Concerrn for friend

PlumPerfect · Jul 3, 2009

Okay so My son is a year but I think I know quit a bit of the cf stuff and I have never ever seen cf Poop till my son. My friends son is 3 and he was a premie and this is why the dr. excuses alot of his "symptom" which may or may not be valid. I changed he boys diaper the other week and it was deff. cf poop to me. I have always noticed his belly sticks out and he always has a cough or rattle in his chest. I remember when we all started hanging out that they were shocked to hear about Brandon having cf and they were talking to their familys and they both were told it was in both the husband and wife's family. after hearing that and just putting together everything about him I just think that its very likely.I told them my concern and told them till they find out that our two should not be real close to each other( no hugs or kisses or anything) I pretty much treat it almost as if he does have it. They brought it up to the dr. because they already had an appointment because he constantly blows out his diapers and they are very fowl. She tested him for a gluten allergy. does that even happen with a gluten allergy? I can see more frequent or loose bowl movements, but not like this boy. I just told her that I would feel better if theye push the testing to their dr. they have a reason with both them having family history. Am I being crazy or is this mainly symtomatic of cf?

PlumPerfect · Jul 3, 2009

Okay so My son is a year but I think I know quit a bit of the cf stuff and I have never ever seen cf Poop till my son. My friends son is 3 and he was a premie and this is why the dr. excuses alot of his "symptom" which may or may not be valid. I changed he boys diaper the other week and it was deff. cf poop to me. I have always noticed his belly sticks out and he always has a cough or rattle in his chest. I remember when we all started hanging out that they were shocked to hear about Brandon having cf and they were talking to their familys and they both were told it was in both the husband and wife's family. after hearing that and just putting together everything about him I just think that its very likely.I told them my concern and told them till they find out that our two should not be real close to each other( no hugs or kisses or anything) I pretty much treat it almost as if he does have it. They brought it up to the dr. because they already had an appointment because he constantly blows out his diapers and they are very fowl. She tested him for a gluten allergy. does that even happen with a gluten allergy? I can see more frequent or loose bowl movements, but not like this boy. I just told her that I would feel better if theye push the testing to their dr. they have a reason with both them having family history. Am I being crazy or is this mainly symtomatic of cf?

PlumPerfect · Jul 3, 2009

Okay so My son is a year but I think I know quit a bit of the cf stuff and I have never ever seen cf Poop till my son. My friends son is 3 and he was a premie and this is why the dr. excuses alot of his "symptom" which may or may not be valid. I changed he boys diaper the other week and it was deff. cf poop to me. I have always noticed his belly sticks out and he always has a cough or rattle in his chest. I remember when we all started hanging out that they were shocked to hear about Brandon having cf and they were talking to their familys and they both were told it was in both the husband and wife's family. after hearing that and just putting together everything about him I just think that its very likely.I told them my concern and told them till they find out that our two should not be real close to each other( no hugs or kisses or anything) I pretty much treat it almost as if he does have it. They brought it up to the dr. because they already had an appointment because he constantly blows out his diapers and they are very fowl. She tested him for a gluten allergy. does that even happen with a gluten allergy? I can see more frequent or loose bowl movements, but not like this boy. I just told her that I would feel better if theye push the testing to their dr. they have a reason with both them having family history. Am I being crazy or is this mainly symtomatic of cf?

PlumPerfect · Jul 3, 2009

Okay so My son is a year but I think I know quit a bit of the cf stuff and I have never ever seen cf Poop till my son. My friends son is 3 and he was a premie and this is why the dr. excuses alot of his "symptom" which may or may not be valid. I changed he boys diaper the other week and it was deff. cf poop to me. I have always noticed his belly sticks out and he always has a cough or rattle in his chest. I remember when we all started hanging out that they were shocked to hear about Brandon having cf and they were talking to their familys and they both were told it was in both the husband and wife's family. after hearing that and just putting together everything about him I just think that its very likely.I told them my concern and told them till they find out that our two should not be real close to each other( no hugs or kisses or anything) I pretty much treat it almost as if he does have it. They brought it up to the dr. because they already had an appointment because he constantly blows out his diapers and they are very fowl. She tested him for a gluten allergy. does that even happen with a gluten allergy? I can see more frequent or loose bowl movements, but not like this boy. I just told her that I would feel better if theye push the testing to their dr. they have a reason with both them having family history. Am I being crazy or is this mainly symtomatic of cf?

PlumPerfect · Jul 3, 2009

Okay so My son is a year but I think I know quit a bit of the cf stuff and I have never ever seen cf Poop till my son. My friends son is 3 and he was a premie and this is why the dr. excuses alot of his "symptom" which may or may not be valid. I changed he boys diaper the other week and it was deff. cf poop to me. I have always noticed his belly sticks out and he always has a cough or rattle in his chest. I remember when we all started hanging out that they were shocked to hear about Brandon having cf and they were talking to their familys and they both were told it was in both the husband and wife's family. after hearing that and just putting together everything about him I just think that its very likely.I told them my concern and told them till they find out that our two should not be real close to each other( no hugs or kisses or anything) I pretty much treat it almost as if he does have it. They brought it up to the dr. because they already had an appointment because he constantly blows out his diapers and they are very fowl. She tested him for a gluten allergy. does that even happen with a gluten allergy? I can see more frequent or loose bowl movements, but not like this boy. I just told her that I would feel better if theye push the testing to their dr. they have a reason with both them having family history. Am I being crazy or is this mainly symtomatic of cf?

LouLou · Jul 3, 2009

You're definitely not crazy, but your pushiness may cost you a friendship. Unfortunately some people would rather live in the dark and do not see the value in advice from a person with specialized knowledge but rather view dr's as God.

If her ped is not testing the child for cf with those symptoms and a family history it is medical neglect. And you can quote me on that one to her. She should push for testing. Does her insurance even require a referrel from the ped for further testing? If she has a PPO she can schedule direct with the CF clinic w/o a referrel I believe. If she wants the ped's backing she could try this approach. Request a referrel for cf sweat testing. If she is declined ask for the ped to put that she declined the parents request for cf testing. The ped will likely NOT want to have that in writing.

Another idea is invite the mom with you to your next cf appt. just to see what it is all about. I don't think she should bring her child b/c that would be too much of a distraction for your child. You could phrase it to her as that you'd love to have her support at the appt. When the dr runs through all the baseline questions (ie how many diapers, what consistancy, cough, etc.) it should help her realize that she may have cf lurking in her house. Then since she's there she can ask a question or two she might have about the testing and get it scheduled.

Good luck! You are being a great friend to her despite that she may feel differently unfortunately. At least you'll have no regrets!

LouLou · Jul 3, 2009

You're definitely not crazy, but your pushiness may cost you a friendship. Unfortunately some people would rather live in the dark and do not see the value in advice from a person with specialized knowledge but rather view dr's as God.

If her ped is not testing the child for cf with those symptoms and a family history it is medical neglect. And you can quote me on that one to her. She should push for testing. Does her insurance even require a referrel from the ped for further testing? If she has a PPO she can schedule direct with the CF clinic w/o a referrel I believe. If she wants the ped's backing she could try this approach. Request a referrel for cf sweat testing. If she is declined ask for the ped to put that she declined the parents request for cf testing. The ped will likely NOT want to have that in writing.

Another idea is invite the mom with you to your next cf appt. just to see what it is all about. I don't think she should bring her child b/c that would be too much of a distraction for your child. You could phrase it to her as that you'd love to have her support at the appt. When the dr runs through all the baseline questions (ie how many diapers, what consistancy, cough, etc.) it should help her realize that she may have cf lurking in her house. Then since she's there she can ask a question or two she might have about the testing and get it scheduled.

Good luck! You are being a great friend to her despite that she may feel differently unfortunately. At least you'll have no regrets!

LouLou · Jul 3, 2009

You're definitely not crazy, but your pushiness may cost you a friendship. Unfortunately some people would rather live in the dark and do not see the value in advice from a person with specialized knowledge but rather view dr's as God.

If her ped is not testing the child for cf with those symptoms and a family history it is medical neglect. And you can quote me on that one to her. She should push for testing. Does her insurance even require a referrel from the ped for further testing? If she has a PPO she can schedule direct with the CF clinic w/o a referrel I believe. If she wants the ped's backing she could try this approach. Request a referrel for cf sweat testing. If she is declined ask for the ped to put that she declined the parents request for cf testing. The ped will likely NOT want to have that in writing.

Another idea is invite the mom with you to your next cf appt. just to see what it is all about. I don't think she should bring her child b/c that would be too much of a distraction for your child. You could phrase it to her as that you'd love to have her support at the appt. When the dr runs through all the baseline questions (ie how many diapers, what consistancy, cough, etc.) it should help her realize that she may have cf lurking in her house. Then since she's there she can ask a question or two she might have about the testing and get it scheduled.

Good luck! You are being a great friend to her despite that she may feel differently unfortunately. At least you'll have no regrets!

LouLou · Jul 3, 2009

You're definitely not crazy, but your pushiness may cost you a friendship. Unfortunately some people would rather live in the dark and do not see the value in advice from a person with specialized knowledge but rather view dr's as God.

If her ped is not testing the child for cf with those symptoms and a family history it is medical neglect. And you can quote me on that one to her. She should push for testing. Does her insurance even require a referrel from the ped for further testing? If she has a PPO she can schedule direct with the CF clinic w/o a referrel I believe. If she wants the ped's backing she could try this approach. Request a referrel for cf sweat testing. If she is declined ask for the ped to put that she declined the parents request for cf testing. The ped will likely NOT want to have that in writing.

Another idea is invite the mom with you to your next cf appt. just to see what it is all about. I don't think she should bring her child b/c that would be too much of a distraction for your child. You could phrase it to her as that you'd love to have her support at the appt. When the dr runs through all the baseline questions (ie how many diapers, what consistancy, cough, etc.) it should help her realize that she may have cf lurking in her house. Then since she's there she can ask a question or two she might have about the testing and get it scheduled.

Good luck! You are being a great friend to her despite that she may feel differently unfortunately. At least you'll have no regrets!

LouLou · Jul 3, 2009

You're definitely not crazy, but your pushiness may cost you a friendship. Unfortunately some people would rather live in the dark and do not see the value in advice from a person with specialized knowledge but rather view dr's as God.
 
 If her ped is not testing the child for cf with those symptoms and a family history it is medical neglect. And you can quote me on that one to her. She should push for testing. Does her insurance even require a referrel from the ped for further testing? If she has a PPO she can schedule direct with the CF clinic w/o a referrel I believe. If she wants the ped's backing she could try this approach. Request a referrel for cf sweat testing. If she is declined ask for the ped to put that she declined the parents request for cf testing. The ped will likely NOT want to have that in writing.
 
 Another idea is invite the mom with you to your next cf appt. just to see what it is all about. I don't think she should bring her child b/c that would be too much of a distraction for your child. You could phrase it to her as that you'd love to have her support at the appt. When the dr runs through all the baseline questions (ie how many diapers, what consistancy, cough, etc.) it should help her realize that she may have cf lurking in her house. Then since she's there she can ask a question or two she might have about the testing and get it scheduled.
 
 Good luck! You are being a great friend to her despite that she may feel differently unfortunately. At least you'll have no regrets!

PlumPerfect · Jul 3, 2009

Thank you for validating me. Today we all went to the zoo and my mom and I said something to the wife and then later I was talking to the husband. I told him he should just tell them to test, he did tell me the gluten test came back normal. When I told him I also said I just really think its important. He said yeah I know your worried about indangering Brandon. I said thats not it at all I said I am worried about your son.m I find it important because its better to know and get help. At this point they have already been exposed to each other so thats out the window and as of right know they just shouldn't be hugging or kissing. I explained all the symptoms that I see in their son and he kept saying, well I am like that though, I asked him if his poop is like that and he said well no not that I just eat alot and generally have a bowl movement shortly after.

I guess I put my 2 cents in and hopefully he realized its not only about Brandon to me.

PlumPerfect · Jul 3, 2009

Thank you for validating me. Today we all went to the zoo and my mom and I said something to the wife and then later I was talking to the husband. I told him he should just tell them to test, he did tell me the gluten test came back normal. When I told him I also said I just really think its important. He said yeah I know your worried about indangering Brandon. I said thats not it at all I said I am worried about your son.m I find it important because its better to know and get help. At this point they have already been exposed to each other so thats out the window and as of right know they just shouldn't be hugging or kissing. I explained all the symptoms that I see in their son and he kept saying, well I am like that though, I asked him if his poop is like that and he said well no not that I just eat alot and generally have a bowl movement shortly after.

I guess I put my 2 cents in and hopefully he realized its not only about Brandon to me.

PlumPerfect · Jul 3, 2009

Thank you for validating me. Today we all went to the zoo and my mom and I said something to the wife and then later I was talking to the husband. I told him he should just tell them to test, he did tell me the gluten test came back normal. When I told him I also said I just really think its important. He said yeah I know your worried about indangering Brandon. I said thats not it at all I said I am worried about your son.m I find it important because its better to know and get help. At this point they have already been exposed to each other so thats out the window and as of right know they just shouldn't be hugging or kissing. I explained all the symptoms that I see in their son and he kept saying, well I am like that though, I asked him if his poop is like that and he said well no not that I just eat alot and generally have a bowl movement shortly after.

I guess I put my 2 cents in and hopefully he realized its not only about Brandon to me.

PlumPerfect · Jul 3, 2009

Thank you for validating me. Today we all went to the zoo and my mom and I said something to the wife and then later I was talking to the husband. I told him he should just tell them to test, he did tell me the gluten test came back normal. When I told him I also said I just really think its important. He said yeah I know your worried about indangering Brandon. I said thats not it at all I said I am worried about your son.m I find it important because its better to know and get help. At this point they have already been exposed to each other so thats out the window and as of right know they just shouldn't be hugging or kissing. I explained all the symptoms that I see in their son and he kept saying, well I am like that though, I asked him if his poop is like that and he said well no not that I just eat alot and generally have a bowl movement shortly after.

I guess I put my 2 cents in and hopefully he realized its not only about Brandon to me.

PlumPerfect · Jul 3, 2009

Thank you for validating me. Today we all went to the zoo and my mom and I said something to the wife and then later I was talking to the husband. I told him he should just tell them to test, he did tell me the gluten test came back normal. When I told him I also said I just really think its important. He said yeah I know your worried about indangering Brandon. I said thats not it at all I said I am worried about your son.m I find it important because its better to know and get help. At this point they have already been exposed to each other so thats out the window and as of right know they just shouldn't be hugging or kissing. I explained all the symptoms that I see in their son and he kept saying, well I am like that though, I asked him if his poop is like that and he said well no not that I just eat alot and generally have a bowl movement shortly after.
 
 I guess I put my 2 cents in and hopefully he realized its not only about Brandon to me.

Concerrn for friend

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