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Clinic Advisory Committee
- Thread starter CFTwins
- Start date
Our clinic started a Family Advisory Board (FAB) earlier this year. I have gone to a few of the meetings. It is a nice way to get to know some of the other families in the local CF community. The CF Nurse coordinator at our clinic heads up the FAB and heads up the meetings. Our CF doc has been at the meetings as well as our social worker and research nurse, so I find that for me personally, it has added to the relationships I had already established with each of them.
At the first meeting, we all brainstormed to come up with issues we could address and projects we could tackle. Most of the parents in the group have kids older than mine and/or kids who have been through more cf-related stuff than mine, so I felt like I didn't have much to offer!
One of the first things our group did was to address an issue that many parents were having with the reception desk at our clinic. There were a few staff members who were not following the posted policy about allowing CF patients to go directly to an exam room rather than wait in the general waiting area with other patients visiting the pulmonary department. A member of the FAB wrote a letter to the manager of the clerical staff and expressed the concern, all of the other FAB members reviewed and commented on the letter and then it was sent out. Two people who oversee the clerical staff then came to our next meeting to discuss the problem. I personally had never experienced any problems, but it has been resolved for others.
Another thing our group has been working on is preparing brochures for newly diagnosed patients/families. Sort of a "what to expect" pamphlet. I have missed a couple of meetings so I am not really sure how that is progressing.
I think there was talk about doing some kind of care packages for kids who are hospitalized, but I'm not sure where that stands.
Our FAB started to meet monthly but now for the summer, we will probably have one meeting in July and then skip August.
I'd be interested to hear what other FAB's at other clinics are doing and the types of projects or issues they are dealing with.
Hope that helps you a little bit. I think a lot of the clinics may be looking to start something like this as it was an idea that was discussed at a national meeting late last year, which our CF nurses attended.
At the first meeting, we all brainstormed to come up with issues we could address and projects we could tackle. Most of the parents in the group have kids older than mine and/or kids who have been through more cf-related stuff than mine, so I felt like I didn't have much to offer!
One of the first things our group did was to address an issue that many parents were having with the reception desk at our clinic. There were a few staff members who were not following the posted policy about allowing CF patients to go directly to an exam room rather than wait in the general waiting area with other patients visiting the pulmonary department. A member of the FAB wrote a letter to the manager of the clerical staff and expressed the concern, all of the other FAB members reviewed and commented on the letter and then it was sent out. Two people who oversee the clerical staff then came to our next meeting to discuss the problem. I personally had never experienced any problems, but it has been resolved for others.
Another thing our group has been working on is preparing brochures for newly diagnosed patients/families. Sort of a "what to expect" pamphlet. I have missed a couple of meetings so I am not really sure how that is progressing.
I think there was talk about doing some kind of care packages for kids who are hospitalized, but I'm not sure where that stands.
Our FAB started to meet monthly but now for the summer, we will probably have one meeting in July and then skip August.
I'd be interested to hear what other FAB's at other clinics are doing and the types of projects or issues they are dealing with.
Hope that helps you a little bit. I think a lot of the clinics may be looking to start something like this as it was an idea that was discussed at a national meeting late last year, which our CF nurses attended.
Our clinic started a Family Advisory Board (FAB) earlier this year. I have gone to a few of the meetings. It is a nice way to get to know some of the other families in the local CF community. The CF Nurse coordinator at our clinic heads up the FAB and heads up the meetings. Our CF doc has been at the meetings as well as our social worker and research nurse, so I find that for me personally, it has added to the relationships I had already established with each of them.
At the first meeting, we all brainstormed to come up with issues we could address and projects we could tackle. Most of the parents in the group have kids older than mine and/or kids who have been through more cf-related stuff than mine, so I felt like I didn't have much to offer!
One of the first things our group did was to address an issue that many parents were having with the reception desk at our clinic. There were a few staff members who were not following the posted policy about allowing CF patients to go directly to an exam room rather than wait in the general waiting area with other patients visiting the pulmonary department. A member of the FAB wrote a letter to the manager of the clerical staff and expressed the concern, all of the other FAB members reviewed and commented on the letter and then it was sent out. Two people who oversee the clerical staff then came to our next meeting to discuss the problem. I personally had never experienced any problems, but it has been resolved for others.
Another thing our group has been working on is preparing brochures for newly diagnosed patients/families. Sort of a "what to expect" pamphlet. I have missed a couple of meetings so I am not really sure how that is progressing.
I think there was talk about doing some kind of care packages for kids who are hospitalized, but I'm not sure where that stands.
Our FAB started to meet monthly but now for the summer, we will probably have one meeting in July and then skip August.
I'd be interested to hear what other FAB's at other clinics are doing and the types of projects or issues they are dealing with.
Hope that helps you a little bit. I think a lot of the clinics may be looking to start something like this as it was an idea that was discussed at a national meeting late last year, which our CF nurses attended.
At the first meeting, we all brainstormed to come up with issues we could address and projects we could tackle. Most of the parents in the group have kids older than mine and/or kids who have been through more cf-related stuff than mine, so I felt like I didn't have much to offer!
One of the first things our group did was to address an issue that many parents were having with the reception desk at our clinic. There were a few staff members who were not following the posted policy about allowing CF patients to go directly to an exam room rather than wait in the general waiting area with other patients visiting the pulmonary department. A member of the FAB wrote a letter to the manager of the clerical staff and expressed the concern, all of the other FAB members reviewed and commented on the letter and then it was sent out. Two people who oversee the clerical staff then came to our next meeting to discuss the problem. I personally had never experienced any problems, but it has been resolved for others.
Another thing our group has been working on is preparing brochures for newly diagnosed patients/families. Sort of a "what to expect" pamphlet. I have missed a couple of meetings so I am not really sure how that is progressing.
I think there was talk about doing some kind of care packages for kids who are hospitalized, but I'm not sure where that stands.
Our FAB started to meet monthly but now for the summer, we will probably have one meeting in July and then skip August.
I'd be interested to hear what other FAB's at other clinics are doing and the types of projects or issues they are dealing with.
Hope that helps you a little bit. I think a lot of the clinics may be looking to start something like this as it was an idea that was discussed at a national meeting late last year, which our CF nurses attended.
Our clinic started a Family Advisory Board (FAB) earlier this year. I have gone to a few of the meetings. It is a nice way to get to know some of the other families in the local CF community. The CF Nurse coordinator at our clinic heads up the FAB and heads up the meetings. Our CF doc has been at the meetings as well as our social worker and research nurse, so I find that for me personally, it has added to the relationships I had already established with each of them.
At the first meeting, we all brainstormed to come up with issues we could address and projects we could tackle. Most of the parents in the group have kids older than mine and/or kids who have been through more cf-related stuff than mine, so I felt like I didn't have much to offer!
One of the first things our group did was to address an issue that many parents were having with the reception desk at our clinic. There were a few staff members who were not following the posted policy about allowing CF patients to go directly to an exam room rather than wait in the general waiting area with other patients visiting the pulmonary department. A member of the FAB wrote a letter to the manager of the clerical staff and expressed the concern, all of the other FAB members reviewed and commented on the letter and then it was sent out. Two people who oversee the clerical staff then came to our next meeting to discuss the problem. I personally had never experienced any problems, but it has been resolved for others.
Another thing our group has been working on is preparing brochures for newly diagnosed patients/families. Sort of a "what to expect" pamphlet. I have missed a couple of meetings so I am not really sure how that is progressing.
I think there was talk about doing some kind of care packages for kids who are hospitalized, but I'm not sure where that stands.
Our FAB started to meet monthly but now for the summer, we will probably have one meeting in July and then skip August.
I'd be interested to hear what other FAB's at other clinics are doing and the types of projects or issues they are dealing with.
Hope that helps you a little bit. I think a lot of the clinics may be looking to start something like this as it was an idea that was discussed at a national meeting late last year, which our CF nurses attended.
At the first meeting, we all brainstormed to come up with issues we could address and projects we could tackle. Most of the parents in the group have kids older than mine and/or kids who have been through more cf-related stuff than mine, so I felt like I didn't have much to offer!
One of the first things our group did was to address an issue that many parents were having with the reception desk at our clinic. There were a few staff members who were not following the posted policy about allowing CF patients to go directly to an exam room rather than wait in the general waiting area with other patients visiting the pulmonary department. A member of the FAB wrote a letter to the manager of the clerical staff and expressed the concern, all of the other FAB members reviewed and commented on the letter and then it was sent out. Two people who oversee the clerical staff then came to our next meeting to discuss the problem. I personally had never experienced any problems, but it has been resolved for others.
Another thing our group has been working on is preparing brochures for newly diagnosed patients/families. Sort of a "what to expect" pamphlet. I have missed a couple of meetings so I am not really sure how that is progressing.
I think there was talk about doing some kind of care packages for kids who are hospitalized, but I'm not sure where that stands.
Our FAB started to meet monthly but now for the summer, we will probably have one meeting in July and then skip August.
I'd be interested to hear what other FAB's at other clinics are doing and the types of projects or issues they are dealing with.
Hope that helps you a little bit. I think a lot of the clinics may be looking to start something like this as it was an idea that was discussed at a national meeting late last year, which our CF nurses attended.
Our clinic started a Family Advisory Board (FAB) earlier this year. I have gone to a few of the meetings. It is a nice way to get to know some of the other families in the local CF community. The CF Nurse coordinator at our clinic heads up the FAB and heads up the meetings. Our CF doc has been at the meetings as well as our social worker and research nurse, so I find that for me personally, it has added to the relationships I had already established with each of them.
At the first meeting, we all brainstormed to come up with issues we could address and projects we could tackle. Most of the parents in the group have kids older than mine and/or kids who have been through more cf-related stuff than mine, so I felt like I didn't have much to offer!
One of the first things our group did was to address an issue that many parents were having with the reception desk at our clinic. There were a few staff members who were not following the posted policy about allowing CF patients to go directly to an exam room rather than wait in the general waiting area with other patients visiting the pulmonary department. A member of the FAB wrote a letter to the manager of the clerical staff and expressed the concern, all of the other FAB members reviewed and commented on the letter and then it was sent out. Two people who oversee the clerical staff then came to our next meeting to discuss the problem. I personally had never experienced any problems, but it has been resolved for others.
Another thing our group has been working on is preparing brochures for newly diagnosed patients/families. Sort of a "what to expect" pamphlet. I have missed a couple of meetings so I am not really sure how that is progressing.
I think there was talk about doing some kind of care packages for kids who are hospitalized, but I'm not sure where that stands.
Our FAB started to meet monthly but now for the summer, we will probably have one meeting in July and then skip August.
I'd be interested to hear what other FAB's at other clinics are doing and the types of projects or issues they are dealing with.
Hope that helps you a little bit. I think a lot of the clinics may be looking to start something like this as it was an idea that was discussed at a national meeting late last year, which our CF nurses attended.
At the first meeting, we all brainstormed to come up with issues we could address and projects we could tackle. Most of the parents in the group have kids older than mine and/or kids who have been through more cf-related stuff than mine, so I felt like I didn't have much to offer!
One of the first things our group did was to address an issue that many parents were having with the reception desk at our clinic. There were a few staff members who were not following the posted policy about allowing CF patients to go directly to an exam room rather than wait in the general waiting area with other patients visiting the pulmonary department. A member of the FAB wrote a letter to the manager of the clerical staff and expressed the concern, all of the other FAB members reviewed and commented on the letter and then it was sent out. Two people who oversee the clerical staff then came to our next meeting to discuss the problem. I personally had never experienced any problems, but it has been resolved for others.
Another thing our group has been working on is preparing brochures for newly diagnosed patients/families. Sort of a "what to expect" pamphlet. I have missed a couple of meetings so I am not really sure how that is progressing.
I think there was talk about doing some kind of care packages for kids who are hospitalized, but I'm not sure where that stands.
Our FAB started to meet monthly but now for the summer, we will probably have one meeting in July and then skip August.
I'd be interested to hear what other FAB's at other clinics are doing and the types of projects or issues they are dealing with.
Hope that helps you a little bit. I think a lot of the clinics may be looking to start something like this as it was an idea that was discussed at a national meeting late last year, which our CF nurses attended.
Our clinic started a Family Advisory Board (FAB) earlier this year. I have gone to a few of the meetings. It is a nice way to get to know some of the other families in the local CF community. The CF Nurse coordinator at our clinic heads up the FAB and heads up the meetings. Our CF doc has been at the meetings as well as our social worker and research nurse, so I find that for me personally, it has added to the relationships I had already established with each of them.
<br />
<br />At the first meeting, we all brainstormed to come up with issues we could address and projects we could tackle. Most of the parents in the group have kids older than mine and/or kids who have been through more cf-related stuff than mine, so I felt like I didn't have much to offer!
<br />
<br />One of the first things our group did was to address an issue that many parents were having with the reception desk at our clinic. There were a few staff members who were not following the posted policy about allowing CF patients to go directly to an exam room rather than wait in the general waiting area with other patients visiting the pulmonary department. A member of the FAB wrote a letter to the manager of the clerical staff and expressed the concern, all of the other FAB members reviewed and commented on the letter and then it was sent out. Two people who oversee the clerical staff then came to our next meeting to discuss the problem. I personally had never experienced any problems, but it has been resolved for others.
<br />
<br />Another thing our group has been working on is preparing brochures for newly diagnosed patients/families. Sort of a "what to expect" pamphlet. I have missed a couple of meetings so I am not really sure how that is progressing.
<br />
<br />I think there was talk about doing some kind of care packages for kids who are hospitalized, but I'm not sure where that stands.
<br />
<br />Our FAB started to meet monthly but now for the summer, we will probably have one meeting in July and then skip August.
<br />
<br />I'd be interested to hear what other FAB's at other clinics are doing and the types of projects or issues they are dealing with.
<br />
<br />Hope that helps you a little bit. I think a lot of the clinics may be looking to start something like this as it was an idea that was discussed at a national meeting late last year, which our CF nurses attended.
<br />
<br />
<br />At the first meeting, we all brainstormed to come up with issues we could address and projects we could tackle. Most of the parents in the group have kids older than mine and/or kids who have been through more cf-related stuff than mine, so I felt like I didn't have much to offer!
<br />
<br />One of the first things our group did was to address an issue that many parents were having with the reception desk at our clinic. There were a few staff members who were not following the posted policy about allowing CF patients to go directly to an exam room rather than wait in the general waiting area with other patients visiting the pulmonary department. A member of the FAB wrote a letter to the manager of the clerical staff and expressed the concern, all of the other FAB members reviewed and commented on the letter and then it was sent out. Two people who oversee the clerical staff then came to our next meeting to discuss the problem. I personally had never experienced any problems, but it has been resolved for others.
<br />
<br />Another thing our group has been working on is preparing brochures for newly diagnosed patients/families. Sort of a "what to expect" pamphlet. I have missed a couple of meetings so I am not really sure how that is progressing.
<br />
<br />I think there was talk about doing some kind of care packages for kids who are hospitalized, but I'm not sure where that stands.
<br />
<br />Our FAB started to meet monthly but now for the summer, we will probably have one meeting in July and then skip August.
<br />
<br />I'd be interested to hear what other FAB's at other clinics are doing and the types of projects or issues they are dealing with.
<br />
<br />Hope that helps you a little bit. I think a lot of the clinics may be looking to start something like this as it was an idea that was discussed at a national meeting late last year, which our CF nurses attended.
<br />
I was asked to be on ours by another patient. Being so far away its difficult for me to actually get to meetings so I would give feedback on the phone more then anything.
It has helped with a few things. We had many changes in our clinic so it was a good way to address any concerns of the patients that came with those changes in addition to some that already existed.
It ranges from anything within the clinic to billing which is done by an outside billing office.
Our clinic also gave/gives away goody bags to patients. That was a long time coming. I received one when in the hospital last time & it was so awesome.
Its difficult to coordinate at times, but totally worth it. I am glad you are involved. Although many of the other parents have older kids....its important that someone with a younger child be involved. Sometimes older parents forget what use to be of concern at a younger age OR it wasnt an issue when their kids were little.
I hope you get lots of feedback & I am interested in seeing how many clinics have this & who is involved!
It has helped with a few things. We had many changes in our clinic so it was a good way to address any concerns of the patients that came with those changes in addition to some that already existed.
It ranges from anything within the clinic to billing which is done by an outside billing office.
Our clinic also gave/gives away goody bags to patients. That was a long time coming. I received one when in the hospital last time & it was so awesome.
Its difficult to coordinate at times, but totally worth it. I am glad you are involved. Although many of the other parents have older kids....its important that someone with a younger child be involved. Sometimes older parents forget what use to be of concern at a younger age OR it wasnt an issue when their kids were little.
I hope you get lots of feedback & I am interested in seeing how many clinics have this & who is involved!
I was asked to be on ours by another patient. Being so far away its difficult for me to actually get to meetings so I would give feedback on the phone more then anything.
It has helped with a few things. We had many changes in our clinic so it was a good way to address any concerns of the patients that came with those changes in addition to some that already existed.
It ranges from anything within the clinic to billing which is done by an outside billing office.
Our clinic also gave/gives away goody bags to patients. That was a long time coming. I received one when in the hospital last time & it was so awesome.
Its difficult to coordinate at times, but totally worth it. I am glad you are involved. Although many of the other parents have older kids....its important that someone with a younger child be involved. Sometimes older parents forget what use to be of concern at a younger age OR it wasnt an issue when their kids were little.
I hope you get lots of feedback & I am interested in seeing how many clinics have this & who is involved!
It has helped with a few things. We had many changes in our clinic so it was a good way to address any concerns of the patients that came with those changes in addition to some that already existed.
It ranges from anything within the clinic to billing which is done by an outside billing office.
Our clinic also gave/gives away goody bags to patients. That was a long time coming. I received one when in the hospital last time & it was so awesome.
Its difficult to coordinate at times, but totally worth it. I am glad you are involved. Although many of the other parents have older kids....its important that someone with a younger child be involved. Sometimes older parents forget what use to be of concern at a younger age OR it wasnt an issue when their kids were little.
I hope you get lots of feedback & I am interested in seeing how many clinics have this & who is involved!
I was asked to be on ours by another patient. Being so far away its difficult for me to actually get to meetings so I would give feedback on the phone more then anything.
It has helped with a few things. We had many changes in our clinic so it was a good way to address any concerns of the patients that came with those changes in addition to some that already existed.
It ranges from anything within the clinic to billing which is done by an outside billing office.
Our clinic also gave/gives away goody bags to patients. That was a long time coming. I received one when in the hospital last time & it was so awesome.
Its difficult to coordinate at times, but totally worth it. I am glad you are involved. Although many of the other parents have older kids....its important that someone with a younger child be involved. Sometimes older parents forget what use to be of concern at a younger age OR it wasnt an issue when their kids were little.
I hope you get lots of feedback & I am interested in seeing how many clinics have this & who is involved!
It has helped with a few things. We had many changes in our clinic so it was a good way to address any concerns of the patients that came with those changes in addition to some that already existed.
It ranges from anything within the clinic to billing which is done by an outside billing office.
Our clinic also gave/gives away goody bags to patients. That was a long time coming. I received one when in the hospital last time & it was so awesome.
Its difficult to coordinate at times, but totally worth it. I am glad you are involved. Although many of the other parents have older kids....its important that someone with a younger child be involved. Sometimes older parents forget what use to be of concern at a younger age OR it wasnt an issue when their kids were little.
I hope you get lots of feedback & I am interested in seeing how many clinics have this & who is involved!
I was asked to be on ours by another patient. Being so far away its difficult for me to actually get to meetings so I would give feedback on the phone more then anything.
It has helped with a few things. We had many changes in our clinic so it was a good way to address any concerns of the patients that came with those changes in addition to some that already existed.
It ranges from anything within the clinic to billing which is done by an outside billing office.
Our clinic also gave/gives away goody bags to patients. That was a long time coming. I received one when in the hospital last time & it was so awesome.
Its difficult to coordinate at times, but totally worth it. I am glad you are involved. Although many of the other parents have older kids....its important that someone with a younger child be involved. Sometimes older parents forget what use to be of concern at a younger age OR it wasnt an issue when their kids were little.
I hope you get lots of feedback & I am interested in seeing how many clinics have this & who is involved!
It has helped with a few things. We had many changes in our clinic so it was a good way to address any concerns of the patients that came with those changes in addition to some that already existed.
It ranges from anything within the clinic to billing which is done by an outside billing office.
Our clinic also gave/gives away goody bags to patients. That was a long time coming. I received one when in the hospital last time & it was so awesome.
Its difficult to coordinate at times, but totally worth it. I am glad you are involved. Although many of the other parents have older kids....its important that someone with a younger child be involved. Sometimes older parents forget what use to be of concern at a younger age OR it wasnt an issue when their kids were little.
I hope you get lots of feedback & I am interested in seeing how many clinics have this & who is involved!
I was asked to be on ours by another patient. Being so far away its difficult for me to actually get to meetings so I would give feedback on the phone more then anything.
<br />
<br />It has helped with a few things. We had many changes in our clinic so it was a good way to address any concerns of the patients that came with those changes in addition to some that already existed.
<br />
<br />It ranges from anything within the clinic to billing which is done by an outside billing office.
<br />
<br />Our clinic also gave/gives away goody bags to patients. That was a long time coming. I received one when in the hospital last time & it was so awesome.
<br />
<br />Its difficult to coordinate at times, but totally worth it. I am glad you are involved. Although many of the other parents have older kids....its important that someone with a younger child be involved. Sometimes older parents forget what use to be of concern at a younger age OR it wasnt an issue when their kids were little.
<br />
<br />I hope you get lots of feedback & I am interested in seeing how many clinics have this & who is involved!
<br />
<br />
<br />It has helped with a few things. We had many changes in our clinic so it was a good way to address any concerns of the patients that came with those changes in addition to some that already existed.
<br />
<br />It ranges from anything within the clinic to billing which is done by an outside billing office.
<br />
<br />Our clinic also gave/gives away goody bags to patients. That was a long time coming. I received one when in the hospital last time & it was so awesome.
<br />
<br />Its difficult to coordinate at times, but totally worth it. I am glad you are involved. Although many of the other parents have older kids....its important that someone with a younger child be involved. Sometimes older parents forget what use to be of concern at a younger age OR it wasnt an issue when their kids were little.
<br />
<br />I hope you get lots of feedback & I am interested in seeing how many clinics have this & who is involved!
<br />
BabyBeauty
New member
I was asked to be on the parents advisory committee. We have our first meeting tonight. I am already going to suggest some of your ideas posted here! Thanks! I will let you know how ours goes.
BabyBeauty
New member
I was asked to be on the parents advisory committee. We have our first meeting tonight. I am already going to suggest some of your ideas posted here! Thanks! I will let you know how ours goes.
BabyBeauty
New member
I was asked to be on the parents advisory committee. We have our first meeting tonight. I am already going to suggest some of your ideas posted here! Thanks! I will let you know how ours goes.
BabyBeauty
New member
I was asked to be on the parents advisory committee. We have our first meeting tonight. I am already going to suggest some of your ideas posted here! Thanks! I will let you know how ours goes.
BabyBeauty
New member
I was asked to be on the parents advisory committee. We have our first meeting tonight. I am already going to suggest some of your ideas posted here! Thanks! I will let you know how ours goes.