Can i have a baby?!

rosie8

New member
im 18 years old. with cf and cfrd. lately, im finding it impossible to get the inspiration to gain the weight i need to be healthy. i look disgusting. im a skeleton. its summer and having a feeding tube makes it IMPOSIBLE to feel comfortable in a bathing suit. i dont know what to do. i talk to my friends and family ..i talk to them like im going to die anyday sometimes. i want to get everything done so quickly. im 18.. i expect to have ten years left.. how am i going to graduate college..get married..start a career..and have a family by that time?! im beginning to worry i wont get all that i want to get done..done before i die. i know i was born to be a mother. it sounds weird coming out of a 18 year olds mouth. but i would give up everything to have a family one day. i love kids. i have an extremely large spleen..and a feeding tube- how can it be possible to become pregnant with cf, and all these complications?! the other thing i was thinking about is, well is it selffish bringing a child into this world knowing it has a high chance of having CF? someone please help me out.
 

rosie8

New member
im 18 years old. with cf and cfrd. lately, im finding it impossible to get the inspiration to gain the weight i need to be healthy. i look disgusting. im a skeleton. its summer and having a feeding tube makes it IMPOSIBLE to feel comfortable in a bathing suit. i dont know what to do. i talk to my friends and family ..i talk to them like im going to die anyday sometimes. i want to get everything done so quickly. im 18.. i expect to have ten years left.. how am i going to graduate college..get married..start a career..and have a family by that time?! im beginning to worry i wont get all that i want to get done..done before i die. i know i was born to be a mother. it sounds weird coming out of a 18 year olds mouth. but i would give up everything to have a family one day. i love kids. i have an extremely large spleen..and a feeding tube- how can it be possible to become pregnant with cf, and all these complications?! the other thing i was thinking about is, well is it selffish bringing a child into this world knowing it has a high chance of having CF? someone please help me out.
 

rosie8

New member
im 18 years old. with cf and cfrd. lately, im finding it impossible to get the inspiration to gain the weight i need to be healthy. i look disgusting. im a skeleton. its summer and having a feeding tube makes it IMPOSIBLE to feel comfortable in a bathing suit. i dont know what to do. i talk to my friends and family ..i talk to them like im going to die anyday sometimes. i want to get everything done so quickly. im 18.. i expect to have ten years left.. how am i going to graduate college..get married..start a career..and have a family by that time?! im beginning to worry i wont get all that i want to get done..done before i die. i know i was born to be a mother. it sounds weird coming out of a 18 year olds mouth. but i would give up everything to have a family one day. i love kids. i have an extremely large spleen..and a feeding tube- how can it be possible to become pregnant with cf, and all these complications?! the other thing i was thinking about is, well is it selffish bringing a child into this world knowing it has a high chance of having CF? someone please help me out.
 

KibblesSezHi

New member
the kid'll only have cf if your partner has the gene, and even then it may only be a mild form of cf. i dont think its selfish, honestly.
 

KibblesSezHi

New member
the kid'll only have cf if your partner has the gene, and even then it may only be a mild form of cf. i dont think its selfish, honestly.
 

KibblesSezHi

New member
the kid'll only have cf if your partner has the gene, and even then it may only be a mild form of cf. i dont think its selfish, honestly.
 

Havoc

New member
I think the question is "should I become pregnant with CF?" Just because something is possible, doesn't mean it's the right thing to do.

The problem is that your pregnancy would be high risk. You have problems providing your own body with nutrition, to the point of needing a g-tube. How difficult would it be then to give your baby adequate nutrition during your pregnancy? a dozen other questions like this one come to mind, but I will not go into all that. Suffice it to say that, getting pregnant would likely put your life and that of your baby at unnecessary risk.

If everything should go ok with your pregnancy and delivery, you have to wonder about your health status afterward. Are your going to have the energy to chase around a little kid? Are you going to be able to deal with a couple of years of bad sleep? Should your prediction of only living another 10 years come true, are you ok with leaving a child motherless?

Regarding genetics, best case scenario is that your child will be a carrier for CF, and one day might have to worry about the risk of having a CF child, but there are ways around that. Genetics is the least of your worries, really.

In the end, nobody here can tell you what the right decision is. If I were you, I would speak to your CF team and an OBGYN and get their opinion on how risky becoming pregnant would be for you and your child. Then make an informed decision.
 

Havoc

New member
I think the question is "should I become pregnant with CF?" Just because something is possible, doesn't mean it's the right thing to do.

The problem is that your pregnancy would be high risk. You have problems providing your own body with nutrition, to the point of needing a g-tube. How difficult would it be then to give your baby adequate nutrition during your pregnancy? a dozen other questions like this one come to mind, but I will not go into all that. Suffice it to say that, getting pregnant would likely put your life and that of your baby at unnecessary risk.

If everything should go ok with your pregnancy and delivery, you have to wonder about your health status afterward. Are your going to have the energy to chase around a little kid? Are you going to be able to deal with a couple of years of bad sleep? Should your prediction of only living another 10 years come true, are you ok with leaving a child motherless?

Regarding genetics, best case scenario is that your child will be a carrier for CF, and one day might have to worry about the risk of having a CF child, but there are ways around that. Genetics is the least of your worries, really.

In the end, nobody here can tell you what the right decision is. If I were you, I would speak to your CF team and an OBGYN and get their opinion on how risky becoming pregnant would be for you and your child. Then make an informed decision.
 

Havoc

New member
I think the question is "should I become pregnant with CF?" Just because something is possible, doesn't mean it's the right thing to do.
<br />
<br />The problem is that your pregnancy would be high risk. You have problems providing your own body with nutrition, to the point of needing a g-tube. How difficult would it be then to give your baby adequate nutrition during your pregnancy? a dozen other questions like this one come to mind, but I will not go into all that. Suffice it to say that, getting pregnant would likely put your life and that of your baby at unnecessary risk.
<br />
<br />If everything should go ok with your pregnancy and delivery, you have to wonder about your health status afterward. Are your going to have the energy to chase around a little kid? Are you going to be able to deal with a couple of years of bad sleep? Should your prediction of only living another 10 years come true, are you ok with leaving a child motherless?
<br />
<br />Regarding genetics, best case scenario is that your child will be a carrier for CF, and one day might have to worry about the risk of having a CF child, but there are ways around that. Genetics is the least of your worries, really.
<br />
<br />In the end, nobody here can tell you what the right decision is. If I were you, I would speak to your CF team and an OBGYN and get their opinion on how risky becoming pregnant would be for you and your child. Then make an informed decision.
<br />
<br />
 

justdance

New member
Hey rosie8,

It seems to me what you need right now is some time with a counsellor trained to help you deal with the issues you're talking about. It's quite common for cfers to become overwhelmed and depressed from time to time. You are on the brink of independent adulthood and need to face new issues. Get some help with this.

Only then can you start to think about children. But for now, work on yourself and try not to let your mind be clouded with negativity. Things don't have to be all bad.

Good luck x
 

justdance

New member
Hey rosie8,

It seems to me what you need right now is some time with a counsellor trained to help you deal with the issues you're talking about. It's quite common for cfers to become overwhelmed and depressed from time to time. You are on the brink of independent adulthood and need to face new issues. Get some help with this.

Only then can you start to think about children. But for now, work on yourself and try not to let your mind be clouded with negativity. Things don't have to be all bad.

Good luck x
 

justdance

New member
Hey rosie8,
<br />
<br />It seems to me what you need right now is some time with a counsellor trained to help you deal with the issues you're talking about. It's quite common for cfers to become overwhelmed and depressed from time to time. You are on the brink of independent adulthood and need to face new issues. Get some help with this.
<br />
<br />Only then can you start to think about children. But for now, work on yourself and try not to let your mind be clouded with negativity. Things don't have to be all bad.
<br />
<br />Good luck x
 

Printer

Active member
Hi Rosie:

I'm a 71 year old male with CF. I have been married for more than 48 years. I have a BS in Business and did my Grad work in an MBA program.

If you spend any time on this site, you will become aware that there a ton of CF patients over the age of 28 and some into their 80s. One of my Doctors told me recently that he has alot of CF patients in their 70s.

The baby thing is a different issue, one that you should get a professional to help to sort out your options.

If I were you, I would plan for a long life.

Lastly, THERE WILL BE A CURE IN YOUR LIFETIME.

Best of luck,

Bill
 

Printer

Active member
Hi Rosie:

I'm a 71 year old male with CF. I have been married for more than 48 years. I have a BS in Business and did my Grad work in an MBA program.

If you spend any time on this site, you will become aware that there a ton of CF patients over the age of 28 and some into their 80s. One of my Doctors told me recently that he has alot of CF patients in their 70s.

The baby thing is a different issue, one that you should get a professional to help to sort out your options.

If I were you, I would plan for a long life.

Lastly, THERE WILL BE A CURE IN YOUR LIFETIME.

Best of luck,

Bill
 

Printer

Active member
Hi Rosie:
<br />
<br />I'm a 71 year old male with CF. I have been married for more than 48 years. I have a BS in Business and did my Grad work in an MBA program.
<br />
<br />If you spend any time on this site, you will become aware that there a ton of CF patients over the age of 28 and some into their 80s. One of my Doctors told me recently that he has alot of CF patients in their 70s.
<br />
<br />The baby thing is a different issue, one that you should get a professional to help to sort out your options.
<br />
<br />If I were you, I would plan for a long life.
<br />
<br />Lastly, THERE WILL BE A CURE IN YOUR LIFETIME.
<br />
<br />Best of luck,
<br />
<br />Bill
 

countrygal9210

New member
Rosie8,
I know exactly how your feeling (baby wise). I was in a relationship for 2 1/2 when it ended just this past January. I was 16 years old when I went in for a tune-up and was told that I could never have a child because I would die.
Truth was...It wasn't true. CF'ers can have children. You just have to have the right health state, the right medicine's, etc. I did alot of looking into this myself...
There is alot that goes into a baby and being pregnant. You DEF need to speak with your CF Doc and an OBGYN *BEFORE* you do anything! They can help you in a lot of ways that we onliners can't right now. We don't your charts, etc. But I will tell you, don't ever let CF win.
Don't let a life expectency be stamped on your foot. Strive to beat all odds. Don't let CF run your life. I just turned 19 so I know where you are at in life and how you feel in some ways but not in others such as a the g-tube.
However, when you talk to friends, don't act like your gonna die in 10 years. Life is what it is and only you can let yourself go. Don't give up girl!!!! :)
As for loving children, I am the same way. I love kids and hope and pray I can have kids someday myself, but I need a husband first. (You will need to know that your husband is gonna be there and take care of the child when you can't. You need to also have the support of your family and friends to help out. I was also given advice to maybe even have a home health nurse/nanny to help out.) Then I need to know that my health will support my decision to have a child and will be able to make it past labor & deliv. and past bringing the child home. You also need to have the money to support the family, still pay the bills, and still have money to maybe pay for a nanny or whoever you need to use at times. One person I talked to even said they hired a house cleaner to help things out.
There are A L O T of things to think about before you decide anything. Talk to the CF doc & an OBGYN and then even ask your CF doc if you can talk to someone about this. A group meeting somewhere anything. Do some baby research such as how much the stuff you will want for the child will be. All the little things <img src="i/expressions/face-icon-small-smile.gif" border="0">
Goodluck and if ya ever need to talk just message me. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

countrygal9210

New member
Rosie8,
I know exactly how your feeling (baby wise). I was in a relationship for 2 1/2 when it ended just this past January. I was 16 years old when I went in for a tune-up and was told that I could never have a child because I would die.
Truth was...It wasn't true. CF'ers can have children. You just have to have the right health state, the right medicine's, etc. I did alot of looking into this myself...
There is alot that goes into a baby and being pregnant. You DEF need to speak with your CF Doc and an OBGYN *BEFORE* you do anything! They can help you in a lot of ways that we onliners can't right now. We don't your charts, etc. But I will tell you, don't ever let CF win.
Don't let a life expectency be stamped on your foot. Strive to beat all odds. Don't let CF run your life. I just turned 19 so I know where you are at in life and how you feel in some ways but not in others such as a the g-tube.
However, when you talk to friends, don't act like your gonna die in 10 years. Life is what it is and only you can let yourself go. Don't give up girl!!!! :)
As for loving children, I am the same way. I love kids and hope and pray I can have kids someday myself, but I need a husband first. (You will need to know that your husband is gonna be there and take care of the child when you can't. You need to also have the support of your family and friends to help out. I was also given advice to maybe even have a home health nurse/nanny to help out.) Then I need to know that my health will support my decision to have a child and will be able to make it past labor & deliv. and past bringing the child home. You also need to have the money to support the family, still pay the bills, and still have money to maybe pay for a nanny or whoever you need to use at times. One person I talked to even said they hired a house cleaner to help things out.
There are A L O T of things to think about before you decide anything. Talk to the CF doc & an OBGYN and then even ask your CF doc if you can talk to someone about this. A group meeting somewhere anything. Do some baby research such as how much the stuff you will want for the child will be. All the little things <img src="i/expressions/face-icon-small-smile.gif" border="0">
Goodluck and if ya ever need to talk just message me. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

countrygal9210

New member
Rosie8,
<br />I know exactly how your feeling (baby wise). I was in a relationship for 2 1/2 when it ended just this past January. I was 16 years old when I went in for a tune-up and was told that I could never have a child because I would die.
<br />Truth was...It wasn't true. CF'ers can have children. You just have to have the right health state, the right medicine's, etc. I did alot of looking into this myself...
<br />There is alot that goes into a baby and being pregnant. You DEF need to speak with your CF Doc and an OBGYN *BEFORE* you do anything! They can help you in a lot of ways that we onliners can't right now. We don't your charts, etc. But I will tell you, don't ever let CF win.
<br />Don't let a life expectency be stamped on your foot. Strive to beat all odds. Don't let CF run your life. I just turned 19 so I know where you are at in life and how you feel in some ways but not in others such as a the g-tube.
<br />However, when you talk to friends, don't act like your gonna die in 10 years. Life is what it is and only you can let yourself go. Don't give up girl!!!! :)
<br />As for loving children, I am the same way. I love kids and hope and pray I can have kids someday myself, but I need a husband first. (You will need to know that your husband is gonna be there and take care of the child when you can't. You need to also have the support of your family and friends to help out. I was also given advice to maybe even have a home health nurse/nanny to help out.) Then I need to know that my health will support my decision to have a child and will be able to make it past labor & deliv. and past bringing the child home. You also need to have the money to support the family, still pay the bills, and still have money to maybe pay for a nanny or whoever you need to use at times. One person I talked to even said they hired a house cleaner to help things out.
<br />There are A L O T of things to think about before you decide anything. Talk to the CF doc & an OBGYN and then even ask your CF doc if you can talk to someone about this. A group meeting somewhere anything. Do some baby research such as how much the stuff you will want for the child will be. All the little things <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />Goodluck and if ya ever need to talk just message me. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

CountryGirl

New member
If you want to learn more about getting pregnant or about freezing your eggs even, you would talk to a Endocrinoly Fertility Specialist. I tried asking my OBGYN about freezing my eggs and she referred me to the specialist.

Also, I definitely understand the feeling of being "rushed" is how I put my life. I felt like I had to do everything faster and sooner than my friends because I was prepared not to live as long. I've found it really helpful to talk to my social workers, someone other than a friend, they understand and are used to other patients who feel the same way.
 

CountryGirl

New member
If you want to learn more about getting pregnant or about freezing your eggs even, you would talk to a Endocrinoly Fertility Specialist. I tried asking my OBGYN about freezing my eggs and she referred me to the specialist.

Also, I definitely understand the feeling of being "rushed" is how I put my life. I felt like I had to do everything faster and sooner than my friends because I was prepared not to live as long. I've found it really helpful to talk to my social workers, someone other than a friend, they understand and are used to other patients who feel the same way.
 
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