CF.com Idol

NoExcuses · Jun 14, 2007

I don't want this to turn into a populatiry contest, but rather I hope it will be an opportunity to talk about who you admire on this board.

Please, this is not meant to be a popularity contest. The goal isn't to have your name pop up as much as possible.

The goal is to just highlight those you think are awesome, cool, a good example to the CF community, or who have made a positive impact on your life.

I want everyone to give a shout out to a few people who they admire. I'll go first.

1. Chris (Chaggie) - I've said it a million times. This guy has pushed me with my exercise beyong my wildest dreams. He has set a wondeful example for me in terms of what I can be capable as a CFer.

He works rediculous hours, does all his meds all the time, is so commited to NAC that he actually DRINKS mucomyst, plays hard core hockey and works out on top of it. And he has a huge passion for research. We trade info about things we've discovered all the time - and it's wonderful to have someone who has the same passion as I do about being proactive about CF.

2. Quoof (Q) - You are loyal, you are hysterical, you are caring, and most of all, you're just cool. I'll keep it brief cuz I know Q gets embarassed by this stuff. But I think you're the cat's pajamas <img src="i/expressions/face-icon-small-smile.gif" border="0">

3. Emily65Roses - You make me laugh. I'm not funny at all so I appreciate a good sense of humor. Plus you have guts, and not many people are strong enough to stick by their guns. Even if I don't agree wtih u all the time, I admire your courage.

4. Allie - You don't back down. You are who you are and you don't apologize for it. You have an incredible perspective to add to this site, and I think the value of your perspective is just unbelievable. I am insipired by your courage and your ability to be comfortable in your own skin. I really am so grateful that I've met you!

5. LightNLife - I love that you've started your own blog. You have taken CF by the horns and you're doing everything in your power to improve your health. As if that's not enough, you've started a blog to help others.

6. Imogene You had a vision and you created this site. If it weren't for you and your forum, I would have never visited Warwick last year and learned about the inCourage Vest, NAC, and a new way to cough.

I would be spending so much more time on my Colistin treatment because I wouldn't have my eFlow.

I wouldn't be exercing like I am because I wouldn't have gotten my butt kicked by Chris.

And I'm enrolling in a clinical trial that I wouldn't have otherwise done had it not been for this site.

Thank you for all you do, Jeanne. We can't say it enough.

I hope you all will take the time to talk about your CF idols.

NoExcuses · Jun 14, 2007

I don't want this to turn into a populatiry contest, but rather I hope it will be an opportunity to talk about who you admire on this board.

Please, this is not meant to be a popularity contest. The goal isn't to have your name pop up as much as possible.

The goal is to just highlight those you think are awesome, cool, a good example to the CF community, or who have made a positive impact on your life.

I want everyone to give a shout out to a few people who they admire. I'll go first.

1. Chris (Chaggie) - I've said it a million times. This guy has pushed me with my exercise beyong my wildest dreams. He has set a wondeful example for me in terms of what I can be capable as a CFer.

He works rediculous hours, does all his meds all the time, is so commited to NAC that he actually DRINKS mucomyst, plays hard core hockey and works out on top of it. And he has a huge passion for research. We trade info about things we've discovered all the time - and it's wonderful to have someone who has the same passion as I do about being proactive about CF.

2. Quoof (Q) - You are loyal, you are hysterical, you are caring, and most of all, you're just cool. I'll keep it brief cuz I know Q gets embarassed by this stuff. But I think you're the cat's pajamas <img src="i/expressions/face-icon-small-smile.gif" border="0">

3. Emily65Roses - You make me laugh. I'm not funny at all so I appreciate a good sense of humor. Plus you have guts, and not many people are strong enough to stick by their guns. Even if I don't agree wtih u all the time, I admire your courage.

4. Allie - You don't back down. You are who you are and you don't apologize for it. You have an incredible perspective to add to this site, and I think the value of your perspective is just unbelievable. I am insipired by your courage and your ability to be comfortable in your own skin. I really am so grateful that I've met you!

5. LightNLife - I love that you've started your own blog. You have taken CF by the horns and you're doing everything in your power to improve your health. As if that's not enough, you've started a blog to help others.

6. Imogene You had a vision and you created this site. If it weren't for you and your forum, I would have never visited Warwick last year and learned about the inCourage Vest, NAC, and a new way to cough.

I would be spending so much more time on my Colistin treatment because I wouldn't have my eFlow.

I wouldn't be exercing like I am because I wouldn't have gotten my butt kicked by Chris.

And I'm enrolling in a clinical trial that I wouldn't have otherwise done had it not been for this site.

Thank you for all you do, Jeanne. We can't say it enough.

I hope you all will take the time to talk about your CF idols.

NoExcuses · Jun 14, 2007

I don't want this to turn into a populatiry contest, but rather I hope it will be an opportunity to talk about who you admire on this board.

Please, this is not meant to be a popularity contest. The goal isn't to have your name pop up as much as possible.

The goal is to just highlight those you think are awesome, cool, a good example to the CF community, or who have made a positive impact on your life.

I want everyone to give a shout out to a few people who they admire. I'll go first.

1. Chris (Chaggie) - I've said it a million times. This guy has pushed me with my exercise beyong my wildest dreams. He has set a wondeful example for me in terms of what I can be capable as a CFer.

He works rediculous hours, does all his meds all the time, is so commited to NAC that he actually DRINKS mucomyst, plays hard core hockey and works out on top of it. And he has a huge passion for research. We trade info about things we've discovered all the time - and it's wonderful to have someone who has the same passion as I do about being proactive about CF.

2. Quoof (Q) - You are loyal, you are hysterical, you are caring, and most of all, you're just cool. I'll keep it brief cuz I know Q gets embarassed by this stuff. But I think you're the cat's pajamas <img src="i/expressions/face-icon-small-smile.gif" border="0">

3. Emily65Roses - You make me laugh. I'm not funny at all so I appreciate a good sense of humor. Plus you have guts, and not many people are strong enough to stick by their guns. Even if I don't agree wtih u all the time, I admire your courage.

4. Allie - You don't back down. You are who you are and you don't apologize for it. You have an incredible perspective to add to this site, and I think the value of your perspective is just unbelievable. I am insipired by your courage and your ability to be comfortable in your own skin. I really am so grateful that I've met you!

5. LightNLife - I love that you've started your own blog. You have taken CF by the horns and you're doing everything in your power to improve your health. As if that's not enough, you've started a blog to help others.

6. Imogene You had a vision and you created this site. If it weren't for you and your forum, I would have never visited Warwick last year and learned about the inCourage Vest, NAC, and a new way to cough.

I would be spending so much more time on my Colistin treatment because I wouldn't have my eFlow.

I wouldn't be exercing like I am because I wouldn't have gotten my butt kicked by Chris.

And I'm enrolling in a clinical trial that I wouldn't have otherwise done had it not been for this site.

Thank you for all you do, Jeanne. We can't say it enough.

I hope you all will take the time to talk about your CF idols.

NoExcuses · Jun 14, 2007

I don't want this to turn into a populatiry contest, but rather I hope it will be an opportunity to talk about who you admire on this board.

Please, this is not meant to be a popularity contest. The goal isn't to have your name pop up as much as possible.

The goal is to just highlight those you think are awesome, cool, a good example to the CF community, or who have made a positive impact on your life.

I want everyone to give a shout out to a few people who they admire. I'll go first.

1. Chris (Chaggie) - I've said it a million times. This guy has pushed me with my exercise beyong my wildest dreams. He has set a wondeful example for me in terms of what I can be capable as a CFer.

He works rediculous hours, does all his meds all the time, is so commited to NAC that he actually DRINKS mucomyst, plays hard core hockey and works out on top of it. And he has a huge passion for research. We trade info about things we've discovered all the time - and it's wonderful to have someone who has the same passion as I do about being proactive about CF.

2. Quoof (Q) - You are loyal, you are hysterical, you are caring, and most of all, you're just cool. I'll keep it brief cuz I know Q gets embarassed by this stuff. But I think you're the cat's pajamas <img src="i/expressions/face-icon-small-smile.gif" border="0">

3. Emily65Roses - You make me laugh. I'm not funny at all so I appreciate a good sense of humor. Plus you have guts, and not many people are strong enough to stick by their guns. Even if I don't agree wtih u all the time, I admire your courage.

4. Allie - You don't back down. You are who you are and you don't apologize for it. You have an incredible perspective to add to this site, and I think the value of your perspective is just unbelievable. I am insipired by your courage and your ability to be comfortable in your own skin. I really am so grateful that I've met you!

5. LightNLife - I love that you've started your own blog. You have taken CF by the horns and you're doing everything in your power to improve your health. As if that's not enough, you've started a blog to help others.

6. Imogene You had a vision and you created this site. If it weren't for you and your forum, I would have never visited Warwick last year and learned about the inCourage Vest, NAC, and a new way to cough.

I would be spending so much more time on my Colistin treatment because I wouldn't have my eFlow.

I wouldn't be exercing like I am because I wouldn't have gotten my butt kicked by Chris.

And I'm enrolling in a clinical trial that I wouldn't have otherwise done had it not been for this site.

Thank you for all you do, Jeanne. We can't say it enough.

I hope you all will take the time to talk about your CF idols.

NoExcuses · Jun 14, 2007

I don't want this to turn into a populatiry contest, but rather I hope it will be an opportunity to talk about who you admire on this board.

Please, this is not meant to be a popularity contest. The goal isn't to have your name pop up as much as possible.

The goal is to just highlight those you think are awesome, cool, a good example to the CF community, or who have made a positive impact on your life.

I want everyone to give a shout out to a few people who they admire. I'll go first.

1. Chris (Chaggie) - I've said it a million times. This guy has pushed me with my exercise beyong my wildest dreams. He has set a wondeful example for me in terms of what I can be capable as a CFer.

He works rediculous hours, does all his meds all the time, is so commited to NAC that he actually DRINKS mucomyst, plays hard core hockey and works out on top of it. And he has a huge passion for research. We trade info about things we've discovered all the time - and it's wonderful to have someone who has the same passion as I do about being proactive about CF.

2. Quoof (Q) - You are loyal, you are hysterical, you are caring, and most of all, you're just cool. I'll keep it brief cuz I know Q gets embarassed by this stuff. But I think you're the cat's pajamas <img src="i/expressions/face-icon-small-smile.gif" border="0">

3. Emily65Roses - You make me laugh. I'm not funny at all so I appreciate a good sense of humor. Plus you have guts, and not many people are strong enough to stick by their guns. Even if I don't agree wtih u all the time, I admire your courage.

4. Allie - You don't back down. You are who you are and you don't apologize for it. You have an incredible perspective to add to this site, and I think the value of your perspective is just unbelievable. I am insipired by your courage and your ability to be comfortable in your own skin. I really am so grateful that I've met you!

5. LightNLife - I love that you've started your own blog. You have taken CF by the horns and you're doing everything in your power to improve your health. As if that's not enough, you've started a blog to help others.

6. Imogene You had a vision and you created this site. If it weren't for you and your forum, I would have never visited Warwick last year and learned about the inCourage Vest, NAC, and a new way to cough.

I would be spending so much more time on my Colistin treatment because I wouldn't have my eFlow.

I wouldn't be exercing like I am because I wouldn't have gotten my butt kicked by Chris.

And I'm enrolling in a clinical trial that I wouldn't have otherwise done had it not been for this site.

Thank you for all you do, Jeanne. We can't say it enough.

I hope you all will take the time to talk about your CF idols.

NoExcuses · Jun 14, 2007

I don't want this to turn into a populatiry contest, but rather I hope it will be an opportunity to talk about who you admire on this board.

Please, this is not meant to be a popularity contest. The goal isn't to have your name pop up as much as possible.

The goal is to just highlight those you think are awesome, cool, a good example to the CF community, or who have made a positive impact on your life.

I want everyone to give a shout out to a few people who they admire. I'll go first.

1. Chris (Chaggie) - I've said it a million times. This guy has pushed me with my exercise beyong my wildest dreams. He has set a wondeful example for me in terms of what I can be capable as a CFer.

He works rediculous hours, does all his meds all the time, is so commited to NAC that he actually DRINKS mucomyst, plays hard core hockey and works out on top of it. And he has a huge passion for research. We trade info about things we've discovered all the time - and it's wonderful to have someone who has the same passion as I do about being proactive about CF.

2. Quoof (Q) - You are loyal, you are hysterical, you are caring, and most of all, you're just cool. I'll keep it brief cuz I know Q gets embarassed by this stuff. But I think you're the cat's pajamas <img src="i/expressions/face-icon-small-smile.gif" border="0">

3. Emily65Roses - You make me laugh. I'm not funny at all so I appreciate a good sense of humor. Plus you have guts, and not many people are strong enough to stick by their guns. Even if I don't agree wtih u all the time, I admire your courage.

4. Allie - You don't back down. You are who you are and you don't apologize for it. You have an incredible perspective to add to this site, and I think the value of your perspective is just unbelievable. I am insipired by your courage and your ability to be comfortable in your own skin. I really am so grateful that I've met you!

5. LightNLife - I love that you've started your own blog. You have taken CF by the horns and you're doing everything in your power to improve your health. As if that's not enough, you've started a blog to help others.

6. Imogene You had a vision and you created this site. If it weren't for you and your forum, I would have never visited Warwick last year and learned about the inCourage Vest, NAC, and a new way to cough.

I would be spending so much more time on my Colistin treatment because I wouldn't have my eFlow.

I wouldn't be exercing like I am because I wouldn't have gotten my butt kicked by Chris.

And I'm enrolling in a clinical trial that I wouldn't have otherwise done had it not been for this site.

Thank you for all you do, Jeanne. We can't say it enough.

I hope you all will take the time to talk about your CF idols.

Imogene · Jun 14, 2007

Thanks for such a positive post!

This was my experiment as a teacher and a web designer back in 1996. My original business partner had CF and so I bought www.cysticfibrosis.com and built forums and a site on it immediately. I also bought 52 other niche medical domains and set out to be a "web designer"...doing medical and hospital web sites. This site was always busy and now what we've known all along is becoming obvious to the wider community:

The Wall Street Journal ran an article yesterday on
<a target=_blank class=ftalternatingbarlinklarge href="http://online.wsj.com/article_email/SB118168968368633094-lMyQjAxMDE3ODExMzYxODM5Wj.html">The Growing Clout of Online Patient Groups</a>

Not sure how long it will be available from my paid subscription.

Everyday, I read every message and I'm amazed by the numbers who visit our site, join, come back, post, help each other and get so inspired and even emotionally involved. People come here from all over the world and 60% of you return.

I had the pleasure of meeting a few of you and I count those times as some of the most memorable in my life.

Some of you write me encouraging words every day! I've received so many testimonials, and so many of you keep me going, keep the server running, keep me praying....this is a life's work! I'm so blessed to be part of this powerful movement of patients taking charge for the 21st century.

One person I would like to mention on this side of the fence is:

Steve Keiles~ AmbryGenetics Genetic Counselor

I had the dream we would all be asking questions of the sponsors and getting answers. There is really more to it than that...I'm finding out....but
Steve got it!

He never had to be taught how to treat this community. He has respect and kindness along with the knowledge he imparts to you in the Family Section of this site.

I admire his skill, his love for his job and his kind attention to us! I know he's the beginning of a wave of advertisers and sponsors who will learn from you!

Jeanne

Imogene · Jun 14, 2007

Thanks for such a positive post!

This was my experiment as a teacher and a web designer back in 1996. My original business partner had CF and so I bought www.cysticfibrosis.com and built forums and a site on it immediately. I also bought 52 other niche medical domains and set out to be a "web designer"...doing medical and hospital web sites. This site was always busy and now what we've known all along is becoming obvious to the wider community:

The Wall Street Journal ran an article yesterday on
<a target=_blank class=ftalternatingbarlinklarge href="http://online.wsj.com/article_email/SB118168968368633094-lMyQjAxMDE3ODExMzYxODM5Wj.html">The Growing Clout of Online Patient Groups</a>

Not sure how long it will be available from my paid subscription.

Everyday, I read every message and I'm amazed by the numbers who visit our site, join, come back, post, help each other and get so inspired and even emotionally involved. People come here from all over the world and 60% of you return.

I had the pleasure of meeting a few of you and I count those times as some of the most memorable in my life.

Some of you write me encouraging words every day! I've received so many testimonials, and so many of you keep me going, keep the server running, keep me praying....this is a life's work! I'm so blessed to be part of this powerful movement of patients taking charge for the 21st century.

One person I would like to mention on this side of the fence is:

Steve Keiles~ AmbryGenetics Genetic Counselor

I had the dream we would all be asking questions of the sponsors and getting answers. There is really more to it than that...I'm finding out....but
Steve got it!

He never had to be taught how to treat this community. He has respect and kindness along with the knowledge he imparts to you in the Family Section of this site.

I admire his skill, his love for his job and his kind attention to us! I know he's the beginning of a wave of advertisers and sponsors who will learn from you!

Jeanne

Imogene · Jun 14, 2007

Thanks for such a positive post!

This was my experiment as a teacher and a web designer back in 1996. My original business partner had CF and so I bought www.cysticfibrosis.com and built forums and a site on it immediately. I also bought 52 other niche medical domains and set out to be a "web designer"...doing medical and hospital web sites. This site was always busy and now what we've known all along is becoming obvious to the wider community:

The Wall Street Journal ran an article yesterday on
<a target=_blank class=ftalternatingbarlinklarge href="http://online.wsj.com/article_email/SB118168968368633094-lMyQjAxMDE3ODExMzYxODM5Wj.html">The Growing Clout of Online Patient Groups</a>

Not sure how long it will be available from my paid subscription.

Everyday, I read every message and I'm amazed by the numbers who visit our site, join, come back, post, help each other and get so inspired and even emotionally involved. People come here from all over the world and 60% of you return.

I had the pleasure of meeting a few of you and I count those times as some of the most memorable in my life.

Some of you write me encouraging words every day! I've received so many testimonials, and so many of you keep me going, keep the server running, keep me praying....this is a life's work! I'm so blessed to be part of this powerful movement of patients taking charge for the 21st century.

One person I would like to mention on this side of the fence is:

Steve Keiles~ AmbryGenetics Genetic Counselor

I had the dream we would all be asking questions of the sponsors and getting answers. There is really more to it than that...I'm finding out....but
Steve got it!

He never had to be taught how to treat this community. He has respect and kindness along with the knowledge he imparts to you in the Family Section of this site.

I admire his skill, his love for his job and his kind attention to us! I know he's the beginning of a wave of advertisers and sponsors who will learn from you!

Jeanne

Imogene · Jun 14, 2007

Thanks for such a positive post!

This was my experiment as a teacher and a web designer back in 1996. My original business partner had CF and so I bought www.cysticfibrosis.com and built forums and a site on it immediately. I also bought 52 other niche medical domains and set out to be a "web designer"...doing medical and hospital web sites. This site was always busy and now what we've known all along is becoming obvious to the wider community:

The Wall Street Journal ran an article yesterday on
<a target=_blank class=ftalternatingbarlinklarge href="http://online.wsj.com/article_email/SB118168968368633094-lMyQjAxMDE3ODExMzYxODM5Wj.html">The Growing Clout of Online Patient Groups</a>

Not sure how long it will be available from my paid subscription.

Everyday, I read every message and I'm amazed by the numbers who visit our site, join, come back, post, help each other and get so inspired and even emotionally involved. People come here from all over the world and 60% of you return.

I had the pleasure of meeting a few of you and I count those times as some of the most memorable in my life.

Some of you write me encouraging words every day! I've received so many testimonials, and so many of you keep me going, keep the server running, keep me praying....this is a life's work! I'm so blessed to be part of this powerful movement of patients taking charge for the 21st century.

One person I would like to mention on this side of the fence is:

Steve Keiles~ AmbryGenetics Genetic Counselor

I had the dream we would all be asking questions of the sponsors and getting answers. There is really more to it than that...I'm finding out....but
Steve got it!

He never had to be taught how to treat this community. He has respect and kindness along with the knowledge he imparts to you in the Family Section of this site.

I admire his skill, his love for his job and his kind attention to us! I know he's the beginning of a wave of advertisers and sponsors who will learn from you!

Jeanne

Imogene · Jun 14, 2007

Thanks for such a positive post!

This was my experiment as a teacher and a web designer back in 1996. My original business partner had CF and so I bought www.cysticfibrosis.com and built forums and a site on it immediately. I also bought 52 other niche medical domains and set out to be a "web designer"...doing medical and hospital web sites. This site was always busy and now what we've known all along is becoming obvious to the wider community:

The Wall Street Journal ran an article yesterday on
<a target=_blank class=ftalternatingbarlinklarge href="http://online.wsj.com/article_email/SB118168968368633094-lMyQjAxMDE3ODExMzYxODM5Wj.html">The Growing Clout of Online Patient Groups</a>

Not sure how long it will be available from my paid subscription.

Everyday, I read every message and I'm amazed by the numbers who visit our site, join, come back, post, help each other and get so inspired and even emotionally involved. People come here from all over the world and 60% of you return.

I had the pleasure of meeting a few of you and I count those times as some of the most memorable in my life.

Some of you write me encouraging words every day! I've received so many testimonials, and so many of you keep me going, keep the server running, keep me praying....this is a life's work! I'm so blessed to be part of this powerful movement of patients taking charge for the 21st century.

One person I would like to mention on this side of the fence is:

Steve Keiles~ AmbryGenetics Genetic Counselor

I had the dream we would all be asking questions of the sponsors and getting answers. There is really more to it than that...I'm finding out....but
Steve got it!

He never had to be taught how to treat this community. He has respect and kindness along with the knowledge he imparts to you in the Family Section of this site.

I admire his skill, his love for his job and his kind attention to us! I know he's the beginning of a wave of advertisers and sponsors who will learn from you!

Jeanne

Imogene · Jun 14, 2007

Thanks for such a positive post!

This was my experiment as a teacher and a web designer back in 1996. My original business partner had CF and so I bought www.cysticfibrosis.com and built forums and a site on it immediately. I also bought 52 other niche medical domains and set out to be a "web designer"...doing medical and hospital web sites. This site was always busy and now what we've known all along is becoming obvious to the wider community:

The Wall Street Journal ran an article yesterday on
<a target=_blank class=ftalternatingbarlinklarge href="http://online.wsj.com/article_email/SB118168968368633094-lMyQjAxMDE3ODExMzYxODM5Wj.html">The Growing Clout of Online Patient Groups</a>

Not sure how long it will be available from my paid subscription.

Everyday, I read every message and I'm amazed by the numbers who visit our site, join, come back, post, help each other and get so inspired and even emotionally involved. People come here from all over the world and 60% of you return.

I had the pleasure of meeting a few of you and I count those times as some of the most memorable in my life.

Some of you write me encouraging words every day! I've received so many testimonials, and so many of you keep me going, keep the server running, keep me praying....this is a life's work! I'm so blessed to be part of this powerful movement of patients taking charge for the 21st century.

One person I would like to mention on this side of the fence is:

Steve Keiles~ AmbryGenetics Genetic Counselor

I had the dream we would all be asking questions of the sponsors and getting answers. There is really more to it than that...I'm finding out....but
Steve got it!

He never had to be taught how to treat this community. He has respect and kindness along with the knowledge he imparts to you in the Family Section of this site.

I admire his skill, his love for his job and his kind attention to us! I know he's the beginning of a wave of advertisers and sponsors who will learn from you!

Jeanne

moxie1 · Jun 14, 2007