Hi ... i've written on her a few times concerned about how my friend managed her health. She was 22 with CF. About 3 weeks ago her lung collapssed and after being in the hospital trying to re inflate it she got an infection in her other lung and then soon passed away. im more devistated then ever. i was just wondering...do you think she saw it coming like her family. do your doctors let you know this kind of stuff...because we told eachother everything, but sometimes she was a little secretive about her CF issues.
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CF took her away :(
- Thread starter anonymous
- Start date
Don't Grieve For Me For Now I'm Free
Don't Grieve for me for now I'm free,
I'm following the path God has laid you see.
I took His hand when I heard Him call,
I turned my back and left it all.
I could not stay another day,
To laugh, to love, to work, to play.
Tasks left undone must stay that way,
I found that peace at the close of day.
If my parting has left a void,
Then fill it with remembered joys.
A friendship shared, a laugh, a kiss,
Oh, yes, these things I too will miss.
Be not burdened with times of sorrow.
I wish you the sunshine of tomorrow.
My life's been full, I've savored much,
Good friends, good times, a loved one's touch.
Perhaps my time seemed all too brief,
Don't lengthen it now with undue grief.
Lift up your hearts and peace to thee,
God wanted me now, He set me free.
Don't Grieve for me for now I'm free,
I'm following the path God has laid you see.
I took His hand when I heard Him call,
I turned my back and left it all.
I could not stay another day,
To laugh, to love, to work, to play.
Tasks left undone must stay that way,
I found that peace at the close of day.
If my parting has left a void,
Then fill it with remembered joys.
A friendship shared, a laugh, a kiss,
Oh, yes, these things I too will miss.
Be not burdened with times of sorrow.
I wish you the sunshine of tomorrow.
My life's been full, I've savored much,
Good friends, good times, a loved one's touch.
Perhaps my time seemed all too brief,
Don't lengthen it now with undue grief.
Lift up your hearts and peace to thee,
God wanted me now, He set me free.
Don't Grieve For Me For Now I'm Free
Don't Grieve for me for now I'm free,
I'm following the path God has laid you see.
I took His hand when I heard Him call,
I turned my back and left it all.
I could not stay another day,
To laugh, to love, to work, to play.
Tasks left undone must stay that way,
I found that peace at the close of day.
If my parting has left a void,
Then fill it with remembered joys.
A friendship shared, a laugh, a kiss,
Oh, yes, these things I too will miss.
Be not burdened with times of sorrow.
I wish you the sunshine of tomorrow.
My life's been full, I've savored much,
Good friends, good times, a loved one's touch.
Perhaps my time seemed all too brief,
Don't lengthen it now with undue grief.
Lift up your hearts and peace to thee,
God wanted me now, He set me free.
Don't Grieve for me for now I'm free,
I'm following the path God has laid you see.
I took His hand when I heard Him call,
I turned my back and left it all.
I could not stay another day,
To laugh, to love, to work, to play.
Tasks left undone must stay that way,
I found that peace at the close of day.
If my parting has left a void,
Then fill it with remembered joys.
A friendship shared, a laugh, a kiss,
Oh, yes, these things I too will miss.
Be not burdened with times of sorrow.
I wish you the sunshine of tomorrow.
My life's been full, I've savored much,
Good friends, good times, a loved one's touch.
Perhaps my time seemed all too brief,
Don't lengthen it now with undue grief.
Lift up your hearts and peace to thee,
God wanted me now, He set me free.
All of us with CF know that the chances of CF taking our lives are pretty good, we just hope it's much later than sooner.
And I have to think that she probably knew/suspected (if she was conscience there at the end) that by the way she was feeling those last few days that this may be the end? But I can't be sure what she was thinking.
There are times I get infections that seem to last for months & I wonder "OK, is this the beginning of the end or what?" and I start to wonder if I'm on a downward spiral, luckily I've somewhat bounced back. Someday, this may not happen, but for now I'll let tomorrow worry about itself and enjoy today.
So I don't know if I answered your question, but please know that you're in my thoughts and prayers through this difficult time.
And I have to think that she probably knew/suspected (if she was conscience there at the end) that by the way she was feeling those last few days that this may be the end? But I can't be sure what she was thinking.
There are times I get infections that seem to last for months & I wonder "OK, is this the beginning of the end or what?" and I start to wonder if I'm on a downward spiral, luckily I've somewhat bounced back. Someday, this may not happen, but for now I'll let tomorrow worry about itself and enjoy today.
So I don't know if I answered your question, but please know that you're in my thoughts and prayers through this difficult time.
MY son has cf and he is sixteen. He does not want anyone to Know. I think she knew,and felt maybe if she did not talk about it,It would not take her life so quick.maybe she did not want you to hurt. Maybe she did not want anyone to fell sorry for her.I do not know why there are so many maybes. I still do not know why my son does not want anyone to know he will not tell me and maybe never will.but he knows. I am so sorry for your loss I cry everyday.One day I may have to face the same thing and I do not know how I will deal with it.I am so sorry for your friend, its so unfair.Do something in her name to help others who are still living with the illness and maybe that will make you fell better.Time will help
MY son has cf and he is sixteen. He does not want anyone to Know. I think she knew,and felt maybe if she did not talk about it,It would not take her life so quick.maybe she did not want you to hurt. Maybe she did not want anyone to fell sorry for her.I do not know why there are so many maybes. I still do not know why my son does not want anyone to know he will not tell me and maybe never will.but he knows. I am so sorry for your loss I cry everyday.One day I may have to face the same thing and I do not know how I will deal with it.I am so sorry for your friend, its so unfair.Do something in her name to help others who are still living with the illness and maybe that will make you fell better.Time will help
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Hi ... i've written on her a few times concerned about how my friend managed her health. She was 22 with CF. About 3 weeks ago her lung collapssed and after being in the hospital trying to re inflate it she got an infection in her other lung and then soon passed away. im more devistated then ever. i was just wondering...do you think she saw it coming like her family. do your doctors let you know this kind of stuff...because we told eachother everything, but sometimes she was a little secretive about her CF issues.<hr></blockquote>
My daughter passed away in October 2004. She was also 22 and very secretive to us about things until right before she died. I think they don't tell us things because they don't want to worry us. Sometimes I think about what her last few days were like knowing she was dying and trying to deal with it, to me that is what I seem to have the hardest time with dealing with. I still miss her and cry alot. I guess I thought when she went into the hospital this last time that she would go in for 2 weeks and get better and go home but she steadly got worse and maybe I knew but just did not want to admit it . That was the hardest thing I have ever had to go through and I hope and pray that no one ever has to go through what she went through. I feel she was meant to be here because I was pregnat when I had my tubes tied and she was born in the back seat of a car. she was diagnosed at 6 months and there was only one doctor in Fort Worth that treated CF at the time and he was going on vacation so we were taking her to the hospital twice a day to get treatments but she took a dive when they were doing the treatment and was rushed to Dallas and they almost did not put her on a respirator because they thought she was too far gone . The doctor told us she probably would not live to be two but she lived to be 22. What do doctors know? She was the most amazing person and I have our memories together and the good things are what we have to focus on. The poem that was posted was what we put on her memorial notice.
My friend was the same way about not wanting people to know. When she died no one understood or knew that she had CF or even really knew what it was. Its the hardest thing I've ever had to deal with...her death...not CF. I just keep wondering was there something I could have done?? Her lung collapsed when she was with me. And I just keep wondering...if I had made her go to the hosptial sooner would she be ok? and still be here today? I was closer to her then anyone in my whole entire life and the way we met was so weird it was like we were meant to be friends. She was my angel and I hope I was hers. <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0">
What is PFTs?
Is that her breathing strength? After her lung collapsed and they re inflated it before it collapsed again she was at 87%, if I'm making since. I know some things but I dont know abbreviations. I hated being in the hospital with her b/c it made me so sad. <img src="i/expressions/face-icon-small-sad.gif" border="0"><img src="i/expressions/face-icon-small-mad.gif" border="0">
What is PFTs?
Is that her breathing strength? After her lung collapsed and they re inflated it before it collapsed again she was at 87%, if I'm making since. I know some things but I dont know abbreviations. I hated being in the hospital with her b/c it made me so sad. <img src="i/expressions/face-icon-small-sad.gif" border="0"><img src="i/expressions/face-icon-small-mad.gif" border="0">
My sister died of CF. I always thought I would just want her to be here, no matter what.... no thought about how she suffered. But right before she died, she told me how tired she was and how awful it was to struggle for every breath. I miss her everyday, but I know in my heart, she had made peace with it. Sometimes I feel angry because I think that if she had been more open about things, she would have gotten better medical care, but then I try to remind myself, it was her life to live and choose to live how she wanted. And while she was on earth, she lived life fuller than most healthy people do. I can't tell you how to cope, but you get to choose what you focus on about her life.... so focus on the things that help you go on. They wouldn't want us to do anything else.
Hi Everyone,
i wrote on these threads a few times asking question about colistin and headache, my daughters name is traci if anyone remembers?
she died this past march. she was only 17. i just wanted to say i feel the pain everyone is going through. i cant seem to find my way through all this. my daughter as well didnt tell people about her cf. she was in the middle of getting on the list had 1 appt left but went into the hospital the day before spent 2 weeks on a vent....never made it home. my daughter was so brave never let on if she was scared. after her passing i found a letter she wrote saying she was very scared of a transplant. im having a hard time getting through that. im thinking she didnt want to worry me? i just dont know how to deal with all this pain .just needed to write and let you all know your not alone!
gail
i wrote on these threads a few times asking question about colistin and headache, my daughters name is traci if anyone remembers?
she died this past march. she was only 17. i just wanted to say i feel the pain everyone is going through. i cant seem to find my way through all this. my daughter as well didnt tell people about her cf. she was in the middle of getting on the list had 1 appt left but went into the hospital the day before spent 2 weeks on a vent....never made it home. my daughter was so brave never let on if she was scared. after her passing i found a letter she wrote saying she was very scared of a transplant. im having a hard time getting through that. im thinking she didnt want to worry me? i just dont know how to deal with all this pain .just needed to write and let you all know your not alone!
gail
J
jennaxox
Guest
i usually get test done on a monthly basis, therefor if anything else was wrong with my lungs the doctors would know.
so usually she saw it coming. im so so sorry to hear about your loss. <img src="i/expressions/rose.gif" border="0">
so usually she saw it coming. im so so sorry to hear about your loss. <img src="i/expressions/rose.gif" border="0">
I'm the one who wrote about my sister. I know that there is some controversy on this site about posting anonymously, but grief keeps me from being more committed. I remember when my sister died, I knew about 3 days before it happened that she was dying. She had been getting sicker, but when she first entered the hospital, it seemed very routine. She took a turn for the worse very quickly, her lungs just couldn't handle a new infection. It happens that way with CF.... you have to be so focused on watching & knowing your body and even then, there is a lot out of your hands. She also ended up on a vent, but didn't do well on it... just one day. She also feared a transplant and was referred to be evaluated much too late.
Dear Gail
I am so sorry to hear about the loss of your daughter, my daughter is only 9 years old and seems to be very healthy, after reading all of these posts on this thread, i am so scared. I will keep you in my thoughts and prayers, i can't imagine losing a child and i pray for peace and comfort for you and your family
Kaitsmom<img src="i/expressions/rose.gif" border="0">
I am so sorry to hear about the loss of your daughter, my daughter is only 9 years old and seems to be very healthy, after reading all of these posts on this thread, i am so scared. I will keep you in my thoughts and prayers, i can't imagine losing a child and i pray for peace and comfort for you and your family
Kaitsmom<img src="i/expressions/rose.gif" border="0">