can't catch a break

J

Jane

Digital opinion leader
My son Josh spent 3 weeks on IVs in February because of a sinus infection. He was feeling better until this week. NOW ITS BACK!!!

He is still getting caught up with the work he missed before. He just started tennis at school. He is SOOOOOOOOOO bummed, I haven't even called the doctor yet. He had a 2nd surgery a year ago. What next?

This is what he's on for meds
Bactrim
Amikacin nebs
Nasonex
Ocean spray
Allegra
....and all the regular CF stuff.

I feel so bad for him, he has been rather fragile emotionally since his hospitalization.<img src="i/expressions/face-icon-small-sad.gif" border="0"> He feels crappy.

Have any of you had nasty sinus problems that won't go away?

Thanks
Jane

<img src="i/expressions/face-icon-small-sad.gif" border="0">Friday April 14....

He had a fever of 103 for 5 days. After being checked last week, we were told it was just a virus. All of his blood labs were ok.
So, this week he's completely wiped out and not eating. Fevers are down to normal to 100. We called today and they said, just a virus.

Just now, his fever is 103 again, his o2 sats 91 and his heart rate is 154. I'm waiting for the doctor to call back, but it looks like we're on our way back to Children's. Poor kid.
I'll let you know.

jane
 
E

Emily65Roses

New member
If it's necessary to go on meds again, why does he have to miss so much school? Do home IVs and send him off. I've gone to class with IVs before. Even pushed saline and stuff in the middle of class. No big deal. If he has a problem with people knowing, it can be easily hidden. He can do saline and stuff in the bathroom. And that way he doesn't have to catch up on 3 weeks of missed school.
 
F

farmfamily

New member
Jane
My son will be 14 tomorrow. He just finished 2 weeks of IV's primarily for sinuses. Today the wind is blowing and he is really congested. He hates sinus surgeries he finds little relief from them. He also refuses to go to school when he takes IV's but hates missing out. What about your son? Tries to keep up at home.

Terri
 
J

Jane

Digital opinion leader
Thanks Emily and Karen, Josh usually takes sudafed too. We didn't know if he could take that with the allegra. Karen, do you think Troy takes zyrtec? That sounds like what you said. Josh has had that before.

Emily, Josh did come home on IVs last time, but he had missed about six days before he went in. He was re-admitted and missed some more when the infection didn't go away. He has no problem going to school w/IVs if he has to. He goes to the same school where I teach, so we work together keeping his stuff discreet. Its just a pain.

He ended up getting a fever today so I did call the doc. We're going up tomorrow to be checked (probably admitted). I'll let you know.

Thanks again!

Jane
 
E

Emily65Roses

New member
Jane, I know it's a pain. I didn't know he was doing them at home. I've heard a lot of people being told they aren't allowed. So I'm never sure if people know that.

If he does do them at home and still has to miss a lot before they'll let him go, then I'm out of suggestions. <img src="i/expressions/face-icon-small-sad.gif" border="0">
 
J

Jane

Digital opinion leader
Hi,
We're so relieved...
Josh saw his doctor today and CAME HOME. His x-ray was better than the last time, so she thinks it may be a virus or allergies causing sinus issues. The ENT did a sinus wash and sent us home. He is also dehydrated because he is a stubborn little sh*t and won't drink much. He said on the way home "I better start taking care of myself". DUH!!! I told him to start with water=health.

Thanks for the advice...I'm going to schedule allergy tests tomorrow.
Now I can relax a bit<img src="i/expressions/wine.gif" border="0">
Jane
 
A

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>

He is also dehydrated because he is a stubborn little sh*t and won't drink much. He said on the way home "I better start taking care of myself". DUH!!! I told him to start with water=health.

Jane</end quote></div>

HA HA LOL, now there's a CF Mom talking <img src="i/expressions/face-icon-small-tongue.gif" border="0"> I bet you gave him the universal MOM face for DUH too!

littledebbie not logged in

Debbie
26wCF
 
J

Jane

Digital opinion leader
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>



He is also dehydrated because he is a stubborn little sh*t and won't drink much. He said on the way home "I better start taking care of myself". DUH!!! I told him to start with water=health.



Jane</end quote></div>



HA HA LOL, now there's a CF Mom talking
I bet you gave him the universal MOM face for DUH too!



littledebbie not logged in



Debbie

26wCF</end quote></div>


You know it- I definately did! LOL
 
I

izemmom

New member
Hey Jane,

Does <img src="i/expressions/wine.gif" border="0">= better mental health?

Hee Hee!

You're a great mom! Glad to hear he's starting to get the idea that he needs to take responsibiltiy in his care!

Have a <img src="i/expressions/wine.gif" border="0"> for me!
 
S

skh

Guest
Jane, my daughter is always battling with sinus problems too. She takes zytec-D. Prior to that she took claritin D. And she also does the nasonex. This seems to help her.
 
J

Jane

Digital opinion leader
Friday April 14....

Josh had a fever of 103 for 5 days. After being checked last week, we were told it was just a virus. All of his blood labs were ok.
So, this week he's completely wiped out and not eating. Fevers are down to normal to 100. We called today and they said, just a virus.

Just now, his fever is 103 again, his o2 sats 91 and his heart rate is 154. I'm waiting for the doctor to call back, but it looks like we're on our way back to Children's. Poor kid.
I'll let you know.

jane
 
A

anonymous

New member
Jane Im sooooooooooooo sorry you are going through this AGAIN....Reece was just put on Nasonex for sinus problems. I see he is already on that. Sorry Im not much help as I usually get all my info from you anyways!!! LOL

Thought you were packing your bags and coming with.....much needed vac. for all of us!!!!!! Hang in there!!!! (((((((((HUGS))))))))))!!
LEAH
 
S

Scarlett81

New member
I'm sorry Jane.
I've avoided sinus troubles my wholelife-but now they're creeping up on me.
I may have to have surgery very soon-I go for my 2nd eval monday.
I can't offer any pick-me-ups. I'm very bummed too. It just feels like things are endlessly creeping up on me. And the frustrating thing about the sinuses is, what ever I do to take care of myself, it doens't seem to matter. My sinuses act up when they want how they want.
I hope your little guy gets some answers! Luv,c
 
3

3timesthefun

New member
Great Easter break, poor guy. I feel for you, up and down on this endless roller coater is no fun. Wishing him well. Let us know how he is doing.
 
R

Ricky

New member
Jane'
Unfortunately it's probably time for a little more surgery. I'm 40 years old and i've had sinus surgery 7 times since 1996. The longer you wait the worse the infection will get and the surgery will have to be more intrusive. I go in every two years to have my sinuses cleaned out. Just part of the life of a Cfer.
 
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