Anyone out there with CF live in a dorm while attending college? How did you wash and sanitize your nebs. etc? What about the vest, neb treatments, and meds with other students around...how did you deal with it all? Our son will be going to college in two years so any advice would be helpful! Thanks!<img src="i/expressions/face-icon-small-smile.gif" border="0">
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College life with CF
- Thread starter dillman
- Start date
Anyone out there with CF live in a dorm while attending college? How did you wash and sanitize your nebs. etc? What about the vest, neb treatments, and meds with other students around...how did you deal with it all? Our son will be going to college in two years so any advice would be helpful! Thanks!<img src="i/expressions/face-icon-small-smile.gif" border="0">
Anyone out there with CF live in a dorm while attending college? How did you wash and sanitize your nebs. etc? What about the vest, neb treatments, and meds with other students around...how did you deal with it all? Our son will be going to college in two years so any advice would be helpful! Thanks!<img src="i/expressions/face-icon-small-smile.gif" border="0">
Anyone out there with CF live in a dorm while attending college? How did you wash and sanitize your nebs. etc? What about the vest, neb treatments, and meds with other students around...how did you deal with it all? Our son will be going to college in two years so any advice would be helpful! Thanks!<img src="i/expressions/face-icon-small-smile.gif" border="0">
Anyone out there with CF live in a dorm while attending college? How did you wash and sanitize your nebs. etc? What about the vest, neb treatments, and meds with other students around...how did you deal with it all? Our son will be going to college in two years so any advice would be helpful! Thanks!<img src="i/expressions/face-icon-small-smile.gif" border="0">
i lived in a dorm for two years in a double and two years in a single room in a shared apartment on campus. I brought my vest, compressor, nebs, etc and just kept them under my desk. It's pretty easy to find time to do everything, there were always certain times of day when my friends would all be in class and I was by myself. I roomed with a close friend from high school, and she didn't care if I was running treatments with her around or not. I did IVs more times than I can remember from my dorm, I just stocked up the minifridge with the bags of antibiotics! As far as sterilization, my apartment the past two years has had a dishwasher, but for my first two years with just a bathroom I cleaned with dish-soap or soaked in vinegar.
It's all up to your son though- I chose to be open with my friends about CF, so I never had a problem taking meds or doing nebs with them around. If I had chosen to go the other route, I am sure it would have been just as easy to find time to myself to do everything and have nobody find out. I will advise you to make arrangements with the college's disability services. I don't know what I would have done without their van to come and pick me up and take me to class (now I have a handicap pass and can just drive). Having a documented case with disability services also makes it much easier if you need to be hospitalized in the middle of the semester and miss some work.
You have some time though <img src="i/expressions/face-icon-small-smile.gif" border="0"> enjoy having him home while it lasts!
It's all up to your son though- I chose to be open with my friends about CF, so I never had a problem taking meds or doing nebs with them around. If I had chosen to go the other route, I am sure it would have been just as easy to find time to myself to do everything and have nobody find out. I will advise you to make arrangements with the college's disability services. I don't know what I would have done without their van to come and pick me up and take me to class (now I have a handicap pass and can just drive). Having a documented case with disability services also makes it much easier if you need to be hospitalized in the middle of the semester and miss some work.
You have some time though <img src="i/expressions/face-icon-small-smile.gif" border="0"> enjoy having him home while it lasts!
i lived in a dorm for two years in a double and two years in a single room in a shared apartment on campus. I brought my vest, compressor, nebs, etc and just kept them under my desk. It's pretty easy to find time to do everything, there were always certain times of day when my friends would all be in class and I was by myself. I roomed with a close friend from high school, and she didn't care if I was running treatments with her around or not. I did IVs more times than I can remember from my dorm, I just stocked up the minifridge with the bags of antibiotics! As far as sterilization, my apartment the past two years has had a dishwasher, but for my first two years with just a bathroom I cleaned with dish-soap or soaked in vinegar.
It's all up to your son though- I chose to be open with my friends about CF, so I never had a problem taking meds or doing nebs with them around. If I had chosen to go the other route, I am sure it would have been just as easy to find time to myself to do everything and have nobody find out. I will advise you to make arrangements with the college's disability services. I don't know what I would have done without their van to come and pick me up and take me to class (now I have a handicap pass and can just drive). Having a documented case with disability services also makes it much easier if you need to be hospitalized in the middle of the semester and miss some work.
You have some time though <img src="i/expressions/face-icon-small-smile.gif" border="0"> enjoy having him home while it lasts!
It's all up to your son though- I chose to be open with my friends about CF, so I never had a problem taking meds or doing nebs with them around. If I had chosen to go the other route, I am sure it would have been just as easy to find time to myself to do everything and have nobody find out. I will advise you to make arrangements with the college's disability services. I don't know what I would have done without their van to come and pick me up and take me to class (now I have a handicap pass and can just drive). Having a documented case with disability services also makes it much easier if you need to be hospitalized in the middle of the semester and miss some work.
You have some time though <img src="i/expressions/face-icon-small-smile.gif" border="0"> enjoy having him home while it lasts!
i lived in a dorm for two years in a double and two years in a single room in a shared apartment on campus. I brought my vest, compressor, nebs, etc and just kept them under my desk. It's pretty easy to find time to do everything, there were always certain times of day when my friends would all be in class and I was by myself. I roomed with a close friend from high school, and she didn't care if I was running treatments with her around or not. I did IVs more times than I can remember from my dorm, I just stocked up the minifridge with the bags of antibiotics! As far as sterilization, my apartment the past two years has had a dishwasher, but for my first two years with just a bathroom I cleaned with dish-soap or soaked in vinegar.
It's all up to your son though- I chose to be open with my friends about CF, so I never had a problem taking meds or doing nebs with them around. If I had chosen to go the other route, I am sure it would have been just as easy to find time to myself to do everything and have nobody find out. I will advise you to make arrangements with the college's disability services. I don't know what I would have done without their van to come and pick me up and take me to class (now I have a handicap pass and can just drive). Having a documented case with disability services also makes it much easier if you need to be hospitalized in the middle of the semester and miss some work.
You have some time though <img src="i/expressions/face-icon-small-smile.gif" border="0"> enjoy having him home while it lasts!
It's all up to your son though- I chose to be open with my friends about CF, so I never had a problem taking meds or doing nebs with them around. If I had chosen to go the other route, I am sure it would have been just as easy to find time to myself to do everything and have nobody find out. I will advise you to make arrangements with the college's disability services. I don't know what I would have done without their van to come and pick me up and take me to class (now I have a handicap pass and can just drive). Having a documented case with disability services also makes it much easier if you need to be hospitalized in the middle of the semester and miss some work.
You have some time though <img src="i/expressions/face-icon-small-smile.gif" border="0"> enjoy having him home while it lasts!
i lived in a dorm for two years in a double and two years in a single room in a shared apartment on campus. I brought my vest, compressor, nebs, etc and just kept them under my desk. It's pretty easy to find time to do everything, there were always certain times of day when my friends would all be in class and I was by myself. I roomed with a close friend from high school, and she didn't care if I was running treatments with her around or not. I did IVs more times than I can remember from my dorm, I just stocked up the minifridge with the bags of antibiotics! As far as sterilization, my apartment the past two years has had a dishwasher, but for my first two years with just a bathroom I cleaned with dish-soap or soaked in vinegar.
It's all up to your son though- I chose to be open with my friends about CF, so I never had a problem taking meds or doing nebs with them around. If I had chosen to go the other route, I am sure it would have been just as easy to find time to myself to do everything and have nobody find out. I will advise you to make arrangements with the college's disability services. I don't know what I would have done without their van to come and pick me up and take me to class (now I have a handicap pass and can just drive). Having a documented case with disability services also makes it much easier if you need to be hospitalized in the middle of the semester and miss some work.
You have some time though <img src="i/expressions/face-icon-small-smile.gif" border="0"> enjoy having him home while it lasts!
It's all up to your son though- I chose to be open with my friends about CF, so I never had a problem taking meds or doing nebs with them around. If I had chosen to go the other route, I am sure it would have been just as easy to find time to myself to do everything and have nobody find out. I will advise you to make arrangements with the college's disability services. I don't know what I would have done without their van to come and pick me up and take me to class (now I have a handicap pass and can just drive). Having a documented case with disability services also makes it much easier if you need to be hospitalized in the middle of the semester and miss some work.
You have some time though <img src="i/expressions/face-icon-small-smile.gif" border="0"> enjoy having him home while it lasts!
i lived in a dorm for two years in a double and two years in a single room in a shared apartment on campus. I brought my vest, compressor, nebs, etc and just kept them under my desk. It's pretty easy to find time to do everything, there were always certain times of day when my friends would all be in class and I was by myself. I roomed with a close friend from high school, and she didn't care if I was running treatments with her around or not. I did IVs more times than I can remember from my dorm, I just stocked up the minifridge with the bags of antibiotics! As far as sterilization, my apartment the past two years has had a dishwasher, but for my first two years with just a bathroom I cleaned with dish-soap or soaked in vinegar.
<br />
<br />It's all up to your son though- I chose to be open with my friends about CF, so I never had a problem taking meds or doing nebs with them around. If I had chosen to go the other route, I am sure it would have been just as easy to find time to myself to do everything and have nobody find out. I will advise you to make arrangements with the college's disability services. I don't know what I would have done without their van to come and pick me up and take me to class (now I have a handicap pass and can just drive). Having a documented case with disability services also makes it much easier if you need to be hospitalized in the middle of the semester and miss some work.
<br />
<br />You have some time though <img src="i/expressions/face-icon-small-smile.gif" border="0"> enjoy having him home while it lasts!
<br />
<br />It's all up to your son though- I chose to be open with my friends about CF, so I never had a problem taking meds or doing nebs with them around. If I had chosen to go the other route, I am sure it would have been just as easy to find time to myself to do everything and have nobody find out. I will advise you to make arrangements with the college's disability services. I don't know what I would have done without their van to come and pick me up and take me to class (now I have a handicap pass and can just drive). Having a documented case with disability services also makes it much easier if you need to be hospitalized in the middle of the semester and miss some work.
<br />
<br />You have some time though <img src="i/expressions/face-icon-small-smile.gif" border="0"> enjoy having him home while it lasts!
saveferris2009
New member
I left my dorm room door open my 1st year while I did nebs and my vest - everyone was totally fascinated by my very cool devices. It's all in how you present it - if you act uncomfortable and secretive, people will act weird back to you. But if you're "whatever" about it and introduce people to the devices as something cool, they will treat it accordingly.
I had a roommate (sometimes 2) all 4 years. I was respectful of them and they were respectful of me. Some could sleep through my treatments and others couldn't early in the morning - so I adjusted accordingly.
I started college 10 years ago (Gasp! i'm old) and I used alcohol to sterilize my nebs.
But it's important to set the stage now - which it sounds like you are if you are asking questions now <img src="i/expressions/face-icon-small-smile.gif" border="0">
Have him handle his doc appointments, meds, treatments, etc NOW. So by the time he's off to college, nothing is new. Doing all this CF stuff on his one will be old hand because he learned it years ago.
My mom started doing this with me when I was 13 and it made a huge difference transitioning as an adult. Of course you can assist him as he learns, but that shouldn't take too long. (this is of course if you haven't done this already).
learning all this at the age of 18 is too late - it's important to do this as an early teen.
take care
I had a roommate (sometimes 2) all 4 years. I was respectful of them and they were respectful of me. Some could sleep through my treatments and others couldn't early in the morning - so I adjusted accordingly.
I started college 10 years ago (Gasp! i'm old) and I used alcohol to sterilize my nebs.
But it's important to set the stage now - which it sounds like you are if you are asking questions now <img src="i/expressions/face-icon-small-smile.gif" border="0">
Have him handle his doc appointments, meds, treatments, etc NOW. So by the time he's off to college, nothing is new. Doing all this CF stuff on his one will be old hand because he learned it years ago.
My mom started doing this with me when I was 13 and it made a huge difference transitioning as an adult. Of course you can assist him as he learns, but that shouldn't take too long. (this is of course if you haven't done this already).
learning all this at the age of 18 is too late - it's important to do this as an early teen.
take care
saveferris2009
New member
I left my dorm room door open my 1st year while I did nebs and my vest - everyone was totally fascinated by my very cool devices. It's all in how you present it - if you act uncomfortable and secretive, people will act weird back to you. But if you're "whatever" about it and introduce people to the devices as something cool, they will treat it accordingly.
I had a roommate (sometimes 2) all 4 years. I was respectful of them and they were respectful of me. Some could sleep through my treatments and others couldn't early in the morning - so I adjusted accordingly.
I started college 10 years ago (Gasp! i'm old) and I used alcohol to sterilize my nebs.
But it's important to set the stage now - which it sounds like you are if you are asking questions now <img src="i/expressions/face-icon-small-smile.gif" border="0">
Have him handle his doc appointments, meds, treatments, etc NOW. So by the time he's off to college, nothing is new. Doing all this CF stuff on his one will be old hand because he learned it years ago.
My mom started doing this with me when I was 13 and it made a huge difference transitioning as an adult. Of course you can assist him as he learns, but that shouldn't take too long. (this is of course if you haven't done this already).
learning all this at the age of 18 is too late - it's important to do this as an early teen.
take care
I had a roommate (sometimes 2) all 4 years. I was respectful of them and they were respectful of me. Some could sleep through my treatments and others couldn't early in the morning - so I adjusted accordingly.
I started college 10 years ago (Gasp! i'm old) and I used alcohol to sterilize my nebs.
But it's important to set the stage now - which it sounds like you are if you are asking questions now <img src="i/expressions/face-icon-small-smile.gif" border="0">
Have him handle his doc appointments, meds, treatments, etc NOW. So by the time he's off to college, nothing is new. Doing all this CF stuff on his one will be old hand because he learned it years ago.
My mom started doing this with me when I was 13 and it made a huge difference transitioning as an adult. Of course you can assist him as he learns, but that shouldn't take too long. (this is of course if you haven't done this already).
learning all this at the age of 18 is too late - it's important to do this as an early teen.
take care
saveferris2009
New member
I left my dorm room door open my 1st year while I did nebs and my vest - everyone was totally fascinated by my very cool devices. It's all in how you present it - if you act uncomfortable and secretive, people will act weird back to you. But if you're "whatever" about it and introduce people to the devices as something cool, they will treat it accordingly.
I had a roommate (sometimes 2) all 4 years. I was respectful of them and they were respectful of me. Some could sleep through my treatments and others couldn't early in the morning - so I adjusted accordingly.
I started college 10 years ago (Gasp! i'm old) and I used alcohol to sterilize my nebs.
But it's important to set the stage now - which it sounds like you are if you are asking questions now <img src="i/expressions/face-icon-small-smile.gif" border="0">
Have him handle his doc appointments, meds, treatments, etc NOW. So by the time he's off to college, nothing is new. Doing all this CF stuff on his one will be old hand because he learned it years ago.
My mom started doing this with me when I was 13 and it made a huge difference transitioning as an adult. Of course you can assist him as he learns, but that shouldn't take too long. (this is of course if you haven't done this already).
learning all this at the age of 18 is too late - it's important to do this as an early teen.
take care
I had a roommate (sometimes 2) all 4 years. I was respectful of them and they were respectful of me. Some could sleep through my treatments and others couldn't early in the morning - so I adjusted accordingly.
I started college 10 years ago (Gasp! i'm old) and I used alcohol to sterilize my nebs.
But it's important to set the stage now - which it sounds like you are if you are asking questions now <img src="i/expressions/face-icon-small-smile.gif" border="0">
Have him handle his doc appointments, meds, treatments, etc NOW. So by the time he's off to college, nothing is new. Doing all this CF stuff on his one will be old hand because he learned it years ago.
My mom started doing this with me when I was 13 and it made a huge difference transitioning as an adult. Of course you can assist him as he learns, but that shouldn't take too long. (this is of course if you haven't done this already).
learning all this at the age of 18 is too late - it's important to do this as an early teen.
take care
saveferris2009
New member
I left my dorm room door open my 1st year while I did nebs and my vest - everyone was totally fascinated by my very cool devices. It's all in how you present it - if you act uncomfortable and secretive, people will act weird back to you. But if you're "whatever" about it and introduce people to the devices as something cool, they will treat it accordingly.
I had a roommate (sometimes 2) all 4 years. I was respectful of them and they were respectful of me. Some could sleep through my treatments and others couldn't early in the morning - so I adjusted accordingly.
I started college 10 years ago (Gasp! i'm old) and I used alcohol to sterilize my nebs.
But it's important to set the stage now - which it sounds like you are if you are asking questions now <img src="i/expressions/face-icon-small-smile.gif" border="0">
Have him handle his doc appointments, meds, treatments, etc NOW. So by the time he's off to college, nothing is new. Doing all this CF stuff on his one will be old hand because he learned it years ago.
My mom started doing this with me when I was 13 and it made a huge difference transitioning as an adult. Of course you can assist him as he learns, but that shouldn't take too long. (this is of course if you haven't done this already).
learning all this at the age of 18 is too late - it's important to do this as an early teen.
take care
I had a roommate (sometimes 2) all 4 years. I was respectful of them and they were respectful of me. Some could sleep through my treatments and others couldn't early in the morning - so I adjusted accordingly.
I started college 10 years ago (Gasp! i'm old) and I used alcohol to sterilize my nebs.
But it's important to set the stage now - which it sounds like you are if you are asking questions now <img src="i/expressions/face-icon-small-smile.gif" border="0">
Have him handle his doc appointments, meds, treatments, etc NOW. So by the time he's off to college, nothing is new. Doing all this CF stuff on his one will be old hand because he learned it years ago.
My mom started doing this with me when I was 13 and it made a huge difference transitioning as an adult. Of course you can assist him as he learns, but that shouldn't take too long. (this is of course if you haven't done this already).
learning all this at the age of 18 is too late - it's important to do this as an early teen.
take care
saveferris2009
New member
I left my dorm room door open my 1st year while I did nebs and my vest - everyone was totally fascinated by my very cool devices. It's all in how you present it - if you act uncomfortable and secretive, people will act weird back to you. But if you're "whatever" about it and introduce people to the devices as something cool, they will treat it accordingly.
<br />
<br />I had a roommate (sometimes 2) all 4 years. I was respectful of them and they were respectful of me. Some could sleep through my treatments and others couldn't early in the morning - so I adjusted accordingly.
<br />
<br />I started college 10 years ago (Gasp! i'm old) and I used alcohol to sterilize my nebs.
<br />
<br />But it's important to set the stage now - which it sounds like you are if you are asking questions now <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Have him handle his doc appointments, meds, treatments, etc NOW. So by the time he's off to college, nothing is new. Doing all this CF stuff on his one will be old hand because he learned it years ago.
<br />
<br />My mom started doing this with me when I was 13 and it made a huge difference transitioning as an adult. Of course you can assist him as he learns, but that shouldn't take too long. (this is of course if you haven't done this already).
<br />
<br />learning all this at the age of 18 is too late - it's important to do this as an early teen.
<br />
<br />take care
<br />
<br />I had a roommate (sometimes 2) all 4 years. I was respectful of them and they were respectful of me. Some could sleep through my treatments and others couldn't early in the morning - so I adjusted accordingly.
<br />
<br />I started college 10 years ago (Gasp! i'm old) and I used alcohol to sterilize my nebs.
<br />
<br />But it's important to set the stage now - which it sounds like you are if you are asking questions now <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Have him handle his doc appointments, meds, treatments, etc NOW. So by the time he's off to college, nothing is new. Doing all this CF stuff on his one will be old hand because he learned it years ago.
<br />
<br />My mom started doing this with me when I was 13 and it made a huge difference transitioning as an adult. Of course you can assist him as he learns, but that shouldn't take too long. (this is of course if you haven't done this already).
<br />
<br />learning all this at the age of 18 is too late - it's important to do this as an early teen.
<br />
<br />take care
i had similar situations to julie and amy. i shared a dorm/on campus apt room for 3 years and then had my own room in a house my last 2 years of school. i got really sick and ended up taking the 2nd semester of my senior year off (thus pushing me back to 5 years of school) to get my health back on track and to a place where i could do school and take care of myself well. This was a result of NOT being 100% compliant with my treatments for my first 3 years of school. my freshman year was ESPECIALLY bad because, even though i went to boarding school my senior year of highschool, i still wasn't prepared to handle ALL of my treatments plus cleaning/sterilizing nebs, etc. on my own.
i think the fact that you are looking into this now while still a couple years out from the college transition is so important as amy said. Learning in the midst of your freshman year is just not going to cut it and he'll probably end up sick as a dog like i was.
when he is actually ready to go to college let him be the one to decide if he wants to do the dorms with a roomate or with a single room etc. my parents left those kinds of decisions totally up to me and that helped me feel like i was in control of how i wanted my CF to be handled and presented to my friends.
i did not know my roommate prior to college but over the summer when we got our assignments we got in touch with each other and i told her about my cf and she was really interested and just curious to know what it was all about. Like the other girls said, it's all about how you present it--if you're awkward about it, others will be too.
also (sorry i know this is getting long) as Julie said, i found disability services to be absolutely KEY to me being able to finish school and graduate. unfortunately i didn't enlist their help until my 2nd senior year but once i did it made a world of difference. so wherever your son decides to go look into that college/university's version of this program. it will be a life saver.
also if you do a search of this site, there have been other discussions like this one and you will be able to garner some more info <img src="i/expressions/face-icon-small-smile.gif" border="0">
i think the fact that you are looking into this now while still a couple years out from the college transition is so important as amy said. Learning in the midst of your freshman year is just not going to cut it and he'll probably end up sick as a dog like i was.
when he is actually ready to go to college let him be the one to decide if he wants to do the dorms with a roomate or with a single room etc. my parents left those kinds of decisions totally up to me and that helped me feel like i was in control of how i wanted my CF to be handled and presented to my friends.
i did not know my roommate prior to college but over the summer when we got our assignments we got in touch with each other and i told her about my cf and she was really interested and just curious to know what it was all about. Like the other girls said, it's all about how you present it--if you're awkward about it, others will be too.
also (sorry i know this is getting long) as Julie said, i found disability services to be absolutely KEY to me being able to finish school and graduate. unfortunately i didn't enlist their help until my 2nd senior year but once i did it made a world of difference. so wherever your son decides to go look into that college/university's version of this program. it will be a life saver.
also if you do a search of this site, there have been other discussions like this one and you will be able to garner some more info <img src="i/expressions/face-icon-small-smile.gif" border="0">
i had similar situations to julie and amy. i shared a dorm/on campus apt room for 3 years and then had my own room in a house my last 2 years of school. i got really sick and ended up taking the 2nd semester of my senior year off (thus pushing me back to 5 years of school) to get my health back on track and to a place where i could do school and take care of myself well. This was a result of NOT being 100% compliant with my treatments for my first 3 years of school. my freshman year was ESPECIALLY bad because, even though i went to boarding school my senior year of highschool, i still wasn't prepared to handle ALL of my treatments plus cleaning/sterilizing nebs, etc. on my own.
i think the fact that you are looking into this now while still a couple years out from the college transition is so important as amy said. Learning in the midst of your freshman year is just not going to cut it and he'll probably end up sick as a dog like i was.
when he is actually ready to go to college let him be the one to decide if he wants to do the dorms with a roomate or with a single room etc. my parents left those kinds of decisions totally up to me and that helped me feel like i was in control of how i wanted my CF to be handled and presented to my friends.
i did not know my roommate prior to college but over the summer when we got our assignments we got in touch with each other and i told her about my cf and she was really interested and just curious to know what it was all about. Like the other girls said, it's all about how you present it--if you're awkward about it, others will be too.
also (sorry i know this is getting long) as Julie said, i found disability services to be absolutely KEY to me being able to finish school and graduate. unfortunately i didn't enlist their help until my 2nd senior year but once i did it made a world of difference. so wherever your son decides to go look into that college/university's version of this program. it will be a life saver.
also if you do a search of this site, there have been other discussions like this one and you will be able to garner some more info <img src="i/expressions/face-icon-small-smile.gif" border="0">
i think the fact that you are looking into this now while still a couple years out from the college transition is so important as amy said. Learning in the midst of your freshman year is just not going to cut it and he'll probably end up sick as a dog like i was.
when he is actually ready to go to college let him be the one to decide if he wants to do the dorms with a roomate or with a single room etc. my parents left those kinds of decisions totally up to me and that helped me feel like i was in control of how i wanted my CF to be handled and presented to my friends.
i did not know my roommate prior to college but over the summer when we got our assignments we got in touch with each other and i told her about my cf and she was really interested and just curious to know what it was all about. Like the other girls said, it's all about how you present it--if you're awkward about it, others will be too.
also (sorry i know this is getting long) as Julie said, i found disability services to be absolutely KEY to me being able to finish school and graduate. unfortunately i didn't enlist their help until my 2nd senior year but once i did it made a world of difference. so wherever your son decides to go look into that college/university's version of this program. it will be a life saver.
also if you do a search of this site, there have been other discussions like this one and you will be able to garner some more info <img src="i/expressions/face-icon-small-smile.gif" border="0">
i had similar situations to julie and amy. i shared a dorm/on campus apt room for 3 years and then had my own room in a house my last 2 years of school. i got really sick and ended up taking the 2nd semester of my senior year off (thus pushing me back to 5 years of school) to get my health back on track and to a place where i could do school and take care of myself well. This was a result of NOT being 100% compliant with my treatments for my first 3 years of school. my freshman year was ESPECIALLY bad because, even though i went to boarding school my senior year of highschool, i still wasn't prepared to handle ALL of my treatments plus cleaning/sterilizing nebs, etc. on my own.
i think the fact that you are looking into this now while still a couple years out from the college transition is so important as amy said. Learning in the midst of your freshman year is just not going to cut it and he'll probably end up sick as a dog like i was.
when he is actually ready to go to college let him be the one to decide if he wants to do the dorms with a roomate or with a single room etc. my parents left those kinds of decisions totally up to me and that helped me feel like i was in control of how i wanted my CF to be handled and presented to my friends.
i did not know my roommate prior to college but over the summer when we got our assignments we got in touch with each other and i told her about my cf and she was really interested and just curious to know what it was all about. Like the other girls said, it's all about how you present it--if you're awkward about it, others will be too.
also (sorry i know this is getting long) as Julie said, i found disability services to be absolutely KEY to me being able to finish school and graduate. unfortunately i didn't enlist their help until my 2nd senior year but once i did it made a world of difference. so wherever your son decides to go look into that college/university's version of this program. it will be a life saver.
also if you do a search of this site, there have been other discussions like this one and you will be able to garner some more info <img src="i/expressions/face-icon-small-smile.gif" border="0">
i think the fact that you are looking into this now while still a couple years out from the college transition is so important as amy said. Learning in the midst of your freshman year is just not going to cut it and he'll probably end up sick as a dog like i was.
when he is actually ready to go to college let him be the one to decide if he wants to do the dorms with a roomate or with a single room etc. my parents left those kinds of decisions totally up to me and that helped me feel like i was in control of how i wanted my CF to be handled and presented to my friends.
i did not know my roommate prior to college but over the summer when we got our assignments we got in touch with each other and i told her about my cf and she was really interested and just curious to know what it was all about. Like the other girls said, it's all about how you present it--if you're awkward about it, others will be too.
also (sorry i know this is getting long) as Julie said, i found disability services to be absolutely KEY to me being able to finish school and graduate. unfortunately i didn't enlist their help until my 2nd senior year but once i did it made a world of difference. so wherever your son decides to go look into that college/university's version of this program. it will be a life saver.
also if you do a search of this site, there have been other discussions like this one and you will be able to garner some more info <img src="i/expressions/face-icon-small-smile.gif" border="0">
i had similar situations to julie and amy. i shared a dorm/on campus apt room for 3 years and then had my own room in a house my last 2 years of school. i got really sick and ended up taking the 2nd semester of my senior year off (thus pushing me back to 5 years of school) to get my health back on track and to a place where i could do school and take care of myself well. This was a result of NOT being 100% compliant with my treatments for my first 3 years of school. my freshman year was ESPECIALLY bad because, even though i went to boarding school my senior year of highschool, i still wasn't prepared to handle ALL of my treatments plus cleaning/sterilizing nebs, etc. on my own.
i think the fact that you are looking into this now while still a couple years out from the college transition is so important as amy said. Learning in the midst of your freshman year is just not going to cut it and he'll probably end up sick as a dog like i was.
when he is actually ready to go to college let him be the one to decide if he wants to do the dorms with a roomate or with a single room etc. my parents left those kinds of decisions totally up to me and that helped me feel like i was in control of how i wanted my CF to be handled and presented to my friends.
i did not know my roommate prior to college but over the summer when we got our assignments we got in touch with each other and i told her about my cf and she was really interested and just curious to know what it was all about. Like the other girls said, it's all about how you present it--if you're awkward about it, others will be too.
also (sorry i know this is getting long) as Julie said, i found disability services to be absolutely KEY to me being able to finish school and graduate. unfortunately i didn't enlist their help until my 2nd senior year but once i did it made a world of difference. so wherever your son decides to go look into that college/university's version of this program. it will be a life saver.
also if you do a search of this site, there have been other discussions like this one and you will be able to garner some more info <img src="i/expressions/face-icon-small-smile.gif" border="0">
i think the fact that you are looking into this now while still a couple years out from the college transition is so important as amy said. Learning in the midst of your freshman year is just not going to cut it and he'll probably end up sick as a dog like i was.
when he is actually ready to go to college let him be the one to decide if he wants to do the dorms with a roomate or with a single room etc. my parents left those kinds of decisions totally up to me and that helped me feel like i was in control of how i wanted my CF to be handled and presented to my friends.
i did not know my roommate prior to college but over the summer when we got our assignments we got in touch with each other and i told her about my cf and she was really interested and just curious to know what it was all about. Like the other girls said, it's all about how you present it--if you're awkward about it, others will be too.
also (sorry i know this is getting long) as Julie said, i found disability services to be absolutely KEY to me being able to finish school and graduate. unfortunately i didn't enlist their help until my 2nd senior year but once i did it made a world of difference. so wherever your son decides to go look into that college/university's version of this program. it will be a life saver.
also if you do a search of this site, there have been other discussions like this one and you will be able to garner some more info <img src="i/expressions/face-icon-small-smile.gif" border="0">
i had similar situations to julie and amy. i shared a dorm/on campus apt room for 3 years and then had my own room in a house my last 2 years of school. i got really sick and ended up taking the 2nd semester of my senior year off (thus pushing me back to 5 years of school) to get my health back on track and to a place where i could do school and take care of myself well. This was a result of NOT being 100% compliant with my treatments for my first 3 years of school. my freshman year was ESPECIALLY bad because, even though i went to boarding school my senior year of highschool, i still wasn't prepared to handle ALL of my treatments plus cleaning/sterilizing nebs, etc. on my own.
<br />
<br />i think the fact that you are looking into this now while still a couple years out from the college transition is so important as amy said. Learning in the midst of your freshman year is just not going to cut it and he'll probably end up sick as a dog like i was.
<br />
<br />when he is actually ready to go to college let him be the one to decide if he wants to do the dorms with a roomate or with a single room etc. my parents left those kinds of decisions totally up to me and that helped me feel like i was in control of how i wanted my CF to be handled and presented to my friends.
<br />
<br />i did not know my roommate prior to college but over the summer when we got our assignments we got in touch with each other and i told her about my cf and she was really interested and just curious to know what it was all about. Like the other girls said, it's all about how you present it--if you're awkward about it, others will be too.
<br />
<br />also (sorry i know this is getting long) as Julie said, i found disability services to be absolutely KEY to me being able to finish school and graduate. unfortunately i didn't enlist their help until my 2nd senior year but once i did it made a world of difference. so wherever your son decides to go look into that college/university's version of this program. it will be a life saver.
<br />
<br />also if you do a search of this site, there have been other discussions like this one and you will be able to garner some more info <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />i think the fact that you are looking into this now while still a couple years out from the college transition is so important as amy said. Learning in the midst of your freshman year is just not going to cut it and he'll probably end up sick as a dog like i was.
<br />
<br />when he is actually ready to go to college let him be the one to decide if he wants to do the dorms with a roomate or with a single room etc. my parents left those kinds of decisions totally up to me and that helped me feel like i was in control of how i wanted my CF to be handled and presented to my friends.
<br />
<br />i did not know my roommate prior to college but over the summer when we got our assignments we got in touch with each other and i told her about my cf and she was really interested and just curious to know what it was all about. Like the other girls said, it's all about how you present it--if you're awkward about it, others will be too.
<br />
<br />also (sorry i know this is getting long) as Julie said, i found disability services to be absolutely KEY to me being able to finish school and graduate. unfortunately i didn't enlist their help until my 2nd senior year but once i did it made a world of difference. so wherever your son decides to go look into that college/university's version of this program. it will be a life saver.
<br />
<br />also if you do a search of this site, there have been other discussions like this one and you will be able to garner some more info <img src="i/expressions/face-icon-small-smile.gif" border="0">