Hi - first time posting. I have an 11 year old daughter. She has recently been diagnosed with an eating disorder (anorexia). We have her in therapy for the issue. I'm trying to get an understanding of how wide spread this is and what other people are doing. Her doctors are talking about a feeding tube if we can't turn this around. This seems to be totally about control for her.
Daughter with CF diagnosed with eating disorder
- Thread starter jb6348
- Start date
beautifulsoul
Super Moderator
Hi there,
I've never experienced this issue before but wanted to chime in and say that I agree with the doctors suggesting a feeding tube. I've had one since I was 11 years old and it has worked well for me. I still have it today and I use it every night. It has kept my weight from dropping dangerously low at times when I've become very sick from lung infections and long hospital stays. If I didn't have it then my health would have declined quickly. Anyway, I think it's a good idea to consider the feeding tube. People with CF specifically need all the calories especially if they are underweight to prevent further problems. I hope you find a treatment routine that works for your daughter.
I've never experienced this issue before but wanted to chime in and say that I agree with the doctors suggesting a feeding tube. I've had one since I was 11 years old and it has worked well for me. I still have it today and I use it every night. It has kept my weight from dropping dangerously low at times when I've become very sick from lung infections and long hospital stays. If I didn't have it then my health would have declined quickly. Anyway, I think it's a good idea to consider the feeding tube. People with CF specifically need all the calories especially if they are underweight to prevent further problems. I hope you find a treatment routine that works for your daughter.
ehtansky21
New member
I have actually worked 6 plus years with adolescents and adults with all types of eating disorders and I have 2 boys with Cystic Fibrosis. Ask away with any questions you have, I would love to help!!! you can just private message me...
blessings,
missa
blessings,
missa
It makes sense to me that it's all about control with her. I wonder whether there's a way to have her take control of her own treatment in some ways. For instance, with my son, we let him choose one treatment a week to take off. It was his choice when to do it--so if he had a sleepover, he could skip the night and just do the treatment the next day when he got home, or if he wanted to sleep in on a school day, he could take off then. The doctors were perfectly happy with that, as it meant he did the other 13 weekly treatments with much less fuss. Kids with CF truly DON"T have enough control over their own bodies, and if this is how your daughter is expressing it, you might need to think creatively about how to let her take control without starving herself.
If the doctors say she needs a feeding tube, you may have to do it--but if you can address the underlying issue and let her gain control in other ways, that would be a happier solution. Good luck with this difficult problem.
If the doctors say she needs a feeding tube, you may have to do it--but if you can address the underlying issue and let her gain control in other ways, that would be a happier solution. Good luck with this difficult problem.
A
all4Eden
Guest
Well Ma'am! We fought the medical staff against that tube thingy. She was around 6 months when they were attempting to do this. Instead, she was drinking alimentun with her milk for a while. When she got older, they switch her with Boost x2 per day. Then we find out that the generic brand Equate has higher vitamins/minerals and higher calories at a cheaper price. Now at 10 years old going at 100 mph, we are watching her diet. Main reason is that she was diagnosed with CFRD. (I call it Bull). As a parent you can control her food intake (as long is hi calorie) and also you can seriously find other alternatives to her problems. We will pray for ya'll....