Co Workers Children

[koquinn]

Hi everyone. I have a coworker who works for me who has just found out that her 4 year old daughter has CF and that her 9 mo. son is a carrier. Her and her husband also have some cognitive disabilities.

I need to know how we can support her in our office. CF has always been my "sucker charity" because of a book I read as a kid, "Alex: The Life of a Child". Now I'm finding out that there is quite a bit more to CF than I knew.

Any thoughts or comments would be appreciated!

Thanks.

 

[koquinn]

Hi everyone. I have a coworker who works for me who has just found out that her 4 year old daughter has CF and that her 9 mo. son is a carrier. Her and her husband also have some cognitive disabilities.

I need to know how we can support her in our office. CF has always been my "sucker charity" because of a book I read as a kid, "Alex: The Life of a Child". Now I'm finding out that there is quite a bit more to CF than I knew.

Any thoughts or comments would be appreciated!

Thanks.

 

[koquinn]

Hi everyone. I have a coworker who works for me who has just found out that her 4 year old daughter has CF and that her 9 mo. son is a carrier. Her and her husband also have some cognitive disabilities.

I need to know how we can support her in our office. CF has always been my "sucker charity" because of a book I read as a kid, "Alex: The Life of a Child". Now I'm finding out that there is quite a bit more to CF than I knew.

Any thoughts or comments would be appreciated!

Thanks.

 

[Rebjane]

Wow, How lucky your co-worker is to have someone like you. Depending on how friendly you are with this person and how comfortable you are talking with her, she just may need some space and a lending ear/shoulder to cry on.

things have changed for CF'ers since the book you mentioned, new treatments are available and there is hope for the future.

However, Cf'ers get sick, sometimes(it's individual to each case of CF ) they are sick for a long period of time, may require hospitalization and treatments at home. most CF'ers have daily treatments that can be time-consuming at home(chest physical therapy and breathing treatments)


Co-workers of my husband have offered support by ; offerring help with our non-CF child when our child with CF is sick, preparing meals, fundraising for the Cystic Fibrosis Foundation(when we do a yearly walk to raise $ for CF). They also let us know if they have a really bad cold at work so we can do more hand-washing and not have my husband pass it on to our child.

Reliable information about Cystic Fibrosis can be found at www.cff.org which is the Cystic Fibrosis Foundation 's website. Alot of information is outdated if you randomly google CF. Also, one thing we don't want is pity. Kids with CF are normal kids, they just happen to have CF.

HTH

 

[Rebjane]

Wow, How lucky your co-worker is to have someone like you. Depending on how friendly you are with this person and how comfortable you are talking with her, she just may need some space and a lending ear/shoulder to cry on.

things have changed for CF'ers since the book you mentioned, new treatments are available and there is hope for the future.

However, Cf'ers get sick, sometimes(it's individual to each case of CF ) they are sick for a long period of time, may require hospitalization and treatments at home. most CF'ers have daily treatments that can be time-consuming at home(chest physical therapy and breathing treatments)


Co-workers of my husband have offered support by ; offerring help with our non-CF child when our child with CF is sick, preparing meals, fundraising for the Cystic Fibrosis Foundation(when we do a yearly walk to raise $ for CF). They also let us know if they have a really bad cold at work so we can do more hand-washing and not have my husband pass it on to our child.

Reliable information about Cystic Fibrosis can be found at www.cff.org which is the Cystic Fibrosis Foundation 's website. Alot of information is outdated if you randomly google CF. Also, one thing we don't want is pity. Kids with CF are normal kids, they just happen to have CF.

HTH

 

[Rebjane]

Wow, How lucky your co-worker is to have someone like you. Depending on how friendly you are with this person and how comfortable you are talking with her, she just may need some space and a lending ear/shoulder to cry on.

things have changed for CF'ers since the book you mentioned, new treatments are available and there is hope for the future.

However, Cf'ers get sick, sometimes(it's individual to each case of CF ) they are sick for a long period of time, may require hospitalization and treatments at home. most CF'ers have daily treatments that can be time-consuming at home(chest physical therapy and breathing treatments)


Co-workers of my husband have offered support by ; offerring help with our non-CF child when our child with CF is sick, preparing meals, fundraising for the Cystic Fibrosis Foundation(when we do a yearly walk to raise $ for CF). They also let us know if they have a really bad cold at work so we can do more hand-washing and not have my husband pass it on to our child.

Reliable information about Cystic Fibrosis can be found at www.cff.org which is the Cystic Fibrosis Foundation 's website. Alot of information is outdated if you randomly google CF. Also, one thing we don't want is pity. Kids with CF are normal kids, they just happen to have CF.

HTH

 

[Rebjane]

I also wanted to address that you said the couple has cognitive difficulties. Depending on what their cogitive difficulties are , CF care and treatment can be confusing and the doctors give you ALOT of medical information which is alot to absorb for any person. There is alot to remember and process as well as alot of decision making to make on the parent's part. Care of a CF'er should be taken place at an accredited CF care center(which can be located through www.cff.org) Case managers/social workers may be able to help this couple.

 

[Rebjane]

I also wanted to address that you said the couple has cognitive difficulties. Depending on what their cogitive difficulties are , CF care and treatment can be confusing and the doctors give you ALOT of medical information which is alot to absorb for any person. There is alot to remember and process as well as alot of decision making to make on the parent's part. Care of a CF'er should be taken place at an accredited CF care center(which can be located through www.cff.org) Case managers/social workers may be able to help this couple.

 

[Rebjane]

I also wanted to address that you said the couple has cognitive difficulties. Depending on what their cogitive difficulties are , CF care and treatment can be confusing and the doctors give you ALOT of medical information which is alot to absorb for any person. There is alot to remember and process as well as alot of decision making to make on the parent's part. Care of a CF'er should be taken place at an accredited CF care center(which can be located through www.cff.org) Case managers/social workers may be able to help this couple.

 

[koquinn]

Thanks so much. I do believe that she is a bit overwhelmed, and her own disabilities don't allow her to be that emotional. I think that sometimes people at work don't think that she cares as much as she should, which I know is not true. I will make sure that we are all here for her, her kids, husband and other family. The company I work for (a large credit card company) strongly promotes community involvement, so I will talk with our local group and see if we can do something to benefit the organization.

 

[koquinn]

Thanks so much. I do believe that she is a bit overwhelmed, and her own disabilities don't allow her to be that emotional. I think that sometimes people at work don't think that she cares as much as she should, which I know is not true. I will make sure that we are all here for her, her kids, husband and other family. The company I work for (a large credit card company) strongly promotes community involvement, so I will talk with our local group and see if we can do something to benefit the organization.

 

[koquinn]

Thanks so much. I do believe that she is a bit overwhelmed, and her own disabilities don't allow her to be that emotional. I think that sometimes people at work don't think that she cares as much as she should, which I know is not true. I will make sure that we are all here for her, her kids, husband and other family. The company I work for (a large credit card company) strongly promotes community involvement, so I will talk with our local group and see if we can do something to benefit the organization.