I am a 32 yow/cf/bronchiectasis/mycobacterium abcessus
I have had trouble with hemoptysis since I was diagnosed at age 18. That is how they diagnosed me. I have probably had 10 embolizations over the past 14 years. I cough of blood most of time when I am about to start my period. I have had 4 pretty significant episodes since yesterday mornng. I don't feel like I have an exacerbation. I have been feeling good lately. I am so frustrated that this keeps interupting life. I have a wonderful husband and beautiful 6 year old daughter who I know goes through pain when they see me like this. I just wonder what type of treatments some of you may take for hemoptysis. They are pretty sure I have endimetrial tissue in my lungs, which causes the catamenial hemoptysis. Stress, discouraged, needing new answers...
I have had trouble with hemoptysis since I was diagnosed at age 18. That is how they diagnosed me. I have probably had 10 embolizations over the past 14 years. I cough of blood most of time when I am about to start my period. I have had 4 pretty significant episodes since yesterday mornng. I don't feel like I have an exacerbation. I have been feeling good lately. I am so frustrated that this keeps interupting life. I have a wonderful husband and beautiful 6 year old daughter who I know goes through pain when they see me like this. I just wonder what type of treatments some of you may take for hemoptysis. They are pretty sure I have endimetrial tissue in my lungs, which causes the catamenial hemoptysis. Stress, discouraged, needing new answers...