day in the life of cf

D

drumess

Guest
hi my name is mary and im a senior from chicago recently two of my close friends nieces have passed from cf. i was assigned a paper on any topic so i opted for cf. i have an ok knowledge of cf but what im looking for is the personal view of cf. if you do not mind i wanted to hear what a typical day would is like because i have an idea but i really do not know. another thing that would be a major help is how difficult it has been growing up and being a teen with cf. thank you so much!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
D

drumess

Guest
hi my name is mary and im a senior from chicago recently two of my close friends nieces have passed from cf. i was assigned a paper on any topic so i opted for cf. i have an ok knowledge of cf but what im looking for is the personal view of cf. if you do not mind i wanted to hear what a typical day would is like because i have an idea but i really do not know. another thing that would be a major help is how difficult it has been growing up and being a teen with cf. thank you so much!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
D

drumess

Guest
hi my name is mary and im a senior from chicago recently two of my close friends nieces have passed from cf. i was assigned a paper on any topic so i opted for cf. i have an ok knowledge of cf but what im looking for is the personal view of cf. if you do not mind i wanted to hear what a typical day would is like because i have an idea but i really do not know. another thing that would be a major help is how difficult it has been growing up and being a teen with cf. thank you so much!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

lightNlife

New member
Mary,
Here are some links to articles I have written about what it is like having CF. I hope the paper goes well. Don't forget to have someone edit the rough draft for you before you turn in the final piece!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/122843/cystic_fibrosis_and_goalsetting.html">Cystic Fibrosis and Goal Setting</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.helium.com/tm/184843">Living with an "invisible" illness</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/81704/a_day_in_the_life_of_an_adult_with.html">A Day in the Life of an Adult with CF</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/114350/cystic_fibrosis_and_the_battle_against.html">CF and the Battle Against Bacteria</a>

Please note that these articles are copyrighted and may not be used in part or in whole without reprint permission from me, the author. You can get in touch with me via email L g r a c e 2 1 7 @ sbc global dot net (remove the spaces and replace the dot with .)
 
L

lightNlife

New member
Mary,
Here are some links to articles I have written about what it is like having CF. I hope the paper goes well. Don't forget to have someone edit the rough draft for you before you turn in the final piece!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/122843/cystic_fibrosis_and_goalsetting.html">Cystic Fibrosis and Goal Setting</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.helium.com/tm/184843">Living with an "invisible" illness</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/81704/a_day_in_the_life_of_an_adult_with.html">A Day in the Life of an Adult with CF</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/114350/cystic_fibrosis_and_the_battle_against.html">CF and the Battle Against Bacteria</a>

Please note that these articles are copyrighted and may not be used in part or in whole without reprint permission from me, the author. You can get in touch with me via email L g r a c e 2 1 7 @ sbc global dot net (remove the spaces and replace the dot with .)
 
L

lightNlife

New member
Mary,
Here are some links to articles I have written about what it is like having CF. I hope the paper goes well. Don't forget to have someone edit the rough draft for you before you turn in the final piece!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/122843/cystic_fibrosis_and_goalsetting.html">Cystic Fibrosis and Goal Setting</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.helium.com/tm/184843">Living with an "invisible" illness</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/81704/a_day_in_the_life_of_an_adult_with.html">A Day in the Life of an Adult with CF</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/114350/cystic_fibrosis_and_the_battle_against.html">CF and the Battle Against Bacteria</a>

Please note that these articles are copyrighted and may not be used in part or in whole without reprint permission from me, the author. You can get in touch with me via email L g r a c e 2 1 7 @ sbc global dot net (remove the spaces and replace the dot with .)
 
M

mum2kj

New member
Hi drumess, I'm sorry to hear about your friends nieces <img src="i/expressions/face-icon-small-sad.gif" border="0">

I think the difficulty of being a teen with cf is;

time constraints because of physio, nebs, medicine.

embarrassment from coughing, being skinny, gas, toilet probs.

feeling different from others in yr level.

annoyance at having to take creons in public. my daughter wont take these at school and if in public will be very discrete at taking them.

social shyness and body image, e.g with boys, because of cf, ports, scars, ect.. and them finding out she has cf and a limited life span.

Body image as a girl with cf, e.g being able to find tops and bathers that cover port a cath and scars. also the bloated belly look and having to eat heapz but also wanting a flat tummy.

Being in hospital for weeks at a time and missing out on parties, school, swimming ect...

Hope thats enough.

This is what my daughter deals with.
 
M

mum2kj

New member
Hi drumess, I'm sorry to hear about your friends nieces <img src="i/expressions/face-icon-small-sad.gif" border="0">

I think the difficulty of being a teen with cf is;

time constraints because of physio, nebs, medicine.

embarrassment from coughing, being skinny, gas, toilet probs.

feeling different from others in yr level.

annoyance at having to take creons in public. my daughter wont take these at school and if in public will be very discrete at taking them.

social shyness and body image, e.g with boys, because of cf, ports, scars, ect.. and them finding out she has cf and a limited life span.

Body image as a girl with cf, e.g being able to find tops and bathers that cover port a cath and scars. also the bloated belly look and having to eat heapz but also wanting a flat tummy.

Being in hospital for weeks at a time and missing out on parties, school, swimming ect...

Hope thats enough.

This is what my daughter deals with.
 
M

mum2kj

New member
Hi drumess, I'm sorry to hear about your friends nieces <img src="i/expressions/face-icon-small-sad.gif" border="0">

I think the difficulty of being a teen with cf is;

time constraints because of physio, nebs, medicine.

embarrassment from coughing, being skinny, gas, toilet probs.

feeling different from others in yr level.

annoyance at having to take creons in public. my daughter wont take these at school and if in public will be very discrete at taking them.

social shyness and body image, e.g with boys, because of cf, ports, scars, ect.. and them finding out she has cf and a limited life span.

Body image as a girl with cf, e.g being able to find tops and bathers that cover port a cath and scars. also the bloated belly look and having to eat heapz but also wanting a flat tummy.

Being in hospital for weeks at a time and missing out on parties, school, swimming ect...

Hope thats enough.

This is what my daughter deals with.
 
M

mum2kj

New member
Kayla's typical day is;

get up at 6.30am

Take ciproxin so as to have an empty stomach

take ventolin, and seretide

draw up meds

do hypertonic saline approx 20 mins

exercise on bike and elyptical for 20 mins

flutter for approx 20 mins

inhaled tobramyacin approx 15 mins

Breakfast, toasted sandwich or bacon sandwich and juice

bactrim tablet, enzymes, zantac, vita b deck, garlic tablets,

shower, dress and other girly stuff

school

after school, homework approx 1 hr or more

tea, take bactrim and other meds

telly and msn

ventolin

hypertonic saline
exercise
flutter
tobramyacin

ciproxin tablet

bed at 9.30pm
 
M

mum2kj

New member
Kayla's typical day is;

get up at 6.30am

Take ciproxin so as to have an empty stomach

take ventolin, and seretide

draw up meds

do hypertonic saline approx 20 mins

exercise on bike and elyptical for 20 mins

flutter for approx 20 mins

inhaled tobramyacin approx 15 mins

Breakfast, toasted sandwich or bacon sandwich and juice

bactrim tablet, enzymes, zantac, vita b deck, garlic tablets,

shower, dress and other girly stuff

school

after school, homework approx 1 hr or more

tea, take bactrim and other meds

telly and msn

ventolin

hypertonic saline
exercise
flutter
tobramyacin

ciproxin tablet

bed at 9.30pm
 
M

mum2kj

New member
Kayla's typical day is;

get up at 6.30am

Take ciproxin so as to have an empty stomach

take ventolin, and seretide

draw up meds

do hypertonic saline approx 20 mins

exercise on bike and elyptical for 20 mins

flutter for approx 20 mins

inhaled tobramyacin approx 15 mins

Breakfast, toasted sandwich or bacon sandwich and juice

bactrim tablet, enzymes, zantac, vita b deck, garlic tablets,

shower, dress and other girly stuff

school

after school, homework approx 1 hr or more

tea, take bactrim and other meds

telly and msn

ventolin

hypertonic saline
exercise
flutter
tobramyacin

ciproxin tablet

bed at 9.30pm
 
A

Audz

New member
Well basically my day is taking a few meds in the morning, then doing physio. It's been pretty hard these past few years since growing up as a teen is already hard without having to worry about cf. A lot of people with cf develop depression, which I have which kinda sucks. Knowing that your going to live a lot of a shorter life than all of your mates is hard as well as talking about marriage and children because I don't even know if I'll ever get the oppurtunity too. Yes it's quite frustrating when I'm sick and not being able to have a social life like everyone else, I found I have drifted apart from my friends because of frequent absences at school and that sort of stuff, also the fact they don't know about my cf makes me sort of not me around them since a lot of my life revolves around cf and I can't explain why I'm taking tablets all the time or coughing to them because I don't want them to know because of how they will react and what I will be known as, etc.
Theres alot more i can write but i dont want to bore you <img src="i/expressions/face-icon-small-smile.gif" border="0">
hope that helped
 
A

Audz

New member
Well basically my day is taking a few meds in the morning, then doing physio. It's been pretty hard these past few years since growing up as a teen is already hard without having to worry about cf. A lot of people with cf develop depression, which I have which kinda sucks. Knowing that your going to live a lot of a shorter life than all of your mates is hard as well as talking about marriage and children because I don't even know if I'll ever get the oppurtunity too. Yes it's quite frustrating when I'm sick and not being able to have a social life like everyone else, I found I have drifted apart from my friends because of frequent absences at school and that sort of stuff, also the fact they don't know about my cf makes me sort of not me around them since a lot of my life revolves around cf and I can't explain why I'm taking tablets all the time or coughing to them because I don't want them to know because of how they will react and what I will be known as, etc.
Theres alot more i can write but i dont want to bore you <img src="i/expressions/face-icon-small-smile.gif" border="0">
hope that helped
 
A

Audz

New member
Well basically my day is taking a few meds in the morning, then doing physio. It's been pretty hard these past few years since growing up as a teen is already hard without having to worry about cf. A lot of people with cf develop depression, which I have which kinda sucks. Knowing that your going to live a lot of a shorter life than all of your mates is hard as well as talking about marriage and children because I don't even know if I'll ever get the oppurtunity too. Yes it's quite frustrating when I'm sick and not being able to have a social life like everyone else, I found I have drifted apart from my friends because of frequent absences at school and that sort of stuff, also the fact they don't know about my cf makes me sort of not me around them since a lot of my life revolves around cf and I can't explain why I'm taking tablets all the time or coughing to them because I don't want them to know because of how they will react and what I will be known as, etc.
Theres alot more i can write but i dont want to bore you <img src="i/expressions/face-icon-small-smile.gif" border="0">
hope that helped
 
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