Has anyone told there cf clinic that they want a second opinion on there care. I'm to the point I just don't have a lot of confidence in the care my child is getting and want a second opinion which I would have to go to another state to get. After I get the second opinion if it different or the same will my clinic treat my child different because I second guessed the high and mighty Doctors.
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cf center second opinion
- Thread starter anonymous
- Start date
We didn't tell our CF clinic we wanted a second opinion. We just went ahead and GOT a second opinion. Locally they're more reactive than proactive. And the majority of the time they criticize us for going elsewhere or the medications or treatments the other clinic has our son on. Liza aka ratatosk
candiebar76
New member
A second opinion is never a bad thing. We all want to make sure our children are getting the best treatment in any situation. If the clinic has a problem with that and they are accredited I would notify the foundation. They should know if the dr.'s that are practicing under their acredidations are not following protocal.
Candace
Candace
chantelfox
New member
That's the story of my life. The clinic I originally went to wanted
me to do things that I did not feel was necessary for me. Every
time I went there, it was like I was just a CFer and not a person.
I became very depressed because they really started in on the the
whole "life is short for people with CF". I hated going
there because they wouldn't listen to my suggestions and continued
to make me feel like I was going to die soon, even though my PFTs
were in the 90s at the time. I never even told them I was leaving.
I just stopped going there and my mom found another clinic to go to
about 2 hours away. I have had better luck with them.<br>
A friend of my mom, has a son with CF age 4, and they had the same
problems with the original clinic that I went to. So they started
flying to the one in Mineapolis (i believe). They really like it
there and it has some different views than clinics I have been to/
hear about. So I suggest to you to explore other clinics and
Drs. if you feel you should/ want to, because I have really began
to see some differences in the practices of different
clinics/ doctors. To me CF has begun to seem like a series of
trials and errors, because what works well for one person, may not
be the best for another. I don't think that they will care much
about you seeking a second opinion. If they are professionals they
need to act like it. Hope this helps! Good luck!<br>
<br>
Take Care!<br>
Chantel
me to do things that I did not feel was necessary for me. Every
time I went there, it was like I was just a CFer and not a person.
I became very depressed because they really started in on the the
whole "life is short for people with CF". I hated going
there because they wouldn't listen to my suggestions and continued
to make me feel like I was going to die soon, even though my PFTs
were in the 90s at the time. I never even told them I was leaving.
I just stopped going there and my mom found another clinic to go to
about 2 hours away. I have had better luck with them.<br>
A friend of my mom, has a son with CF age 4, and they had the same
problems with the original clinic that I went to. So they started
flying to the one in Mineapolis (i believe). They really like it
there and it has some different views than clinics I have been to/
hear about. So I suggest to you to explore other clinics and
Drs. if you feel you should/ want to, because I have really began
to see some differences in the practices of different
clinics/ doctors. To me CF has begun to seem like a series of
trials and errors, because what works well for one person, may not
be the best for another. I don't think that they will care much
about you seeking a second opinion. If they are professionals they
need to act like it. Hope this helps! Good luck!<br>
<br>
Take Care!<br>
Chantel
I have taken my two children to another cf clinic for a second opinion and I will continue to go back there once a year. I am always trying to find news ways and different opinions on how to treat my children's cf symptoms, so I am all for visiting another clinic. I was amazed how they different they were. It all has to do with how the doctors look at the disease. Don't worry about any doctors/nurses feelings, it only matters that your child is getting the best care.
Sharon, mom of Sophia, 4 and Jack, 2 both with cf
Sharon, mom of Sophia, 4 and Jack, 2 both with cf