My son is 20 months and has cf, he was diagnosed in utero. He had a bad cold two weeks ago and they gave him prednisolone and augmentin. He finished that up Tuesday and he was great Wednesday but Thursday this cold came back to him full-force. She said that he had pseudomonas but it was non-mucoidal so it doesn't stick around....Please, God help me! I'm so effing scared for him!!
<<edit>> If it helps, it was pseudomonas putida.
Forgive me if this was already stated, I have a tendency to no read other people's post but just speak whats in my heart.
You have to remember that kids are going to get sick even without having CF. I would say the average kid around that age of 20 months will get a cold type of symptom at least 2 or 3 times a year. Their immune system is still adapting and when they teeth their little nose will run like crazy as well. Not saying that your child is teething now, but just pointing out another fact about youngsters. The important thing is for you to not get overly stressed. I am a father of a 16 year old boy that was diagnosed at 4 months old. My wife's sister had CF and had a double lung transplant. So you can imagine what was going through my mind when I found out my own child had this dreaded disease.
Here are some positive aspects in the world we live in today. First, you already said the number one thing. Your child was diagnosed early. My wife's sister did not get diagnosed until she was 10 years of age. Second, the doctors treat CF more aggressively than they use too. Third, with drugs like TOBI (which really help pseudomonas) and Pulmozyme, and the new one right on the Horizon called Kallydeco (sorry if I misspelled it) there is great hope for our children.
Hang in there, I know that every persistent cough and fever will worry you. There is nothing I or anyone else here on these boards, but I can tell you that God is looking out for you and your son and he sees you.
-Michael
