Can someone please help me?

dogsrule

New member
My dad always tells me that god has given you this disease because he knew that you were stronge enough to take it. Sometimes I feel stronge, but other times I don't. I hate it when people treate me different, I don't want to be different. I want to be normal and not have to take meds or treatments. And I don't want doctors telling me to do this or that. I'm tired of them worrying about me. As you can see I don't like doctors they never have anything positive to say. They keep talking about finding a cure. That they have new and better treatments. But when I'm takeing them nothing changes. Why can't they find a cure? people say they don't know what life would have been if they didn't have this disease. I don't want to keep thinking that. I want to know, I want to live it. I want to say, tell people I'm cured from this disease.

Can someone please help me on this! Please

Christina w/cf
 

dogsrule

New member
My dad always tells me that god has given you this disease because he knew that you were stronge enough to take it. Sometimes I feel stronge, but other times I don't. I hate it when people treate me different, I don't want to be different. I want to be normal and not have to take meds or treatments. And I don't want doctors telling me to do this or that. I'm tired of them worrying about me. As you can see I don't like doctors they never have anything positive to say. They keep talking about finding a cure. That they have new and better treatments. But when I'm takeing them nothing changes. Why can't they find a cure? people say they don't know what life would have been if they didn't have this disease. I don't want to keep thinking that. I want to know, I want to live it. I want to say, tell people I'm cured from this disease.

Can someone please help me on this! Please

Christina w/cf
 

dogsrule

New member
My dad always tells me that god has given you this disease because he knew that you were stronge enough to take it. Sometimes I feel stronge, but other times I don't. I hate it when people treate me different, I don't want to be different. I want to be normal and not have to take meds or treatments. And I don't want doctors telling me to do this or that. I'm tired of them worrying about me. As you can see I don't like doctors they never have anything positive to say. They keep talking about finding a cure. That they have new and better treatments. But when I'm takeing them nothing changes. Why can't they find a cure? people say they don't know what life would have been if they didn't have this disease. I don't want to keep thinking that. I want to know, I want to live it. I want to say, tell people I'm cured from this disease.

Can someone please help me on this! Please

Christina w/cf
 

djotroy17

New member
Well unfortanatley there is not a cure, maybe someday there will be one but I don't think its healthy to wait for the cure. Accept what you have and live life to the fullest, accept you have CF and realize you are living a life, a life that is not considered "normal" in America but its still a life, and you can still leave an impact on this planet and on other people lifes. I have a milder case of CF and feel I have lived a fairly normal life...let me tell you, alot alot alot of people out there are not happy, they don't like their lives and take forgranted everything they have. Christina you are special, special in a good way...you will always have to take ur meds, but don't think "dam I have to take my meds" try and think "Thank God they have these meds that keep me alive". I know where you are coming from with the whole "normal" aspect, I pretended I didnt have CF all through High School...but the fact is "normal" people can be dull, its people like you that can really stand out and be someone great!

Anyways I hope this helped.
 

djotroy17

New member
Well unfortanatley there is not a cure, maybe someday there will be one but I don't think its healthy to wait for the cure. Accept what you have and live life to the fullest, accept you have CF and realize you are living a life, a life that is not considered "normal" in America but its still a life, and you can still leave an impact on this planet and on other people lifes. I have a milder case of CF and feel I have lived a fairly normal life...let me tell you, alot alot alot of people out there are not happy, they don't like their lives and take forgranted everything they have. Christina you are special, special in a good way...you will always have to take ur meds, but don't think "dam I have to take my meds" try and think "Thank God they have these meds that keep me alive". I know where you are coming from with the whole "normal" aspect, I pretended I didnt have CF all through High School...but the fact is "normal" people can be dull, its people like you that can really stand out and be someone great!

Anyways I hope this helped.
 

djotroy17

New member
Well unfortanatley there is not a cure, maybe someday there will be one but I don't think its healthy to wait for the cure. Accept what you have and live life to the fullest, accept you have CF and realize you are living a life, a life that is not considered "normal" in America but its still a life, and you can still leave an impact on this planet and on other people lifes. I have a milder case of CF and feel I have lived a fairly normal life...let me tell you, alot alot alot of people out there are not happy, they don't like their lives and take forgranted everything they have. Christina you are special, special in a good way...you will always have to take ur meds, but don't think "dam I have to take my meds" try and think "Thank God they have these meds that keep me alive". I know where you are coming from with the whole "normal" aspect, I pretended I didnt have CF all through High School...but the fact is "normal" people can be dull, its people like you that can really stand out and be someone great!

Anyways I hope this helped.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>djotroy17</b></i>

Well unfortanatley there is not a cure, maybe someday there will be one but I don't think its healthy to wait for the cure. Accept what you have and live life to the fullest, accept you have CF and realize you are living a life, a life that is not considered "normal" in America but its still a life, and you can still leave an impact on this planet and on other people lifes. I have a milder case of CF and feel I have lived a fairly normal life...let me tell you, alot alot alot of people out there are not happy, they don't like their lives and take forgranted everything they have. Christina you are special, special in a good way...you will always have to take ur meds, but don't think "dam I have to take my meds" try and think "Thank God they have these meds that keep me alive". I know where you are coming from with the whole "normal" aspect, I pretended I didnt have CF all through High School...but the fact is "normal" people can be dull, its people like you that can really stand out and be someone great!


Anyways I hope this helped.</end quote></div>



WELL SAID!
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>djotroy17</b></i>

Well unfortanatley there is not a cure, maybe someday there will be one but I don't think its healthy to wait for the cure. Accept what you have and live life to the fullest, accept you have CF and realize you are living a life, a life that is not considered "normal" in America but its still a life, and you can still leave an impact on this planet and on other people lifes. I have a milder case of CF and feel I have lived a fairly normal life...let me tell you, alot alot alot of people out there are not happy, they don't like their lives and take forgranted everything they have. Christina you are special, special in a good way...you will always have to take ur meds, but don't think "dam I have to take my meds" try and think "Thank God they have these meds that keep me alive". I know where you are coming from with the whole "normal" aspect, I pretended I didnt have CF all through High School...but the fact is "normal" people can be dull, its people like you that can really stand out and be someone great!


Anyways I hope this helped.</end quote></div>



WELL SAID!
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>djotroy17</b></i>

Well unfortanatley there is not a cure, maybe someday there will be one but I don't think its healthy to wait for the cure. Accept what you have and live life to the fullest, accept you have CF and realize you are living a life, a life that is not considered "normal" in America but its still a life, and you can still leave an impact on this planet and on other people lifes. I have a milder case of CF and feel I have lived a fairly normal life...let me tell you, alot alot alot of people out there are not happy, they don't like their lives and take forgranted everything they have. Christina you are special, special in a good way...you will always have to take ur meds, but don't think "dam I have to take my meds" try and think "Thank God they have these meds that keep me alive". I know where you are coming from with the whole "normal" aspect, I pretended I didnt have CF all through High School...but the fact is "normal" people can be dull, its people like you that can really stand out and be someone great!


Anyways I hope this helped.</end quote></div>



WELL SAID!
 

dogsrule

New member
Hey thanks you guys, that means alot to me. I have the disease mild too. The thing is I feel like I'm getting held back by this disease, and I know theres cfers that have it a whole lot worse than me. But I feel that no guys would like me because of this disease. I feel so stupid saying this but, I'm in my last year of high school and I've never been on a date. I just feel so helpless with this disease. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Christina 18 w/cf
 

dogsrule

New member
Hey thanks you guys, that means alot to me. I have the disease mild too. The thing is I feel like I'm getting held back by this disease, and I know theres cfers that have it a whole lot worse than me. But I feel that no guys would like me because of this disease. I feel so stupid saying this but, I'm in my last year of high school and I've never been on a date. I just feel so helpless with this disease. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Christina 18 w/cf
 

dogsrule

New member
Hey thanks you guys, that means alot to me. I have the disease mild too. The thing is I feel like I'm getting held back by this disease, and I know theres cfers that have it a whole lot worse than me. But I feel that no guys would like me because of this disease. I feel so stupid saying this but, I'm in my last year of high school and I've never been on a date. I just feel so helpless with this disease. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Christina 18 w/cf
 

Debi

New member
Christina, for what it's worth, I felt the same way you did in high school. I hated doing treaments and it was embarassing to be coughing all the time. I didn't have a first date until my senior year in high school. College was much better because guys were more mature. I met my husband as a senior in college. I have been married to him for 31 years and he is the finest man on earth. He is my soulmate, my best friend, my partner in all of life's joys and sorrows. I've lived a long time with cf. It's not a disease for the weak of spirit. But you can have a joyful life anyway. It comes from a mixture of taking good care of yourself, having a good attitude, being assertive, and having a lot of luck. Right now there is no cure, and there's not one on the horizon. Still, with the treatments available, you can do very well. Take each day as it comes, and surround yourself with people of character- people who will be there for you, not people who are shallow. Trust me, you know the difference.

Find a doctor you trust and who will listen to YOU, not your disease. My doctor and I do not do everything by the book and never have. We go by more than the numbers. Still, I listen to him. Don't just be rebellious because you're trying to prove something or think that will somehow make you "normal." No one is normal anyway, so learn to embrace your cf as your own little quirk.

The fact that you're sharing yourself and seeking input speaks volumes about your own maturity. You're going to do just great in life with such an inquisitive and open mind. There will be many other times when you feel frustrated, different, angry, etc. That's okay. We all do. I know way too many people whose biggest problem in life is which new clothes or car to buy and they agonize about that as much as we agonize about whether to fit in one more treatment. Everyone has something to complain or worry about. Human nature, I guess. I try to find a balance between paying attention to my cf without letting it consume me. So far, I'm still ahead of the game! Be gentle with yourself and forgiving of those around you. Hold your head up high and use your energy for strength, not pity or anger. I'll hold you in my thoughts.
 

Debi

New member
Christina, for what it's worth, I felt the same way you did in high school. I hated doing treaments and it was embarassing to be coughing all the time. I didn't have a first date until my senior year in high school. College was much better because guys were more mature. I met my husband as a senior in college. I have been married to him for 31 years and he is the finest man on earth. He is my soulmate, my best friend, my partner in all of life's joys and sorrows. I've lived a long time with cf. It's not a disease for the weak of spirit. But you can have a joyful life anyway. It comes from a mixture of taking good care of yourself, having a good attitude, being assertive, and having a lot of luck. Right now there is no cure, and there's not one on the horizon. Still, with the treatments available, you can do very well. Take each day as it comes, and surround yourself with people of character- people who will be there for you, not people who are shallow. Trust me, you know the difference.

Find a doctor you trust and who will listen to YOU, not your disease. My doctor and I do not do everything by the book and never have. We go by more than the numbers. Still, I listen to him. Don't just be rebellious because you're trying to prove something or think that will somehow make you "normal." No one is normal anyway, so learn to embrace your cf as your own little quirk.

The fact that you're sharing yourself and seeking input speaks volumes about your own maturity. You're going to do just great in life with such an inquisitive and open mind. There will be many other times when you feel frustrated, different, angry, etc. That's okay. We all do. I know way too many people whose biggest problem in life is which new clothes or car to buy and they agonize about that as much as we agonize about whether to fit in one more treatment. Everyone has something to complain or worry about. Human nature, I guess. I try to find a balance between paying attention to my cf without letting it consume me. So far, I'm still ahead of the game! Be gentle with yourself and forgiving of those around you. Hold your head up high and use your energy for strength, not pity or anger. I'll hold you in my thoughts.
 

Debi

New member
Christina, for what it's worth, I felt the same way you did in high school. I hated doing treaments and it was embarassing to be coughing all the time. I didn't have a first date until my senior year in high school. College was much better because guys were more mature. I met my husband as a senior in college. I have been married to him for 31 years and he is the finest man on earth. He is my soulmate, my best friend, my partner in all of life's joys and sorrows. I've lived a long time with cf. It's not a disease for the weak of spirit. But you can have a joyful life anyway. It comes from a mixture of taking good care of yourself, having a good attitude, being assertive, and having a lot of luck. Right now there is no cure, and there's not one on the horizon. Still, with the treatments available, you can do very well. Take each day as it comes, and surround yourself with people of character- people who will be there for you, not people who are shallow. Trust me, you know the difference.

Find a doctor you trust and who will listen to YOU, not your disease. My doctor and I do not do everything by the book and never have. We go by more than the numbers. Still, I listen to him. Don't just be rebellious because you're trying to prove something or think that will somehow make you "normal." No one is normal anyway, so learn to embrace your cf as your own little quirk.

The fact that you're sharing yourself and seeking input speaks volumes about your own maturity. You're going to do just great in life with such an inquisitive and open mind. There will be many other times when you feel frustrated, different, angry, etc. That's okay. We all do. I know way too many people whose biggest problem in life is which new clothes or car to buy and they agonize about that as much as we agonize about whether to fit in one more treatment. Everyone has something to complain or worry about. Human nature, I guess. I try to find a balance between paying attention to my cf without letting it consume me. So far, I'm still ahead of the game! Be gentle with yourself and forgiving of those around you. Hold your head up high and use your energy for strength, not pity or anger. I'll hold you in my thoughts.
 

dogsrule

New member
Hey sorry if i sounded like i'm five. i'm just tired of this disease and sorry about the spelling it was late when i wrote it. Now that i've read it, it sounds funny lol
 

dogsrule

New member
Hey sorry if i sounded like i'm five. i'm just tired of this disease and sorry about the spelling it was late when i wrote it. Now that i've read it, it sounds funny lol
 

dogsrule

New member
Hey sorry if i sounded like i'm five. i'm just tired of this disease and sorry about the spelling it was late when i wrote it. Now that i've read it, it sounds funny lol
 

Rokiss12

New member
this is the way i have dealt with it:

no one is normal, every one has something..whether it be a big butt or awesome grades... i have CF. The people who are humerous and act like their big butt is normal, are the ones who seem cool b/c they dont let it get them down. The people with the great grades help tutor other people and share their education.

I educated people on CF, I keep it humorous and not like i want sympathy, and I act like its normal. Because for me, it is. Not everyone has huge butts, but for that person, they've had it all their life, so its normal.

I guess what im trying to say is, it doesnt matter whats normal to everyone else, its what it is to you. As long as you believe its normal, the people around you will. If you educate them, that idea will only become stronger.

I do my shots at my little private highschool where everyone knows everyone, in the middle of the cafeteria. When i first started, people thought it was weird, but then i'd just explain that it was <i>normal</i> for people with diabetes to do that. Then they would agree and go on with their lunch. I show everyone that i am able to handle my disease, and my life, just like those honor-roll students still find time to do an after school sport.

i really hope this helps you, it actually just helped me a lot to write about it.
-kate
 

Rokiss12

New member
PS. i read this book in like 6th grade, but i really dont think it matters how old you are to read it. its pretty easy for anyone in 6th grade or higher...its called "Define Normal"

and i didnt read it because someone told me 'it would comfort me with the disease' i just thought it looked good and didnt end up seeing the connection until a few years later. anyways, i really encourage you to read it, if you at a highschool level, i bet you could finish it in a weekend. <img src="i/expressions/face-icon-small-smile.gif" border="0"> good luck!
 
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