My husband and I attended our first CFF fundraising event last night. It was a chef's fantasy type thing with 6 course dinner with wine. My friend (Chef Brian Doyle from our site) along with many other chefs donated their time and resources. My FIL's company has been the core sponsor for 30 some years and funded our way (they never imagined it would hit so close to home for him one day). Both sets of grandparents were at our table and it was the first time we all openly talked about CF as a family.
They had silent and live auctions and raised in total over $170,000 dollars!!! I was overwhelmed by it all...had to go to the ladies room after the speaker (physician and mother to 3 - one with CF) spoke about CF from her perspective. It just felt so overwhelming that so many people were doing this indirectly for our son.
And to top it all off, we see our neighbors there! He owns his own company and without ever saying anything, was a level 2 sponsor. We didn't know they were even going much less donating. I have no idea if they always have or if this is just since Ben has come along. I was very touched by this.
Anyway, my daughter is doing something special to raise some more money for both the CF and our local children's hospital where Ben was before he was diagnosed, so we are glad to be more involved. We wish all of you who are doing great strides this year all the luck in the world! Maybe next year we will try to get a team together. We just have our hands full this year with Julia's idea. Will share more as I get closer to finishing it with her.
I just wanted to share our first experience with our local CFF chapter. Just really feeling the support today.
They had silent and live auctions and raised in total over $170,000 dollars!!! I was overwhelmed by it all...had to go to the ladies room after the speaker (physician and mother to 3 - one with CF) spoke about CF from her perspective. It just felt so overwhelming that so many people were doing this indirectly for our son.
And to top it all off, we see our neighbors there! He owns his own company and without ever saying anything, was a level 2 sponsor. We didn't know they were even going much less donating. I have no idea if they always have or if this is just since Ben has come along. I was very touched by this.
Anyway, my daughter is doing something special to raise some more money for both the CF and our local children's hospital where Ben was before he was diagnosed, so we are glad to be more involved. We wish all of you who are doing great strides this year all the luck in the world! Maybe next year we will try to get a team together. We just have our hands full this year with Julia's idea. Will share more as I get closer to finishing it with her.
I just wanted to share our first experience with our local CFF chapter. Just really feeling the support today.