I can't seem to find the answers I am looking for. I have a 14 month old going for a sweat test in two weeks. The doc's say it's just to rule it out, but I am worried mom. He is under weight and was sent to the GI in June - he tested for Celliac and Crone's but both were negative. He has several of the symptoms, but no breathing or lung issues so far. Has anyone experienced any thing like this. I just want to prepare myself better then the doc just saying it's to rule it out. I did have cousin with CF. I know it's somewhere in my family. I don't know if my husband and I have ever been tested. I see the OB on Friday (I am prego w/ 4th) and will ask him to dig through my paper work. Anyone with any answers?
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Brand New Here - looking for answers
- Thread starter hallkimd
- Start date
I can't seem to find the answers I am looking for. I have a 14 month old going for a sweat test in two weeks. The doc's say it's just to rule it out, but I am worried mom. He is under weight and was sent to the GI in June - he tested for Celliac and Crone's but both were negative. He has several of the symptoms, but no breathing or lung issues so far. Has anyone experienced any thing like this. I just want to prepare myself better then the doc just saying it's to rule it out. I did have cousin with CF. I know it's somewhere in my family. I don't know if my husband and I have ever been tested. I see the OB on Friday (I am prego w/ 4th) and will ask him to dig through my paper work. Anyone with any answers?
I can't seem to find the answers I am looking for. I have a 14 month old going for a sweat test in two weeks. The doc's say it's just to rule it out, but I am worried mom. He is under weight and was sent to the GI in June - he tested for Celliac and Crone's but both were negative. He has several of the symptoms, but no breathing or lung issues so far. Has anyone experienced any thing like this. I just want to prepare myself better then the doc just saying it's to rule it out. I did have cousin with CF. I know it's somewhere in my family. I don't know if my husband and I have ever been tested. I see the OB on Friday (I am prego w/ 4th) and will ask him to dig through my paper work. Anyone with any answers?
I can't seem to find the answers I am looking for. I have a 14 month old going for a sweat test in two weeks. The doc's say it's just to rule it out, but I am worried mom. He is under weight and was sent to the GI in June - he tested for Celliac and Crone's but both were negative. He has several of the symptoms, but no breathing or lung issues so far. Has anyone experienced any thing like this. I just want to prepare myself better then the doc just saying it's to rule it out. I did have cousin with CF. I know it's somewhere in my family. I don't know if my husband and I have ever been tested. I see the OB on Friday (I am prego w/ 4th) and will ask him to dig through my paper work. Anyone with any answers?
I can't seem to find the answers I am looking for. I have a 14 month old going for a sweat test in two weeks. The doc's say it's just to rule it out, but I am worried mom. He is under weight and was sent to the GI in June - he tested for Celliac and Crone's but both were negative. He has several of the symptoms, but no breathing or lung issues so far. Has anyone experienced any thing like this. I just want to prepare myself better then the doc just saying it's to rule it out. I did have cousin with CF. I know it's somewhere in my family. I don't know if my husband and I have ever been tested. I see the OB on Friday (I am prego w/ 4th) and will ask him to dig through my paper work. Anyone with any answers?
M
Mommafirst
Guest
I know you are coming looking for answers to make you feel better, so I hate to sound too blunt. Please forgive me if I do sound blunt and keep in mind that everyone here has had positive CF outcomes, so we are a little skewed toward that outcome. BUT it is very possible for a CF kid to have all digestive issues, especially at 14 months. Many of the adult CFers on this site didn't develop lung issues for years.
Good luck with the sweat test, but be aware that while its a good place to start and a good way to diagnose CF, its not all that great at ruling it out. Since CF is genetic and they know how to locate the gene, in most cases genetic work is a much better (though more expensive) way to rule out CF.
Good luck with the sweat test, but be aware that while its a good place to start and a good way to diagnose CF, its not all that great at ruling it out. Since CF is genetic and they know how to locate the gene, in most cases genetic work is a much better (though more expensive) way to rule out CF.
M
Mommafirst
Guest
I know you are coming looking for answers to make you feel better, so I hate to sound too blunt. Please forgive me if I do sound blunt and keep in mind that everyone here has had positive CF outcomes, so we are a little skewed toward that outcome. BUT it is very possible for a CF kid to have all digestive issues, especially at 14 months. Many of the adult CFers on this site didn't develop lung issues for years.
Good luck with the sweat test, but be aware that while its a good place to start and a good way to diagnose CF, its not all that great at ruling it out. Since CF is genetic and they know how to locate the gene, in most cases genetic work is a much better (though more expensive) way to rule out CF.
Good luck with the sweat test, but be aware that while its a good place to start and a good way to diagnose CF, its not all that great at ruling it out. Since CF is genetic and they know how to locate the gene, in most cases genetic work is a much better (though more expensive) way to rule out CF.
M
Mommafirst
Guest
I know you are coming looking for answers to make you feel better, so I hate to sound too blunt. Please forgive me if I do sound blunt and keep in mind that everyone here has had positive CF outcomes, so we are a little skewed toward that outcome. BUT it is very possible for a CF kid to have all digestive issues, especially at 14 months. Many of the adult CFers on this site didn't develop lung issues for years.
Good luck with the sweat test, but be aware that while its a good place to start and a good way to diagnose CF, its not all that great at ruling it out. Since CF is genetic and they know how to locate the gene, in most cases genetic work is a much better (though more expensive) way to rule out CF.
Good luck with the sweat test, but be aware that while its a good place to start and a good way to diagnose CF, its not all that great at ruling it out. Since CF is genetic and they know how to locate the gene, in most cases genetic work is a much better (though more expensive) way to rule out CF.
M
Mommafirst
Guest
I know you are coming looking for answers to make you feel better, so I hate to sound too blunt. Please forgive me if I do sound blunt and keep in mind that everyone here has had positive CF outcomes, so we are a little skewed toward that outcome. BUT it is very possible for a CF kid to have all digestive issues, especially at 14 months. Many of the adult CFers on this site didn't develop lung issues for years.
Good luck with the sweat test, but be aware that while its a good place to start and a good way to diagnose CF, its not all that great at ruling it out. Since CF is genetic and they know how to locate the gene, in most cases genetic work is a much better (though more expensive) way to rule out CF.
Good luck with the sweat test, but be aware that while its a good place to start and a good way to diagnose CF, its not all that great at ruling it out. Since CF is genetic and they know how to locate the gene, in most cases genetic work is a much better (though more expensive) way to rule out CF.
M
Mommafirst
Guest
I know you are coming looking for answers to make you feel better, so I hate to sound too blunt. Please forgive me if I do sound blunt and keep in mind that everyone here has had positive CF outcomes, so we are a little skewed toward that outcome. BUT it is very possible for a CF kid to have all digestive issues, especially at 14 months. Many of the adult CFers on this site didn't develop lung issues for years.
<br />
<br />Good luck with the sweat test, but be aware that while its a good place to start and a good way to diagnose CF, its not all that great at ruling it out. Since CF is genetic and they know how to locate the gene, in most cases genetic work is a much better (though more expensive) way to rule out CF.
<br />
<br />Good luck with the sweat test, but be aware that while its a good place to start and a good way to diagnose CF, its not all that great at ruling it out. Since CF is genetic and they know how to locate the gene, in most cases genetic work is a much better (though more expensive) way to rule out CF.
As mentioned, a sweat test is a good place to start, though I would hope that should your son's test come back as normal, that they would continue to pursue genetic testing. Unfortunately, there are several people on this site who had normal sweat tests, no family history and no initial lung problems.
I would also mention to your OB about the family history.
Are your son's stools normal, does he taste salty when you kiss him...?
Anyway, I hope you get some answers. Please feel free to keep asking questions.
I would also mention to your OB about the family history.
Are your son's stools normal, does he taste salty when you kiss him...?
Anyway, I hope you get some answers. Please feel free to keep asking questions.
As mentioned, a sweat test is a good place to start, though I would hope that should your son's test come back as normal, that they would continue to pursue genetic testing. Unfortunately, there are several people on this site who had normal sweat tests, no family history and no initial lung problems.
I would also mention to your OB about the family history.
Are your son's stools normal, does he taste salty when you kiss him...?
Anyway, I hope you get some answers. Please feel free to keep asking questions.
I would also mention to your OB about the family history.
Are your son's stools normal, does he taste salty when you kiss him...?
Anyway, I hope you get some answers. Please feel free to keep asking questions.
As mentioned, a sweat test is a good place to start, though I would hope that should your son's test come back as normal, that they would continue to pursue genetic testing. Unfortunately, there are several people on this site who had normal sweat tests, no family history and no initial lung problems.
I would also mention to your OB about the family history.
Are your son's stools normal, does he taste salty when you kiss him...?
Anyway, I hope you get some answers. Please feel free to keep asking questions.
I would also mention to your OB about the family history.
Are your son's stools normal, does he taste salty when you kiss him...?
Anyway, I hope you get some answers. Please feel free to keep asking questions.
As mentioned, a sweat test is a good place to start, though I would hope that should your son's test come back as normal, that they would continue to pursue genetic testing. Unfortunately, there are several people on this site who had normal sweat tests, no family history and no initial lung problems.
I would also mention to your OB about the family history.
Are your son's stools normal, does he taste salty when you kiss him...?
Anyway, I hope you get some answers. Please feel free to keep asking questions.
I would also mention to your OB about the family history.
Are your son's stools normal, does he taste salty when you kiss him...?
Anyway, I hope you get some answers. Please feel free to keep asking questions.
As mentioned, a sweat test is a good place to start, though I would hope that should your son's test come back as normal, that they would continue to pursue genetic testing. Unfortunately, there are several people on this site who had normal sweat tests, no family history and no initial lung problems.
<br />
<br />I would also mention to your OB about the family history.
<br />
<br />Are your son's stools normal, does he taste salty when you kiss him...?
<br />
<br />Anyway, I hope you get some answers. Please feel free to keep asking questions.
<br />
<br />I would also mention to your OB about the family history.
<br />
<br />Are your son's stools normal, does he taste salty when you kiss him...?
<br />
<br />Anyway, I hope you get some answers. Please feel free to keep asking questions.
at this point we can't tell you much, like mommafirst has said, anything we tell you is a little skewed, obviously there are some symptoms consistant with cystic fibrosis or they wouldn't be doing the sweat test. i was diagnosed using a sweat test and then followed up with a broad spectrum genetic test to find what mutations i have. in some cases a sweat test can produce a false negative. the sweat test is not as accurate as a genetic test but the sweat test is a good place to start. We are not drs so we cannot give you the professional advice that a medical professional can give you but we can provide realistic, real life expierences. i'm glad that chrones and celliac has been ruled out, really i cannot tell you a whole lot without the sweat test results, all i can offer you is support and understanding until you have test results
at this point we can't tell you much, like mommafirst has said, anything we tell you is a little skewed, obviously there are some symptoms consistant with cystic fibrosis or they wouldn't be doing the sweat test. i was diagnosed using a sweat test and then followed up with a broad spectrum genetic test to find what mutations i have. in some cases a sweat test can produce a false negative. the sweat test is not as accurate as a genetic test but the sweat test is a good place to start. We are not drs so we cannot give you the professional advice that a medical professional can give you but we can provide realistic, real life expierences. i'm glad that chrones and celliac has been ruled out, really i cannot tell you a whole lot without the sweat test results, all i can offer you is support and understanding until you have test results
at this point we can't tell you much, like mommafirst has said, anything we tell you is a little skewed, obviously there are some symptoms consistant with cystic fibrosis or they wouldn't be doing the sweat test. i was diagnosed using a sweat test and then followed up with a broad spectrum genetic test to find what mutations i have. in some cases a sweat test can produce a false negative. the sweat test is not as accurate as a genetic test but the sweat test is a good place to start. We are not drs so we cannot give you the professional advice that a medical professional can give you but we can provide realistic, real life expierences. i'm glad that chrones and celliac has been ruled out, really i cannot tell you a whole lot without the sweat test results, all i can offer you is support and understanding until you have test results
at this point we can't tell you much, like mommafirst has said, anything we tell you is a little skewed, obviously there are some symptoms consistant with cystic fibrosis or they wouldn't be doing the sweat test. i was diagnosed using a sweat test and then followed up with a broad spectrum genetic test to find what mutations i have. in some cases a sweat test can produce a false negative. the sweat test is not as accurate as a genetic test but the sweat test is a good place to start. We are not drs so we cannot give you the professional advice that a medical professional can give you but we can provide realistic, real life expierences. i'm glad that chrones and celliac has been ruled out, really i cannot tell you a whole lot without the sweat test results, all i can offer you is support and understanding until you have test results
at this point we can't tell you much, like mommafirst has said, anything we tell you is a little skewed, obviously there are some symptoms consistant with cystic fibrosis or they wouldn't be doing the sweat test. i was diagnosed using a sweat test and then followed up with a broad spectrum genetic test to find what mutations i have. in some cases a sweat test can produce a false negative. the sweat test is not as accurate as a genetic test but the sweat test is a good place to start. We are not drs so we cannot give you the professional advice that a medical professional can give you but we can provide realistic, real life expierences. i'm glad that chrones and celliac has been ruled out, really i cannot tell you a whole lot without the sweat test results, all i can offer you is support and understanding until you have test results