Chloride sweat test-22 month old

[KLM]

My daughter has had various symptoms....growth issues, ravenous appetite without gaining weight, a nose that is always running for over a year....sometimes not so much.....sometimes gunky and worse to name a few. She's had an endoscopy to rule out GI issues and other various tests. She had the infant blood screening for CF and that was negative.

Long story short...she had a sweat chloride test done yesterday.........her first number was 58..........so they did the test again on a different arm......that number was 70...........they did a third on her leg....that was 67.

We had it done in a hospital and now our Dr. wants to have it done again down at the specialty area. Everything I am reading says sweat chloride tests can have false negatives..........I am not finding anything about false positives.

What are ANYONE'S thoughts. I have to wait until Friday and I can't help but think she more likely than not has CF????????? Besides the other "rare" diseases.........would there be false positives?????????

 

[KLM]

My daughter has had various symptoms....growth issues, ravenous appetite without gaining weight, a nose that is always running for over a year....sometimes not so much.....sometimes gunky and worse to name a few. She's had an endoscopy to rule out GI issues and other various tests. She had the infant blood screening for CF and that was negative.

Long story short...she had a sweat chloride test done yesterday.........her first number was 58..........so they did the test again on a different arm......that number was 70...........they did a third on her leg....that was 67.

We had it done in a hospital and now our Dr. wants to have it done again down at the specialty area. Everything I am reading says sweat chloride tests can have false negatives..........I am not finding anything about false positives.

What are ANYONE'S thoughts. I have to wait until Friday and I can't help but think she more likely than not has CF????????? Besides the other "rare" diseases.........would there be false positives?????????

 

[KLM]

My daughter has had various symptoms....growth issues, ravenous appetite without gaining weight, a nose that is always running for over a year....sometimes not so much.....sometimes gunky and worse to name a few. She's had an endoscopy to rule out GI issues and other various tests. She had the infant blood screening for CF and that was negative.

Long story short...she had a sweat chloride test done yesterday.........her first number was 58..........so they did the test again on a different arm......that number was 70...........they did a third on her leg....that was 67.

We had it done in a hospital and now our Dr. wants to have it done again down at the specialty area. Everything I am reading says sweat chloride tests can have false negatives..........I am not finding anything about false positives.

What are ANYONE'S thoughts. I have to wait until Friday and I can't help but think she more likely than not has CF????????? Besides the other "rare" diseases.........would there be false positives?????????

 

[KLM]

My daughter has had various symptoms....growth issues, ravenous appetite without gaining weight, a nose that is always running for over a year....sometimes not so much.....sometimes gunky and worse to name a few. She's had an endoscopy to rule out GI issues and other various tests. She had the infant blood screening for CF and that was negative.

Long story short...she had a sweat chloride test done yesterday.........her first number was 58..........so they did the test again on a different arm......that number was 70...........they did a third on her leg....that was 67.

We had it done in a hospital and now our Dr. wants to have it done again down at the specialty area. Everything I am reading says sweat chloride tests can have false negatives..........I am not finding anything about false positives.

What are ANYONE'S thoughts. I have to wait until Friday and I can't help but think she more likely than not has CF????????? Besides the other "rare" diseases.........would there be false positives?????????

 

[KLM]

My daughter has had various symptoms....growth issues, ravenous appetite without gaining weight, a nose that is always running for over a year....sometimes not so much.....sometimes gunky and worse to name a few. She's had an endoscopy to rule out GI issues and other various tests. She had the infant blood screening for CF and that was negative.

Long story short...she had a sweat chloride test done yesterday.........her first number was 58..........so they did the test again on a different arm......that number was 70...........they did a third on her leg....that was 67.

We had it done in a hospital and now our Dr. wants to have it done again down at the specialty area. Everything I am reading says sweat chloride tests can have false negatives..........I am not finding anything about false positives.

What are ANYONE'S thoughts. I have to wait until Friday and I can't help but think she more likely than not has CF????????? Besides the other "rare" diseases.........would there be false positives?????????

 

[NoExcuses]

Totaly can be false positives. Sweat tests are pretty old school.

I would push for a genetic test that tests for the over 1300 CF gene mutations. (many docs feel compelled to test for only the top 32, which is a waste of time).

Gene tests are the way to go.... demand it.

 

[NoExcuses]

Totaly can be false positives. Sweat tests are pretty old school.

I would push for a genetic test that tests for the over 1300 CF gene mutations. (many docs feel compelled to test for only the top 32, which is a waste of time).

Gene tests are the way to go.... demand it.

 

[NoExcuses]

Totaly can be false positives. Sweat tests are pretty old school.

I would push for a genetic test that tests for the over 1300 CF gene mutations. (many docs feel compelled to test for only the top 32, which is a waste of time).

Gene tests are the way to go.... demand it.

 

[NoExcuses]

Totaly can be false positives. Sweat tests are pretty old school.

I would push for a genetic test that tests for the over 1300 CF gene mutations. (many docs feel compelled to test for only the top 32, which is a waste of time).

Gene tests are the way to go.... demand it.

 

[NoExcuses]

Totaly can be false positives. Sweat tests are pretty old school.

I would push for a genetic test that tests for the over 1300 CF gene mutations. (many docs feel compelled to test for only the top 32, which is a waste of time).

Gene tests are the way to go.... demand it.

 

[Alyssa]

No, there are only false negatives - those numbers are in the very high borderline to low positive. Actually anything above 40 is not considered normal. There are some very very rare immune conditions/diseases that can cause a false positive but you would most likely have some of the immune problem symptoms too and would have been going down that trail before now. My thoughts would be it is most likely CF too. But do wait it out and see what the doctor has to say - as sakasuka says get the genetic testing - that is what gave us a clear and correct diagnosis for my kids.

I think with the symptoms and sweat test numbers any doctor who is worth a damn would for sure be pursuing genetic testing and in the mean time start treating your daughter for her CF symptoms.

Many people can have even lower numbers than 40 and still have CF. My kids test out at 38 and 41. This caused my daughter to be misdiagnosed for 8 years (see my blog page here)

 

[Alyssa]

No, there are only false negatives - those numbers are in the very high borderline to low positive. Actually anything above 40 is not considered normal. There are some very very rare immune conditions/diseases that can cause a false positive but you would most likely have some of the immune problem symptoms too and would have been going down that trail before now. My thoughts would be it is most likely CF too. But do wait it out and see what the doctor has to say - as sakasuka says get the genetic testing - that is what gave us a clear and correct diagnosis for my kids.

I think with the symptoms and sweat test numbers any doctor who is worth a damn would for sure be pursuing genetic testing and in the mean time start treating your daughter for her CF symptoms.

Many people can have even lower numbers than 40 and still have CF. My kids test out at 38 and 41. This caused my daughter to be misdiagnosed for 8 years (see my blog page here)

 

[Alyssa]

No, there are only false negatives - those numbers are in the very high borderline to low positive. Actually anything above 40 is not considered normal. There are some very very rare immune conditions/diseases that can cause a false positive but you would most likely have some of the immune problem symptoms too and would have been going down that trail before now. My thoughts would be it is most likely CF too. But do wait it out and see what the doctor has to say - as sakasuka says get the genetic testing - that is what gave us a clear and correct diagnosis for my kids.

I think with the symptoms and sweat test numbers any doctor who is worth a damn would for sure be pursuing genetic testing and in the mean time start treating your daughter for her CF symptoms.

Many people can have even lower numbers than 40 and still have CF. My kids test out at 38 and 41. This caused my daughter to be misdiagnosed for 8 years (see my blog page here)

 

[Alyssa]

No, there are only false negatives - those numbers are in the very high borderline to low positive. Actually anything above 40 is not considered normal. There are some very very rare immune conditions/diseases that can cause a false positive but you would most likely have some of the immune problem symptoms too and would have been going down that trail before now. My thoughts would be it is most likely CF too. But do wait it out and see what the doctor has to say - as sakasuka says get the genetic testing - that is what gave us a clear and correct diagnosis for my kids.

I think with the symptoms and sweat test numbers any doctor who is worth a damn would for sure be pursuing genetic testing and in the mean time start treating your daughter for her CF symptoms.

Many people can have even lower numbers than 40 and still have CF. My kids test out at 38 and 41. This caused my daughter to be misdiagnosed for 8 years (see my blog page here)

 

[Alyssa]

No, there are only false negatives - those numbers are in the very high borderline to low positive. Actually anything above 40 is not considered normal. There are some very very rare immune conditions/diseases that can cause a false positive but you would most likely have some of the immune problem symptoms too and would have been going down that trail before now. My thoughts would be it is most likely CF too. But do wait it out and see what the doctor has to say - as sakasuka says get the genetic testing - that is what gave us a clear and correct diagnosis for my kids.

I think with the symptoms and sweat test numbers any doctor who is worth a damn would for sure be pursuing genetic testing and in the mean time start treating your daughter for her CF symptoms.

Many people can have even lower numbers than 40 and still have CF. My kids test out at 38 and 41. This caused my daughter to be misdiagnosed for 8 years (see my blog page here)

 

[Alyssa]

No, there are only false negatives - those numbers are in the very high borderline to low positive. Actually anything above 40 is not considered normal. There are some very very rare immune conditions/diseases that can cause a false positive but you would most likely have some of the immune problem symptoms too and would have been going down that trail before now. My thoughts would be it is most likely CF too. But do wait it out and see what the doctor has to say - as sakasuka says get the genetic testing - that is what gave us a clear and correct diagnosis for my kids.

I think with the symptoms and sweat test numbers any doctor who is worth a damn would for sure be pursuing genetic testing and in the mean time start treating your daughter for her CF symptoms.

Many people can have even lower numbers than 40 and still have CF. My kids test out at 38 and 41. This caused my daughter to be misdiagnosed for 8 years (see my blog page here)

 

[Alyssa]

No, there are only false negatives - those numbers are in the very high borderline to low positive. Actually anything above 40 is not considered normal. There are some very very rare immune conditions/diseases that can cause a false positive but you would most likely have some of the immune problem symptoms too and would have been going down that trail before now. My thoughts would be it is most likely CF too. But do wait it out and see what the doctor has to say - as sakasuka says get the genetic testing - that is what gave us a clear and correct diagnosis for my kids.

I think with the symptoms and sweat test numbers any doctor who is worth a damn would for sure be pursuing genetic testing and in the mean time start treating your daughter for her CF symptoms.

Many people can have even lower numbers than 40 and still have CF. My kids test out at 38 and 41. This caused my daughter to be misdiagnosed for 8 years (see my blog page here)

 

[Alyssa]

No, there are only false negatives - those numbers are in the very high borderline to low positive. Actually anything above 40 is not considered normal. There are some very very rare immune conditions/diseases that can cause a false positive but you would most likely have some of the immune problem symptoms too and would have been going down that trail before now. My thoughts would be it is most likely CF too. But do wait it out and see what the doctor has to say - as sakasuka says get the genetic testing - that is what gave us a clear and correct diagnosis for my kids.

I think with the symptoms and sweat test numbers any doctor who is worth a damn would for sure be pursuing genetic testing and in the mean time start treating your daughter for her CF symptoms.

Many people can have even lower numbers than 40 and still have CF. My kids test out at 38 and 41. This caused my daughter to be misdiagnosed for 8 years (see my blog page here)

 

[Alyssa]

No, there are only false negatives - those numbers are in the very high borderline to low positive. Actually anything above 40 is not considered normal. There are some very very rare immune conditions/diseases that can cause a false positive but you would most likely have some of the immune problem symptoms too and would have been going down that trail before now. My thoughts would be it is most likely CF too. But do wait it out and see what the doctor has to say - as sakasuka says get the genetic testing - that is what gave us a clear and correct diagnosis for my kids.

I think with the symptoms and sweat test numbers any doctor who is worth a damn would for sure be pursuing genetic testing and in the mean time start treating your daughter for her CF symptoms.

Many people can have even lower numbers than 40 and still have CF. My kids test out at 38 and 41. This caused my daughter to be misdiagnosed for 8 years (see my blog page here)

 

[Alyssa]

No, there are only false negatives - those numbers are in the very high borderline to low positive. Actually anything above 40 is not considered normal. There are some very very rare immune conditions/diseases that can cause a false positive but you would most likely have some of the immune problem symptoms too and would have been going down that trail before now. My thoughts would be it is most likely CF too. But do wait it out and see what the doctor has to say - as sakasuka says get the genetic testing - that is what gave us a clear and correct diagnosis for my kids.

I think with the symptoms and sweat test numbers any doctor who is worth a damn would for sure be pursuing genetic testing and in the mean time start treating your daughter for her CF symptoms.

Many people can have even lower numbers than 40 and still have CF. My kids test out at 38 and 41. This caused my daughter to be misdiagnosed for 8 years (see my blog page here)