Peter and some others had suggested an interactive FAQ and definitions for this website... So now we are going to make that happen.
I really need some input from all members/users of this form to shed light on what you think should be included.
So far, some definitions/questions are:
Sweat test
Blood/mutation test
Mickey Tube
GERD
CFRD
Why do women have fertility complications?
Why do men have fertility complications?
How many CF mutations are currently known?
What is a CF mutation?
If there is no history of CF in my family, how can my baby/child have CF?
What causes CF?
What are CF probabilities?
What is a carrier of a CF mutation?
What body parts does CF affect?
Does CF affect everybody the same?
What are some CF information resources?
What is the average lifespan?
I am hoping to add hundreds of others. I am thinking back to the time when CF was brand new to me and all the questions I had, things I didn't understand, definitions frequently used that I had no idea what people were talking about and thusfar, this is all I can think of, but will keep adding to my list.
I am asking and hoping that everone on the site might be able to help out and give some additional ideas... it would be most helpful and very useful to our newest members/lurkers and those of us still learning along the way (myself included)
Thanks to everyone in advance
I really need some input from all members/users of this form to shed light on what you think should be included.
So far, some definitions/questions are:
Sweat test
Blood/mutation test
Mickey Tube
GERD
CFRD
Why do women have fertility complications?
Why do men have fertility complications?
How many CF mutations are currently known?
What is a CF mutation?
If there is no history of CF in my family, how can my baby/child have CF?
What causes CF?
What are CF probabilities?
What is a carrier of a CF mutation?
What body parts does CF affect?
Does CF affect everybody the same?
What are some CF information resources?
What is the average lifespan?
I am hoping to add hundreds of others. I am thinking back to the time when CF was brand new to me and all the questions I had, things I didn't understand, definitions frequently used that I had no idea what people were talking about and thusfar, this is all I can think of, but will keep adding to my list.
I am asking and hoping that everone on the site might be able to help out and give some additional ideas... it would be most helpful and very useful to our newest members/lurkers and those of us still learning along the way (myself included)
Thanks to everyone in advance