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CF on TV-Strong Medicine on Lifetime
- Thread starter anonymous
- Start date
I went on Lifetimes site and read the description of tonight's episode:
Lu is caught in the middle when her patient's affair is revealed to the husband. When the couple's twins are born, one suffers from cystic fibrosis, a genetic disease that neither the mother nor her husband carries. Lu helps the young family heal from this devastating double blow. Dylan struggles with the best way to help a young female high school place kicker when he learns that the she has been "juicing" to keep her place on the team. Once her father finds out, he makes things worse by forcing her off cold turkey causing her to attempt suicide. Starring: Jenifer Lewis, Rick Schroder, Philip Casnoff, Rosa Blasi, Josh Coxx, Tamera Mowry [CC] [TV-PG DL]
It sounds to me that they are implying that neither parent is a carrier; which can't happen. I'm sure that what they mean is that the husband is not a carrier but the biological father is and so is the mother. I am interested in seeing how it all plays out and if they get their facts straight. I am probably being anal and over-interpreting things but when it comes to CF in the media the public needs to know the facts. After the show I will reply back on this posting and let you know what happened (if you don't get Lifetime)
Lu is caught in the middle when her patient's affair is revealed to the husband. When the couple's twins are born, one suffers from cystic fibrosis, a genetic disease that neither the mother nor her husband carries. Lu helps the young family heal from this devastating double blow. Dylan struggles with the best way to help a young female high school place kicker when he learns that the she has been "juicing" to keep her place on the team. Once her father finds out, he makes things worse by forcing her off cold turkey causing her to attempt suicide. Starring: Jenifer Lewis, Rick Schroder, Philip Casnoff, Rosa Blasi, Josh Coxx, Tamera Mowry [CC] [TV-PG DL]
It sounds to me that they are implying that neither parent is a carrier; which can't happen. I'm sure that what they mean is that the husband is not a carrier but the biological father is and so is the mother. I am interested in seeing how it all plays out and if they get their facts straight. I am probably being anal and over-interpreting things but when it comes to CF in the media the public needs to know the facts. After the show I will reply back on this posting and let you know what happened (if you don't get Lifetime)
Did anyone watch the show? I did. I was disappointed in it. At the end, they put up information about how to obtain information on drug abuse, but did not mention anything about obtaining information on CF or making donations. They didn't go into details about CF either. Oh well, at least we got a little bit of CF awareness out of it!
Yea, I just finished watching it and was disappointed also. They got the genetic thing right (the percentiles of being a carrier, non carrier and actually having CF). The whole getting pregnant while you are already pregnant was a little weird. Here's the situation: The mother was pregnant with twins and went into labor, the boy was delivered first and then the girl. The girl was very tiny and appeared much younger--but ended up fine. The son, who was doing good, started having issues and was taken to surgery because he had meconium ileus and was diagnosed with CF. The mother confessed to the OB/GYN that she had slept with another man a whole ago and wasn't sure if the baby was her husband's. Here comes the weird part: they then decided to test the little girl and it turns out she didn't have CF, however, her genetic makeup matched her mother and father (the husband) and she was about a month younger than her brother. The son, who has CF, was not genetically linked to the husband but was the biological child of the man the mother had an affair with. The mom had become pregnant with the daughter a month after conceiving the son, extremely rare but apparently possible. The husband was obviously pissed and the biological father wanted nothing to do with a "sick" kid. In the end the husband finally accepted "both" babies and they all lived happily ever after like most Lifetime movies/shows do.
I was impressed that they got the statistics right and went on to say that CF involves more than just the respiratory problems. The only thing I noticed that was wrong was that you can't diagnose CF through a blood test in just a few hours, but it wouldn't have been so "dramatic" had they waited two weeks! The CF was overshadowed by the strange conception drama and the teenage girl that played football and was pumped full of steroids. I wish there had been more of an emphasis on CF, but at least they got most of the facts straight, and hopefully raised a little more awareness! I was disappointed that they had that cheesy steroid awareness thing at the end and nothing about CF.
I was impressed that they got the statistics right and went on to say that CF involves more than just the respiratory problems. The only thing I noticed that was wrong was that you can't diagnose CF through a blood test in just a few hours, but it wouldn't have been so "dramatic" had they waited two weeks! The CF was overshadowed by the strange conception drama and the teenage girl that played football and was pumped full of steroids. I wish there had been more of an emphasis on CF, but at least they got most of the facts straight, and hopefully raised a little more awareness! I was disappointed that they had that cheesy steroid awareness thing at the end and nothing about CF.
When my daughter was born and 5 weeks later was diagnosed through newborn blood screen I was in shock but ok. What shocked me the most I have 2 other children before her and there fine I never knew we were carriers never new of cf before. But after 2 blood tests they finally did dna and found her rare mutation that has only been seen once. But I called ambry genetics for info and asked if the mutation could mutate itsself and I was told it could a very low chance but it could.Especially since it has been seen.Come to find out I am the carrier of this mutation but its very rare.So all I am saying is there is a very slim chance but iy could happen
Purplelungs
New member
I liked the show. I come to realize they all cant be just about cf....Shows like this have different characters they go between so there isnt much time to focus on one thing. I was really impressed at the way they did the cf thing. They never said it mainly affected caucasions...in fact the mother and father of the cf baby were hispanic. The mother asked how long her cf baby would live...and this is what I really really liked...The doctor told her there was no way to tell...some live well into their 30s even longer and some dont even make it that long. She even said that although he would need alot of special care and treatments it wouldnt stop him from being a happy little boy. OH and i thought that the doctor had said that meconium ileus is a sign of much bigger problems one being cf and they were in the middle of testing the baby. I never caught that they tested either baby with blood tests and sweat tests you can get the results back in a few hours...oh well...its a tv show all medical tv shows get tests results back really fast. All in all with a show like that that goes back and forth i think they did a good job for what they could do. Yes the whole way she got pregnant was weird, and is pretty rare but not at all impossible. There have been several cases of this happening. Do you guys remember back a few years ago someone in england or somewhere like that had twins and one was black and one was white and her boyfriend or husband was white and she was too. Come to find out she had an affair and had sex with both men a couple days apart so she got pregnant by each man. It was really weird then to and the first time i heard of it...but there are more cases of it happening. So that gave us a double wammy of a story, two different fathers and cf.
Anyway it was good to see that info out there and it actually being right for the most part. I would say out of all the shows i have seen with cf in it this is one of the top ones and they did their homework.
Anyway it was good to see that info out there and it actually being right for the most part. I would say out of all the shows i have seen with cf in it this is one of the top ones and they did their homework.
I believe the only way to correct inaccurate information is to present them with the accurate stuff so here's what I just emailed to lifetime,
Lu's most recent diagnosis will force her to expose her patient Yesenia's adulterous affair. When the woman's twins are born, one suffers from cystic fibrosis a genetic disease that neither Yesenia nor her hubby carries. It turns out that the twins have different fathers! Lu helps the young family heal from this devastating double blow. Meanwhile, Dylan struggles to help a high school athlete deal with her dangerous steroid fix. And Lana and Jonas' mom, Ava, get busy planning Lu's wedding.
I love watching all of your shows lifetime, but am VERY disappointed in the inaccurate information contained in the above episode. Cystic Fibrosis is a genetic disease and in order for a child to be born with it, BOTH parents MUST carry the gene. Thereofre, Yesenia does carry the genetic disease Cystic fibrosis, she is a carrier, but doesn't have cystic fibrosis.
As you may very well know, humans have 46 chormosomes arranged in 23 pairs. In each pair, one chromosome is contributed by the mother, one by the father. Each person has two copies of each gene, one on each chromosome. This gene is recessive so in order to HAVE CF, a person must inherit two genes containing the mutation, one from mom and one from dad to experience the effects of CF. If a person inherits only one mutation, they will be just a carrier who can pass the gene on to their children (or product a child with CF if the father has the CF mutation)
I was impressed by the fact that information on how to obtain help regarding drugs was listed at the end of the show, but saddened by the fact that I didn't seen anything mentioned about where to find more information on cystic fibrosis, where to get help, where to donate....
All in all, I still love lifetime but felt obligated to provide accurate information because there aren't enough people who know about CF and many people are shocked to hear that people with CF are now living into their 30's, 40's +++ and the oldest living woman with CF just passed at 70+ years old. It is NO LONGER just a childhood disease, and adults who are living with it need support just as the children do.
Thank you very kindly for your time,
Julie
Julie (wife to mark 24 w/CF)
Lu's most recent diagnosis will force her to expose her patient Yesenia's adulterous affair. When the woman's twins are born, one suffers from cystic fibrosis a genetic disease that neither Yesenia nor her hubby carries. It turns out that the twins have different fathers! Lu helps the young family heal from this devastating double blow. Meanwhile, Dylan struggles to help a high school athlete deal with her dangerous steroid fix. And Lana and Jonas' mom, Ava, get busy planning Lu's wedding.
I love watching all of your shows lifetime, but am VERY disappointed in the inaccurate information contained in the above episode. Cystic Fibrosis is a genetic disease and in order for a child to be born with it, BOTH parents MUST carry the gene. Thereofre, Yesenia does carry the genetic disease Cystic fibrosis, she is a carrier, but doesn't have cystic fibrosis.
As you may very well know, humans have 46 chormosomes arranged in 23 pairs. In each pair, one chromosome is contributed by the mother, one by the father. Each person has two copies of each gene, one on each chromosome. This gene is recessive so in order to HAVE CF, a person must inherit two genes containing the mutation, one from mom and one from dad to experience the effects of CF. If a person inherits only one mutation, they will be just a carrier who can pass the gene on to their children (or product a child with CF if the father has the CF mutation)
I was impressed by the fact that information on how to obtain help regarding drugs was listed at the end of the show, but saddened by the fact that I didn't seen anything mentioned about where to find more information on cystic fibrosis, where to get help, where to donate....
All in all, I still love lifetime but felt obligated to provide accurate information because there aren't enough people who know about CF and many people are shocked to hear that people with CF are now living into their 30's, 40's +++ and the oldest living woman with CF just passed at 70+ years old. It is NO LONGER just a childhood disease, and adults who are living with it need support just as the children do.
Thank you very kindly for your time,
Julie
Julie (wife to mark 24 w/CF)
Purplelungs
New member
I thought Lu did tell the mom she was a carrier...thats when the mom reveiled she didnt know if her husband was the other carrier or not because she had an affair. I do know for sure they did say there was no way to tell the life expactancy, Lu did say some live in the late 30s and longer and some dont.
Purple, that wasn't all so clear to me so I thought on it and then sent the email. I'd rather have them say, "oh, well we put the part in about this...it was in there" than just ignore it. There is so much WRONG information about CF and I'd prefer that it get corrected rather than just ignorning it as a non issue. I feel it is a really bit issue, although that is really personal, it's just my soapbox.
Julie
Julie
Purplelungs
New member
yeah i see what your saying. i am kinda not sure about the carrier thing..but i am pretty sure they did say both parents had to have the gene. and i applaud you for getting that all out there too. i agree i would rather tell them and just go on and hope they know