colonisation of mrsa

[Louieh1]

I am in tears here after reading a few articles on mrsa on the computer.It said that there are increased levels of morbidity in young children and infants due to this.My 3 year old has it now for well over 2 months and the linezolid and other meds not clearing it.Does this mean it has colonised???He is really sick and he cant get iv's as has no iv access and waiting for date to have portacath fitted but getting fobbed off as they dont want to touch him with the mrsa.Sound pretty desperate here but can anyone shed any light on our situation???
Should I be doing more??

 

[Louieh1]

I am in tears here after reading a few articles on mrsa on the computer.It said that there are increased levels of morbidity in young children and infants due to this.My 3 year old has it now for well over 2 months and the linezolid and other meds not clearing it.Does this mean it has colonised???He is really sick and he cant get iv's as has no iv access and waiting for date to have portacath fitted but getting fobbed off as they dont want to touch him with the mrsa.Sound pretty desperate here but can anyone shed any light on our situation???
Should I be doing more??

 

[Louieh1]

I am in tears here after reading a few articles on mrsa on the computer.It said that there are increased levels of morbidity in young children and infants due to this.My 3 year old has it now for well over 2 months and the linezolid and other meds not clearing it.Does this mean it has colonised???He is really sick and he cant get iv's as has no iv access and waiting for date to have portacath fitted but getting fobbed off as they dont want to touch him with the mrsa.Sound pretty desperate here but can anyone shed any light on our situation???
Should I be doing more??

 

[dasjsmum]

Hello

I dont know too much about MRSA, other than I know that it can be eradicated from the lungs...Im not sure if it hangs around the way p.a does though - I mean, it may not actually be eradicated, but dormant.

There is always hope, everyone is different (although I think I would be feeling the same way you do if I was in your position), but one thing that has worked for me is to take one day at a time, try not to dwell on the future, just take each day as it is, and fight for your little one in every way you can!!
I think you should try to push for the porta cath so that the MRSA can be treated.

Sorry I cant be of more assistance, but I saw your post earlier and just wanted to encourage you somehow.

 

[dasjsmum]

Hello

I dont know too much about MRSA, other than I know that it can be eradicated from the lungs...Im not sure if it hangs around the way p.a does though - I mean, it may not actually be eradicated, but dormant.

There is always hope, everyone is different (although I think I would be feeling the same way you do if I was in your position), but one thing that has worked for me is to take one day at a time, try not to dwell on the future, just take each day as it is, and fight for your little one in every way you can!!
I think you should try to push for the porta cath so that the MRSA can be treated.

Sorry I cant be of more assistance, but I saw your post earlier and just wanted to encourage you somehow.

 

[dasjsmum]

Hello

I dont know too much about MRSA, other than I know that it can be eradicated from the lungs...Im not sure if it hangs around the way p.a does though - I mean, it may not actually be eradicated, but dormant.

There is always hope, everyone is different (although I think I would be feeling the same way you do if I was in your position), but one thing that has worked for me is to take one day at a time, try not to dwell on the future, just take each day as it is, and fight for your little one in every way you can!!
I think you should try to push for the porta cath so that the MRSA can be treated.

Sorry I cant be of more assistance, but I saw your post earlier and just wanted to encourage you somehow.

 

[JazzysMom]

I cultured MRSA for about a year & afte my last admit in November finally stopped culturing it. Dont dispair...just keep working on it & changing meds if need be.

 

[JazzysMom]

I cultured MRSA for about a year & afte my last admit in November finally stopped culturing it. Dont dispair...just keep working on it & changing meds if need be.

 

[JazzysMom]

I cultured MRSA for about a year & afte my last admit in November finally stopped culturing it. Dont dispair...just keep working on it & changing meds if need be.

 

[NoExcuses]

out of all things a CFer can colonize, i think MRSA is on the "don't worry too much" spectrum. PA, MDRPA, or Cepacia is much more virulent and difficult to treat.

You'll be hard pressed to find a CFer not colonized with Staph... and MRSA just means that the Staph is resistant to one set of antibiotics. There are many other antibiotics to treat Staph than just methicillin.

My advice is to not sweat the small stuff, and MRSA falls into the category of small stuff. Take care <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[NoExcuses]

out of all things a CFer can colonize, i think MRSA is on the "don't worry too much" spectrum. PA, MDRPA, or Cepacia is much more virulent and difficult to treat.

You'll be hard pressed to find a CFer not colonized with Staph... and MRSA just means that the Staph is resistant to one set of antibiotics. There are many other antibiotics to treat Staph than just methicillin.

My advice is to not sweat the small stuff, and MRSA falls into the category of small stuff. Take care <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[NoExcuses]

out of all things a CFer can colonize, i think MRSA is on the "don't worry too much" spectrum. PA, MDRPA, or Cepacia is much more virulent and difficult to treat.

You'll be hard pressed to find a CFer not colonized with Staph... and MRSA just means that the Staph is resistant to one set of antibiotics. There are many other antibiotics to treat Staph than just methicillin.

My advice is to not sweat the small stuff, and MRSA falls into the category of small stuff. Take care <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Rebjane]

My daughter has had MRSA since she was 2 and a couple months, She is now 4. She was very sick a few weeks after we found out about the MRSA. After a couple rounds of oral anti's her cough would keep coming back. She was losing weight and tired and dizzy. She was admitted to the hospital for IV's(she was also extremely difficult to get an IV in). She had to have anesthesia and have a PICC line put in by a doctor that uses fluroscopy(special x-rays to see the veins) She had the picc line for a coupple weeks then went back on oral anti's when the IV's were done and now is on prophylactic anti's. Our CF doctor said it is very hard to eradicate MRSA from the lungs, he's never had a patient get rid of it. But it will go dormant. When the MRSA is dormant, my daughter seems to feel very well. Certain things start to flare it up, like a bad cold, virus and when it starts we just right on it and hit her with zyvox(linezolid) She hasn't needed IV's since she was 2 1/2, we've controlled her MRSA with orals since but til we had it under control it was hard.

 

[Rebjane]

My daughter has had MRSA since she was 2 and a couple months, She is now 4. She was very sick a few weeks after we found out about the MRSA. After a couple rounds of oral anti's her cough would keep coming back. She was losing weight and tired and dizzy. She was admitted to the hospital for IV's(she was also extremely difficult to get an IV in). She had to have anesthesia and have a PICC line put in by a doctor that uses fluroscopy(special x-rays to see the veins) She had the picc line for a coupple weeks then went back on oral anti's when the IV's were done and now is on prophylactic anti's. Our CF doctor said it is very hard to eradicate MRSA from the lungs, he's never had a patient get rid of it. But it will go dormant. When the MRSA is dormant, my daughter seems to feel very well. Certain things start to flare it up, like a bad cold, virus and when it starts we just right on it and hit her with zyvox(linezolid) She hasn't needed IV's since she was 2 1/2, we've controlled her MRSA with orals since but til we had it under control it was hard.

 

[Rebjane]

My daughter has had MRSA since she was 2 and a couple months, She is now 4. She was very sick a few weeks after we found out about the MRSA. After a couple rounds of oral anti's her cough would keep coming back. She was losing weight and tired and dizzy. She was admitted to the hospital for IV's(she was also extremely difficult to get an IV in). She had to have anesthesia and have a PICC line put in by a doctor that uses fluroscopy(special x-rays to see the veins) She had the picc line for a coupple weeks then went back on oral anti's when the IV's were done and now is on prophylactic anti's. Our CF doctor said it is very hard to eradicate MRSA from the lungs, he's never had a patient get rid of it. But it will go dormant. When the MRSA is dormant, my daughter seems to feel very well. Certain things start to flare it up, like a bad cold, virus and when it starts we just right on it and hit her with zyvox(linezolid) She hasn't needed IV's since she was 2 1/2, we've controlled her MRSA with orals since but til we had it under control it was hard.

 

[Rebjane]

Just wanted to add we do VEST 3 times a day with albuterol nebs every day, sick or not. She also does pulmozyme and pulimort nebs. I think this helps keep her lungs clear.

 

[Rebjane]

Just wanted to add we do VEST 3 times a day with albuterol nebs every day, sick or not. She also does pulmozyme and pulimort nebs. I think this helps keep her lungs clear.

 

[Rebjane]

Just wanted to add we do VEST 3 times a day with albuterol nebs every day, sick or not. She also does pulmozyme and pulimort nebs. I think this helps keep her lungs clear.

 

[Louieh1]

<img src="i/expressions/face-icon-small-smile.gif" border="0">Thank you.Don't feel as worried now.Just quick question,hear you all on about vests and cant get any info on them.They dont sell them in Ireland but have heard they do in America but are really expensive.Does anyone know where we can get one and are they good?We do physio twice daily and have indoor and outdoor trampoline.dont usually have much in the way of coughing and secretions(until now)Does everyone in America use the vest????

 

[Louieh1]

<img src="i/expressions/face-icon-small-smile.gif" border="0">Thank you.Don't feel as worried now.Just quick question,hear you all on about vests and cant get any info on them.They dont sell them in Ireland but have heard they do in America but are really expensive.Does anyone know where we can get one and are they good?We do physio twice daily and have indoor and outdoor trampoline.dont usually have much in the way of coughing and secretions(until now)Does everyone in America use the vest????