cost of cf carrier testing

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hbollotte

New member
i am pregnant and my fiance was tested after the fact since my doctor insisted. we weren't going to have the test done because it wasn't going to change our mind about keeping the baby. my fiance is healthy and hasn't met his deductible so he will have to pay $500 for this test. i know my sister's husband had the test three years ago and their insurance would not cover the cost of the test and all the had to pay was $114. if anyone has had the test, can you please tell me how much it costs. it's just aggravating that my doctor made him take it and is costing us so much money.

haley 24/cf 16 weeks pregnant <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
H

hbollotte

New member
i am pregnant and my fiance was tested after the fact since my doctor insisted. we weren't going to have the test done because it wasn't going to change our mind about keeping the baby. my fiance is healthy and hasn't met his deductible so he will have to pay $500 for this test. i know my sister's husband had the test three years ago and their insurance would not cover the cost of the test and all the had to pay was $114. if anyone has had the test, can you please tell me how much it costs. it's just aggravating that my doctor made him take it and is costing us so much money.

haley 24/cf 16 weeks pregnant <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
H

hbollotte

New member
i am pregnant and my fiance was tested after the fact since my doctor insisted. we weren't going to have the test done because it wasn't going to change our mind about keeping the baby. my fiance is healthy and hasn't met his deductible so he will have to pay $500 for this test. i know my sister's husband had the test three years ago and their insurance would not cover the cost of the test and all the had to pay was $114. if anyone has had the test, can you please tell me how much it costs. it's just aggravating that my doctor made him take it and is costing us so much money.

haley 24/cf 16 weeks pregnant <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JazzysMom

New member
The basic panel is a few hundred, but as you extend the panel it gets more expensive. You could leave a message for Steve from Ambry to get an exact breakdown of cost with each step.
 
J

JazzysMom

New member
The basic panel is a few hundred, but as you extend the panel it gets more expensive. You could leave a message for Steve from Ambry to get an exact breakdown of cost with each step.
 
J

JazzysMom

New member
The basic panel is a few hundred, but as you extend the panel it gets more expensive. You could leave a message for Steve from Ambry to get an exact breakdown of cost with each step.
 
M

Momtana

New member
My son, who inherited DF508 from me, is going to be married. My gut feeling is to test her with the full panel for CF. However, I'm hearing of spouses being given the basic panel. Seems that isn't enough information. Please share your experiences with CF carrier testing.
 
M

Momtana

New member
My son, who inherited DF508 from me, is going to be married. My gut feeling is to test her with the full panel for CF. However, I'm hearing of spouses being given the basic panel. Seems that isn't enough information. Please share your experiences with CF carrier testing.
 
M

Momtana

New member
My son, who inherited DF508 from me, is going to be married. My gut feeling is to test her with the full panel for CF. However, I'm hearing of spouses being given the basic panel. Seems that isn't enough information. Please share your experiences with CF carrier testing.
 
M

miesl

New member
You NEED to appeal to your insurance.

This isn't some willy-nilly desire to test! It's to find out if your child has a 50% chance of having CF. Early treatment means so much - talk to your CF clinic, see if they will help you fight it.

I would strongly recommend the full Ambry panel for anyone at risk (either a partner of a carrier or a partner of a CFer). I ended up having two mutations (long story, but they are paired mutations on one chromosome so I am a carrier), when I would have expected none. Neither of those mutations would have been picked up on a standard panel.
 
M

miesl

New member
You NEED to appeal to your insurance.

This isn't some willy-nilly desire to test! It's to find out if your child has a 50% chance of having CF. Early treatment means so much - talk to your CF clinic, see if they will help you fight it.

I would strongly recommend the full Ambry panel for anyone at risk (either a partner of a carrier or a partner of a CFer). I ended up having two mutations (long story, but they are paired mutations on one chromosome so I am a carrier), when I would have expected none. Neither of those mutations would have been picked up on a standard panel.
 
M

miesl

New member
You NEED to appeal to your insurance.

This isn't some willy-nilly desire to test! It's to find out if your child has a 50% chance of having CF. Early treatment means so much - talk to your CF clinic, see if they will help you fight it.

I would strongly recommend the full Ambry panel for anyone at risk (either a partner of a carrier or a partner of a CFer). I ended up having two mutations (long story, but they are paired mutations on one chromosome so I am a carrier), when I would have expected none. Neither of those mutations would have been picked up on a standard panel.
 
R

Ratatosk

Administrator
Staff member
DH's cousin was asking me about this -- she was getting the run around from our clinic -- said after two weeks of calling around and getting referred to the University's genetics program, she gave up. So I started calling around -- that reminds me -- the local March of Dimes chapter never got back to me...

So I got the run around -- basically my son's primary CF doctor indicated to the nurse that if anyone wanted to be tested, they should really think long and hard about why they wanted to be tested in the first place -- ummm, hello?! She's planning to have children and worried because DS has CF. Doctor went onto to quote expense -- $600+, probably not covered by insurance.

I contacted someone I met at the Great Strides walk and she indicated her entire family 40+ people all were tested at their local clinic and out of that group only one didn't get the test covered under her insurance.
 
R

Ratatosk

Administrator
Staff member
DH's cousin was asking me about this -- she was getting the run around from our clinic -- said after two weeks of calling around and getting referred to the University's genetics program, she gave up. So I started calling around -- that reminds me -- the local March of Dimes chapter never got back to me...

So I got the run around -- basically my son's primary CF doctor indicated to the nurse that if anyone wanted to be tested, they should really think long and hard about why they wanted to be tested in the first place -- ummm, hello?! She's planning to have children and worried because DS has CF. Doctor went onto to quote expense -- $600+, probably not covered by insurance.

I contacted someone I met at the Great Strides walk and she indicated her entire family 40+ people all were tested at their local clinic and out of that group only one didn't get the test covered under her insurance.
 
R

Ratatosk

Administrator
Staff member
DH's cousin was asking me about this -- she was getting the run around from our clinic -- said after two weeks of calling around and getting referred to the University's genetics program, she gave up. So I started calling around -- that reminds me -- the local March of Dimes chapter never got back to me...

So I got the run around -- basically my son's primary CF doctor indicated to the nurse that if anyone wanted to be tested, they should really think long and hard about why they wanted to be tested in the first place -- ummm, hello?! She's planning to have children and worried because DS has CF. Doctor went onto to quote expense -- $600+, probably not covered by insurance.

I contacted someone I met at the Great Strides walk and she indicated her entire family 40+ people all were tested at their local clinic and out of that group only one didn't get the test covered under her insurance.
 
K

krisjohn53223

New member
I am a 29 y/o with Cf and just had my first baby 4 months ago. Like you, my husband and I did not want to go through the testing for him, but the doctors insisted and his insurance paid. We had the most extensive testing available and if insurance would not have paid it would have cost a few $1000. However, because the test was neccessary since I have CF, insurance paid 100%.
 
K

krisjohn53223

New member
I am a 29 y/o with Cf and just had my first baby 4 months ago. Like you, my husband and I did not want to go through the testing for him, but the doctors insisted and his insurance paid. We had the most extensive testing available and if insurance would not have paid it would have cost a few $1000. However, because the test was neccessary since I have CF, insurance paid 100%.
 
K

krisjohn53223

New member
I am a 29 y/o with Cf and just had my first baby 4 months ago. Like you, my husband and I did not want to go through the testing for him, but the doctors insisted and his insurance paid. We had the most extensive testing available and if insurance would not have paid it would have cost a few $1000. However, because the test was neccessary since I have CF, insurance paid 100%.
 
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LindseyRose

Member
My husband was just tested. Our insurance covered it (at least I think they did, I haven't received a bill yet!!) because it was considered "medically necessary" since I have CF. They probably just did a basic test, though.
 
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LindseyRose

Member
My husband was just tested. Our insurance covered it (at least I think they did, I haven't received a bill yet!!) because it was considered "medically necessary" since I have CF. They probably just did a basic test, though.
 
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