Hey everyone.... Just wondering what you all think.... I have cf with diabetes and it is really hard to eat enough calories to keep my weight on and keep my blood sugars from going sky high!.... I try to watch the carbs and sugars but even the calories are making my blood sugars high.... I have worked with a diatician she suggests counting carbs.... but when I do that sometimes I feel like im starving and I began to loose a bit of weight... I have tried diabetic boost that seems to work for the calories but still sometimes feel hungry.... Any suggestions?.. Please let me know thanks alot Candi
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CF AND DIABETES
- Thread starter candigirl
- Start date
6
65rosessamurai
Guest
Hey, candigirl...
I've heard diabetes tends to come with CF, so I have to be careful, diabetes runs in my family. (I don't have it, but it does put me as a good candidate!)
I'm guessing your weight is between normal, and below normal, right?
For a CF'r to count calories is not to decrease, but stay above a normal person's calorie intake.
One suggestion is finding out if there are CF doctors familiar with what kind of diet a CF patient with diabetes needs.
It could be just a matter of what foods will breakdown into sugars faster or slower, so you don't get the constant high sugar counts.
These are just thoughts I wanted to express, thinking if I were in the same situation. I hope it helps. (if not, I can relate to the eating and eating and still feel hungry!)
I've heard diabetes tends to come with CF, so I have to be careful, diabetes runs in my family. (I don't have it, but it does put me as a good candidate!)
I'm guessing your weight is between normal, and below normal, right?
For a CF'r to count calories is not to decrease, but stay above a normal person's calorie intake.
One suggestion is finding out if there are CF doctors familiar with what kind of diet a CF patient with diabetes needs.
It could be just a matter of what foods will breakdown into sugars faster or slower, so you don't get the constant high sugar counts.
These are just thoughts I wanted to express, thinking if I were in the same situation. I hope it helps. (if not, I can relate to the eating and eating and still feel hungry!)
LindseyRose
Member
Are you insulin dependant? Perhaps the reason your dietician wants you to count carbs is so that you can eat what you want and just adjust your insulin to meet your carb intake. I have diabetes, too, but I have an insulin pump. I eat anything I feel like eating, and I give myself enough insulin to cover the carbs. Before I got it I was about 108 lbs, since then I have been pretty steady at 115 lbs.
Candi,
Sounds like you need to meet with a diabetes team that knows about counting carbs.
I have been diabetic fo 19 years.
I count carbs and then dose myself accordingly. If you count carbs, then you should be able to eat all the starches, carbs, sugars you want.... where the calories are.....and then dose your self to cover them....
Why do they have you count carbs? Is there a limit per day? If they are limiting you carbs per day, then they have you on a diet. And CFers should not be on that type of diabetic treatment.
JOanne Schum
luckylungsforjo@aol.com
Sounds like you need to meet with a diabetes team that knows about counting carbs.
I have been diabetic fo 19 years.
I count carbs and then dose myself accordingly. If you count carbs, then you should be able to eat all the starches, carbs, sugars you want.... where the calories are.....and then dose your self to cover them....
Why do they have you count carbs? Is there a limit per day? If they are limiting you carbs per day, then they have you on a diet. And CFers should not be on that type of diabetic treatment.
JOanne Schum
luckylungsforjo@aol.com
I only have a bit of experience with diabetes. One from Gestational Diabetes which we controlled with insulin & then this year with steroid induced diabetes. I met with an Diabetes doctor who wanted me to control it by diet vs using insulin. I ??? that because of my low weight that hadnt been gained back. She said she understood the calorie intake that was needed, but yet I dont think she did (completely). She was not a specialist in CFRD just diabetes. I didnt feel comfortable with the idea so I spoke with my CF doctor. We both agreed that although the diabetes specialist had the right idea, at this point I couldnt risk not getting enough calories in me in order to control my sugar. Yes the long term affects need to be addressed, but without my weight the immediate affects (infection, malnutrion etc) outweigh the longterm. We decided to monitor my sugars, eat as I normally would to put on weight & if need be regulate the sugars with insulin. Since going off of the steroids things have been fine, but we still keep an eye on things. Should I lose control I will be meeting with the Diabetes Specialist who has been working with my CF clinic. I tried to stay local since my CF clinic is so far away. Unfortunately this problem I cant.
spicyone18
New member
I take the long term insulin in the morning and I do carb counting. Like everyone else has said I too can eat whatever I want as long as I cover myself with enough insulin. At the begining it was hard knowing how much i needed but gets easier.
Anyway good luck
Anyway good luck
I agree that if you're not taking insulin that you should be if keeping your weight up is an issue.
It's almost impossible for a CF person to not have sugars/carbs and gain weight. A lot of endocrinologist (sp) just are not well versed in CF Related Diabetes, they somehow think that it's the same as Type 2.
Like everyone else has said, often w/ CFRD it is suggested that you eat whatever you want & offset it with the amount of insulin needed to keep the blood sugars at an acceptable rate.
Your dietician at the CF Clinic should have some info on CFRD for you to review. I even gave my diabetic doctor a copy of that information to inform him of how CFRD is different from Type 2.
Good luck, it takes a while to get all of this regulated at first!<img src="i/expressions/face-icon-small-confused.gif" border="0">
It's almost impossible for a CF person to not have sugars/carbs and gain weight. A lot of endocrinologist (sp) just are not well versed in CF Related Diabetes, they somehow think that it's the same as Type 2.
Like everyone else has said, often w/ CFRD it is suggested that you eat whatever you want & offset it with the amount of insulin needed to keep the blood sugars at an acceptable rate.
Your dietician at the CF Clinic should have some info on CFRD for you to review. I even gave my diabetic doctor a copy of that information to inform him of how CFRD is different from Type 2.
Good luck, it takes a while to get all of this regulated at first!<img src="i/expressions/face-icon-small-confused.gif" border="0">
Hey everyone <img src="i/expressions/face-icon-small-smile.gif" border="0"> thanks so much for all the replys.... yes I am insulin dependent. They have me on Novolog with meals and Lantus at night.I think I just need to go to my cf center and meet with another dietician that is famillar with cfrd... Do you think that having an insulin pump will control my diabetes better trying to keep a regualar diet?..... Talk to you all soon <img src="i/expressions/face-icon-small-smile.gif" border="0"> Candi
Hi,
I do take insulin since about 2 years. As the cf-related diabetes is not like the normal type 2-diabetes, you should eat as much as possible , count the carbs and control it by different doses of insulin. The best thing is to test your blood sugar as often a possible, I do it up to 15 times a day. Only by testing you can see how much insulin you need for the things you eat and if you have to take more of it or have taken too much, so that you have to eat something extra.
I think a pump just helps, if you don´t want to pierce yourself too often a day ( as for example eating carbs 10times a day, you have to take 10times insulin). But even with a pump you have to know what doses of insulin you need, it doesn´t work automatically as the pankreas of healthy people does, so you have to test the blood sugars in the same way and as often as without a pump.
I´m not shure, how the "long-time-sugar" in the blood is called in english; in Germany its the HbA1c. When they take blood in the hospital this one shows if your bloodsugars are okay in the long term or not. I had a normal number last time, although i love sweets too!
As I don´t like to take insulin late in the evening, because of the danger of too low bloodsugars during the night, I eat some cheese, olives,meat, sausages or something else without (much)carbs when I get hungry late.
I have also noticed, that I have to take a huge amount of insulin when I eat something like Kellogs Smacks, so that the sugar isn´t going up too much. But about 2 hours later I have to eat more sweet things because otherwise the sugar is falling rapidly. The insulin I take is a fast one, so it starts its work about 20 minutes after taking it and stops working after 3 hours. So if I eat fat and carbs together like asian food (rice with meat and vegetables with a coconut sauce) or white bread with sausage, I have to take a second "shot" of insulin about 2,5 hours after the first, because the bloodsugars are getting higher then again. My doc told me, that carbs with fat do need more time to get into the blood, so some of the carbs go into the blood at once, some later, thats why I need 2 shots. Sometimes you need more insulin ( when you do sports, during infections), sou if you want a good bloodsugar-level you have to control it as often as possible...
I would be interested, how the other "insulin-takers" manage their diabetes in the public! I did never see anyone else than me testing the bloodsugars or using the insulin-pen in a restaurant, shopping mall etc.
One of my co-workers has type 1-diabetes. Until she saw me testing and taking insulin, she did never do it herself, when I was in the room...
Uli,43,Germany,cf/cfrd
I do take insulin since about 2 years. As the cf-related diabetes is not like the normal type 2-diabetes, you should eat as much as possible , count the carbs and control it by different doses of insulin. The best thing is to test your blood sugar as often a possible, I do it up to 15 times a day. Only by testing you can see how much insulin you need for the things you eat and if you have to take more of it or have taken too much, so that you have to eat something extra.
I think a pump just helps, if you don´t want to pierce yourself too often a day ( as for example eating carbs 10times a day, you have to take 10times insulin). But even with a pump you have to know what doses of insulin you need, it doesn´t work automatically as the pankreas of healthy people does, so you have to test the blood sugars in the same way and as often as without a pump.
I´m not shure, how the "long-time-sugar" in the blood is called in english; in Germany its the HbA1c. When they take blood in the hospital this one shows if your bloodsugars are okay in the long term or not. I had a normal number last time, although i love sweets too!
As I don´t like to take insulin late in the evening, because of the danger of too low bloodsugars during the night, I eat some cheese, olives,meat, sausages or something else without (much)carbs when I get hungry late.
I have also noticed, that I have to take a huge amount of insulin when I eat something like Kellogs Smacks, so that the sugar isn´t going up too much. But about 2 hours later I have to eat more sweet things because otherwise the sugar is falling rapidly. The insulin I take is a fast one, so it starts its work about 20 minutes after taking it and stops working after 3 hours. So if I eat fat and carbs together like asian food (rice with meat and vegetables with a coconut sauce) or white bread with sausage, I have to take a second "shot" of insulin about 2,5 hours after the first, because the bloodsugars are getting higher then again. My doc told me, that carbs with fat do need more time to get into the blood, so some of the carbs go into the blood at once, some later, thats why I need 2 shots. Sometimes you need more insulin ( when you do sports, during infections), sou if you want a good bloodsugar-level you have to control it as often as possible...
I would be interested, how the other "insulin-takers" manage their diabetes in the public! I did never see anyone else than me testing the bloodsugars or using the insulin-pen in a restaurant, shopping mall etc.
One of my co-workers has type 1-diabetes. Until she saw me testing and taking insulin, she did never do it herself, when I was in the room...
Uli,43,Germany,cf/cfrd