Compression vest need

Momofmop

New member
I am new to this forum, so I don't know if it is even a reasonable request, but my great-nephew, Jonah, needs a compression vest. They are too expensive for my nephew and his wife, but I wondered what happens to vests that are no longer needed? I thought I would just cast the question out to cyber-space and see if I could find one for him. He is going to be 4 in March. He is a twin, and hisd brother Javan doesn't suffer from the cf gene. I have a younger brother, too, that has two of his girls with cf, but they have are now in their late teens. Our family isn't a stranger to the disease, and we participate in Great Strides every year on Jonah's behalf. We are very much in need of a compression vest, and if anyone has any ideas, I'd love to hear from you. Momofmop2@yahoo.com
 

Momofmop

New member
I am new to this forum, so I don't know if it is even a reasonable request, but my great-nephew, Jonah, needs a compression vest. They are too expensive for my nephew and his wife, but I wondered what happens to vests that are no longer needed? I thought I would just cast the question out to cyber-space and see if I could find one for him. He is going to be 4 in March. He is a twin, and hisd brother Javan doesn't suffer from the cf gene. I have a younger brother, too, that has two of his girls with cf, but they have are now in their late teens. Our family isn't a stranger to the disease, and we participate in Great Strides every year on Jonah's behalf. We are very much in need of a compression vest, and if anyone has any ideas, I'd love to hear from you. Momofmop2@yahoo.com
 

Momofmop

New member
I am new to this forum, so I don't know if it is even a reasonable request, but my great-nephew, Jonah, needs a compression vest. They are too expensive for my nephew and his wife, but I wondered what happens to vests that are no longer needed? I thought I would just cast the question out to cyber-space and see if I could find one for him. He is going to be 4 in March. He is a twin, and hisd brother Javan doesn't suffer from the cf gene. I have a younger brother, too, that has two of his girls with cf, but they have are now in their late teens. Our family isn't a stranger to the disease, and we participate in Great Strides every year on Jonah's behalf. We are very much in need of a compression vest, and if anyone has any ideas, I'd love to hear from you. Momofmop2@yahoo.com
 

Momofmop

New member
I am new to this forum, so I don't know if it is even a reasonable request, but my great-nephew, Jonah, needs a compression vest. They are too expensive for my nephew and his wife, but I wondered what happens to vests that are no longer needed? I thought I would just cast the question out to cyber-space and see if I could find one for him. He is going to be 4 in March. He is a twin, and hisd brother Javan doesn't suffer from the cf gene. I have a younger brother, too, that has two of his girls with cf, but they have are now in their late teens. Our family isn't a stranger to the disease, and we participate in Great Strides every year on Jonah's behalf. We are very much in need of a compression vest, and if anyone has any ideas, I'd love to hear from you. Momofmop2@yahoo.com
 

Momofmop

New member
I am new to this forum, so I don't know if it is even a reasonable request, but my great-nephew, Jonah, needs a compression vest. They are too expensive for my nephew and his wife, but I wondered what happens to vests that are no longer needed? I thought I would just cast the question out to cyber-space and see if I could find one for him. He is going to be 4 in March. He is a twin, and hisd brother Javan doesn't suffer from the cf gene. I have a younger brother, too, that has two of his girls with cf, but they have are now in their late teens. Our family isn't a stranger to the disease, and we participate in Great Strides every year on Jonah's behalf. We are very much in need of a compression vest, and if anyone has any ideas, I'd love to hear from you. Momofmop2@yahoo.com
 
M

Mommafirst

Guest
YOu might consider contacting the CFF to see if they have any patient assistance programs they can point you to. Due to the nature of CF cross contamination, I'm not sure how great it would be to give your nephew a used one. I do know that the hill-rom company will give you the unit to use while they finght with insurance. If they are not insured, maybe the company will still work with you.

Sorry I can't help more.
 
M

Mommafirst

Guest
YOu might consider contacting the CFF to see if they have any patient assistance programs they can point you to. Due to the nature of CF cross contamination, I'm not sure how great it would be to give your nephew a used one. I do know that the hill-rom company will give you the unit to use while they finght with insurance. If they are not insured, maybe the company will still work with you.

Sorry I can't help more.
 
M

Mommafirst

Guest
YOu might consider contacting the CFF to see if they have any patient assistance programs they can point you to. Due to the nature of CF cross contamination, I'm not sure how great it would be to give your nephew a used one. I do know that the hill-rom company will give you the unit to use while they finght with insurance. If they are not insured, maybe the company will still work with you.

Sorry I can't help more.
 
M

Mommafirst

Guest
YOu might consider contacting the CFF to see if they have any patient assistance programs they can point you to. Due to the nature of CF cross contamination, I'm not sure how great it would be to give your nephew a used one. I do know that the hill-rom company will give you the unit to use while they finght with insurance. If they are not insured, maybe the company will still work with you.

Sorry I can't help more.
 
M

Mommafirst

Guest
YOu might consider contacting the CFF to see if they have any patient assistance programs they can point you to. Due to the nature of CF cross contamination, I'm not sure how great it would be to give your nephew a used one. I do know that the hill-rom company will give you the unit to use while they finght with insurance. If they are not insured, maybe the company will still work with you.
<br />
<br />Sorry I can't help more.
 

ehtansky21

New member
We actually got ours at no cost thru Hill-Rom. They did an evaluation of our income/expenses and we qualified. What they do, is they bill our insurance as if we were renting it and I guess once they get the amount they desire for the vest, they stop charging our insurance.
Blessings,
Missa
 

ehtansky21

New member
We actually got ours at no cost thru Hill-Rom. They did an evaluation of our income/expenses and we qualified. What they do, is they bill our insurance as if we were renting it and I guess once they get the amount they desire for the vest, they stop charging our insurance.
Blessings,
Missa
 

ehtansky21

New member
We actually got ours at no cost thru Hill-Rom. They did an evaluation of our income/expenses and we qualified. What they do, is they bill our insurance as if we were renting it and I guess once they get the amount they desire for the vest, they stop charging our insurance.
Blessings,
Missa
 

ehtansky21

New member
We actually got ours at no cost thru Hill-Rom. They did an evaluation of our income/expenses and we qualified. What they do, is they bill our insurance as if we were renting it and I guess once they get the amount they desire for the vest, they stop charging our insurance.
Blessings,
Missa
 

ehtansky21

New member
We actually got ours at no cost thru Hill-Rom. They did an evaluation of our income/expenses and we qualified. What they do, is they bill our insurance as if we were renting it and I guess once they get the amount they desire for the vest, they stop charging our insurance.
<br />Blessings,
<br />Missa
 

flatfordl

New member
My husband and I also got a free vest. To this day I am not sure how. It showed up on our porch like a anonymous gift. I called our insurance and asked if they had paid for it, they said no. I called HilRom to see if they were going to send us a bill and they said no.

This may not happen for you but I know a friend of mine has a daughter with CF and they pay only $5 a month for theirs!! The Vest foundation asked what she could afford to pay and they worked it out that way.

Your nephew needs a vest, tell his parents to call the social worker at the CF clinic. Usually the clinics and/or the CF Foundation are wonderful resources in times of need.
 

flatfordl

New member
My husband and I also got a free vest. To this day I am not sure how. It showed up on our porch like a anonymous gift. I called our insurance and asked if they had paid for it, they said no. I called HilRom to see if they were going to send us a bill and they said no.

This may not happen for you but I know a friend of mine has a daughter with CF and they pay only $5 a month for theirs!! The Vest foundation asked what she could afford to pay and they worked it out that way.

Your nephew needs a vest, tell his parents to call the social worker at the CF clinic. Usually the clinics and/or the CF Foundation are wonderful resources in times of need.
 

flatfordl

New member
My husband and I also got a free vest. To this day I am not sure how. It showed up on our porch like a anonymous gift. I called our insurance and asked if they had paid for it, they said no. I called HilRom to see if they were going to send us a bill and they said no.

This may not happen for you but I know a friend of mine has a daughter with CF and they pay only $5 a month for theirs!! The Vest foundation asked what she could afford to pay and they worked it out that way.

Your nephew needs a vest, tell his parents to call the social worker at the CF clinic. Usually the clinics and/or the CF Foundation are wonderful resources in times of need.
 

flatfordl

New member
My husband and I also got a free vest. To this day I am not sure how. It showed up on our porch like a anonymous gift. I called our insurance and asked if they had paid for it, they said no. I called HilRom to see if they were going to send us a bill and they said no.

This may not happen for you but I know a friend of mine has a daughter with CF and they pay only $5 a month for theirs!! The Vest foundation asked what she could afford to pay and they worked it out that way.

Your nephew needs a vest, tell his parents to call the social worker at the CF clinic. Usually the clinics and/or the CF Foundation are wonderful resources in times of need.
 

flatfordl

New member
My husband and I also got a free vest. To this day I am not sure how. It showed up on our porch like a anonymous gift. I called our insurance and asked if they had paid for it, they said no. I called HilRom to see if they were going to send us a bill and they said no.
<br />
<br />This may not happen for you but I know a friend of mine has a daughter with CF and they pay only $5 a month for theirs!! The Vest foundation asked what she could afford to pay and they worked it out that way.
<br />
<br />Your nephew needs a vest, tell his parents to call the social worker at the CF clinic. Usually the clinics and/or the CF Foundation are wonderful resources in times of need.
 
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