annonymous
New member
If a baby tested positive (at 2 wks old) for SEVERE pancreatic insufficiency:
When would signs of malabsorbtion start to appear in an EXCLUSIVELY BREASTFED baby?
What would the signs look like? Would the stools be the typical description of greasy, oily, foul-smelling, etc?
How long did you breastfeed and when did you start noticing any symptoms (including digestive, respiratory, clubbing, saltiness, etc. etc.) ?
Okay, here's a quick version of our story. The bottom line is that we have several tests that conflict each other and I believe that my baby may only be a carrier if anything. My baby had the heel prick done for newborn screening when he was 13 hours old. The screening is supposed to be done AFTER they are 24 hours old. The nurse told us that we'll probably get called in to redo some of the tests because they might come back abnormal since we did it so early. This is why we thought nothing of being called in for a sweat test at 2 wks old. Imagine our shock when his test came back at 70! Anyway, he was sweat tested 2x and each time the amount of sweat was questioned but they provided results anyway. It was never close to 100mg or 15microliters, which is what I've read is the min. amount, otherwise it's QNS (quantity not sufficient). The CF handbook (from CFF) and the Macroduct manual both provide information stating that low sweat rates can cause salt levels to be high/abnormal. Anyway, the blood drawn for Ambry came back NEGATIVE and his 2nd newborn screening for CF came back NEGATIVE (done at 2wks old). He was 4 mo. last week and is over 17 lbs! He does not nurse excessively, in fact, much less than my previous children. He is the most peaceful and content baby. He poops weekly, which is common for bf babies and his stools are normal breastfed poop. If he was SEVERELY pancreatic insufficient, wouldn't he be showing signs by now? He eats well and is gaining well and our doctor says this is very reassurring.
When would signs of malabsorbtion start to appear in an EXCLUSIVELY BREASTFED baby?
What would the signs look like? Would the stools be the typical description of greasy, oily, foul-smelling, etc?
How long did you breastfeed and when did you start noticing any symptoms (including digestive, respiratory, clubbing, saltiness, etc. etc.) ?
Okay, here's a quick version of our story. The bottom line is that we have several tests that conflict each other and I believe that my baby may only be a carrier if anything. My baby had the heel prick done for newborn screening when he was 13 hours old. The screening is supposed to be done AFTER they are 24 hours old. The nurse told us that we'll probably get called in to redo some of the tests because they might come back abnormal since we did it so early. This is why we thought nothing of being called in for a sweat test at 2 wks old. Imagine our shock when his test came back at 70! Anyway, he was sweat tested 2x and each time the amount of sweat was questioned but they provided results anyway. It was never close to 100mg or 15microliters, which is what I've read is the min. amount, otherwise it's QNS (quantity not sufficient). The CF handbook (from CFF) and the Macroduct manual both provide information stating that low sweat rates can cause salt levels to be high/abnormal. Anyway, the blood drawn for Ambry came back NEGATIVE and his 2nd newborn screening for CF came back NEGATIVE (done at 2wks old). He was 4 mo. last week and is over 17 lbs! He does not nurse excessively, in fact, much less than my previous children. He is the most peaceful and content baby. He poops weekly, which is common for bf babies and his stools are normal breastfed poop. If he was SEVERELY pancreatic insufficient, wouldn't he be showing signs by now? He eats well and is gaining well and our doctor says this is very reassurring.