In my CF clinic there is a patient who puts out a newsletter called the CF Family Times. Tho much of it is geared towards the jewish patients, there is much to offer for many others including this topic:
Our first telephone conference chat line will take place on Tuesday, June 6th at 8:30 pm to 9:30 pm EST. We are inviting all of our CF adults to participate in this conference call. The phone number to call is 1-218-936-6660. Our pin nunber is 2384637# (cf times). In order for everyone to hear everyone clearly without background noise, please push 6 to mute your phone. When you wish to speak, please push 6. Our next support conference call will be with parents of CF children. Looking forward to to talking with you all soon.
P.S. Anyone who has not joined yet and would like to, please call 1-718-339-3334 and leave a detailed message about the CF members of your family, who will be participating in the support group, and if applicable, any suggestions or requests for topics that you or a member of your family would enjoy hearing &/or participating in. If you are not anonymous, please leave us your name and your CF information. Remember, if you do wish to remain anonymous, you can. Just leave your family's information on the machine without your name, so that you can be included in the survey and we can choose the topics of discussion appropriately. You can even have someone else call in for you if you dont want your voice to be heard!
PLEASE CALL ONLY ONCE SO THAT THE SURVEY CAN BE AS ACCURATE AS POSSIBLE....
Our first telephone conference chat line will take place on Tuesday, June 6th at 8:30 pm to 9:30 pm EST. We are inviting all of our CF adults to participate in this conference call. The phone number to call is 1-218-936-6660. Our pin nunber is 2384637# (cf times). In order for everyone to hear everyone clearly without background noise, please push 6 to mute your phone. When you wish to speak, please push 6. Our next support conference call will be with parents of CF children. Looking forward to to talking with you all soon.
P.S. Anyone who has not joined yet and would like to, please call 1-718-339-3334 and leave a detailed message about the CF members of your family, who will be participating in the support group, and if applicable, any suggestions or requests for topics that you or a member of your family would enjoy hearing &/or participating in. If you are not anonymous, please leave us your name and your CF information. Remember, if you do wish to remain anonymous, you can. Just leave your family's information on the machine without your name, so that you can be included in the survey and we can choose the topics of discussion appropriately. You can even have someone else call in for you if you dont want your voice to be heard!
PLEASE CALL ONLY ONCE SO THAT THE SURVEY CAN BE AS ACCURATE AS POSSIBLE....