Can I ask a favor? Med. Question

julie

New member
I was wondering if everyone could help me out and list some of the everyday medications they take, whether they be CF related or not. I am trying to work on something (I do believe I always have a project stirring) about some common CF medications (like Tobi, Pulmozyme, Cipro, Colistin) and also some not so common CF medications but that are used by CFers everyday/often and are maybe related to another condition but CF plays a factor (i.e. heartburn, acid indigestion, cramps...).

I hope to gather input from as many people as possible (not at all necessary to leave your name) so I can see the trends in the medications that I or others tend to think of as not CF related, but if 29 out of 30 who respond are on the some of the same meds, maybe there is a CF coorelation (hope that makes sense).

Unfortunately, at this time any herbal medications (although I DO promote them) aren't relevant to this research, I am just looking for medications that are prescribed or are taken OTC but are NOT herbal. (tylenol, if in canada tylenol with codine...)

I also don't need dosages unless you wish to list them, at this point only the name of the medication and maybe just a few words about what you take it for.

Any input would be extremely helpful!!!
 

julie

New member
I was wondering if everyone could help me out and list some of the everyday medications they take, whether they be CF related or not. I am trying to work on something (I do believe I always have a project stirring) about some common CF medications (like Tobi, Pulmozyme, Cipro, Colistin) and also some not so common CF medications but that are used by CFers everyday/often and are maybe related to another condition but CF plays a factor (i.e. heartburn, acid indigestion, cramps...).

I hope to gather input from as many people as possible (not at all necessary to leave your name) so I can see the trends in the medications that I or others tend to think of as not CF related, but if 29 out of 30 who respond are on the some of the same meds, maybe there is a CF coorelation (hope that makes sense).

Unfortunately, at this time any herbal medications (although I DO promote them) aren't relevant to this research, I am just looking for medications that are prescribed or are taken OTC but are NOT herbal. (tylenol, if in canada tylenol with codine...)

I also don't need dosages unless you wish to list them, at this point only the name of the medication and maybe just a few words about what you take it for.

Any input would be extremely helpful!!!
 

coltsfan715

New member
Lantus - Insulin for Diabetes
Novolog - Insulin for Diabetes
Ultrase MT20 - Enzymes
Albuterol - Neb Treatment
Pulmozyme - Neb Treatment
Advair 250/50 - Inhaler
Zithromax - 3Xs a week Antibiotic/inflammation
Ortho Evra - Birth Control Patch for Severe Cramps

Those I always take - I take TOBI if I am culturing Psuedo - my last culture there was none so I don't take that now.
I take Bactrim DS and Cipro as Oral Antibiotics usually.
As IV meds I have been taking Tobramycin, Fortaz/Ceftazidime and alternating Vancomycin and Zyvox every other hospital stay.

Hope that is helpful. Sorry for putting down what everything is I figured you would know, but just put it anyway.

Lindsey
 

coltsfan715

New member
Lantus - Insulin for Diabetes
Novolog - Insulin for Diabetes
Ultrase MT20 - Enzymes
Albuterol - Neb Treatment
Pulmozyme - Neb Treatment
Advair 250/50 - Inhaler
Zithromax - 3Xs a week Antibiotic/inflammation
Ortho Evra - Birth Control Patch for Severe Cramps

Those I always take - I take TOBI if I am culturing Psuedo - my last culture there was none so I don't take that now.
I take Bactrim DS and Cipro as Oral Antibiotics usually.
As IV meds I have been taking Tobramycin, Fortaz/Ceftazidime and alternating Vancomycin and Zyvox every other hospital stay.

Hope that is helpful. Sorry for putting down what everything is I figured you would know, but just put it anyway.

Lindsey
 

Emily65Roses

New member
Directly CF related:
Pulmozyme
Colistin (month on/ month off)
Albuterol
Nasacort
ADEKs
Ultrase MT 18s
Zithromax (though that's stopping soon)
And as a result of the Zithromax - AZO Yeast and acidophilus
Heparin once a month for my port

Other meds:
Nexium
Wellbutrin XL
Seroquel

I think that's all... if I think of any others, I shall come back and update you.
 

Emily65Roses

New member
Directly CF related:
Pulmozyme
Colistin (month on/ month off)
Albuterol
Nasacort
ADEKs
Ultrase MT 18s
Zithromax (though that's stopping soon)
And as a result of the Zithromax - AZO Yeast and acidophilus
Heparin once a month for my port

Other meds:
Nexium
Wellbutrin XL
Seroquel

I think that's all... if I think of any others, I shall come back and update you.
 

JennifersHope

New member
I'll go since I am still lurking around.. finishing up treatments.. before bed...


Prednisone for Addison's and lungs
hyrdrocorteff for Addison's
pulmozyme
albulteral
prevcaid
protonix
Tobi inhaled
Cardizaim for heart
Norvasc for heart
nitroglycerin for heart
Pancrease MT 20
Metformin.. glucose control
Regular Insulin
Spirvia.. breathing
Advair
Miralax
Advil
Tylenol arthrtis joint pain
Trazadone (sleep)
Ambein * sleep
fosamax
( ativan when on steroids)


I think that is all but if I think of it I will repost....


Not everyday but very often.. Cipro, Bactrim,
 

JennifersHope

New member
I'll go since I am still lurking around.. finishing up treatments.. before bed...


Prednisone for Addison's and lungs
hyrdrocorteff for Addison's
pulmozyme
albulteral
prevcaid
protonix
Tobi inhaled
Cardizaim for heart
Norvasc for heart
nitroglycerin for heart
Pancrease MT 20
Metformin.. glucose control
Regular Insulin
Spirvia.. breathing
Advair
Miralax
Advil
Tylenol arthrtis joint pain
Trazadone (sleep)
Ambein * sleep
fosamax
( ativan when on steroids)


I think that is all but if I think of it I will repost....


Not everyday but very often.. Cipro, Bactrim,
 

anonymous

New member
TOBI
Pulmozyme
Albuterol
Advair 250/50
Creon 20
Miralax
Prilosec
Rhinocort

Lexapro
Nuva Ring (hormonal birth control)
Ativan-as needed
Ambien-as needed
multivitamin
 

anonymous

New member
TOBI
Pulmozyme
Albuterol
Advair 250/50
Creon 20
Miralax
Prilosec
Rhinocort

Lexapro
Nuva Ring (hormonal birth control)
Ativan-as needed
Ambien-as needed
multivitamin
 

nickandlivsmom

New member
albuterol
advair
TOBI
singulair
zyrtec
cipro(not all the time but a lot)
multivitamin
vit.K(sometimes when needed) <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

nickandlivsmom

New member
albuterol
advair
TOBI
singulair
zyrtec
cipro(not all the time but a lot)
multivitamin
vit.K(sometimes when needed) <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

thelizardqueen

New member
CF related:

Creon 25
ADEKs
Cipro
TOBI
Colymycin
Ventolin also known as subutoral
Pulmicort
Clocksocylin (not sure if that's spelt right)

Non-CF related:

Lispro (insulin)
Humulin N (insulin)
Tetracycline
Demulin 30 (birth control)
Pepto Bismal (heartburn)
 

thelizardqueen

New member
CF related:

Creon 25
ADEKs
Cipro
TOBI
Colymycin
Ventolin also known as subutoral
Pulmicort
Clocksocylin (not sure if that's spelt right)

Non-CF related:

Lispro (insulin)
Humulin N (insulin)
Tetracycline
Demulin 30 (birth control)
Pepto Bismal (heartburn)
 

anonymous

New member
cf related
creon forte 1-2 [per meal
salt tablets on really hot days
bactrim double strength (havent taken them in years tho)

diabetes
mixtard 30/70 two injections epr day

Im in Australia so this info might not be that helpful

Good luck with it

JaKE
 

anonymous

New member
cf related
creon forte 1-2 [per meal
salt tablets on really hot days
bactrim double strength (havent taken them in years tho)

diabetes
mixtard 30/70 two injections epr day

Im in Australia so this info might not be that helpful

Good luck with it

JaKE
 
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