CF Interactions

djotroy17

New member
Is it safe for someone with Cystic Fibrosis to come into contact with another person with CF? I was told in the past by my parents to stay away from children with CF because they could have a spot on their lungs or sumtin and that I could catch it from them.
 

djotroy17

New member
Is it safe for someone with Cystic Fibrosis to come into contact with another person with CF? I was told in the past by my parents to stay away from children with CF because they could have a spot on their lungs or sumtin and that I could catch it from them.
 

djotroy17

New member
Is it safe for someone with Cystic Fibrosis to come into contact with another person with CF? I was told in the past by my parents to stay away from children with CF because they could have a spot on their lungs or sumtin and that I could catch it from them.
 

coltsfan715

New member
The general rule now is that CFers not have contact with each other because it is possible to pass bacteria from one person to another. As for the spot on their lungs comment - I do not know what that is in reference too.

I personally steer clear of most face to face interactions with other CFers, but I do mingle with them on occasion at CFF events and such. Generally we do not touch - no hand shaking, hugging or anything and we try to stay a few feet apart. There is only one CFer that I usually hug and she is about 4 years old. I will give her hugs so long as neither of us are sick and/or coughing much at all.

Take Care,
Lindsey
 

coltsfan715

New member
The general rule now is that CFers not have contact with each other because it is possible to pass bacteria from one person to another. As for the spot on their lungs comment - I do not know what that is in reference too.

I personally steer clear of most face to face interactions with other CFers, but I do mingle with them on occasion at CFF events and such. Generally we do not touch - no hand shaking, hugging or anything and we try to stay a few feet apart. There is only one CFer that I usually hug and she is about 4 years old. I will give her hugs so long as neither of us are sick and/or coughing much at all.

Take Care,
Lindsey
 

coltsfan715

New member
The general rule now is that CFers not have contact with each other because it is possible to pass bacteria from one person to another. As for the spot on their lungs comment - I do not know what that is in reference too.

I personally steer clear of most face to face interactions with other CFers, but I do mingle with them on occasion at CFF events and such. Generally we do not touch - no hand shaking, hugging or anything and we try to stay a few feet apart. There is only one CFer that I usually hug and she is about 4 years old. I will give her hugs so long as neither of us are sick and/or coughing much at all.

Take Care,
Lindsey
 
2

2perfectboys

Guest
I uese to think keeping CFers away from each other was sad and over doing it......I know people that grew up goin to CF camps and heard the lasting friendships they made and I guess I sort of would have liked my child to grown up this way and more important not make him think he was the only one in the world with CF. I have since changed my view somewhat, cause as he has stayed healthy, I want to keep this streak going as long as I can, so I plan on keeping him away from other CFer if I know about it. NOt sure if it is totaly necessary, cause I think some CFers can be around each other safely as long as they are not sharing toothbrushes and swaping kisses, but then I guess it is better to air on the safe side. Still what about families with multiple kids with CF and it' s not like the environment doesn't expose them to things, but I guess they are just more easily transfered from person to person.
Lindsey, not at all a cap down, why do u avoid all CFers but will hug one 4 year old, cause u don't think she is contagious or because she can't get anything from u, because u don't have anything to give her, just curious about your thought process here.
 
2

2perfectboys

Guest
I uese to think keeping CFers away from each other was sad and over doing it......I know people that grew up goin to CF camps and heard the lasting friendships they made and I guess I sort of would have liked my child to grown up this way and more important not make him think he was the only one in the world with CF. I have since changed my view somewhat, cause as he has stayed healthy, I want to keep this streak going as long as I can, so I plan on keeping him away from other CFer if I know about it. NOt sure if it is totaly necessary, cause I think some CFers can be around each other safely as long as they are not sharing toothbrushes and swaping kisses, but then I guess it is better to air on the safe side. Still what about families with multiple kids with CF and it' s not like the environment doesn't expose them to things, but I guess they are just more easily transfered from person to person.
Lindsey, not at all a cap down, why do u avoid all CFers but will hug one 4 year old, cause u don't think she is contagious or because she can't get anything from u, because u don't have anything to give her, just curious about your thought process here.
 
2

2perfectboys

Guest
I uese to think keeping CFers away from each other was sad and over doing it......I know people that grew up goin to CF camps and heard the lasting friendships they made and I guess I sort of would have liked my child to grown up this way and more important not make him think he was the only one in the world with CF. I have since changed my view somewhat, cause as he has stayed healthy, I want to keep this streak going as long as I can, so I plan on keeping him away from other CFer if I know about it. NOt sure if it is totaly necessary, cause I think some CFers can be around each other safely as long as they are not sharing toothbrushes and swaping kisses, but then I guess it is better to air on the safe side. Still what about families with multiple kids with CF and it' s not like the environment doesn't expose them to things, but I guess they are just more easily transfered from person to person.
Lindsey, not at all a cap down, why do u avoid all CFers but will hug one 4 year old, cause u don't think she is contagious or because she can't get anything from u, because u don't have anything to give her, just curious about your thought process here.
 
I

IG

Guest
Generally no it's not a good idea because of the germs that can be passed between them.
Examples being MRSA, B. Cepacia, pseudomonas, etc.

Bugs can be passed not just by air but by touching another person. An example of this is if you cough, you generally cover your mouth with your hand and breathe all over it. Then 5 minutes later you go and shake the hand of somebody you know without having had time (or even thinking about) washing your hands.

If you interact with other CFers you have to realize what you're getting into and those that do take the risk knowingly do so, and are taking the risk of passing germs to one another. Not that it's right or wrong either way there are just risks associated with it and each situation you encounter.
 
I

IG

Guest
Generally no it's not a good idea because of the germs that can be passed between them.
Examples being MRSA, B. Cepacia, pseudomonas, etc.

Bugs can be passed not just by air but by touching another person. An example of this is if you cough, you generally cover your mouth with your hand and breathe all over it. Then 5 minutes later you go and shake the hand of somebody you know without having had time (or even thinking about) washing your hands.

If you interact with other CFers you have to realize what you're getting into and those that do take the risk knowingly do so, and are taking the risk of passing germs to one another. Not that it's right or wrong either way there are just risks associated with it and each situation you encounter.
 
I

IG

Guest
Generally no it's not a good idea because of the germs that can be passed between them.
Examples being MRSA, B. Cepacia, pseudomonas, etc.

Bugs can be passed not just by air but by touching another person. An example of this is if you cough, you generally cover your mouth with your hand and breathe all over it. Then 5 minutes later you go and shake the hand of somebody you know without having had time (or even thinking about) washing your hands.

If you interact with other CFers you have to realize what you're getting into and those that do take the risk knowingly do so, and are taking the risk of passing germs to one another. Not that it's right or wrong either way there are just risks associated with it and each situation you encounter.
 

Brad

New member
I have a Brother and a Sister with Cf
I see them all the time. We never had
a problem at all........
 

Brad

New member
I have a Brother and a Sister with Cf
I see them all the time. We never had
a problem at all........
 

Brad

New member
I have a Brother and a Sister with Cf
I see them all the time. We never had
a problem at all........
 

coltsfan715

New member
<div class="FTQUOTE"><begin quote>Lindsey, not at all a cap down, why do u avoid all CFers but will hug one 4 year old, cause u don't think she is contagious or because she can't get anything from u, because u don't have anything to give her, just curious about your thought process here.</end quote></div>

Most of the people I have met with CF are adults and none of the people I know - the 4 yr old included - grow the same things I do. Well some of them grow Psuedo but none of the grow Staph. I don't want to give any of them Staph so I don't hug them or really have any physical contact. As for the 4 yr old Kurt (my fiance/boyfriend) and I know her family and she is to young to really grasp the no touching thing. I haven't found a way to explain to her not to hug me. I just let her hug me and I give her little pats. I tend to stay away from her completely if she is sick or if I am sick. I also will not go around her if I have been coughing more. Sometimes I tend to get this uncontrollable cough that just happens - if I have that I stay away from her. I don't really see her that often anyway - maybe 2-3 times a year. With adults and teens it is easier to explain and the always understand the no touching thing and they usually care just as much as me.

I will say though I grew up when we were still allowed to play with other CFers and I had several CF friends and we were together alot. We roomed together in the hospital. Played together stayed at each others houses and so on. It wasn't until the Cepacia thing that locally the centers started discouraging contact with other CFers.

Take Care,
Lindsey
 

coltsfan715

New member
<div class="FTQUOTE"><begin quote>Lindsey, not at all a cap down, why do u avoid all CFers but will hug one 4 year old, cause u don't think she is contagious or because she can't get anything from u, because u don't have anything to give her, just curious about your thought process here.</end quote></div>

Most of the people I have met with CF are adults and none of the people I know - the 4 yr old included - grow the same things I do. Well some of them grow Psuedo but none of the grow Staph. I don't want to give any of them Staph so I don't hug them or really have any physical contact. As for the 4 yr old Kurt (my fiance/boyfriend) and I know her family and she is to young to really grasp the no touching thing. I haven't found a way to explain to her not to hug me. I just let her hug me and I give her little pats. I tend to stay away from her completely if she is sick or if I am sick. I also will not go around her if I have been coughing more. Sometimes I tend to get this uncontrollable cough that just happens - if I have that I stay away from her. I don't really see her that often anyway - maybe 2-3 times a year. With adults and teens it is easier to explain and the always understand the no touching thing and they usually care just as much as me.

I will say though I grew up when we were still allowed to play with other CFers and I had several CF friends and we were together alot. We roomed together in the hospital. Played together stayed at each others houses and so on. It wasn't until the Cepacia thing that locally the centers started discouraging contact with other CFers.

Take Care,
Lindsey
 

coltsfan715

New member
<div class="FTQUOTE"><begin quote>Lindsey, not at all a cap down, why do u avoid all CFers but will hug one 4 year old, cause u don't think she is contagious or because she can't get anything from u, because u don't have anything to give her, just curious about your thought process here.</end quote></div>

Most of the people I have met with CF are adults and none of the people I know - the 4 yr old included - grow the same things I do. Well some of them grow Psuedo but none of the grow Staph. I don't want to give any of them Staph so I don't hug them or really have any physical contact. As for the 4 yr old Kurt (my fiance/boyfriend) and I know her family and she is to young to really grasp the no touching thing. I haven't found a way to explain to her not to hug me. I just let her hug me and I give her little pats. I tend to stay away from her completely if she is sick or if I am sick. I also will not go around her if I have been coughing more. Sometimes I tend to get this uncontrollable cough that just happens - if I have that I stay away from her. I don't really see her that often anyway - maybe 2-3 times a year. With adults and teens it is easier to explain and the always understand the no touching thing and they usually care just as much as me.

I will say though I grew up when we were still allowed to play with other CFers and I had several CF friends and we were together alot. We roomed together in the hospital. Played together stayed at each others houses and so on. It wasn't until the Cepacia thing that locally the centers started discouraging contact with other CFers.

Take Care,
Lindsey
 
2

2perfectboys

Guest
I see, thanks for expalining that. Yeah the Cepacia thing sure changed a lot and scares me to death. I am hoping my boy can make it another 10 years w/o psedo, but I know the odds are against him.... I am not at all a germ freek, I don't go around asking family members if they are sick befire we go or they come over, cause I figure the common colds and viruses are all over, but the older he gets and stays in excellent health, the more of a worry wart I become. He has a boy in his class that he really likes, and this boy has brothers and sisters w/ CF, while I know he can't go over that and play, I even wonder if he could pick up something from this nonCF boy that is one him....I know that may be extreme, CF just plays head games with u sometimes
thanks again
Lori
 
2

2perfectboys

Guest
I see, thanks for expalining that. Yeah the Cepacia thing sure changed a lot and scares me to death. I am hoping my boy can make it another 10 years w/o psedo, but I know the odds are against him.... I am not at all a germ freek, I don't go around asking family members if they are sick befire we go or they come over, cause I figure the common colds and viruses are all over, but the older he gets and stays in excellent health, the more of a worry wart I become. He has a boy in his class that he really likes, and this boy has brothers and sisters w/ CF, while I know he can't go over that and play, I even wonder if he could pick up something from this nonCF boy that is one him....I know that may be extreme, CF just plays head games with u sometimes
thanks again
Lori
 
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