CFRD. Just checked two hrs after lunch is 164

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Mistyjo

New member
Ive been testing my dd blood glucose levels since yesterday. The highest yesterday was 132 two hrs after breakfast and the highest so far today is 164 two hrs after lunch. I'm scared. Any advice?
 
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Printer

Active member
No need to be scared but she is likely CFRD. CFRD is not the same as regular diabetes. Call your CF Doctor.

Bill
 
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Havoc

New member
As Bill said, there is no reason to panic. 164mg/dl is a little higher than you would like to see, and her doctors will be able to use the glucose diary to figure out the best course of treatment for her.

When I was on prednisone for ABPA, I had a BSG of over 500mg/dl. The highest I've ever seen in a patient (I am a paramedic) was around 1,500mg/dl.

Best of luck

Jonathan
 
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saveferris2009

New member
Ya she probably has CFRD. That's a high #. As we have discussed in your previous threads, a # above 120 2 hours after the first bite of a meal is abnormal.

CFRD isn't fun, but better to treat it then to let it go and negatively impact your daughter's lung health and life span.
 
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imported_Momto2

New member
yes, she probably is headed towards CFRD, but the number arent that bad. There is a lot you can do to help, with diet, exercise, medication, etc. I ended up controlled my BS completely through diet and exercise. Just keep your doc up to date with what's happening. : )
 
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Mistyjo

New member
Momto2, thanks for the advice. She is very active. She is constantly running, playing, jumping, swimming biking ect... No need for more exercise. My concern about the diet is she is FTT. She hasn't gained any weight in the past 4 months. We struggle to get her to gain then to keep it on. What type of diet do you eat to keep weight on and BS under control?
 
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Mistyjo

New member
Saveferris, thanks for all your help! So once she starts insulin we should see a difference in her weight gain? At least that will be one less thing to worry about. Do you know how long it takes to see the difference?
 
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saveferris2009

New member
If your sugars are high, you pee out a lot of nutrients ("spilling protein"). So not only is not treating sugars above 140 dangerous to the lungs, but it can impact weight/nutrition as well.

So the weight gain should be gradual (other CFer's can chime in), but mine was over a few week period of time.

Hope that helps
 
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kayers3

New member
I have CFRD and problems gaining weight. As far as diet, my diabetic doctor told me that because with CF weight is such an issue that they were not going to restrict or change my diet, and I control the numbers by carb counting. I have a ratio of 1 unit of insulin to 25 grams of carbs, so when I eat anything I count em up and inject the amount of insulin needed.

For me, personally, getting the sugars under control didn't help my weight gain.

I know there are a few medications that can be taken by mouth before insulin becomes a necessity. I don't really know much about those. My doctor mentioned them and then realized I couldn't take any because I have liver issues and the risk outweighed the benefit.

If insulin is necessary, I recommend going with a pump. I started with insulin pens and moved to the pump. It's much easier and much less sticking considering that I'm a big snacker. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's definitely another thing to deal with, but it becomes habit and part of the routine fast enough. Also - there are really great phone apps that have carb amounts for popular foods from restaurants as well as just about everything else to help with carb counting. Just an FYI. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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saveferris2009

New member
Sorry to be OT, but Misty I just read on another thread your kid is 6 and not doing any breathing treatments?

CF is all about prevention, and I'm shocked your kid isn't on any type of preventative treatments. Lungs can be damaged prior to FEV1 (lung function) going down, so doing treamtents even when lungs seem "fine" can go a long way with prolonging life.

Are you seeing a CF specialist? If so, what center?
 
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Mistyjo

New member
We go to Cincinnati children's. She is seeing a cf specialist. The problem has been in getting her diagnosed! She is currently diagnosed cf metabolic syndrome. I'm thinking this needs to change to cf and maybe treatment will change! She's had bowel resection, FTT, minimal cftr function in colon and now possible cfrd! She keeps falling in the "grey" area with borderline sweats and only one disease causing mutation. He sees her every three months. She does throat swabs and PFTs every visit. I know usually with cf metabolic syndrome they usually don't see doctor every three months.
I can email him and he usually emails me back. I'm thinking about asking to start her on breathing treatments.
 
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