CFRD

Giggles

New member
So I have CFRD and I HATE it. I am constantly managing lows... So I had an aweful night last night. My sugars after dinner were 68 so I had a snack and it shot up to 214 then one hour later and I did not do anything or eat anything it dropped to 79! Drank juice and it dropped again to 64, drank a can a pop and granola bar and finally I gave up and went to bed when it got to 82. But only 82 after all that!!!! Then the really weird thing is at the same time I got the most hurtful stomach ache. Felt like a charly horse in the pit of my stomach and I threw up. What the heck was that all about??? Any ideas! I feel better today but just a little uneasy from last nights events but my stomach does not hurt at least anymore.

My nutritionist has talked to me about the pump to help with lows but I do not take that much novolog insulin and sometimes not any with lunch cause I am too low so I feel the pump is not for me but maybe it is??? I only take like around 3-5 units of insulin with breakfast and dinner. If I eat a desert I will take 1-3 depending on what it is. And I take Lantus 10 units before bed. I am so sick of lows and always needing juice to workout or do anything physical but when I talk to a friend of mine that has diabetes she said she struggles too it is just the name of the game cause exerise just really lowers sugar and can lower it hours after... Ugh!

Jennifer 38 with CF and CFRD
 

Giggles

New member
So I have CFRD and I HATE it. I am constantly managing lows... So I had an aweful night last night. My sugars after dinner were 68 so I had a snack and it shot up to 214 then one hour later and I did not do anything or eat anything it dropped to 79! Drank juice and it dropped again to 64, drank a can a pop and granola bar and finally I gave up and went to bed when it got to 82. But only 82 after all that!!!! Then the really weird thing is at the same time I got the most hurtful stomach ache. Felt like a charly horse in the pit of my stomach and I threw up. What the heck was that all about??? Any ideas! I feel better today but just a little uneasy from last nights events but my stomach does not hurt at least anymore.

My nutritionist has talked to me about the pump to help with lows but I do not take that much novolog insulin and sometimes not any with lunch cause I am too low so I feel the pump is not for me but maybe it is??? I only take like around 3-5 units of insulin with breakfast and dinner. If I eat a desert I will take 1-3 depending on what it is. And I take Lantus 10 units before bed. I am so sick of lows and always needing juice to workout or do anything physical but when I talk to a friend of mine that has diabetes she said she struggles too it is just the name of the game cause exerise just really lowers sugar and can lower it hours after... Ugh!

Jennifer 38 with CF and CFRD
 

Giggles

New member
So I have CFRD and I HATE it. I am constantly managing lows... So I had an aweful night last night. My sugars after dinner were 68 so I had a snack and it shot up to 214 then one hour later and I did not do anything or eat anything it dropped to 79! Drank juice and it dropped again to 64, drank a can a pop and granola bar and finally I gave up and went to bed when it got to 82. But only 82 after all that!!!! Then the really weird thing is at the same time I got the most hurtful stomach ache. Felt like a charly horse in the pit of my stomach and I threw up. What the heck was that all about??? Any ideas! I feel better today but just a little uneasy from last nights events but my stomach does not hurt at least anymore.
<br />
<br />My nutritionist has talked to me about the pump to help with lows but I do not take that much novolog insulin and sometimes not any with lunch cause I am too low so I feel the pump is not for me but maybe it is??? I only take like around 3-5 units of insulin with breakfast and dinner. If I eat a desert I will take 1-3 depending on what it is. And I take Lantus 10 units before bed. I am so sick of lows and always needing juice to workout or do anything physical but when I talk to a friend of mine that has diabetes she said she struggles too it is just the name of the game cause exerise just really lowers sugar and can lower it hours after... Ugh!
<br />
<br />Jennifer 38 with CF and CFRD
 

melx

New member
Jennifer.... It's Melony, you know me <img src="i/expressions/face-icon-small-smile.gif" border="0">
Anyway I had to respond because, minus the vomiting, I have had this happen to me too. After talking with my physicians, I think it is Delayed Gastric Dumping. It is a very unpredictable experience and I never know when it is going to happen. Read up on it and you may begin to see this might be so for you as well. I personally don't think the pump will help with this, as a matter of fact I think the stomachs delayed dumping and the novolog's quick acting response is the problem. Did you take insulin prior to the meal? Did you take any insulin for the snacks?
I find that when I eat certain foods it is more likely to happen.... but it is not consistent to this theory either. Another thing I have begun to do is to take insulin after the meal (instead of before)... especially in the evening when the possible dumping situation seems to happen most.
 

melx

New member
Jennifer.... It's Melony, you know me <img src="i/expressions/face-icon-small-smile.gif" border="0">
Anyway I had to respond because, minus the vomiting, I have had this happen to me too. After talking with my physicians, I think it is Delayed Gastric Dumping. It is a very unpredictable experience and I never know when it is going to happen. Read up on it and you may begin to see this might be so for you as well. I personally don't think the pump will help with this, as a matter of fact I think the stomachs delayed dumping and the novolog's quick acting response is the problem. Did you take insulin prior to the meal? Did you take any insulin for the snacks?
I find that when I eat certain foods it is more likely to happen.... but it is not consistent to this theory either. Another thing I have begun to do is to take insulin after the meal (instead of before)... especially in the evening when the possible dumping situation seems to happen most.
 

melx

New member
Jennifer.... It's Melony, you know me <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />Anyway I had to respond because, minus the vomiting, I have had this happen to me too. After talking with my physicians, I think it is Delayed Gastric Dumping. It is a very unpredictable experience and I never know when it is going to happen. Read up on it and you may begin to see this might be so for you as well. I personally don't think the pump will help with this, as a matter of fact I think the stomachs delayed dumping and the novolog's quick acting response is the problem. Did you take insulin prior to the meal? Did you take any insulin for the snacks?
<br />I find that when I eat certain foods it is more likely to happen.... but it is not consistent to this theory either. Another thing I have begun to do is to take insulin after the meal (instead of before)... especially in the evening when the possible dumping situation seems to happen most.
 

ej0820

New member
The up and down you mention happens to me once in a while. I am on an insulin pump and never had a real problem with lows until recently in the last several months. I hate lows. I've gotten DANGEROUSLY low...just the other night, in fact, I actually passed out because my sugar got down to 35, and I had no recognizable symptoms of it dropping (I didn't feel shaky, clammy/sweaty, hungry, nothing). What's worse, is I was DRIVING! Let me tell you, forgetting what happened one minute and waking up in the back of an ambulance with a sugar IV going the next is scary...it was awful, I hate CFRD just for lows it causes! I've talked to my endocrinologist and every time we finagle with my pump settings, it doesn't seem to stick. I do well for a while but then go right back to not knowing I'm going low and bottoming out.

Anyway...sorry, back to you...

If you are interested in a pump (don't let my low blood sugar experience scare you away from a pump-in the pump's defense, I need to get a better eating habit/schedule), I suggest you look into medtronic. Medtronic pumps have a function on them called the dual-square bolus option. If you enable this function on your pump, when you plug in how many carbs you are about to consume, it will dose your bolus amount needed over a longer period of time so you aren't getting the full load of insulin while your body is not yet digesting everything you're eating. It would work well with Delayed Gastric Emptying.

A lady I spoke with once told me about it because of her husband. He had a pump, but was continually experiencing lows after he ate (especially foods like pizza-foods that generally take a longer time to digest anyway). She, her hubby, and his doc figured that he was bottoming out simply b/c the pump would give him his coverage, but the food hadn't gotten to where it needed the coverage yet, hence the low blood sugar. This function on his pump was set and he's never had a problem since.

Wow...that was a really long post, I'm sorry! I hope this helped at least a little bit!! Hang in there, and feel better soon!
 

ej0820

New member
The up and down you mention happens to me once in a while. I am on an insulin pump and never had a real problem with lows until recently in the last several months. I hate lows. I've gotten DANGEROUSLY low...just the other night, in fact, I actually passed out because my sugar got down to 35, and I had no recognizable symptoms of it dropping (I didn't feel shaky, clammy/sweaty, hungry, nothing). What's worse, is I was DRIVING! Let me tell you, forgetting what happened one minute and waking up in the back of an ambulance with a sugar IV going the next is scary...it was awful, I hate CFRD just for lows it causes! I've talked to my endocrinologist and every time we finagle with my pump settings, it doesn't seem to stick. I do well for a while but then go right back to not knowing I'm going low and bottoming out.

Anyway...sorry, back to you...

If you are interested in a pump (don't let my low blood sugar experience scare you away from a pump-in the pump's defense, I need to get a better eating habit/schedule), I suggest you look into medtronic. Medtronic pumps have a function on them called the dual-square bolus option. If you enable this function on your pump, when you plug in how many carbs you are about to consume, it will dose your bolus amount needed over a longer period of time so you aren't getting the full load of insulin while your body is not yet digesting everything you're eating. It would work well with Delayed Gastric Emptying.

A lady I spoke with once told me about it because of her husband. He had a pump, but was continually experiencing lows after he ate (especially foods like pizza-foods that generally take a longer time to digest anyway). She, her hubby, and his doc figured that he was bottoming out simply b/c the pump would give him his coverage, but the food hadn't gotten to where it needed the coverage yet, hence the low blood sugar. This function on his pump was set and he's never had a problem since.

Wow...that was a really long post, I'm sorry! I hope this helped at least a little bit!! Hang in there, and feel better soon!
 

ej0820

New member
The up and down you mention happens to me once in a while. I am on an insulin pump and never had a real problem with lows until recently in the last several months. I hate lows. I've gotten DANGEROUSLY low...just the other night, in fact, I actually passed out because my sugar got down to 35, and I had no recognizable symptoms of it dropping (I didn't feel shaky, clammy/sweaty, hungry, nothing). What's worse, is I was DRIVING! Let me tell you, forgetting what happened one minute and waking up in the back of an ambulance with a sugar IV going the next is scary...it was awful, I hate CFRD just for lows it causes! I've talked to my endocrinologist and every time we finagle with my pump settings, it doesn't seem to stick. I do well for a while but then go right back to not knowing I'm going low and bottoming out.
<br />
<br />Anyway...sorry, back to you...
<br />
<br />If you are interested in a pump (don't let my low blood sugar experience scare you away from a pump-in the pump's defense, I need to get a better eating habit/schedule), I suggest you look into medtronic. Medtronic pumps have a function on them called the dual-square bolus option. If you enable this function on your pump, when you plug in how many carbs you are about to consume, it will dose your bolus amount needed over a longer period of time so you aren't getting the full load of insulin while your body is not yet digesting everything you're eating. It would work well with Delayed Gastric Emptying.
<br />
<br />A lady I spoke with once told me about it because of her husband. He had a pump, but was continually experiencing lows after he ate (especially foods like pizza-foods that generally take a longer time to digest anyway). She, her hubby, and his doc figured that he was bottoming out simply b/c the pump would give him his coverage, but the food hadn't gotten to where it needed the coverage yet, hence the low blood sugar. This function on his pump was set and he's never had a problem since.
<br />
<br />Wow...that was a really long post, I'm sorry! I hope this helped at least a little bit!! Hang in there, and feel better soon!
 

Giggles

New member
Thanks Melony and Erin. We shall see what happens with the pump if ever I get one. But feelin better today and backed off some insulin both short and long lasting.....



Jennifer 38 with Cf and Cfrd
 

Giggles

New member
Thanks Melony and Erin. We shall see what happens with the pump if ever I get one. But feelin better today and backed off some insulin both short and long lasting.....



Jennifer 38 with Cf and Cfrd
 

Giggles

New member
Thanks Melony and Erin. We shall see what happens with the pump if ever I get one. But feelin better today and backed off some insulin both short and long lasting.....
<br />
<br />
<br />
<br />Jennifer 38 with Cf and Cfrd
 

Solo

New member
Jennifer, I am no doctor, but it sounds to me as if you are taking too much insulin. If I were you, I wouldn't even consider getting an insulin pump. Now you're taking 10 units of long acting insulin before bed, and I think that is heavily contributing to the hypoglycemic reactions you so frequently receive.

I only take 3 shots of Novolog a day; I do not require any background/long-acting insulin. I think an imperative part of that is because I supplement my diet daily with probiotics. I used to take I Flora, but now I take Culturelle. They boost my immune system so much, I hardly ever get sick, and if I don't eat at all, my blood glucose remains in the normal range. Just a few months ago, I couldn't go to the bathroom so I admitted myself because I thought I had an obstruction. I didn't eat for 2 or 3 days, only drank fluids. My blood sugars stayed normal despite no insulin injections, just as long as I kept taking my probiotic. I remember a nurse asked me, "Are you sure you have diabetes?" Needless to say I *think* you should just take a good probiotic daily, and not even think about the pump. That's just my dos centavos.
 

Solo

New member
Jennifer, I am no doctor, but it sounds to me as if you are taking too much insulin. If I were you, I wouldn't even consider getting an insulin pump. Now you're taking 10 units of long acting insulin before bed, and I think that is heavily contributing to the hypoglycemic reactions you so frequently receive.

I only take 3 shots of Novolog a day; I do not require any background/long-acting insulin. I think an imperative part of that is because I supplement my diet daily with probiotics. I used to take I Flora, but now I take Culturelle. They boost my immune system so much, I hardly ever get sick, and if I don't eat at all, my blood glucose remains in the normal range. Just a few months ago, I couldn't go to the bathroom so I admitted myself because I thought I had an obstruction. I didn't eat for 2 or 3 days, only drank fluids. My blood sugars stayed normal despite no insulin injections, just as long as I kept taking my probiotic. I remember a nurse asked me, "Are you sure you have diabetes?" Needless to say I *think* you should just take a good probiotic daily, and not even think about the pump. That's just my dos centavos.
 

Solo

New member
Jennifer, I am no doctor, but it sounds to me as if you are taking too much insulin. If I were you, I wouldn't even consider getting an insulin pump. Now you're taking 10 units of long acting insulin before bed, and I think that is heavily contributing to the hypoglycemic reactions you so frequently receive.
<br />
<br />I only take 3 shots of Novolog a day; I do not require any background/long-acting insulin. I think an imperative part of that is because I supplement my diet daily with probiotics. I used to take I Flora, but now I take Culturelle. They boost my immune system so much, I hardly ever get sick, and if I don't eat at all, my blood glucose remains in the normal range. Just a few months ago, I couldn't go to the bathroom so I admitted myself because I thought I had an obstruction. I didn't eat for 2 or 3 days, only drank fluids. My blood sugars stayed normal despite no insulin injections, just as long as I kept taking my probiotic. I remember a nurse asked me, "Are you sure you have diabetes?" Needless to say I *think* you should just take a good probiotic daily, and not even think about the pump. That's just my dos centavos.
 

tleigh

New member
So to throw another opinion into the mix. I believe that a pump might be helpful. I have had mine for almost a year. The benefits are that you can really customize a plan that works for you. So my basal rates vary by quite a bit throughout the day (that would be the equivalent of the background or long-acting insulin)-but with the pump I get a consistent dose. The other huge benefit, at least for me, is that with the pump I can deliver very tiny doses. I currently am on the Ping pump and can do .05 of a unit if necessary. So for my correction doses, I don't have to decide if 1 unit is too much-I can do .35 if necessary. Another benefit that a previous poster mentioned is the combo or dual wave bolus. I use this with many high fat meals. Anyway just my .02 worth.
 

tleigh

New member
So to throw another opinion into the mix. I believe that a pump might be helpful. I have had mine for almost a year. The benefits are that you can really customize a plan that works for you. So my basal rates vary by quite a bit throughout the day (that would be the equivalent of the background or long-acting insulin)-but with the pump I get a consistent dose. The other huge benefit, at least for me, is that with the pump I can deliver very tiny doses. I currently am on the Ping pump and can do .05 of a unit if necessary. So for my correction doses, I don't have to decide if 1 unit is too much-I can do .35 if necessary. Another benefit that a previous poster mentioned is the combo or dual wave bolus. I use this with many high fat meals. Anyway just my .02 worth.
 

tleigh

New member
So to throw another opinion into the mix. I believe that a pump might be helpful. I have had mine for almost a year. The benefits are that you can really customize a plan that works for you. So my basal rates vary by quite a bit throughout the day (that would be the equivalent of the background or long-acting insulin)-but with the pump I get a consistent dose. The other huge benefit, at least for me, is that with the pump I can deliver very tiny doses. I currently am on the Ping pump and can do .05 of a unit if necessary. So for my correction doses, I don't have to decide if 1 unit is too much-I can do .35 if necessary. Another benefit that a previous poster mentioned is the combo or dual wave bolus. I use this with many high fat meals. Anyway just my .02 worth.
 

Rokiss12

New member
Are you on Prednisone? That happened to me and it was because I had adrenal insufficiency- something thta can happen when you go on and off prednisone a lot, like me. Talk to your doc about that!

I have a pump and lovee it..I too only take 1 or 2 unite with meals but it really saves me time and hurt. I can do insulin without any even seeing, at the cafeteria, in class, on a date- etc. Also, its only one poke every 3 days (and i use numbing cream, so I cant even feel it cause I'm pretty skinny) instead of 4-5 a day!

Hope this helps!
 

Rokiss12

New member
Are you on Prednisone? That happened to me and it was because I had adrenal insufficiency- something thta can happen when you go on and off prednisone a lot, like me. Talk to your doc about that!

I have a pump and lovee it..I too only take 1 or 2 unite with meals but it really saves me time and hurt. I can do insulin without any even seeing, at the cafeteria, in class, on a date- etc. Also, its only one poke every 3 days (and i use numbing cream, so I cant even feel it cause I'm pretty skinny) instead of 4-5 a day!

Hope this helps!
 
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