cf pharmacy v. foundation cares or any others

cffather

New member
My 19 month old was just dx 3 weeks ago. we just got back from the hospital at unc. thus far the doctors and everyone has been great in helping us out. i am still learning alot and have a lot more to figure out. when we got home i had to get a lot of medicines and soon found out the local cvs has no clue about anything related to cf. i heard of a cf pharmacy and another called foundation cares. anyone have any advice on where to turn for medicines?
 

cffather

New member
My 19 month old was just dx 3 weeks ago. we just got back from the hospital at unc. thus far the doctors and everyone has been great in helping us out. i am still learning alot and have a lot more to figure out. when we got home i had to get a lot of medicines and soon found out the local cvs has no clue about anything related to cf. i heard of a cf pharmacy and another called foundation cares. anyone have any advice on where to turn for medicines?
 

cffather

New member
My 19 month old was just dx 3 weeks ago. we just got back from the hospital at unc. thus far the doctors and everyone has been great in helping us out. i am still learning alot and have a lot more to figure out. when we got home i had to get a lot of medicines and soon found out the local cvs has no clue about anything related to cf. i heard of a cf pharmacy and another called foundation cares. anyone have any advice on where to turn for medicines?
 

cffather

New member
My 19 month old was just dx 3 weeks ago. we just got back from the hospital at unc. thus far the doctors and everyone has been great in helping us out. i am still learning alot and have a lot more to figure out. when we got home i had to get a lot of medicines and soon found out the local cvs has no clue about anything related to cf. i heard of a cf pharmacy and another called foundation cares. anyone have any advice on where to turn for medicines?
 

cffather

New member
My 19 month old was just dx 3 weeks ago. we just got back from the hospital at unc. thus far the doctors and everyone has been great in helping us out. i am still learning alot and have a lot more to figure out. when we got home i had to get a lot of medicines and soon found out the local cvs has no clue about anything related to cf. i heard of a cf pharmacy and another called foundation cares. anyone have any advice on where to turn for medicines?
 

Ratatosk

Administrator
Staff member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/CFServicesPharmacy/">http://www.cff.org/treatments/CFServicesPharmacy/</a> is the link for the cfservices pharmacy. We've gotten vitamins from them when they haven't been available from our local pharmacy, as well as Tobi when we were eligible for the tobi foundation program. We're fortunate in the our local pharmacy down the street has been able to get pretty much anything for us in a very timely manner (next day is the most I've had to wait) and the prices are pretty competitive.

Maybe your CF clinic can recommend a pharmacy in your area that's familiar with cf and the meds.
 

Ratatosk

Administrator
Staff member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/CFServicesPharmacy/">http://www.cff.org/treatments/CFServicesPharmacy/</a> is the link for the cfservices pharmacy. We've gotten vitamins from them when they haven't been available from our local pharmacy, as well as Tobi when we were eligible for the tobi foundation program. We're fortunate in the our local pharmacy down the street has been able to get pretty much anything for us in a very timely manner (next day is the most I've had to wait) and the prices are pretty competitive.

Maybe your CF clinic can recommend a pharmacy in your area that's familiar with cf and the meds.
 

Ratatosk

Administrator
Staff member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/CFServicesPharmacy/">http://www.cff.org/treatments/CFServicesPharmacy/</a> is the link for the cfservices pharmacy. We've gotten vitamins from them when they haven't been available from our local pharmacy, as well as Tobi when we were eligible for the tobi foundation program. We're fortunate in the our local pharmacy down the street has been able to get pretty much anything for us in a very timely manner (next day is the most I've had to wait) and the prices are pretty competitive.

Maybe your CF clinic can recommend a pharmacy in your area that's familiar with cf and the meds.
 

Ratatosk

Administrator
Staff member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/CFServicesPharmacy/">http://www.cff.org/treatments/CFServicesPharmacy/</a> is the link for the cfservices pharmacy. We've gotten vitamins from them when they haven't been available from our local pharmacy, as well as Tobi when we were eligible for the tobi foundation program. We're fortunate in the our local pharmacy down the street has been able to get pretty much anything for us in a very timely manner (next day is the most I've had to wait) and the prices are pretty competitive.

Maybe your CF clinic can recommend a pharmacy in your area that's familiar with cf and the meds.
 

Ratatosk

Administrator
Staff member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/CFServicesPharmacy/">http://www.cff.org/treatments/CFServicesPharmacy/</a> is the link for the cfservices pharmacy. We've gotten vitamins from them when they haven't been available from our local pharmacy, as well as Tobi when we were eligible for the tobi foundation program. We're fortunate in the our local pharmacy down the street has been able to get pretty much anything for us in a very timely manner (next day is the most I've had to wait) and the prices are pretty competitive.
<br />
<br />Maybe your CF clinic can recommend a pharmacy in your area that's familiar with cf and the meds.
 
M

Mommafirst

Guest
We've been forced to use a variety of pharmacies depending on the med and differing programs. I suggest you consider using the CF services pharmacy for enzymes and vitamins, because most of the enzyme companies have free programs that come with dietary supplements or vitamins.

We need to use Walgreens Specialty pharmacy for pulmozyme or tobi, as per our insurance.

We use CVS for the other things. We have created a good relationship there and they help us get in what we need. Its true that a lot of pharmacists haven't had a CF patient in their pharmacy, but a good pharmacist will work with you.
 
M

Mommafirst

Guest
We've been forced to use a variety of pharmacies depending on the med and differing programs. I suggest you consider using the CF services pharmacy for enzymes and vitamins, because most of the enzyme companies have free programs that come with dietary supplements or vitamins.

We need to use Walgreens Specialty pharmacy for pulmozyme or tobi, as per our insurance.

We use CVS for the other things. We have created a good relationship there and they help us get in what we need. Its true that a lot of pharmacists haven't had a CF patient in their pharmacy, but a good pharmacist will work with you.
 
M

Mommafirst

Guest
We've been forced to use a variety of pharmacies depending on the med and differing programs. I suggest you consider using the CF services pharmacy for enzymes and vitamins, because most of the enzyme companies have free programs that come with dietary supplements or vitamins.

We need to use Walgreens Specialty pharmacy for pulmozyme or tobi, as per our insurance.

We use CVS for the other things. We have created a good relationship there and they help us get in what we need. Its true that a lot of pharmacists haven't had a CF patient in their pharmacy, but a good pharmacist will work with you.
 
M

Mommafirst

Guest
We've been forced to use a variety of pharmacies depending on the med and differing programs. I suggest you consider using the CF services pharmacy for enzymes and vitamins, because most of the enzyme companies have free programs that come with dietary supplements or vitamins.

We need to use Walgreens Specialty pharmacy for pulmozyme or tobi, as per our insurance.

We use CVS for the other things. We have created a good relationship there and they help us get in what we need. Its true that a lot of pharmacists haven't had a CF patient in their pharmacy, but a good pharmacist will work with you.
 
M

Mommafirst

Guest
We've been forced to use a variety of pharmacies depending on the med and differing programs. I suggest you consider using the CF services pharmacy for enzymes and vitamins, because most of the enzyme companies have free programs that come with dietary supplements or vitamins.
<br />
<br />We need to use Walgreens Specialty pharmacy for pulmozyme or tobi, as per our insurance.
<br />
<br />We use CVS for the other things. We have created a good relationship there and they help us get in what we need. Its true that a lot of pharmacists haven't had a CF patient in their pharmacy, but a good pharmacist will work with you.
 

stressed

New member
I have used both pharmacy and like foundation care much better by far, I will never use the cf pharmacy again due to having problems a few years back , You can search for older post about both on here.
 

stressed

New member
I have used both pharmacy and like foundation care much better by far, I will never use the cf pharmacy again due to having problems a few years back , You can search for older post about both on here.
 

stressed

New member
I have used both pharmacy and like foundation care much better by far, I will never use the cf pharmacy again due to having problems a few years back , You can search for older post about both on here.
 

stressed

New member
I have used both pharmacy and like foundation care much better by far, I will never use the cf pharmacy again due to having problems a few years back , You can search for older post about both on here.
 

stressed

New member
I have used both pharmacy and like foundation care much better by far, I will never use the cf pharmacy again due to having problems a few years back , You can search for older post about both on here.
 
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