CF and exercise at the NNECFC meeting

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NancyLKF

New member
(also posted in exercise and nutrition)
Hi... Just went to a conference on CF and exercise and I thought I'd share some of the more important things I learned. Some of you probably know this, but...

There aren't many studies done on this topic, but there was one done in the early 90s (or late 80s). of those who participated, the CFers who exercised regularly were <b>6x</b> more likely to still be ALIVE after 8 years.Exercise programs increase VO2 and those with a higher VO2 have a higher rate of survival.
Also - when exercising, the nasal potential difference / electrical charge in the nose of CFers went from too high to normal. NPD is a better way of diagnosising CF than the sweat test.
CFers will be limited by ventilatory factors rather than cardiac, but with time can improve their abilities.
This is the basic of what I took away from the weekend. Exercise needs to be part of a CFers lifestyle. The recommendations in US is 60 minutes a day. In Canada it is 90 minutes. They mentioned that if your CF child is scheduled PE every other day, you should include in the 504 plan that they need PE everyday.
Obviously, everyone should talk to their doctor before starting an exercise program.
 
N

NancyLKF

New member
(also posted in exercise and nutrition)
Hi... Just went to a conference on CF and exercise and I thought I'd share some of the more important things I learned. Some of you probably know this, but...

There aren't many studies done on this topic, but there was one done in the early 90s (or late 80s). of those who participated, the CFers who exercised regularly were <b>6x</b> more likely to still be ALIVE after 8 years.Exercise programs increase VO2 and those with a higher VO2 have a higher rate of survival.
Also - when exercising, the nasal potential difference / electrical charge in the nose of CFers went from too high to normal. NPD is a better way of diagnosising CF than the sweat test.
CFers will be limited by ventilatory factors rather than cardiac, but with time can improve their abilities.
This is the basic of what I took away from the weekend. Exercise needs to be part of a CFers lifestyle. The recommendations in US is 60 minutes a day. In Canada it is 90 minutes. They mentioned that if your CF child is scheduled PE every other day, you should include in the 504 plan that they need PE everyday.
Obviously, everyone should talk to their doctor before starting an exercise program.
 
N

NancyLKF

New member
(also posted in exercise and nutrition)
Hi... Just went to a conference on CF and exercise and I thought I'd share some of the more important things I learned. Some of you probably know this, but...

There aren't many studies done on this topic, but there was one done in the early 90s (or late 80s). of those who participated, the CFers who exercised regularly were <b>6x</b> more likely to still be ALIVE after 8 years.Exercise programs increase VO2 and those with a higher VO2 have a higher rate of survival.
Also - when exercising, the nasal potential difference / electrical charge in the nose of CFers went from too high to normal. NPD is a better way of diagnosising CF than the sweat test.
CFers will be limited by ventilatory factors rather than cardiac, but with time can improve their abilities.
This is the basic of what I took away from the weekend. Exercise needs to be part of a CFers lifestyle. The recommendations in US is 60 minutes a day. In Canada it is 90 minutes. They mentioned that if your CF child is scheduled PE every other day, you should include in the 504 plan that they need PE everyday.
Obviously, everyone should talk to their doctor before starting an exercise program.
 
N

NancyLKF

New member
(also posted in exercise and nutrition)
Hi... Just went to a conference on CF and exercise and I thought I'd share some of the more important things I learned. Some of you probably know this, but...

There aren't many studies done on this topic, but there was one done in the early 90s (or late 80s). of those who participated, the CFers who exercised regularly were <b>6x</b> more likely to still be ALIVE after 8 years.Exercise programs increase VO2 and those with a higher VO2 have a higher rate of survival.
Also - when exercising, the nasal potential difference / electrical charge in the nose of CFers went from too high to normal. NPD is a better way of diagnosising CF than the sweat test.
CFers will be limited by ventilatory factors rather than cardiac, but with time can improve their abilities.
This is the basic of what I took away from the weekend. Exercise needs to be part of a CFers lifestyle. The recommendations in US is 60 minutes a day. In Canada it is 90 minutes. They mentioned that if your CF child is scheduled PE every other day, you should include in the 504 plan that they need PE everyday.
Obviously, everyone should talk to their doctor before starting an exercise program.
 
N

NancyLKF

New member
(also posted in exercise and nutrition)
<br />Hi... Just went to a conference on CF and exercise and I thought I'd share some of the more important things I learned. Some of you probably know this, but...
<br />
<br />There aren't many studies done on this topic, but there was one done in the early 90s (or late 80s). of those who participated, the CFers who exercised regularly were <b>6x</b> more likely to still be ALIVE after 8 years.Exercise programs increase VO2 and those with a higher VO2 have a higher rate of survival.
<br />Also - when exercising, the nasal potential difference / electrical charge in the nose of CFers went from too high to normal. NPD is a better way of diagnosising CF than the sweat test.
<br />CFers will be limited by ventilatory factors rather than cardiac, but with time can improve their abilities.
<br />This is the basic of what I took away from the weekend. Exercise needs to be part of a CFers lifestyle. The recommendations in US is 60 minutes a day. In Canada it is 90 minutes. They mentioned that if your CF child is scheduled PE every other day, you should include in the 504 plan that they need PE everyday.
<br />Obviously, everyone should talk to their doctor before starting an exercise program.
<br />
 
C

cfsucks

Guest
good to know. 90 minutes of exercise a day... that's pretty intense. was this strictly cardio, or weight lifting as well?
 
C

cfsucks

Guest
good to know. 90 minutes of exercise a day... that's pretty intense. was this strictly cardio, or weight lifting as well?
 
C

cfsucks

Guest
good to know. 90 minutes of exercise a day... that's pretty intense. was this strictly cardio, or weight lifting as well?
 
C

cfsucks

Guest
good to know. 90 minutes of exercise a day... that's pretty intense. was this strictly cardio, or weight lifting as well?
 
C

cfsucks

Guest
good to know. 90 minutes of exercise a day... that's pretty intense. was this strictly cardio, or weight lifting as well?
 
N

NancyLKF

New member
It is cardio a few days a week, weight training a few days a week to build BMI and some flexibility stuff like stretching everyday.

Also - I don't think I mentioned what many of you probably already know, but for the newbies like me - kids with CF underestimate their need for fluids. Something about the blood thickness and it not changing due to the loss of water and salt - unlike in non-CFers where the blood gets thinner and the body is told that they need to drink. It is called voluntary dehydration. So electrolyte drinks with a pinch of salt during activity. And those in the study drank when told to drink but when left on their own, didn't feel thirsty and became dehydrated.
 
N

NancyLKF

New member
It is cardio a few days a week, weight training a few days a week to build BMI and some flexibility stuff like stretching everyday.

Also - I don't think I mentioned what many of you probably already know, but for the newbies like me - kids with CF underestimate their need for fluids. Something about the blood thickness and it not changing due to the loss of water and salt - unlike in non-CFers where the blood gets thinner and the body is told that they need to drink. It is called voluntary dehydration. So electrolyte drinks with a pinch of salt during activity. And those in the study drank when told to drink but when left on their own, didn't feel thirsty and became dehydrated.
 
N

NancyLKF

New member
It is cardio a few days a week, weight training a few days a week to build BMI and some flexibility stuff like stretching everyday.

Also - I don't think I mentioned what many of you probably already know, but for the newbies like me - kids with CF underestimate their need for fluids. Something about the blood thickness and it not changing due to the loss of water and salt - unlike in non-CFers where the blood gets thinner and the body is told that they need to drink. It is called voluntary dehydration. So electrolyte drinks with a pinch of salt during activity. And those in the study drank when told to drink but when left on their own, didn't feel thirsty and became dehydrated.
 
N

NancyLKF

New member
It is cardio a few days a week, weight training a few days a week to build BMI and some flexibility stuff like stretching everyday.

Also - I don't think I mentioned what many of you probably already know, but for the newbies like me - kids with CF underestimate their need for fluids. Something about the blood thickness and it not changing due to the loss of water and salt - unlike in non-CFers where the blood gets thinner and the body is told that they need to drink. It is called voluntary dehydration. So electrolyte drinks with a pinch of salt during activity. And those in the study drank when told to drink but when left on their own, didn't feel thirsty and became dehydrated.
 
N

NancyLKF

New member
It is cardio a few days a week, weight training a few days a week to build BMI and some flexibility stuff like stretching everyday.
<br />
<br />Also - I don't think I mentioned what many of you probably already know, but for the newbies like me - kids with CF underestimate their need for fluids. Something about the blood thickness and it not changing due to the loss of water and salt - unlike in non-CFers where the blood gets thinner and the body is told that they need to drink. It is called voluntary dehydration. So electrolyte drinks with a pinch of salt during activity. And those in the study drank when told to drink but when left on their own, didn't feel thirsty and became dehydrated.
 
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