I know where your coming from with hospitals, I am scared of them myself and have a needle phobia from my only hospital visit when I was 5...I got some doctors/nurses that were in training and they stuck me 12 times with the IV and could never find the vien, they finally gave up and got a real doctor who found the vien first try, but to this day I absolutley hate needles and do w/e I can to avoid getting 1.
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COURTNEY SAID SOMETHING TO ME
- Thread starter Seana30
- Start date
Lung deterioration varies dramatically from patient to patient - if it didn't, docs would be able to predict when we would all be dead or in need of transplant. Like everyone else said - for some people, they lose a few % of lung function a year and it's a gradual decline. For others, a few bad infections and wham! quick decline. it's so individual....
Lung deterioration varies dramatically from patient to patient - if it didn't, docs would be able to predict when we would all be dead or in need of transplant. Like everyone else said - for some people, they lose a few % of lung function a year and it's a gradual decline. For others, a few bad infections and wham! quick decline. it's so individual....
Lung deterioration varies dramatically from patient to patient - if it didn't, docs would be able to predict when we would all be dead or in need of transplant. Like everyone else said - for some people, they lose a few % of lung function a year and it's a gradual decline. For others, a few bad infections and wham! quick decline. it's so individual....
M
MCGrad2006
Guest
Also, sometimes you can go back up...my PFT's fluctuate a lot. I mean they dont usually go higher than a certain point anymore and yes I can notice when they are going down. I dont exactly remember when my lungs started to get involved, I had lots of nasal problems before. I know that my fist hospitalization for my lung related problems was around middle school, and I was able to play field hockey in high school. I have never been a good runner tho, so to use that to gauge when my lungs became involved wouldnt be accurate. A few years ago, when I was diagnosed with MRSA, i had begun to think that decline was just something normal for me. I didnt realize how sick I was (because I had felt that way for so long, I couldnt remember feeling well) until after the IV's. Once I got the IV meds and finally treated the MRSA, I felt like a whole new person. Its so odd, how things can be so different from one CFer to the next.
Also like someone said, it could be related to other things in the environment too. For example, I dont do well in humid weather. I do much better during the winter months because the air is usually drier. Some patients would say the other way around though. Cheer up and hopefully these posts will make you feel better! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Also like someone said, it could be related to other things in the environment too. For example, I dont do well in humid weather. I do much better during the winter months because the air is usually drier. Some patients would say the other way around though. Cheer up and hopefully these posts will make you feel better! <img src="i/expressions/face-icon-small-smile.gif" border="0">
M
MCGrad2006
Guest
Also, sometimes you can go back up...my PFT's fluctuate a lot. I mean they dont usually go higher than a certain point anymore and yes I can notice when they are going down. I dont exactly remember when my lungs started to get involved, I had lots of nasal problems before. I know that my fist hospitalization for my lung related problems was around middle school, and I was able to play field hockey in high school. I have never been a good runner tho, so to use that to gauge when my lungs became involved wouldnt be accurate. A few years ago, when I was diagnosed with MRSA, i had begun to think that decline was just something normal for me. I didnt realize how sick I was (because I had felt that way for so long, I couldnt remember feeling well) until after the IV's. Once I got the IV meds and finally treated the MRSA, I felt like a whole new person. Its so odd, how things can be so different from one CFer to the next.
Also like someone said, it could be related to other things in the environment too. For example, I dont do well in humid weather. I do much better during the winter months because the air is usually drier. Some patients would say the other way around though. Cheer up and hopefully these posts will make you feel better! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Also like someone said, it could be related to other things in the environment too. For example, I dont do well in humid weather. I do much better during the winter months because the air is usually drier. Some patients would say the other way around though. Cheer up and hopefully these posts will make you feel better! <img src="i/expressions/face-icon-small-smile.gif" border="0">
M
MCGrad2006
Guest
Also, sometimes you can go back up...my PFT's fluctuate a lot. I mean they dont usually go higher than a certain point anymore and yes I can notice when they are going down. I dont exactly remember when my lungs started to get involved, I had lots of nasal problems before. I know that my fist hospitalization for my lung related problems was around middle school, and I was able to play field hockey in high school. I have never been a good runner tho, so to use that to gauge when my lungs became involved wouldnt be accurate. A few years ago, when I was diagnosed with MRSA, i had begun to think that decline was just something normal for me. I didnt realize how sick I was (because I had felt that way for so long, I couldnt remember feeling well) until after the IV's. Once I got the IV meds and finally treated the MRSA, I felt like a whole new person. Its so odd, how things can be so different from one CFer to the next.
Also like someone said, it could be related to other things in the environment too. For example, I dont do well in humid weather. I do much better during the winter months because the air is usually drier. Some patients would say the other way around though. Cheer up and hopefully these posts will make you feel better! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Also like someone said, it could be related to other things in the environment too. For example, I dont do well in humid weather. I do much better during the winter months because the air is usually drier. Some patients would say the other way around though. Cheer up and hopefully these posts will make you feel better! <img src="i/expressions/face-icon-small-smile.gif" border="0">
coltsfan715
New member
For me I never really noticed a huge difference when my lung function was higher .. say above 50%. I would end up losing about 10% lung function due to infection before I felt really sick. It wasn't until AFTER IVs and once I got to feeling better that I would say WOW I was really sick.
For me my lung function has declined steadily and slowly over the years .. until the past few years. I have been holding at around 30-35% FEV when well and in the 20s when sick for the past year or year and a half though. I always had times where I would be "okay" for a while meaning I would go in the hospital but I never really lost any lung function. I was about 70-80 in elementary school when I graduated high school (age 17) I was at about 60-65% and now (age 24) I am at 30-35%. I didn't really notice that I couldn't do things as easily as before until I made the drop from 45% to 30-35%. The drop for me happened very quickly so I think that is why I have had a hard time adjusting versus the gradual decline. It is much easier to notice a big drop than a little one.
Has Courtney been sick lately, she may be extra gunky and that may be causing her shortness of breath. I know when I have a bunch of gunk in my lungs I am normally short of breath until I do a treatment and can get that stuff up or get meds to treat it.
Take Care,
Lindsey
For me my lung function has declined steadily and slowly over the years .. until the past few years. I have been holding at around 30-35% FEV when well and in the 20s when sick for the past year or year and a half though. I always had times where I would be "okay" for a while meaning I would go in the hospital but I never really lost any lung function. I was about 70-80 in elementary school when I graduated high school (age 17) I was at about 60-65% and now (age 24) I am at 30-35%. I didn't really notice that I couldn't do things as easily as before until I made the drop from 45% to 30-35%. The drop for me happened very quickly so I think that is why I have had a hard time adjusting versus the gradual decline. It is much easier to notice a big drop than a little one.
Has Courtney been sick lately, she may be extra gunky and that may be causing her shortness of breath. I know when I have a bunch of gunk in my lungs I am normally short of breath until I do a treatment and can get that stuff up or get meds to treat it.
Take Care,
Lindsey
coltsfan715
New member
For me I never really noticed a huge difference when my lung function was higher .. say above 50%. I would end up losing about 10% lung function due to infection before I felt really sick. It wasn't until AFTER IVs and once I got to feeling better that I would say WOW I was really sick.
For me my lung function has declined steadily and slowly over the years .. until the past few years. I have been holding at around 30-35% FEV when well and in the 20s when sick for the past year or year and a half though. I always had times where I would be "okay" for a while meaning I would go in the hospital but I never really lost any lung function. I was about 70-80 in elementary school when I graduated high school (age 17) I was at about 60-65% and now (age 24) I am at 30-35%. I didn't really notice that I couldn't do things as easily as before until I made the drop from 45% to 30-35%. The drop for me happened very quickly so I think that is why I have had a hard time adjusting versus the gradual decline. It is much easier to notice a big drop than a little one.
Has Courtney been sick lately, she may be extra gunky and that may be causing her shortness of breath. I know when I have a bunch of gunk in my lungs I am normally short of breath until I do a treatment and can get that stuff up or get meds to treat it.
Take Care,
Lindsey
For me my lung function has declined steadily and slowly over the years .. until the past few years. I have been holding at around 30-35% FEV when well and in the 20s when sick for the past year or year and a half though. I always had times where I would be "okay" for a while meaning I would go in the hospital but I never really lost any lung function. I was about 70-80 in elementary school when I graduated high school (age 17) I was at about 60-65% and now (age 24) I am at 30-35%. I didn't really notice that I couldn't do things as easily as before until I made the drop from 45% to 30-35%. The drop for me happened very quickly so I think that is why I have had a hard time adjusting versus the gradual decline. It is much easier to notice a big drop than a little one.
Has Courtney been sick lately, she may be extra gunky and that may be causing her shortness of breath. I know when I have a bunch of gunk in my lungs I am normally short of breath until I do a treatment and can get that stuff up or get meds to treat it.
Take Care,
Lindsey
coltsfan715
New member
For me I never really noticed a huge difference when my lung function was higher .. say above 50%. I would end up losing about 10% lung function due to infection before I felt really sick. It wasn't until AFTER IVs and once I got to feeling better that I would say WOW I was really sick.
For me my lung function has declined steadily and slowly over the years .. until the past few years. I have been holding at around 30-35% FEV when well and in the 20s when sick for the past year or year and a half though. I always had times where I would be "okay" for a while meaning I would go in the hospital but I never really lost any lung function. I was about 70-80 in elementary school when I graduated high school (age 17) I was at about 60-65% and now (age 24) I am at 30-35%. I didn't really notice that I couldn't do things as easily as before until I made the drop from 45% to 30-35%. The drop for me happened very quickly so I think that is why I have had a hard time adjusting versus the gradual decline. It is much easier to notice a big drop than a little one.
Has Courtney been sick lately, she may be extra gunky and that may be causing her shortness of breath. I know when I have a bunch of gunk in my lungs I am normally short of breath until I do a treatment and can get that stuff up or get meds to treat it.
Take Care,
Lindsey
For me my lung function has declined steadily and slowly over the years .. until the past few years. I have been holding at around 30-35% FEV when well and in the 20s when sick for the past year or year and a half though. I always had times where I would be "okay" for a while meaning I would go in the hospital but I never really lost any lung function. I was about 70-80 in elementary school when I graduated high school (age 17) I was at about 60-65% and now (age 24) I am at 30-35%. I didn't really notice that I couldn't do things as easily as before until I made the drop from 45% to 30-35%. The drop for me happened very quickly so I think that is why I have had a hard time adjusting versus the gradual decline. It is much easier to notice a big drop than a little one.
Has Courtney been sick lately, she may be extra gunky and that may be causing her shortness of breath. I know when I have a bunch of gunk in my lungs I am normally short of breath until I do a treatment and can get that stuff up or get meds to treat it.
Take Care,
Lindsey
I was never really able to run when I was young, but I could do alot, just get tired easy. I never knew I had CF till this year. My lung problems really hit me hard in December and droped drastically. Now it is a struggel to do alot of things. But I do believe it will come around, now that I am getting treatment. I don't now if this helps at all, from what I have read it affects people so differently.
I was never really able to run when I was young, but I could do alot, just get tired easy. I never knew I had CF till this year. My lung problems really hit me hard in December and droped drastically. Now it is a struggel to do alot of things. But I do believe it will come around, now that I am getting treatment. I don't now if this helps at all, from what I have read it affects people so differently.
I was never really able to run when I was young, but I could do alot, just get tired easy. I never knew I had CF till this year. My lung problems really hit me hard in December and droped drastically. Now it is a struggel to do alot of things. But I do believe it will come around, now that I am getting treatment. I don't now if this helps at all, from what I have read it affects people so differently.
Wow Lindsey same here! In college I had pft's in the 65-75 range and then slowly went down to the 40's after 12 embolizations but in the 40's I had to work at it but I was still able to ride my bike, play raquetball. Now I just reached 30% and I can tell a difference, not able to walk long without needing to stop and catch my breath.
Like others have said it could be several different things weather, nutrition, exercise, weight, etc.... not neccesarily her lungs.
Like others have said it could be several different things weather, nutrition, exercise, weight, etc.... not neccesarily her lungs.
Wow Lindsey same here! In college I had pft's in the 65-75 range and then slowly went down to the 40's after 12 embolizations but in the 40's I had to work at it but I was still able to ride my bike, play raquetball. Now I just reached 30% and I can tell a difference, not able to walk long without needing to stop and catch my breath.
Like others have said it could be several different things weather, nutrition, exercise, weight, etc.... not neccesarily her lungs.
Like others have said it could be several different things weather, nutrition, exercise, weight, etc.... not neccesarily her lungs.
Wow Lindsey same here! In college I had pft's in the 65-75 range and then slowly went down to the 40's after 12 embolizations but in the 40's I had to work at it but I was still able to ride my bike, play raquetball. Now I just reached 30% and I can tell a difference, not able to walk long without needing to stop and catch my breath.
Like others have said it could be several different things weather, nutrition, exercise, weight, etc.... not neccesarily her lungs.
Like others have said it could be several different things weather, nutrition, exercise, weight, etc.... not neccesarily her lungs.