Definition of moderate cf?

[Bumblebee]

Have noticed a few posts where people say i have mild, moderate,
severe CF etc. Where would you say the cut off are?  Is it
just FEV you think, or IV / year or if you can work, etc.
 How do you define yourself and what is your situation.
 Obviously i know what severe CF is and mild but where does
moderate lie?<br>
My mum has always said i have mild CF and i agree but she says
it in a tone of voice like i always will have mild CF (i of course
know i wont), but i get annoyed as i feel the word mild belittles
what i have to do. (My FEV1 is 65%, i have had 6 IV's 1 for holiday
reasons so doesn't count in the last 2 years, i neb twice daily
etc, but i work more than full time.)<br>
So where do you think the distinctions lie or does it even matter
as we all become severe in the end.<br>
xxxxx

 

[Bumblebee]

Have noticed a few posts where people say i have mild, moderate,
severe CF etc. Where would you say the cut off are?  Is it
just FEV you think, or IV / year or if you can work, etc.
 How do you define yourself and what is your situation.
 Obviously i know what severe CF is and mild but where does
moderate lie?<br>
My mum has always said i have mild CF and i agree but she says
it in a tone of voice like i always will have mild CF (i of course
know i wont), but i get annoyed as i feel the word mild belittles
what i have to do. (My FEV1 is 65%, i have had 6 IV's 1 for holiday
reasons so doesn't count in the last 2 years, i neb twice daily
etc, but i work more than full time.)<br>
So where do you think the distinctions lie or does it even matter
as we all become severe in the end.<br>
xxxxx

 

[Bumblebee]

Have noticed a few posts where people say i have mild, moderate,
severe CF etc. Where would you say the cut off are?  Is it
just FEV you think, or IV / year or if you can work, etc.
 How do you define yourself and what is your situation.
 Obviously i know what severe CF is and mild but where does
moderate lie?<br>
My mum has always said i have mild CF and i agree but she says
it in a tone of voice like i always will have mild CF (i of course
know i wont), but i get annoyed as i feel the word mild belittles
what i have to do. (My FEV1 is 65%, i have had 6 IV's 1 for holiday
reasons so doesn't count in the last 2 years, i neb twice daily
etc, but i work more than full time.)<br>
So where do you think the distinctions lie or does it even matter
as we all become severe in the end.<br>
xxxxx

 

[Emily65Roses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Bumblebee</b></i>
or does it even matter
as we all become severe in the end.</end quote></div>

That's my opinion on it.

 

[Emily65Roses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Bumblebee</b></i>
or does it even matter
as we all become severe in the end.</end quote></div>

That's my opinion on it.

 

[Emily65Roses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Bumblebee</b></i>
or does it even matter
as we all become severe in the end.</end quote></div>

That's my opinion on it.

 

[Grl22]

Toatly agree, Mild Moderate Severe, CF is CF you live with it, Get treated for it and eventually Suffer from it, some of us suffer more or earlier than others but i don't think there is a mild modarate or severe case if you find some one with "mild" CF you will find that they still have CF, still have treatments and still think that it Sux!

End of the day CF is CF you have it or you don't

 

[Grl22]

Toatly agree, Mild Moderate Severe, CF is CF you live with it, Get treated for it and eventually Suffer from it, some of us suffer more or earlier than others but i don't think there is a mild modarate or severe case if you find some one with "mild" CF you will find that they still have CF, still have treatments and still think that it Sux!

End of the day CF is CF you have it or you don't

 

[Grl22]

Toatly agree, Mild Moderate Severe, CF is CF you live with it, Get treated for it and eventually Suffer from it, some of us suffer more or earlier than others but i don't think there is a mild modarate or severe case if you find some one with "mild" CF you will find that they still have CF, still have treatments and still think that it Sux!

End of the day CF is CF you have it or you don't

 

[LisaV]

As I wrote in another thread like this.
It alway progresses. It always goes
mild>moderate>severe>"end stage"> death
ALWAYS
The only difference is the speed of the progression.
And the speed can increase over night for rasons that are totally outside of anyone's control. And sometimes folks can even get to "end stage" and then have the progression go to a crawl.

My take is you'll make yourself crazy thinking about it all this way.

Whoever wrote "live each day like it is your last - and the first of many more" had the ticket I think.

 

[LisaV]

As I wrote in another thread like this.
It alway progresses. It always goes
mild>moderate>severe>"end stage"> death
ALWAYS
The only difference is the speed of the progression.
And the speed can increase over night for rasons that are totally outside of anyone's control. And sometimes folks can even get to "end stage" and then have the progression go to a crawl.

My take is you'll make yourself crazy thinking about it all this way.

Whoever wrote "live each day like it is your last - and the first of many more" had the ticket I think.

 

[LisaV]

As I wrote in another thread like this.
It alway progresses. It always goes
mild>moderate>severe>"end stage"> death
ALWAYS
The only difference is the speed of the progression.
And the speed can increase over night for rasons that are totally outside of anyone's control. And sometimes folks can even get to "end stage" and then have the progression go to a crawl.

My take is you'll make yourself crazy thinking about it all this way.

Whoever wrote "live each day like it is your last - and the first of many more" had the ticket I think.

 

[LouLou]

When I've read mild, moderate, severe in medical publications moderate was defined as anyone with and FEV1 less and 70% predicted. Severe was some where down there but as I recall the moderate is a big range. I think the stages helps to keep things in perspective and gains us respect. Me for one looks very healthy but when I can say that by definition I have moderate lung disease it's a wake up call to who ever I tell. I like you had 'mild' for most of my years.

 

[LouLou]

When I've read mild, moderate, severe in medical publications moderate was defined as anyone with and FEV1 less and 70% predicted. Severe was some where down there but as I recall the moderate is a big range. I think the stages helps to keep things in perspective and gains us respect. Me for one looks very healthy but when I can say that by definition I have moderate lung disease it's a wake up call to who ever I tell. I like you had 'mild' for most of my years.

 

[LouLou]

When I've read mild, moderate, severe in medical publications moderate was defined as anyone with and FEV1 less and 70% predicted. Severe was some where down there but as I recall the moderate is a big range. I think the stages helps to keep things in perspective and gains us respect. Me for one looks very healthy but when I can say that by definition I have moderate lung disease it's a wake up call to who ever I tell. I like you had 'mild' for most of my years.

 

[Bumblebee]

Eeep sorry, i've just realised there is a similar topic in the
families thread! doh!  So a slightly different question would
be then - does it bother you to be labelled in such a way and do
you think it belittles the struggle or gives you perspective?
 Thanks to those who have answered<br>
xxxx

 

[Bumblebee]

Eeep sorry, i've just realised there is a similar topic in the
families thread! doh!  So a slightly different question would
be then - does it bother you to be labelled in such a way and do
you think it belittles the struggle or gives you perspective?
 Thanks to those who have answered<br>
xxxx

 

[Bumblebee]

Eeep sorry, i've just realised there is a similar topic in the
families thread! doh!  So a slightly different question would
be then - does it bother you to be labelled in such a way and do
you think it belittles the struggle or gives you perspective?
 Thanks to those who have answered<br>
xxxx

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Bumblebee</b></i>

(My FEV1 is 65%, </end quote></div>

if your FEV1 is 65%, then you're moderate.

>90% is normal lung function
89-70% is mild
69-45% is moderate
<45% is severe

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Bumblebee</b></i>

(My FEV1 is 65%, </end quote></div>

if your FEV1 is 65%, then you're moderate.

>90% is normal lung function
89-70% is mild
69-45% is moderate
<45% is severe