clear but fromthis i do believe youre not alone. Im sorry i cant be of better help. Please just know that you are not alone in your fight.

I wish you peace and strength to overcome this.
 
I am so sorry you are dealing with this. Like cf isnt enough alone. A few years ago I was having chronic abdo pain. After lots of searching my dr sat me down and suggested we do a scope because there is a higher rosk of bowl cancer with cf. I was fortunate and it came back clear but fromthis i do believe youre not alone. Im sorry i cant be of better help. Please just know that you are not alone in your fight.

I wish you peace and strength to overcome this.
 
I am so sorry you are dealing with this. Like cf isnt enough alone. A few years ago I was having chronic abdo pain. After lots of searching my dr sat me down and suggested we do a scope because there is a higher rosk of bowl cancer with cf. I was fortunate and it came back clear but fromthis i do believe youre not alone. Im sorry i cant be of better help. Please just know that you are not alone in your fight.
<br />
<br />I wish you peace and strength to overcome this.
 

lilaonholiday

New member
Thank-you both for getting in touch. It's so inspiring to hear that you're doing great Scanboyd. I've sent a pm through, though was first time I've tried to do this so hope you received it. Glad to hear that your scope was clear living loving grace. Thanks for your supportive words, very comforting. Feel so sick, but have to keep fighting. love and best wishes of health to you both.
 

lilaonholiday

New member
Thank-you both for getting in touch. It's so inspiring to hear that you're doing great Scanboyd. I've sent a pm through, though was first time I've tried to do this so hope you received it. Glad to hear that your scope was clear living loving grace. Thanks for your supportive words, very comforting. Feel so sick, but have to keep fighting. love and best wishes of health to you both.
 

lilaonholiday

New member
Thank-you both for getting in touch. It's so inspiring to hear that you're doing great Scanboyd. I've sent a pm through, though was first time I've tried to do this so hope you received it. Glad to hear that your scope was clear living loving grace. Thanks for your supportive words, very comforting. Feel so sick, but have to keep fighting. love and best wishes of health to you both.
 

LouLou

New member
Steph had rectal cancer. Here is her blog. <A HREF="http://ifpigshadwings.blogspot.com/">http://ifpigshadwings.blogspot.com/</A>
 

LouLou

New member
Steph had rectal cancer. Here is her blog. <A HREF="http://ifpigshadwings.blogspot.com/">http://ifpigshadwings.blogspot.com/</A>
 

LouLou

New member
Steph had rectal cancer. Here is her blog. <A HREF="http://ifpigshadwings.blogspot.com/">http://ifpigshadwings.blogspot.com/</A>
 
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cgcheatham

Guest
Husband had colon cancer 3 yrs ago.  Tumor was size of Coke can top. After surgery he had 9 chemo treatments.  He is now doing great.  Had colonoscopy been done at age 50 as recommended they might have caught it in early stages.  As a result of his bout with cancer I scheduled colonoscopy (55 yrs-same age as he was) and unexpectedly received diagnosis of cancer too.  Had I waited 6 mos. the doctor said I would have had to have surgery and chemo too.  Husband is 58 yrs old, dx w/CF at 14 yrs; dbl transplant 1997.  Best of luck to you. 
 
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cgcheatham

Guest
Husband had colon cancer 3 yrs ago. Tumor was size of Coke can top. After surgery he had 9 chemo treatments. He is now doing great. Had colonoscopy been done at age 50 as recommended they might have caught it in early stages. As a result of his bout with cancer I scheduled colonoscopy (55 yrs-same age as he was) and unexpectedly received diagnosis of cancer too. Had I waited 6 mos. the doctor said I would have had to have surgery and chemo too. Husband is 58 yrs old, dx w/CF at 14 yrs; dbl transplant 1997. Best of luck to you.
 
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cgcheatham

Guest
Husband had colon cancer 3 yrs ago. Tumor was size of Coke can top. After surgery he had 9 chemo treatments. He is now doing great. Had colonoscopy been done at age 50 as recommended they might have caught it in early stages. As a result of his bout with cancer I scheduled colonoscopy (55 yrs-same age as he was) and unexpectedly received diagnosis of cancer too. Had I waited 6 mos. the doctor said I would have had to have surgery and chemo too. Husband is 58 yrs old, dx w/CF at 14 yrs; dbl transplant 1997. Best of luck to you. <BR>
 

PinkPigg

New member
Hey Lila. That sucks that you have cancer. Nothing life having to scary diagnosis. Like Grace said GI cancers are more common in those with CF. My diagnosis was rectal cancer. I was lucky and it was stage 1. However, I ended up with a permanent colostomy due to the location. Treatment is very much dependant on what stage of cancer you have. The National Comprehensive Cancer Network sets treatment guidelines for various types of cancers. I liked looking at them to have an awareness of what the correct treatment is and then knowing that my doctor followed it.

There is a lot on my blog as Lauren mentioned (thanks!). But of course you can always send me an email if you want to talk more. My email is <A HREF="mailto:randsrath@tds.net">randsrath@tds.net</A>. Cancer is not for pussies but stay strong and you can kick it's butt!!!

Peace,
Steph
 

PinkPigg

New member
Hey Lila. That sucks that you have cancer. Nothing life having to scary diagnosis. Like Grace said GI cancers are more common in those with CF. My diagnosis was rectal cancer. I was lucky and it was stage 1. However, I ended up with a permanent colostomy due to the location. Treatment is very much dependant on what stage of cancer you have. The National Comprehensive Cancer Network sets treatment guidelines for various types of cancers. I liked looking at them to have an awareness of what the correct treatment is and then knowing that my doctor followed it.

There is a lot on my blog as Lauren mentioned (thanks!). But of course you can always send me an email if you want to talk more. My email is <A HREF="mailto:randsrath@tds.net">randsrath@tds.net</A>. Cancer is not for pussies but stay strong and you can kick it's butt!!!

Peace,
Steph
 
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