cayston

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rarab43

Guest
My 25 yr old is sick with sinusitis and bronchitis- you know they are sick when they call and want to come home to mamma lol. We had received cayston but he hadnt started it yet so we decided to go ahead and do his first dose while he was here. He coughed so hard and could hardly finish it-said it was so harsh. He did albuterol first. Is this normal and does it get better? Should we have waited until he was feeling better from the sin and bronch? Thanks! Happy Thanksgiving.
 
R

rarab43

Guest
My 25 yr old is sick with sinusitis and bronchitis- you know they are sick when they call and want to come home to mamma lol. We had received cayston but he hadnt started it yet so we decided to go ahead and do his first dose while he was here. He coughed so hard and could hardly finish it-said it was so harsh. He did albuterol first. Is this normal and does it get better? Should we have waited until he was feeling better from the sin and bronch? Thanks! Happy Thanksgiving.
 
R

rarab43

Guest
My 25 yr old is sick with sinusitis and bronchitis- you know they are sick when they call and want to come home to mamma lol. We had received cayston but he hadnt started it yet so we decided to go ahead and do his first dose while he was here. He coughed so hard and could hardly finish it-said it was so harsh. He did albuterol first. Is this normal and does it get better? Should we have waited until he was feeling better from the sin and bronch? Thanks! Happy Thanksgiving.
 
A

AimeeSue82

New member
I've been doing Cayston every other month for about 6 months now (3 on and 3 off). The first few days I start at the beginning of every month, I cough quite a bit during the treatment. I do albuterol, then Pulmozyme, then my airway clearance, then Cayston. Always do the antibiotic last so it stays in your lungs. I would try to get your son to just push through the coughing for a few more days and see if it gets better. I think the more he does it, the more he'll get used to it...unless he's coughing up blood- then stop. I'm a big fan of Cayston, as I've mentioned in another thread, I'm usually in the hospital every 3 months like clockwork. Since I started Cayston, it's been 5 months now and I'm still not hospitalized. I <3 Cayston!

~Aimee, 28, CF w/ PA & MRSA
 
A

AimeeSue82

New member
I've been doing Cayston every other month for about 6 months now (3 on and 3 off). The first few days I start at the beginning of every month, I cough quite a bit during the treatment. I do albuterol, then Pulmozyme, then my airway clearance, then Cayston. Always do the antibiotic last so it stays in your lungs. I would try to get your son to just push through the coughing for a few more days and see if it gets better. I think the more he does it, the more he'll get used to it...unless he's coughing up blood- then stop. I'm a big fan of Cayston, as I've mentioned in another thread, I'm usually in the hospital every 3 months like clockwork. Since I started Cayston, it's been 5 months now and I'm still not hospitalized. I <3 Cayston!

~Aimee, 28, CF w/ PA & MRSA
 
A

AimeeSue82

New member
I've been doing Cayston every other month for about 6 months now (3 on and 3 off). The first few days I start at the beginning of every month, I cough quite a bit during the treatment. I do albuterol, then Pulmozyme, then my airway clearance, then Cayston. Always do the antibiotic last so it stays in your lungs. I would try to get your son to just push through the coughing for a few more days and see if it gets better. I think the more he does it, the more he'll get used to it...unless he's coughing up blood- then stop. I'm a big fan of Cayston, as I've mentioned in another thread, I'm usually in the hospital every 3 months like clockwork. Since I started Cayston, it's been 5 months now and I'm still not hospitalized. I <3 Cayston!
<br />
<br />~Aimee, 28, CF w/ PA & MRSA
 
K

KLeigh

New member
I have been doing Cayston for 6/7 months, as well. (I have found my lung functions have improved since I started it & i haven't been in the hospital in 9 months & it's usually every 6 for me!) I have VERY sensitive lungs. I am unable to take Hypertonic & Pulmozyme because it will make my lungs bleed. But I have never found the Cayston to be "harsh." I cough a little when i first start each treatment though. I was told to always do Albuterol directly BEFORE the Cayston. As Aimee said the antibodic needs to be last to take affect.
The bronchitis might have had something to do with inability to deal with the drug. Maybe try it again when he is feeling better.
Happy Thanksgiving!
 
K

KLeigh

New member
I have been doing Cayston for 6/7 months, as well. (I have found my lung functions have improved since I started it & i haven't been in the hospital in 9 months & it's usually every 6 for me!) I have VERY sensitive lungs. I am unable to take Hypertonic & Pulmozyme because it will make my lungs bleed. But I have never found the Cayston to be "harsh." I cough a little when i first start each treatment though. I was told to always do Albuterol directly BEFORE the Cayston. As Aimee said the antibodic needs to be last to take affect.
The bronchitis might have had something to do with inability to deal with the drug. Maybe try it again when he is feeling better.
Happy Thanksgiving!
 
K

KLeigh

New member
I have been doing Cayston for 6/7 months, as well. (I have found my lung functions have improved since I started it & i haven't been in the hospital in 9 months & it's usually every 6 for me!) I have VERY sensitive lungs. I am unable to take Hypertonic & Pulmozyme because it will make my lungs bleed. But I have never found the Cayston to be "harsh." I cough a little when i first start each treatment though. I was told to always do Albuterol directly BEFORE the Cayston. As Aimee said the antibodic needs to be last to take affect.
<br />The bronchitis might have had something to do with inability to deal with the drug. Maybe try it again when he is feeling better.
<br />Happy Thanksgiving!
 
H

Havoc

New member
I'm really healthy and it makes me cough too. It's pretty harsh in my opinion. It took me a few days to where I could to a treatment without hacking.
 
H

Havoc

New member
I'm really healthy and it makes me cough too. It's pretty harsh in my opinion. It took me a few days to where I could to a treatment without hacking.
 
H

Havoc

New member
I'm really healthy and it makes me cough too. It's pretty harsh in my opinion. It took me a few days to where I could to a treatment without hacking.
 
W

windex125

Guest
The same thing happened to me when I started, dry hacking I agree with what what the others said Albuterol first,Pulzomye then the Cayson plus it nebs in less than 2 mins. I wld try to stick with it. Pat-55/CF
 
W

windex125

Guest
The same thing happened to me when I started, dry hacking I agree with what what the others said Albuterol first,Pulzomye then the Cayson plus it nebs in less than 2 mins. I wld try to stick with it. Pat-55/CF
 
W

windex125

Guest
The same thing happened to me when I started, dry hacking I agree with what what the others said Albuterol first,Pulzomye then the Cayson plus it nebs in less than 2 mins. I wld try to stick with it. Pat-55/CF
 
G

Giggles

New member
I did not notice anything when I started Cayston. It is not harsh for me but neither is Tobi.. So I think everyone is different..... I always do albuterol before it and I DO notice if I do NOT do the albuterol before the cayston then my lungs feel kinda tight. I once skipped the albuterol for an afternoon treatment of cayston and I coughed after doing the cayston and lungs felt tight....

Good luck, I LOVE the Cayston. Working out well for me!

Jennifer 38 with CF and CFRD
 
G

Giggles

New member
I did not notice anything when I started Cayston. It is not harsh for me but neither is Tobi.. So I think everyone is different..... I always do albuterol before it and I DO notice if I do NOT do the albuterol before the cayston then my lungs feel kinda tight. I once skipped the albuterol for an afternoon treatment of cayston and I coughed after doing the cayston and lungs felt tight....

Good luck, I LOVE the Cayston. Working out well for me!

Jennifer 38 with CF and CFRD
 
G

Giggles

New member
I did not notice anything when I started Cayston. It is not harsh for me but neither is Tobi.. So I think everyone is different..... I always do albuterol before it and I DO notice if I do NOT do the albuterol before the cayston then my lungs feel kinda tight. I once skipped the albuterol for an afternoon treatment of cayston and I coughed after doing the cayston and lungs felt tight....
<br />
<br />Good luck, I LOVE the Cayston. Working out well for me!
<br />
<br />Jennifer 38 with CF and CFRD
 
R

rarab43

Guest
Thanks for the replys- he did do better with it with the subsequent doses. Hoping it was because he was already sick.
 
R

rarab43

Guest
Thanks for the replys- he did do better with it with the subsequent doses. Hoping it was because he was already sick.
 
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