CF antibiotic use on Yahoo news

saveferris2009

New member
This doesn't really play out in Denmark, though, where PA is treated with abx nearly every 3 months. Resistance is still low and they live quite long.
 

saveferris2009

New member
This doesn't really play out in Denmark, though, where PA is treated with abx nearly every 3 months. Resistance is still low and they live quite long.
 

Anomie

New member
Sweet. I'm gonna talk to my kid's doctor about it on Tuesday. The way she is off tobi right now isn't really sustainable and I don't think she can go to school like this.
 

Anomie

New member
Sweet. I'm gonna talk to my kid's doctor about it on Tuesday. The way she is off tobi right now isn't really sustainable and I don't think she can go to school like this.
 

hmw

New member
That is interesting. I think this concept bears out more research, but the extremely small number of study participants limits the value of the study.

For example, were the participants chosen from multiple centers with various approaches to care- or all from the same center, where approach to care is not identical to how ALL centers treat infection? It's well known that inadequately or inappropriately treating infection will result in resistant bacteria, for example. Other aspects of care may be involved as well. So in my opinion, I think that it should be investigated further, but these findings regarded with caution until then.
 

hmw

New member
That is interesting. I think this concept bears out more research, but the extremely small number of study participants limits the value of the study.

For example, were the participants chosen from multiple centers with various approaches to care- or all from the same center, where approach to care is not identical to how ALL centers treat infection? It's well known that inadequately or inappropriately treating infection will result in resistant bacteria, for example. Other aspects of care may be involved as well. So in my opinion, I think that it should be investigated further, but these findings regarded with caution until then.
 

Anomie

New member
We need something to keep her pseudo under control because the tobi's not cutting it. We really want to get her on cayston but I got a feeling they're not going to be meeting their demand anytime soon. I'm thinking about getting her checked in for another round of IVs or maybe get them to cycle the tobi two weeks on, two weeks off.
 

Anomie

New member
We need something to keep her pseudo under control because the tobi's not cutting it. We really want to get her on cayston but I got a feeling they're not going to be meeting their demand anytime soon. I'm thinking about getting her checked in for another round of IVs or maybe get them to cycle the tobi two weeks on, two weeks off.
 

LouLou

New member
6 patients? This is hardly statistically significant. Additionally, I think the reference point of bacteria count is not really that relevant or easily counted to be accurate. I'd like to see what the FEV1 of these 6 patients were overtime. I don't think this proves much of anything.
 

LouLou

New member
6 patients? This is hardly statistically significant. Additionally, I think the reference point of bacteria count is not really that relevant or easily counted to be accurate. I'd like to see what the FEV1 of these 6 patients were overtime. I don't think this proves much of anything.
 

Anomie

New member
Ya they're PFTs are probably being run into the ground by bacteria thats susceptible to available antibiotics.
 

Anomie

New member
Ya they're PFTs are probably being run into the ground by bacteria thats susceptible to available antibiotics.
 
C

cindylou

Guest
My CF doctor tends to take this approach and it drives me crazy. For instance, he won't treat my (non-MRSA) staph at all, even though I have a lifetime history of getting very sick from it! Last fall I was really sick for several months and he tried everything - steroids, antifungals, zithromax (which does nothing for me, ever). It was not until he FINALLY gave me a prescription for levaquin that I miraculously got better in 3 weeks - and this was after 5 months (no joke) of doing treatments 4x a day, exercising my butt off, etc. etc. etc. To my mind, anyway, that proved that antibiotics were obviously what was needed!
 
C

cindylou

Guest
My CF doctor tends to take this approach and it drives me crazy. For instance, he won't treat my (non-MRSA) staph at all, even though I have a lifetime history of getting very sick from it! Last fall I was really sick for several months and he tried everything - steroids, antifungals, zithromax (which does nothing for me, ever). It was not until he FINALLY gave me a prescription for levaquin that I miraculously got better in 3 weeks - and this was after 5 months (no joke) of doing treatments 4x a day, exercising my butt off, etc. etc. etc. To my mind, anyway, that proved that antibiotics were obviously what was needed!
 

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cindylou</b></i> My CF doctor tends to take this approach and it drives me crazy. For instance, he won't treat my (non-MRSA) staph at all, even though I have a lifetime history of getting very sick from it! Last fall I was really sick for several months and he tried everything - steroids, antifungals, zithromax (which does nothing for me, ever). It was not until he FINALLY gave me a prescription for levaquin that I miraculously got better in 3 weeks - and this was after 5 months (no joke) of doing treatments 4x a day, exercising my butt off, etc. etc. etc. To my mind, anyway, that proved that antibiotics were obviously what was needed!</end quote>

Sweden treats only Staph - they consider it to be much more virulent than PA.
CFRI has a great DVD you can buy for like a dollar of a seminar they had with the center director from Sweden. It's very informative.
 

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cindylou</b></i> My CF doctor tends to take this approach and it drives me crazy. For instance, he won't treat my (non-MRSA) staph at all, even though I have a lifetime history of getting very sick from it! Last fall I was really sick for several months and he tried everything - steroids, antifungals, zithromax (which does nothing for me, ever). It was not until he FINALLY gave me a prescription for levaquin that I miraculously got better in 3 weeks - and this was after 5 months (no joke) of doing treatments 4x a day, exercising my butt off, etc. etc. etc. To my mind, anyway, that proved that antibiotics were obviously what was needed!</end quote>

Sweden treats only Staph - they consider it to be much more virulent than PA.
CFRI has a great DVD you can buy for like a dollar of a seminar they had with the center director from Sweden. It's very informative.
 
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