I found out our unborn son has CF. I met with the Director of the CF Foundation at Children's of Detroit and just loved her. However, I've heard many horror stories of the Emergency Room there. I was wondering when you child gets sick and needs to be hospitalized do they always have to go through the ER or do they go to the Dr.'s office. I also know about Children's Hospital of Ann Arbor and whether anyone has any advice on the 2.ThanksDeb
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Children's Hospital of Detroit
- Thread starter anonymous
- Start date
usually, when anything happens that i know is abnormal, i call my CF doctor. if she says i need to go to the hospital, i just go straight to the ward while she calls them and tells them that i'm coming and what medicine will i need to have administered. but that's my doctor, i don't know if all of them are like that. mine is known all over israel (which is where i live) as an exceptional one and one who treats her patients like her own kids. ER's are not so good because the doctors in them are not CF specialists and a lot of time, i was the first CF-er they actually got to see with their own eyes (there are only about 500 CF-ers in israel) and so they don't really know what to do and will call your CF doctor anyway. so to save time, nerves and bacteria i'll get at the ER, with all the sick people in there, i call my doc.
I'm a mother of a CF son, age 14, and I would say call your CF Dr. first and avoid E.R. rooms justbecause of the other germs there with other sick kids. I have found the the CHildren's hospital herewhere I live in Phoenix will call us back ASAP into a room so my son is not exposed to all the germsthat kids come with in a waitting area. Just be sure to tell them when you check in and I've even told'them we would wait outside,,,,,,,,,,,,,,, they have been super about getting into a room ASAP. My heart went out to you when you said your unborn son..................... I said a prayer for you and yourson!michelle
Hi, I live in Alaska, when my Grandson was diagnosed with CF at 6 months old, we were terrified of the news and decided to go "outside" for a second opinion. We brought him to Mott's Childrens Hospital in Ann Arbor. There we met Dr. Nasar (sp) who is world renowned. What a wonderful Doctor. ( His CF diagnosis was confirmed) It just happend that she was acquainted with our CF Dr. in Anchorage and informed us what a wonderful Dr. he is and we should be confident in his treatment. James is now soon 10 and doing well. If we lived in Michigan (which happens to be our "home" state) We would live near Mott's Children Hospital to continue care. Hope this helps and reassures.