PedsNP2007
New member
Hi,
First, sorry that this is long. I need advice re breastfeeding and my sister with CF.
My sister and her husband are going to be parents of their first child, a son. Their gestational surrogate (biologically related to my sister and brother in law) is due Dec 19, 2008.
My sister wants to breastfeed her son. I am all for breastfeeding, but am concerned about the health implications. I've read the breastfeeding postings on the forum. A majority of them have indicated that within a few weeks of giving birth and breastfeeding, CF mothers are back to pre-pregnancy weight and some are even under that weight due to the stress of a newborn and caloric impact on breastfeeding.
My sister is not at her optimal health. Her FEV1 is around 40's; thus, the reason for a surrogate although she is considering it for her next child (another stressful issue for another day!). She has always been underweight for her height. Recently over the last 5-6 months she has gained about 10-20 lbs, both with sporadic use of megace and sheer luck. Her weight is now normal for her height (120 lbs, 5'4/5"). Thus, this is not reflecting weight gain needed in pregnancy. I assume she would have gained 10 lbs (hopefully) if she was pregnant. So her losing weight from breastfeeding would make her go under her normal weight. Her current BMI is 20.6. I know many CF centers like a BMI around 21 -- my center wants me at 21 when I get pregnant.
She's been following the adoption breastfeeding protocol. She's on domperidone, a galactogogue to help enhance lactation. Now she is due to start pumping, about 6-8 weeks prior to the baby being born. So that by the time the baby is born, she will have an adequate milk supply to solely breastfeed. Her surrogate plans on breastfeeding right after birth and pump also to provide milk.
My main issues is my worry about her losing her weight buffer. I think she has been far more healthy being at a normal weight finally. I worry she will lose a lot right away and lose ground.
How many extra calories does she need? I am assuming she needs about 2500-3000 calories now. I've read that an extra 200-500 calories is needed for maintaining weight. I don't see how that will be possible since some days she will be exhausted and not eat much... she's definitely not as "heavy" as she was a month ago due to recent colds, etc.
I will support her in this breastfeeding endeavor as long as she understands how serious it is to maintain her caloric intake to avoid losing excessive weight. I know she is in for a surprise when she is a full-time mom; I don't think she grasps how difficult it will be to manage her lung issues, a newborn baby feeding every 2-3 hours, and maintaining time to take in the caloric needs for her to maintain an adequate weight.
She's usually tired on her own after being a teacher's aide 6 hours a day. She is not going back to work after the baby is born.
I want to be there to help her out during this time, but I am ultimately wanting to protect my sister's health.
So if someone can help provide info regarding this issue, I'd be very appreciative.
Thanks, Jenn
30 year old cf, cfrd
First, sorry that this is long. I need advice re breastfeeding and my sister with CF.
My sister and her husband are going to be parents of their first child, a son. Their gestational surrogate (biologically related to my sister and brother in law) is due Dec 19, 2008.
My sister wants to breastfeed her son. I am all for breastfeeding, but am concerned about the health implications. I've read the breastfeeding postings on the forum. A majority of them have indicated that within a few weeks of giving birth and breastfeeding, CF mothers are back to pre-pregnancy weight and some are even under that weight due to the stress of a newborn and caloric impact on breastfeeding.
My sister is not at her optimal health. Her FEV1 is around 40's; thus, the reason for a surrogate although she is considering it for her next child (another stressful issue for another day!). She has always been underweight for her height. Recently over the last 5-6 months she has gained about 10-20 lbs, both with sporadic use of megace and sheer luck. Her weight is now normal for her height (120 lbs, 5'4/5"). Thus, this is not reflecting weight gain needed in pregnancy. I assume she would have gained 10 lbs (hopefully) if she was pregnant. So her losing weight from breastfeeding would make her go under her normal weight. Her current BMI is 20.6. I know many CF centers like a BMI around 21 -- my center wants me at 21 when I get pregnant.
She's been following the adoption breastfeeding protocol. She's on domperidone, a galactogogue to help enhance lactation. Now she is due to start pumping, about 6-8 weeks prior to the baby being born. So that by the time the baby is born, she will have an adequate milk supply to solely breastfeed. Her surrogate plans on breastfeeding right after birth and pump also to provide milk.
My main issues is my worry about her losing her weight buffer. I think she has been far more healthy being at a normal weight finally. I worry she will lose a lot right away and lose ground.
How many extra calories does she need? I am assuming she needs about 2500-3000 calories now. I've read that an extra 200-500 calories is needed for maintaining weight. I don't see how that will be possible since some days she will be exhausted and not eat much... she's definitely not as "heavy" as she was a month ago due to recent colds, etc.
I will support her in this breastfeeding endeavor as long as she understands how serious it is to maintain her caloric intake to avoid losing excessive weight. I know she is in for a surprise when she is a full-time mom; I don't think she grasps how difficult it will be to manage her lung issues, a newborn baby feeding every 2-3 hours, and maintaining time to take in the caloric needs for her to maintain an adequate weight.
She's usually tired on her own after being a teacher's aide 6 hours a day. She is not going back to work after the baby is born.
I want to be there to help her out during this time, but I am ultimately wanting to protect my sister's health.
So if someone can help provide info regarding this issue, I'd be very appreciative.
Thanks, Jenn
30 year old cf, cfrd