Hi just wondering if anyone can tell me what it is like to have cf and to luck after a baby/child with cf. My cousin is 21 weeks pregnant with twin girls and has just been told they may have cf, any info would be most greatful jane
The first thing to know is that CF is different in everyone. There is no textbook case. Some people have no symptoms until they are adults. Some have a rough start. Advances are being made for CF all the time. IF these babies have CF their life will have medicines and cures that are not available now. Always keep the faith and never give up hope. ALL babies are blessings!!
Life with CF is different than what your cousin probably planned for. I am the mother of a CF child and feel fortunate to have her. Our family appreciates each moment together. Yes there are a lot of meds and therapy is done daily but other than that she is a normal child. She participates in many activities and will be attending school in the Fall. It is difficult when she gets a cold and we always worry about her and what lies ahead. Although I do not wish my daughter to have a chronic illness it is part of who she is and we would not change that for the world.I think the first step is to find out for sure if the children do have CF and take it from there. This is a good place to go for advice and support.Although I wish
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