My nephew turned 2 months old on Feb. 11, 2004. He has CF but it mostly affects his bowels. So far he has had 3 surgeries to remove blocked bowel. He surgion said that abouit a months before he was born his bowels exploded because the meconium was so thick it couldn't move through his bowels. He has had a feeder placed into the main artery in his neck and they've had to do emergency surgery on that to unclog it. His last bowel surgery was on the 11 (two months old that day) and now he has developed a fistula. Meaning his waste are coming through the cut in his stomach rather than through his bowels like they are supposed to. My sister was told this morning that they would just have to wait and see what happens right now because he's not stronge enough for another surgery. But she was also told that this could seriously poison him and it could deteriorate the skin on his stomach. It doesn't look good for him but we can't lose our hope. If anyone has any info that may help, PLEASE let me know. He's in Johnson City Medical Center in Tennessee and I know that is a good hospital for premies but I wish they would send him to a more qualified hospital or something. I don't know! Thank you.
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Concerned aunt
- Thread starter anonymous
- Start date
Thank you for the prayers, they mean a lot. He is doing better. An austomy team were supposed to put something on his stomach today to protect it from damage from his wastes. He isn't as irratable as he was and he's trying to play again. We just hope that soon he'll be well enough to come home but it doesn't look like that will happen in the near future. He is doing somewhat better though and every little bit helps. Thank you!
I am glad to hear that your nephew is doing better. Your family will continue to be in my prayers. Once your nephew in stronger his parents may want to consider having him transferred to a hospital that has a Cystic Fibrosis Care Center. Go to www.cff.org to find the closest location. Praying for his recovery<><
Just got great news and I have to share it with everybody!! Logan is doing a lot better. For the first time my sister got to hear the word home. They are going to start feeding him today and if all goes well he may come home soon. Not before Monday though because he has a slight bend in one of the tubes from his kidney's to his bladder and they're going to try to straighten it out. They said that that is nothing compared to what he's been through already. I'm soooo glad he's getting better. The poor little fella has been through so much. I just that God every minute and thank everyone for their prayers. They are going straight to heaven. Thank you!
That is great news about your nephew! I am Blythe's husband and we went to the OBGYN yesterday. He recommended we have sonograms done every two weeks to look for the possibility of a meconium blockage. Our genetic doctor said it would show up as a bright section in the babies abdomen.
My sister was going into preterm labor and they noticed that she had an abnormal amount of fluid (too much) and realized that there was an obstruction in his bowels. That's how they first found out that something was wrong with my sister's baby. They had no idea that either of them were carriers of CF. Now they know that if they do have another child that the chance of it having CF is 1 in 4 or 25%. She said they were not even going to try to have another baby for several reasons. I don't know what the future holds for them but she gets to nurse him tomorrow. The first time he's nursed since he was a week old. She is beside herself! I'm so happy he's getting better. Thank you all again for your prayers.